ourporch

Archived Guestbook – Page 2

Love your site.
Will be back to visit often as time permits.
Our support for world ministries keeps us very busy.
Enjoyed your tribute to Dusty. We had our "Angel" a Terri- Poo (looked just like movie star Benjie) for 16 yrs, 11 months when she was attacked by a larger dog. After a long battle we had to put her down in July 1999. We were blessed for many years by this little bundle of joy and
so replaced her in the fall with "Brooke" a 12 pd. Yorkie with silken hair. She unfortunately ran off a neighbours deck while we were away into the "covered" pool and drowned before anyone found her. She was three and a bit.
We now have "Cassidy", a Llaso-Poo at almost 6 months.
We're hoping for a little better fortune for this little one. It is so hard when you lose them.
I'll try to send a picture or two if I can figure out how to do it from your site.
Bless you both for your efforts and sharing so much of God
for others to see.
Best regards,
Alex & Wanda


Alex & Wanda Kilpatrick
Kingston, On Canada - Monday, January 28, 2002 at 18:39:39 (GMT)
Thank you so much for your web site. I suffer from MCS, but of course no one will recognize it. My husband and my boys are very understanding. My husband is a carpenter and I used to work with him. I painted and stained homes. This is when I first developed symptoms. I am sensitive to perfumes,paint,rubber, exhaust fume from cars, lawn mowers.
I have several symptoms. I have chemically induced asthma, mood swings,confusion, chest pain, weakness, headaches, tingling in my arms and neck. Pinesol would porbably kill me if I could not get away from it. I have had problems with work and am presently unemployed because of MCS. I don't wish this to happen to anyone else, but it can happen to anyone at any time. People need to be careful what they say. I am always apoligizing because I can't be around someones perfume or air freshener, etc., but I am the one that has to deal with feeling bad. I cannot go in Hardware Stores, wallpaper places, carpet stores, any new buildings.
I am very fortunate, some people have worse symptoms than me. I really enjoy being around people and helping people, especailly older people, but to some people, I am a nuisance now. It has really helped me to read your web site and to know that there are people that understand.

Barbara Culbertson
Nora, VA USA - Monday, January 28, 2002 at 02:46:57 (GMT)
hi peachpalace, I have mild to moderate mcs and I can use Magick Botanicals ff shampoo(frm Needs)and they have frag free hair spray and gel.
liz
cleveland, oh USA - Sunday, January 27, 2002 at 00:43:57 (GMT)
i just want to say that i am so sorry i looked at dustys page and i cried and cried i hope all of u can get through pet(friends) deaths and god bless you all
Dana
washington, dc USA - Thursday, January 24, 2002 at 01:29:00 (GMT)
After reading a few entries before mine I thought it worth adding a few more comments. I concider myself a realist and a pragmatic person so what I am about to type may get you a little down. Those of you out there who are optimistic enough to believe that your activism will take these harmful substances off the market and that you will ever get fair treatment in the job market better brace yourself. I you were to do what it takes to stop the manufacture and distribution of all the things that cause and inflame MCS you would be starting a literal war. Those who do not suffer as we do will fight tooth and nail to wear perfume, buy plastic, and grow food contaminated by industrial pesticides and herbicides. There are varying degrees of MCS. I just happen to have it bad enough that I can no longer participate in society. It is getting to the point where I have difficulty finding uncontaminated food and water. I have had to resort to eating only home grown garden vegetables and wild meat (Moose, bear, fish). In the future my wife and I hope to get goats to have milk and meat that is not contaminated with steriods, antibiotics, and whatever else they juice them up with. If your MCS gets bad enough you may have to turn into a caveman and crawl into the wilderness like a fugitive. A doctor can not give you a magic pill or surgery to make it go away. The only way to get well is to decontaminate, and that is getting harder and harder to do every year that goes by. I really believe that if poloticians, bussiness men and other powerful people were to try to put a stop to this chemical madness, that there would be some assasins commissioned to quell the "rebellion" against the "plastic age" by terminating anyone impinging on the profit margin of these chemical producers. It is big, real big. It would affect every industry in this country. The profits are to monumental for them to just stop producing it. Certian industries, like palstic fabrication are just impossible to do in a safe manner and still make profits. The EPA advises to have ventilation in these facilities but the real story is that you are still getting poisoned when the fan is on and the door is open at the plasti fab plant. When ever you buy some stupid plastic toy for you child, or an acrylic clothing item you are feeding an industry that kills it's employees. One trick they use is to lay off people after a year or two so that when they get cancer or MCS a few years later it becomes impossible to prove a cause/effect relationship between a previous job and the illness. That is how I get cheated out of suing for damages. It was three years after I moved on from that rotten job in plastics before I figured out I had MCS. By then it is to late to prove that their shop made me sick. I've gone to several doctors trying to get diagnosed but they don't even know what MCS is and blow me off. So I gave up on that course of action and moved to Alaska, hoping that I could live off the land to sustain my pathetic existence. I guess it will just take every one in the whole world getting sick before people will wake up and stop these products from killing us. Most people have to suffer before they will do anything.
Mike Grace
Nenana, Ak USA - Sunday, January 20, 2002 at 05:50:02 (GMT)
When in Iowa I worked in hot plastic vaccuum forming. That is essentially making things out of hot plastic. It nearly ruined my life. I would like to warn any one in the bussiness of plastics to get out. Working with hot plastics will eventually kill you and if it doesn't it will wreck your body. That in combination with other chemicals I worked with has given me what I concider to Be MCS. I can no longer work in most environments and have had to fall back on my wifes noble efforts to support us. It would give me a warm fuzzy feeling if everyone in America would boycott the use of any and all plastic. It is cheap poisenous junk. Whenever you heat up plastic above 200F it starts giving off formaldehyde in massive quantities. Acrylic, dacron, rayon, and all polyesters are nothing more that cloth made of plastic thread. When you wear hot acrylics fresh out of the dryer it will poisen you. Well I could moan a lot longer but I'll spare every one that misery. Sincerely Mike Grace.
Mike Grace
Nenana, Ak USA - Sunday, January 20, 2002 at 05:10:31 (GMT)
Allergists and MD's often do not believe in MCS. I hope I can find some relief soon.
Judy Jarden
Quincy, IL USA - Thursday, January 17, 2002 at 16:55:34 (GMT)
To: The "MCS" Community. It is PAST TIME to "UNITE"!

It Is The Right Thing To Do!

The "MCS" Beacon of Hope Foundation has sent a proclamation to President George W. Bush requesting the month of May to be declared: "MCS" Awareness & Education Month.

To all those who have already signed on in support...we THANK YOU! To Everyone who has yet to do so, we ask you to please sign on in support TODAY.

The public has a right to know about chemically induced illnesses, and that safer choices and practices are readily available.

All Doctors, Lawyers and Merchants who provide services to the Chemically ill community, as well as those concerned about the health & well being of our environment, are also asked to join us in this important mission.

We look forward to reading any comment you might wish to include. "Please" add your name, any credentials & at least the state you reside in. An E-mail address is required, but is not released to the general public. If you do not have access to internet or do not have an email account, you may still sign on by using someone else's email address. To those who do not have access to Internet you may fax us at: 309-294-4921 or 309-407-2541 giving us permission to add your name, state and any comment you want included.

Please forward our websites on to everyone you know, love and care about.

Petition for U.S. Citizens:
http://www.PetitionOnline.com/31032/petition.html

Petition for Non U.S. Citizens:
http://www.petitiononline.com/10862/petition.html

"MCS" Beacon of Hope at: www.ncchem.com/mcsbeacon

If you know of any "Angels" that are willing to make a tax-free donation or volunteer a little of their time, energy and talents to help us help others, please send them our way!

Thanks from your friends at the ìMCSî Beacon of Hope Foundation,

Peggy, Julia and our Volunteer Team: Ingrid, Kathryn, Diane & Linda

Julia Williams
St. Petersburg, fl USA - Wednesday, January 16, 2002 at 15:54:24 (GMT)
Thanks for the good info. It is very good.

God Bless You,

Courtney Mamakeesic

Courtney Mamakeesic
Balmertown`, ON Canada - Monday, January 14, 2002 at 02:16:30 (GMT)
Your site is beautiful!!! Thank you for sharing your story of your 'special little friend. So many love their fur kids so much that it hurts to let them go as with any loved one. I had to say goodnight to my two special fur kids during the last couple of years. My 16 year old Ebony (Ebby--dog, 1983-1999), and my 17 year old Binkie--cat (1983-2000). They both went peacefully in my arms as the star studded night sky turned into the light of dawn. They still live because I took a picture and tucked it into my heart to carry with me always. Thank you again for your beautiful web page--it's now booked marked in my favorites.

http://www.angelfire.com/fl5/usa2001/
and
http://www.angelfire.com/anime3/socks/

Diane
FL USA - Sunday, January 13, 2002 at 13:52:21 (GMT)
hi
kaitlyn
ont, ? USA - Saturday, January 12, 2002 at 19:27:03 (GMT)
WOW!THIS IS GREAT!im a christian too,i think its great that you are using this website to minister to people.ive had CH. for 13yrs now,and its really comforting to find a website with all this info. and someone who understand the condition when everyone else thinks your crazy!i seriously PRAISE GOD for this site.thankyou mark
mark whitelock
laguna niguel, ca USA - Saturday, January 12, 2002 at 02:24:03 (GMT)
Your story was beatiful. Not long ago I had to have my fiend of 13.5yrs go home. She saw me and my second son thru so much; it was horrible. But as I have learned to take it one day at a time. That was in Sept. It is now the new year and I am looking forward to soon looking to see if there is another "furbaby" for us.
cindy aponte
new britain, ct USA - Sunday, January 06, 2002 at 02:33:46 (GMT)
I am glad I found this site, now I have a question for someone. I work in a department store and have observed normally healthy people suddenly becoming quite ill with stomach problems, 2 of them with Chrohns Disease. These are young people too. It has suddenly occurred to me that they may be poisoned by their department which sells, sheets, towels and comforters coming from many places around the world. I want to warn them and my higher ups, but want more info before I do, can someone alert me please. Thanks. Joy
Joy den Otter
Victoria, BC Canada - Wednesday, January 02, 2002 at 19:12:18 (GMT)
When were the trade secrets laws published protecting scented products from government regulation? Some biochemists think that if this law is not overturned soon, our civilization will go down. The people at EPA and FDA think that the situation is alarming. A list of poisonous chemicals and the illnesses they cause can be found at:
wwws.us.ohio-state.edu/~steen/ei/doc/fragrance_chemicals.html
How do we involve the churches in the project of obtaining a federal law regulating scented products?

Sylvia Richey
Fort Myers, FL USA - Wednesday, January 02, 2002 at 13:07:59 (GMT)
For MCS sufferers who are applying for disability benefits, I have put together alot of information about the Social Security Disability process. Please visit www.mcsinfo.homestead.com and share this site with friends who made need help with this ordeal. Thanks! Priscilla
Priscilla Farrell
Rogers, AR USA - Monday, December 31, 2001 at 18:15:35 (GMT)
I ran across your site by accident. What a wonderful wonderful story about Dusty. It broke my heart as I read it, because five years ago this coming January I put my llasa down due to old age and digestive failure. It took me a long time before I could actually let him go. He will always be with me and I know I will see him someday when I cross over the bridge.
Cindy
Charlotte, NC USA - Thursday, December 27, 2001 at 20:35:08 (GMT)
Finding your web site was like a miracle!
Four years ago, after being extremely tired, ill and overworked, suffering from psoriasis, and after a series of tests in the hospital, I was told that I am allergic for formaldehyde (I have to wear special shoes), nickel, phenol and "fragrance mix". Nobody, however, could tell me more about it. Not even the dermatologist. Nobody could name it for me. The doctors did not even tell me to stay away from persons with an overdose of aftershave, gel, deodorant, softener or perfume. I had to find it all out for myself.
It was a colleague at school where I am teaching, a Witness of Jehova, who showed me some articles in their American magazine. And here I learned at last that my allergy had a proper name: MCS.
With that information I tried Internet and got straight into your web site!
It is as if I finally am getting recognition for something that even my house doctor seems to think of that I am "overdoing it a little bit".
I am learning a lot from your site. But most of all: I do not feel so alone anymore!
Thanks!
ATI MUL

( Mrs) Ati Mul
NL-3069 LJRotterdam, Netherlands (Eu) - Thursday, December 20, 2001 at 16:52:12 (GMT)
I am an environmntal physician and educator. I would like to be added to your mailing lists.
Glad to see the hard work is paying off.
Beautiful site.
Gina

Dr. Gina Makris
geneva, il USA - Tuesday, December 18, 2001 at 22:19:32 (GMT)
I LOVED YOUR TRIBUTE TO DUSTY. THE SONG WAS WONDERFUL. I'LL PRAY FOR YOU AND I SYMPATHEISE IN YOUR LOSS. BUTTONS MY LITTLE FUR BABY WAS THE SAME AGE, WHEN WE LOST HIM LAST YEAR. THE PETLOSS SITE HELPED SO MUCH, AND OUR LOCAL PETLOSS SUPPORT GROUP IN COLUMBUS,OH. GOD BLESS YOU AND KEEP YOU TIL YOU MEET DUSTY AT THE RAINBOW BRIDGE. BIG HUGS, PAT "BUTTONS" MOM
PAT "BUTTONS" MOM
COLUMBUS, OH USA - Sunday, December 16, 2001 at 03:32:22 (GMT)
I am having an experience @ work regarding a co-worker and very heavy perfume. She is new and it took me a week to figure out why I was getting awful headaches. The whole office has commented about about it. I work in a retail store that is approx. 6000sqft inside and this perfume can be strongly smelt all day anywhere in the store. I spoke up, offending her, and her comment was "I can smell smoke on you which is no different." I do not smoke at my desk. I go outside, summer or winter, twice a day to smoke and usually have 2 at lunch. Why does cigarette smoke not affect me but perfume does? I am trying to be fair and get all my faxes together before taking this matter to management. Your imput would be greatly appreciated. Thank You!
Jami Perdue
Pratt, KS USA - Thursday, December 13, 2001 at 03:30:08 (GMT)
i have mcs and feel so alone sometimes, my friends try to understand but unless you have this problem it is really difficult. they frequently don't even smell the things that are making me so ill. my family thnks i have a mental problem and that is why i isolate myself.
kim kimbrell
USA - Monday, December 10, 2001 at 19:03:52 (GMT)
I really love the Christian section of your page...I simply think it is a great witness, and I am still exploring it now, reading those scriptures...It's all great! Thanks so much...:)
Ben Godfrey
New Paris, IN USA - Saturday, December 08, 2001 at 22:43:31 (GMT)
I am enjoying your website...I found it as I surfed through the petloss.com website. Your "Dusty" story is beautiful, as is your testimony and your witness. God bless you.
Tammy Holman
Birmingham, AL USA - Saturday, December 08, 2001 at 03:04:22 (GMT)
thankyou
arriel
edmonton, ab canada - Thursday, December 06, 2001 at 23:13:35 (GMT)
I enjoyed your little place
steve barg
calgary, Ab Canada - Wednesday, December 05, 2001 at 15:21:44 (GMT)
Thank you so much for your detailed information. It has helped me understand (Ha), look more into the chemical factors of my illness's MCS,FM,CF, (ME). Thank you Louise
Louise Perron
Langley, B.C. Canada - Saturday, December 01, 2001 at 10:03:50 (GMT)
Dear Sirs (Madam),

I am very interested in your website. Now, I would like to get some new information about fabric softener. I know that it has some effects to our health. Thus, I want to choice some kind of softener that can be minimized bad effective to our health. Could you please give me that information?

Best regards,

D.H.Thuan

Dang Huu Thuan
HCMC, 06 Vietnam - Tuesday, November 27, 2001 at 15:27:39 (GMT)
Thanks for this informative site. I have been wondering for some time if the problems I have are allergy related. But I just thought of perfumes and cleaning products as the culprits. Seems I have a little more eliminating to do in my life ( as much as possible) any way. Thanks again.
B Mains
Versailles, IN USA - Sunday, November 25, 2001 at 11:25:26 (GMT)
Im doing a project on hairspray and its dangers to the enviroment. If anyone has ANY USEFULL INFO. for my project please contact me. I've searched and searched and still can't find anything. PLEASE! HELP!! thanks.
Kid
canada - Friday, November 23, 2001 at 23:22:31 (GMT)
I just wanted to let everyone know that I have moved my MCS site to a new domain that is now my husband's & mine. The new URL is http://www.icgolddesigns.com/mcs/ -- please check out the home page for our business, too @ http://www.icgolddesigns.com -- Thanks
Sharon
Clinton, MS USA - Thursday, November 22, 2001 at 01:39:43 (GMT)
I have just added a new addition to my MCS/EI web site regarding my disease known as Myoclonus. It can be found at http://goldenfiresmcs.vr9.com/myoclonus.html
Thank you!

Sharon
Clinton, MS USA - Friday, November 16, 2001 at 04:07:52 (GMT)
What a blessing to find your site! Thank you so much for sharing your story and providing so much invaluable information on MCS.

I was diagnosed with MCS about 1 1/2 years ago although we think I have suffered from it for years. It broke my heart to recently quit my job as a ministry assistant at The Chapel in Akron, Ohio. I love the people I had the privilege of working with but the upkeep of the very large building was aggravating my condition more and more. As a dear friend said, I was like a canary in a mine. Many people working there have struggled for years with symptoms that indicate it's a sick building. I've tried to educate people but it is quite an up hill battle.

I too rely on my faith in God. I know He has given me this time at home for a purpose and I thank him for that. I have the opportunity to write, enjoy my needlework and spend time with our cats.

My husband has been so wonderful through my illness. His unconditional love and devotion have meant the world to me. He is very protective of me and often notices things he knows will bother me before I notice it myself. Larry and our doctor were encouraging me to quit my job for months before I was ready to make the break. Our financial losses have been and continue to be great but we trust God will see us through.

Thank you so much for the Bible verses you have included on your site. I do have days of discouragement and frustrations due to the limitations I face in what I do, where I go and who I spend time with. It has been especially discouraging when people I love continue to wear perfumes, hair sprays, etc. knowing full well how it will effect me. How I miss their hugs and time with them. Unless someone has lived with this disorder, they cannot fully understand how life changing it is.

I was wondering if you have receiving any kind of treatment for your allergies. Because I am so sensitive to chemicals, many medications and traditional means of treatment simply do not work. Even the non-traditional means of treatment I have tried have only provided limited, short-term relief. I would appreciate your sharing things that have worked for you beyond the non-toxic living suggestions you've provided here.

As an extrovert, I could go on and on but I will say farewell.

Again, thank you for your website. It is a real blessing.


Linda Lamb
Medina , OH USA - Thursday, November 15, 2001 at 13:52:53 (GMT)
A great site! I'm sending the link to all my friends and family. I'm in a business that promotes non-toxic skin care products and all-natural organic supplements. It sounds like a lot of people who have posted on here might benefit from these products. We are proud to promote our products, since we KNOW with certainty that they are 100% safe. Please feel free to email me if you want the website. God Bless!

Betsy Burke
Flint Hill, VA USA - Wednesday, November 14, 2001 at 15:00:16 (GMT)
Jackie,

Thank you for your website. When I returned back to work, I was encouraged that there was someone aiding those with MCS, especially form a Christian perspective. I thank God for many things, but 2 years ago I was simply glad to be alive, thankful that God had spared my life from death and showed me the reason for my failing health over the last 2-3 years. This is my story....for 2-3 years, I had experienced all the classic symptoms of carbon monoxide poisoning, from chronic headaches, fatigue, dizziness, nauseau, ETC- too many problems to mention- I think you may know what I mean. Through doctor visits, in Oct 1999, I was diagnosed with MCS, yet not knowing why? I proceeded to rid my house of all toxins I could, start on vitamins and antioxidants, and read up on MCS. By February 2000, I was having EXTREME difficulty breathing. I started to question the gas heat in our house, as almost every other source of toxins had been eliminated. I remember testing the vents; standing directly over them for 1-2 minutes and nearly passing out. The gas company came out to check the furnace- found nothing and assured us everything was operating properly. The next week, while I was praying thru the night (sleep was intermittent with pain), I felt God telling me to turn off the gas, no matter what the "gas experts" said, no matter that my husband was opposed to being cold, and then I would live. With that resolve, I did. In 2 days, I had relief. Weeks later, we found a crack in the exhaust vent from our hot water heater and furnace. Because I was exposed the most, I suffered the most- except for the cat, who lost all his fur, threw up a lot and had many other symptoms I'm probably not aware of. I had slept over the leak (our bedroom is above the garage), was home all day, seldom getting outside, and was often going in and out of the garage.
Since then we have all been recovering. I must say, it was very frightening at first (like for a year later), all the strange things that were happening to me as I went through "healing crises". But God has been good to bring healing to me and my family and yes, the cat has grown back most his fur.
God has brought me thru a lot and if I could help others with what He has shown me, I'd be glad to. I've learned more about toxins and detoxing than I ever wanted to.

Sherie Simmons
Kent, WA USA - Monday, November 12, 2001 at 18:23:49 (GMT)
Thank you. Thank you. THANK YOU. I just discovered your website. It's THE BEST information on MCS that I have found. I have been dealing with this illness since January, 1994. I went through the same thing you did with doctors. I finally discovered for myself what was wrong with me.

I'm already familiar with much of the information in your site, but I've also learned new and important things. I also like your site because it will give me a place to tell friends to go to get a great overview of my illness and also to learn what our environment is doing to them. People think they are "bullet proof" until it happens to them. As you point out, they are all affected to some degree. They just haven't "crashed" yet.

Most importantly it's nice to hear the story of someone who has been through this.

Your website is great in an of itself. The organization, layout and links are terrific. I have only read a small part so far and I'm looking forward to reading the rest.

Thanks again for your fine work.

Cynthia Scott
Houston, TX USA - Saturday, November 10, 2001 at 01:43:09 (GMT)
Thanks for your web site. It helped me understand some of my systoms. Can the FDA test some of the substances mentioned on you web site.
Ken Burkhalter
Conroe, TX USA - Tuesday, November 06, 2001 at 21:17:50 (GMT)
What a interesting website. I got introduced to it through out Pharmocology Class at school. Very interesting. I'll be visiting on a regular basis. A lot of good information. Thanks
Brenda Vassar
Ferryville, WI USA - Tuesday, November 06, 2001 at 18:34:00 (GMT)
I'm looking for a doctor or a clinic in Minnesota that will diagnose me. I have suffered for 10 years. Thank You
Mary Rand
Thief River, Mn USA - Tuesday, October 30, 2001 at 16:07:25 (GMT)
Hi I would like to hear from anyone who has any info on an established copper or iron overload in their system and how it has contributed or ignited MCS.

I have MCS and just was tested for iron and copper.....dangerously high levels in my blood. I will start phlebotomy next week (blood letting) Anyone ever researched or thought of that as a Link?
THANKS

Suzi
Las Vegas, NV USA - Saturday, October 27, 2001 at 21:37:16 (GMT)
I was recently poisoned from perfume and hospitalized. I have asthma and while doing a breathing treatment my friends neice used my bathroom. After leaving my bathroom I noticed a strong tatse of perfume in my mouth. By this time it was too late I had breathed in several particles of her perfume deep into my lungs. I tasted perfume all night. three hours later I wasa rushed to the hospital my lungs were not functioning and they were not responding to steroids or other treastments the hospital administated. However hours went by and I finally stared to respond a litle bit . I am still on Oxygen because of this childs mistake and will be so for quite sometime. So my point is this if you like perfume use it sparyingly and above all do it in a ventilated area, where it will have a chance to air. Remeber even if you don't think about your own lungs think about others.. Thank you for listening.
Rose Forsythe
lake elsinore, ca USA - Saturday, October 27, 2001 at 09:55:02 (GMT)
I just found out what was wrong with me in July of 2001
after going from specialist to specialist.The only comfort
I get now is being in a control enviroment.I not comfortable
in a social setting.I haven't been to church in three month
because people just do not understand ,just because perfume smell good it is posion to some people.The public need to be educated to the effect of chemicals to the human system.

Lena Solomon
Omaha, NE USA - Monday, October 22, 2001 at 03:11:59 (GMT)
Thanks for such an informative website
Julia
USA - Monday, October 22, 2001 at 00:56:53 (GMT)
THank you for sharing about mcs. I never thought that I would have this, I loved my perfume, the flowers, the smell of fresh grass cut,cleaning chemicals that were lemon scented, candles and now all those pleasures are tormentors to my body. I remember exactly when it first began, the year and week. The pecan trees made me sick with their tags or blooms and then it was more and more down hill, and tormenting to be around the very pleasures, I had enjoyed. People just think it is mild allergies, they do not understand ,unless their immune system is compromised, with Chronic Fatigue immune dysfunction or fibromaylgia or other illnesses.
Sheri
AL USA - Saturday, October 20, 2001 at 03:35:52 (GMT)
SSDI/SSI Survey Results are now posted to www.mcsinfo.homestead.com This info could be invaluable to anyone disabled by MCS/EI/CI and trying to get Soc Sec disability benefits. This is a new website that has alot of other great information...including much of the MCS Info Packet that I provided a few months ago with the sponsorship of CIIN.
Priscilla Farrell
Rogers, AR USA - Friday, October 19, 2001 at 18:19:56 (GMT)
Greetings from Arizona!
Just wanted to make up for errors in my last posting. Spelling error occured for the name of my state, its Arizona (must have been smust in my brain?) Here in Arizona we get a combination of smog and dust (the smog rolls in ovefrom Californian :>)) and with the abundance of Arizona dust we have it turns into smust!
Also, Tucson is not too far to travel to sit in on a support group meeting for MCS sufferers. That's how much I would like to attemd a "face-to-face" interaction with other MCSers/EI people. We could share emotional support.
Would K.O. tell me more about the HEAL group? Is it self-help? Facilitated by a clinician with medical background or knowledgeable about MCS/EI? Please email me again.
Also, anyone wishing to email me with shared experience information is welcome, would like to hear from other states too.
My mask still protects me from people wearing fragances, I wish they'd realize yes, they have a right to wear it, BUT on the other hand, we/I have a right to BREATHE. In my thinking isn't breathing a priority?
Brenda. brennyw@hotmail.com Arizona. USA.

Brenda
AZ USA - Thursday, October 18, 2001 at 08:15:36 (GMT)
Thank you for the website. Now I know, I am not the only one with this. My doctor just recently figure out what was wrong with me. He didn't give me much information about it either. He said it was just an allergy. But noe I know it has a name. Which makes me feel much better. So know I can tell people it. An they won't think I'm making it up.
Jessica Zimmerman
Norwalk, OH USA - Tuesday, October 16, 2001 at 16:10:17 (GMT)
I love this site! Wish I had come across it sooner. Does anyone else in Aeizona want someone to email to and "chat" about our experiences (eg doctors, being in public with masks on, needing o2, etc). Does anyone know of a self-help group in AZ (Maricopa County) for MCS'ers? I've looked and looked and only find one in or around Tucson which is too far for me.
Brenda. Metro Phoenix area, Ariz. brennyw@hotmail.com

Brenda
AZ USA - Sunday, October 14, 2001 at 22:21:11 (GMT)
I am really happy to find this site. I knew I was not the only one with MCS but I had no idea that there were so many.
Everyone at my job thinks I am selfish and nuts. Thank you for this website.

Bev
W. Hempstead, NY USA - Sunday, October 14, 2001 at 00:14:07 (GMT)
Thank you for posting this site.

I have MCS - but not nearly as severely as yours was when you finally put all the clues together. Mine is moderate by comparison. I get the hot face, flushed face, dizziness and mental confusion as well as inflammation in soft tissues and joint pain. And fatigue of course - not debilitating, but chronic.

Thanks to your site, which I have visited often, I know what my triggers are. I've removed all the chemicals from my bathroom and kitchen. I clean my house with baking soda, borax and vinegar. My vacuum has a hepa filter. My clothes are 100% cotton or wool. We have NO particle board furniture at all.

We are looking at building a new home in the next year and are already factoring my MCS into the cost of building. There will be no particle board, no carpeting or vinyl linoleum of any kind. Just hardwood, tile and logs. I'm really looking forward to it. I know I'll feel so much healthier once I'm out of this living space.

I, too, have to wear a mask when I go out - perfume sensitivity. I take the bus to work and lately the university students have made that ride difficult with perfume being in fashion. My office isn't the best environment but the windows open, allowing for fresh air intake. And the university campus is a huge green space, so the air is very fresh as compared to working downtown.

Anyway, thanks for your page and the resources you have listed. You've helped me so much. You've helped me more than any of my doctors have!

Victoria
Victoria, BC Canada - Tuesday, October 09, 2001 at 16:34:18 (GMT)
Just wanted to say Hi! I have this illness and am actually going to work in town ,hopefully I'll be able to stay there. I am not as bad as some people yet but I do have to stay away from alot of things. When I did the interview nothing bothered me (and I am a fast reactor) but anyway I share in your Christian Faith and praise the Lord for a web-site such as yours,I just hope that many more people in this world start using less toxic products because this illness is hard to live with.
Cindy Grimm
Giddings, Tx USA - Saturday, October 06, 2001 at 17:08:17 (GMT)
your sight is beautiful and it has blessed my spirit
karmen
USA - Friday, October 05, 2001 at 17:27:19 (GMT)
I visited your website because it was crossreferenced with the sulfite sensitive folks. Like the other folks who write on that website, I hope to find solice in knowing that I am not alone in my "illness" although I am pretty defenseless...
Margie Salazar
San Antonio, TX USA - Thursday, October 04, 2001 at 13:41:47 (GMT)
I appreciate the effort you put into explaining how "Trust in the Lord" cemments our relationship with Jesus, God, our savior. This is the best explanation I have read.

God Bless You

Darrell Spencer
San Francisco, USA - Sunday, September 30, 2001 at 02:35:53 (GMT)
I have MCS and when I found this web site I felt that I was not alone. So many people are affected by it .We moved from PA. 7yrs. ago for our daughters health and she got better and one night as I walked outside the mosquitio control truck sprayed me full force and I haven't been the same since then.I started to have all kinds of different systems with my body and when I mentioned about the spraying doctors told me that it was not harmful. Now I cant handle anything when it comes to any kind of frangences and chemical. This web page is wonderful I now know it's not all in my head. God Bless you all
Natasha Terriere
Holiday, Fl. USA - Friday, September 28, 2001 at 14:40:42 (GMT)
WOW!! I am in the process of finally making the connection and getting treated for what is most certainly MCS. I have been disabled (sick with multiple symptoms) for 13 years now. I'm finally with Drs. who know and can treat my severe allergies and illnesses. Praise God! Thanks for a site that is truly a God-send for me. I now feel like I am not alone.
Sincerely, Beth Le Sieur

Beth Le Sieur
North Beach, MD USA - Friday, September 28, 2001 at 14:21:24 (GMT)
Wow!! An extensive network of resources and information . .
. so much so that I wish I didn't have to wear cotton gloves
to tolerate the keyboard.

Holly Rotman
Holt, MI USA - Thursday, September 27, 2001 at 21:00:34 (GMT)
I was just told about MCS and found your website very interesting. Thanks
Barb Murphy
USA - Tuesday, September 25, 2001 at 16:29:03 (GMT)
I visited your website and was filled with joy by your story, your faith, and your desire to serve others who are suffering with environmental illness. I am working on issues here in Pensacola and would like to share our ideas and thoughts with you. We have an organization called Advocacy for the Chemically Sensitive. As I am a retired attorney (because of MCS) I am trying to use my legal knownledge to help people advocate for their rights under various laws. Education is also a big part of your efforts.
Please keep in contact. God Bless you, Sherri Myers

Sherri Myers
Pensacola, Florida USA - Sunday, September 23, 2001 at 18:21:25 (GMT)
hi my mom has the problenm with perfumes and potpouri and smelly products and she went to a hospital in pennsylvania and the doctor there didnt believe her and thought something from her childhood that she smells triggers these attacks on. and they thought she was crazy and i am happy to see so many people that know that something is wrong. i am doing a report for school on this and if you have any information on this or any other i should say, i would be greatful if you could send it to me thank you very much.
Kelly

Kelly O'Leary
Bellmawr, nj USA - Thursday, September 20, 2001 at 14:28:36 (GMT)
my sister sent me this site. i like it
linda l. howard
findlay, OH United States - Sunday, September 16, 2001 at 00:10:35 (GMT)
Found your website while looking for information on MCS. It is nice to know others can relate to this problem since most people act like I am crazy when I say anything about being sensitive to smells.
Kittie
Sherman, TX USA - Tuesday, September 11, 2001 at 03:02:41 (GMT)
I was diagnosed in 1999 after getting some chemicals on me while at work to be allergic to para-phenylenediamine. This is hard to stay away from especially when it is in gasoline. I know it is getting where I cannot stand to be around perfumes and smelly hand lotions because it takes my breath away. If we all get together and write our Senators, Congressmen and the FDA about our reactions to chemicals hopefully we could get manufacturers to use some less hazardous chemicals. Maybe not look how our Gulf War vets were treated about their MCS complaints. Thank you for caring and having this website to let people know about the things people can face in everyday things.
Nadine Cherry
Landis, NC USA - Thursday, September 06, 2001 at 14:52:31 (GMT)
I have MCS, highly allergic to latex, nickle, cobalt, gold, formaldehyhe, fragrances and some 40 other allergies. I am presently trying to learn what I can about mcs and how to protect myself and inform others. This is great info.
Marjorie Gosse
Blaketown, nf Canada - Wednesday, September 05, 2001 at 13:51:45 (GMT)
Our son started 2nd grade in a new school this year. The start of the 2001-2002 school year was delayed for several weeks in order to complete the new school. Our son shows mild tics but after the first day of school his tic (head shaking) was nearly constant. This went on for the first week of school. Week #2 begins on Tuesday (after labor day) and we have already decided not to put him back in and will start home school until we see a change or determine why the sudden and drastic change. After visiting your web site we plan to contact a qualified allergist ASAP to have him tested. We have seen nutritionist but have not seen a reduction (some times the opposite occurs) in tics when he is taking vitamins (full range - calcium, B, multi, zinc, etc.).

Background:
Our son first showed tics after his 4 yr old vaccinations. He ran a fever (102 degrees) after he received the vaccination. In less than a week he began showing tics (tongue would stick out constantly). After a month we went to see a nutritionist and started detox powders and vitamins. We requested a hair analysis that showed he was toxic in minerals present in the vaccinations.

Ernest Duncan
Spring, TX USA - Tuesday, September 04, 2001 at 01:33:26 (GMT)
Where in N.Florida are you? I visit there often, have family there and plan to retire there in about 5 years.
Donna Inman
USA - Monday, August 27, 2001 at 23:01:58 (GMT)
Thank you for this information. I have candida overgrowth,
fibromyalgia and now inflammatory arthritis. I am
searching for help. I appreciate your strong faith and
commitment. Thank you again. Mary Clare

Mary Clare Kolinski
St. Charles , Il USA - Monday, August 27, 2001 at 17:04:05 (GMT)
I have just written my own story & created a web site for it. You were quite an inspiration to getting my story out there, too. My husband was very supportive of this idea. My page is http://goldenfiresmcs.vr9.com
Sharon

Sharon Pritchard
Clinton, MS USA - Monday, August 27, 2001 at 00:05:02 (GMT)
Phil,
I live in Ireland and used to do all our painting. I cannot do so now and our painters used water based paints by Permoglaze and Crown. I suggest that you use latex based paints instead of oil based paints on the outside of your windows unless you are allergic to latex.. it flexes with the temperature instead of splitting and I wasn't allergic to it.
There is a German lass in Co. Clare, Ireland who makes organic paints. I don't have an address for her.. She was on a TV programme about building houses by RTE in Donnybrook, Dublin.
Good luck,
Sandy

Sandy Perceval
Sligo, Ireland - Saturday, August 25, 2001 at 17:45:26 (GMT)
I found your site link while visiting OO and found your story there to be inspiring to say the least. Thank you for being brave enough to share it with the world. Peace
Whimsy
Devon, PA USA - Saturday, August 25, 2001 at 13:26:54 (GMT)
Thanks for your most excellent website
Dragonballz
Orlando, FL USA - Friday, August 24, 2001 at 19:05:50 (GMT)
I AM TRYING DESPERATELY TO FIND NON-TOXIC PAINTS AS WE ARE IN THE PROCES OF DESCORATING OUR HOME. ONE ROOM HAS BEEN DONE WITH THEMOTHER KIND AND I CANNOT FIND ANYONE IN THIS COUNTRY - THO THERE MUST BE - WHO SUPPLIES THEM. IF YOU KNOW OF A SUPPLIER I WOULD BE GRATEFUL FOR YOUR HELP. GOD BLESS YOU AND YOURS. PHIL SMART
MRS.PHILOMENA SMART
EWELL, SURREY ENGLAND - Friday, August 24, 2001 at 16:11:33 (GMT)
Cool site.
Art Bell
USA - Thursday, August 23, 2001 at 08:20:49 (GMT)
I would like to ask if I could quote your statements out of
your website in our Union paper, the paragraphs titled, No
Perfume Means Healthier Air, Some Toxic chemicals found in
fragrances and As Romantic as Hazardous Waste? Please respond asap. Thanks, April

April Lipstein
Sarasota, FL USA - Tuesday, August 21, 2001 at 23:19:35 (GMT)
Has anyone out there had experience with a 24 HR Holter Monitor Test to show heart irregularities? I am looking for tests that can document my symptoms from exposures for Soc Sec Disability. Heart irregularities is a big problem for me. Then there is my brain dysfunction...but cardiologists are easier to find than neurologists, in my limited experience. Any words of wisdom or experience are welcome. Thanks.
Priscilla
Rogers, AR USA - Saturday, August 18, 2001 at 19:01:43 (GMT)
Nice site...
wallpapers
USA - Wednesday, August 15, 2001 at 22:11:52 (GMT)
Dearest Jacki ... Praise Jesus for having led me to your story on the internet .. Hello from the Westcoast of Florida .. :-) I read with GREAT interest about your "conversion" as it mirrors to some degree my own experience. I "departed" from the catholic church many years ago when I was 16 years old for the VERY same/similiar reasons you have and stated yourself in your story .. "FEAR OF GOING TO HELL" joked and numbed me through my entire childhood and youth as my entire family - all "devout" catholics - forced upon me that "going to church, confessing to priests, attending sacraments, etc etc" for the rest of life was my ONLY way to MAYBE !!! get to heaven ... .. many many years later, that being in 1999, a christian lady who was my supervisor in a temp assignment I was sent to, invited me to "her church" and during my very first visit there, I was saved .. all of that lifelong suppressed desire I had to REALLY know and love Jesus released itself from my heart and soul in an almost unending "river of tears" which I cried relentlessly while being saved ... as you say and I couldn't agree M O R E if I tried, I was finally liberated and FREE to love Jesus as I had always wanted to, but never could/was allowed to! Shortly after I was saved, I learned something MOST important, and that was so fantastic, and that was
that Jesus has always "been" and only took on an earthly body in the womb of his mother mary to be born and accomplish the mission God sent Him to accomplish to redeem mankind .. after I had learned this information which miraculously came to me .. and while day meditating on the word "Savior" in the book of Titus, I had a mind boggling "Jesus nearness" experience .. please click in on my website and read the portion/page called "Dancing with my champion" ..whereon I have documented this experience, I am sure you will enjoy it :-) Since I HAVE been saved, I am still and all searching for a "spiritual home" and, since a catholic church is only about 2 blocks from my home, I started attending services there this past January (old habits die hard ?? Lol lol) out of "convenience" and, after only SIX months of attending, I have once again re-learned that what I have learned and experienced as a Christian, does NOT at all chive/agree with what the catholic church "broadcasts" yes ! "broadcasts" .. for the last couple of days, I have been surfing the net for "answers" and Jesus in His infinite wisdom led me to your story and website .. your story was my so-to-speak "star witness" to convict :-) (I am a paralegal.. lol) and all that you wrote really really spoke to me .. I am going to conduct an in depth search for a new spiritual home .. it might even be a lutheran church .. as I could very much identify with what I read about Lutherans (I am also a native german !) I am sure Jesus will lead me to a new church just as certain as He led me to your website and on this note, I don't want to take up any more space in your visitor remarks page ;-), but want to thank you very very much for sharing your story and experience with the world via the internet .. it has truly aided me in understanding and accepting that I must bid the catholic church farewell for once and all forevermore .. for I have been saved by Grace and am living a life by the very example of Jesus in the bible ...
".. I will reveal myself to those who love and obey me .. " John 14:23 ... Warm regards, Monique on da west coast :-)

Monique
SW of Tampa, FL USA - Tuesday, August 14, 2001 at 03:00:02 (GMT)
Good Info.....I am going to put a link on my site if that is ok. Please visit my website. I have some very interesting information for you.
Sue Kurtz
Blaine, TN USA - Saturday, August 11, 2001 at 16:30:08 (GMT)
I am a 40 yr old mother of 2 that was diagnosed with Myoclonus & EMF Sensitivities due to MCS & EI in 1992. I was pregnant with my youngest child at the time and living in a mobile home. It was placed over a natural gas line with crop dusting outside the door. The bedroom window had an electrical transformer placed 10 ft. away. I went to EHC-D and saw Dr. William Rea. He was the first doctor that was able to really tell me what was wrong. All the others said I was having myoclonus - but couldn't determine the cause since it's not in my brain. (But it is in my head - psychosymatic). My seizures can last from 30 minutes to 4 hours. I would love to talk to others that suffer from myo or EMF.
Sharon Pritchard
Clinton, MS USA - Wednesday, August 08, 2001 at 19:16:07 (GMT)
Has anyone reacted to anesthethia? Sorry can't spell it! Going "under" with gas for surgery.....could it hurt your chemical sensitivity? I am guessing that it could!!
Suz
Las Vegas, NV USA - Tuesday, August 07, 2001 at 03:31:11 (GMT)
I get classical allergic symptoms in response to inhalation and/or skin contact with perfumes,laundry detergents containing fragrance or enzymes, air fresheners, all other scented products, some adhesives, and mothballs (paradichlorobenzene). By classical I mean severe rhinitis, bronchial constriction, swollen eyes, conjunctivitis, earache, headache, and hives. I am a consulting toxicologist by profession and am concerned when sufferers from allergy or chemical sensitivity are on a tirade against chemicals in general. High enough exposures to some substances (such as chloramine, formaldehyde, or cyanide) are acutely toxic to all people. Similarly, exposures to other substances (such as benzene or asbestos) at sufficiently high levels and for sufficiently long durations can produce severe health effects (even cancer) in anyone. But the chemical substances that produce such terrible acute effects in us at extremely low levels of exposure are essentially non-toxic to non-sufferers at those same exposure levels. The sooner we allergic and/or chemically sensitive people stop behaving like angry, ignorant Luddites, the sooner we will begin to obtain cooperation from regulatory agencies (and perhaps manufacturers) in our quest for an environment in which we can move about freely without fear of acute health consequences. We should think of ourselves as handicapped and go about trying to educate the rest of the world about our handicap in an effort to get them to want to stop impairing our health.

I live in Seattle and would love to meet other people in this area who strive to maintain a fragrance-free, allergen-free lifestyle.

Does anyone know of a resource for finding fragrance-free accommodations? In particular I would like to find a hotel or Bed and Breakfast in the San Francisco Bay Area (Berkeley or environs), as I will be traveling there in a few days.

G.G.
Seattle, WA USA - Monday, August 06, 2001 at 06:30:35 (GMT)
I did not know this site even exsisted! I 'am so tired of trying to explain to people and my husband what smells do to me!!!! I can get a headack in less then a minute if i come across a smell weather it be gasoline ,furnture polish, soaps cooking smells! I can not help this. I have m.v.p. and when i come in contact with smells that get me fast it starts the mitrol valve to flare up and then the migrains!!!! If there any thing you can send to me about this to show how bad it can get and it's (not) in my head PLEASE do so. People just do not understand how bad this can be .I can't go into a place to eat or shop with out the fear of if i smell something then what well, i have to leave or i get migrains! or sick to my stomach. My address is 485 otinger drive Horton Ala 35980 phone is 1 (256) 593-8694 THANK'S
Brenda Miller
Horton, AL USA - Saturday, August 04, 2001 at 10:10:21 (GMT)
I am a disabled MCS sufferer going thru the Soc Sec Disability process (SSDI). I am also conducting a survey of others in any part of the SSDI/SSI process past or present. From this info I hope to be able to help others with the process and the outcome of their applications. The survey is on a new site: www.mcsinfo.homestead.com. Please log onto that site to obtain the survey. Deadline for completion has been extended to Sept 25, 2001. The report will be available to the public. Your input could help others. THANKS!
Priscilla Farrell
Rogers, AR USA - Friday, August 03, 2001 at 00:26:07 (GMT)
There are many things in my environment that make me very ill. The other David who posted on 13 July should consider himself very fortunate to not live in a hostile chemical environment.
David Sloan
Temple, TX USA - Thursday, August 02, 2001 at 20:59:17 (GMT)
I have just joined this webring under may soon to be wife's connection with MCS which she is victim of her self. Just wanted to say you have a nice site. I like tweetie COOL.
Daniel A Schreiner
Fordland, MO USA - Sunday, July 29, 2001 at 18:24:45 (GMT)
Loved your site! Very nicely done and lots of good information for the educated and new. Thank you for sharing your knowledge!
Donna Knauss
USA - Wednesday, July 25, 2001 at 02:53:16 (GMT)
Has anyone with MCS suffered with endometriosis? Do you have any theories about dioxin link to it? What about estrogen in drinking water?
Suz
Las Vegas, NV USA - Tuesday, July 24, 2001 at 08:45:53 (GMT)
Allene R. Wahl, Ph.D., C.N.C.
Int'l. Resource Center for Chemically Induced Immune Disorders
Ph. (847) 678-5934 e-mail: allenew@juno.com
True cause of epidemic: http://members.tripod.com/immune_disorders/index.html

Allene Wahl, PhD, CNC
Schiller Park, IL USA - Friday, July 20, 2001 at 11:12:18 (GMT)
Your web site has been of great help.I never realised the dangers in what I use every day.Thank You so much for teaching me what might save my our lives and help use live healther and happier ones.
Alanna L. Lewis
Glen Burnie, MD United States of America - Thursday, July 19, 2001 at 07:24:34 (GMT)
MY WIFE SUFFERS FROM MULTIPLE CHEMICAL SENSITIVITY. SHE HAS
BEEN WORKING AT GA. POWER CO. IN ATLANTA, GA. FOR MANY YEARS. I BELIEVE THE AIR IN THE BUILDING IS BAD. ALSO, HER EXPOSURE TO OTHERS PEOPLE (FRAGERENCES) IN THE BUILDING HAVE TAKEN THEIR TOAL ON HER IMUNE SYSTEM. WE NEED SOME HELP. WHERE DO WE GO NOW? PLEASE ADVISE IF CURES ARE AVAILABLE.

TOM MILLER
MONROE, GA USA - Wednesday, July 18, 2001 at 02:25:02 (GMT)
Hi - I enjoyed your website, the gentle, loving and cheerful tone and the witness for Christ. I've responded to a few of the people on the visitor remarks page - the format seems very helpful. I found your site while trying to help my beloved friend in Calif. who just accidently rented a house at great expense (non-refundable) w/ 18 month lease who has extreme reaction to some chemical there (maybe carpets) so can't move in and I'm floundering about trying to see how to help. It's amazing to me how many people must be "silently suffering" out there, so I'm thinking now how to help them - particularly with inventions, and secondly with info. For now, best wishes. Yours in Christ.

John Shell in Virginia

PS I do wish you would use the King James Bible which I've found to be the best version - it's very more powerful and alive, clearer and easier to memorize scriptures from and more beautiful also, in my experience - it's very wonderful! The other versions in general seem based on messed up Greek texts. The cross references between verses seem much easier to me also. Lord willing, more later, but ... got to run now.

John Shell
Fairfax, VA USA - Tuesday, July 17, 2001 at 19:17:03 (GMT)
It is ashame to read some peoples attacks on the message site. I think this is really a peaceful site that only brings a
person that has been touched by God closer together to inspect the polutions around us. God does have a desire to have a personal relationship with each and everyone of us and he also tells us to ask for Wisdom. Thru meditational
prayer I recieved the answer that my 8 yr old daughter has Tourette Syndrom. I will continue to pray for wisdom and knowledge on this subject.I am just so amazed that I have seen symptoms since she was 3? May God Bless you all.

tracy otley gill
Amish Country, PA USA - Tuesday, July 17, 2001 at 06:20:23 (GMT)
I really liked your site!! It is encouraging!!!
Love in Him, Ginni

Ginni
USA - Monday, July 16, 2001 at 23:39:23 (GMT)
Hulda Clark recommends a parasite cleanse in her book "Cure for ALl Diseases". Alot of information can be found on her website, which I just found, www.huldaclark.com. However, MCS people may have trouble with the products...cloves, black walnut extract and wormwood. This is to add to the info about coffee enemas, liver cleanses, etc. I am trying colon irrigations right now, also called high enemas or colonics. They can also be very helpful in cleaning out parasites and other garbage.
Priscilla Farrell
Rogers, AR USA - Monday, July 16, 2001 at 22:42:23 (GMT)
Just wanted to tell you also what I have found that is helping. This isn't the sweetest subject, but us sufferers are beyond pride and squeemishness. I don't know if you've ever heard of Dr. Max Gerson? He seems to be the one who brought coffee enemas back to light. This treatment really flushes the poisons out of the overburdened liver quickly, which is unable to filter out all the poisons like it is supposed to. Whenever I feel sickness coming on to end up in a bad headache from some fumes I have breathed or from some chemicals I have eaten, I do the coffee treatment as soon as I can. (Which is about everyday now.) This eliminates so much pain I just can't praise God enough for leading me to this. I also have an herbal liver tonic that a friend of mine gives me the herbs to make. This helps especially with any petro-chemical toxin that has entered from breathing. I don't know what herbs are in the mix, but my friend does. I have a suspicion that my liver is clogged up from years of welding, being around auto shops, etc., so I am preparing to do a liver cleanse prescribed by dr. Hulda Clark. But first I have to cleanse my kidneys. If you've never heard of her I strongly recommend her book, "The Cure for All Diseases". It is very simple and you will learn alot.
Also, I have found some relief with NAET: Nambudripad Allergy Elimination Technique, done with EDS: Electro-Dermal Screening, which quickly determines what substances one is allergic to.
Also, people in our weakened state are prime candidates for cancer. I cannot recommend highly enough a book called "World Without Cancer" by G. Edward Griffin. I have personally met him and have followed much of his research for many years. He has an impeccable record for bringing out the truth. More info available at www.VitaminB17.org. I hope this helps, sister.
In Christ,
jeff

jeffrey b. mueller
scottsdale, az USA - Saturday, July 14, 2001 at 03:10:20 (GMT)
I just read your thoughts under "Our Christian Faith" and it sounded like you were reading my story. I, too, suffer from environmental illness and only the Lord is keeping me alive. Thanks for your site and encouragement!
In Christ,
jeff

jeffrey b. mueller
scottsdale, az USA - Saturday, July 14, 2001 at 02:21:49 (GMT)
You're all hyper-sensitive...Why are you attacking perfume? What do you hope to accomplish? What about the sun? The rain? The air? The food you eat? The clothes you wear? How about that CAR you drive to and from church?! The gas you pump into it, the oil? Hmmm... Is your church painted? How about your house? Do you buy things made with plastic or rubber? All of those things will involve dangerous chemicals at some point in the manufacturing process...I know you know this so my question still stands... WHAT DO YOU HOPE TO ACCOMPLISH BY ATTACKING PERFUME? Get over it... I would *much* rather stand next to a person that smelled good than a person who smells of BO!

David
USA - Friday, July 13, 2001 at 03:53:02 (GMT)
qEEG tests (quantitative electroencephalogram) map the brain and have been effective in MCS cases for disability, etc. Has anyone out there had one done and how helpful was it? This test is going to be available at the MCS conference in Aug in Santa Fe and at a reduced fee (if enough people sign up). It is otherwise not available to many of us because it is specialized for MCS sufferers. You don't have to be attending the conference to participate. Would appreciate any input. Thanks. Priscilla
Priscilla
Rogers, AR USA - Thursday, July 12, 2001 at 22:48:16 (GMT)
Thank you for sharing your story. I have for years been struggling with the subject of total surrender to God. This is what lead me to your site. I am not quite sure how to do it or if I should do anything at all. Maybe I should just remain silent for as you say.
Thanks
Aleata

Aleata Holloway
Chicago, IL USA - Wednesday, July 11, 2001 at 14:49:43 (GMT)
I'm asking for chemecal materail under the name(polyestrimdite) please advice me for companies that producing it fastly.
ammar daham

ammar daham
baghdad, bagahada iraq - Wednesday, July 11, 2001 at 08:31:25 (GMT)
I appreciate the work you are putting into the hazards of perfumes. We know from personal experience how much damage perfumes cause.
Tony Brown
Kanata, ON Canada - Tuesday, July 10, 2001 at 12:40:43 (GMT)
I was delighted to find your website. I am a multiple chemical sensitivity sufferer, and am just in the process of trying to change my life.
Miriam Myett
Belgrade, MT USA - Thursday, July 05, 2001 at 18:28:53 (GMT)
great site!
kamal
USA - Thursday, July 05, 2001 at 17:35:45 (GMT)
Diagnosed two years ago with MCS,changed my life,end of my job. looking for a new career! ANY SUGGESTIONS? Medically should be from my own home for best chance of a safe environment.
J. Coates
Vancouver, BC Canada - Thursday, July 05, 2001 at 15:35:29 (GMT)
Trying again as the url didn't show. This is the webring url http://nav.webring.yahoo.com/hub?ring=thevoiceofmcs
Or scroll down the page of my site and you will find the webring The Voice of MCS.

Nancy
Slidell, LA USA - Wednesday, July 04, 2001 at 06:15:31 (GMT)
http://www.needs.com/ THIS IS A SITE THAT CATERS TO MCS PEOPLE THEY CARRY GRANNYS PRODUCTS WHICH HAVE I HAVE BEEN ABLE TO TOLERATE DIDNT KNOW IF STEPHANIE HAD TRIED THESE MAY GOD BLESS
BRENDA
USA - Thursday, June 28, 2001 at 18:15:27 (GMT)
I TOO AM HOMEBOUND DUE TO MCS, EI,. I AM FORTUNATE TO LIVE CLOSE TO DR WILLAIM REA IN DALLAS. THANK YOU FOR YOUR GREAT WEBSITE
BRENDA
LEWISVILLE, TX USA - Wednesday, June 27, 2001 at 22:38:53 (GMT)
I wanted to add that I have been trying to find out how to contact The australian Chemical Trauma Alliance (ACTA).
I wondered if you could help.
My Son, whom I was pregnant with at the time of exposure is also very effected and I would like to see if we can be treated.

Maggie Dickson
Gidgegannup, WA AUSTRALIA - Tuesday, June 26, 2001 at 04:03:53 (GMT)
I have chemical sensitivity/chronic fatigue,
due to being exposed to chemicals produced by a tannery in queensland.

maggie dickson
gidgegannup, wa AUSTRALIA - Tuesday, June 26, 2001 at 03:59:21 (GMT)
Just surfin through and really enjoyed your site!~JIM
Mexico Jim
Santa Rosa, TX USA - Wednesday, June 20, 2001 at 05:03:58 (GMT)
I enjoyed your site. I have been healed by Jesus of over 20 things myself! Praise God!
I would like to be a link also. We have a lot in common.
Maybe they would like Christian Counsel and Prayer Online (CCAPO) also.

Carlotta
Tallahassee , Fl USA - Wednesday, June 20, 2001 at 01:11:58 (GMT)
Thank you for your obedience to our Lord Jesus Christ. I thank you so much for providing this website and info. on environmental sensitivities, but I especially rejoiced when I pulled up your testimony page and realized you were fellow believers. My prayer for you is that the Lord God would continue to fill you with the Knowledge of His will in all wisdom and spiritual understanding, that you may walk worthy and fully pleasing to Him, continually being fruitful in every good work and increasing in the Knowledge of Him....Col. 1:9-12
I am a 43 yr old servant of our Lord Jesus, retired RN, (due to my MS symptoms worsening (1-1/2 yrs ago))and increasingly getting more and more sensitive to certain environments. One of which happens to be our church building which grieves my heart! It is about 100 years old,
located at the beach with no ventilation, air conditioning, just lots of humidity, mold,mildew, musty smells etc. I limit my exposure now to the building because of the triggering symptoms and the residual effects on the MS symptoms for days afterward. I improve greatly when I am not exposed for weeks at a time. But this is difficult to do since the Lord has blessed my husband with serving on the worship team and myself with the Women's Ministry. Monday nights are difficult for me since I am in the building for the Women's study from 6:30pm-9:30pm. It has definitely taken a toll on my health but I can't discern between spiritual warfare or if the Lord wants to move me elsewhere (I am in leadership and lead one of the studies)
Do you have any suggestions? My husband and I attend another bible teaching non-denom church every sat.evening that does have air-conditioning and I feel great when I am there and can consentrate on the message too whereas when I am in the other church building, my CNS symptoms are pretty bad. The difficult thing is that our church that I'm allergic to is in dire need of servants who are grounded in the Word and sold out for Jesus willing to serve (women's ministry esp.) Do you have any input concerning being able to tolerate the environment of the church building..thank you so much for your ministry, In His grip, Dawn

Dawn Marie
Carlsbad, CA USA - Monday, June 18, 2001 at 20:57:49 (GMT)
I'm a Christian with MCS. It has been the most difficult few months I have ever experienced in my whole life. Many times, I have wished for God to take me home, but somehow I know there must be a new beginning for me out of this dark time. I'm clinging on to hope. Thank you for making this site. It has encouraged me greatly.
Jeffrey Ballaro
Charlotte, NC USA - Monday, June 18, 2001 at 03:36:18 (GMT)
I am conducting a survey of MCS SSDI/SSI claimants in the hopes of improving the process and outcome of MCS claims. A report of the findings will be available to the public. To obtain a copy of the survey and/or more information, please 1) go to www.perfectplanner.homestead.com or 2)e-mail me for a copy to be e-mailed back to you. If you have an SSDI/SSI claim in any part of the process, your input could help someone else in the future. Deadline to file surveys is Aug 25, 2001. Thank you for your participation.
Priscilla Farrell
Rogers, AR USA - Sunday, June 17, 2001 at 15:44:11 (GMT)
very interesting,
nweze nweze
lagos, lagos nigeria - Thursday, June 14, 2001 at 22:34:22 (GMT)
Thank you so much for your wonderful website. After years of hearing doctors tell me that there was nothing wrong with my 9 year old son, I think we have finally found the root of our problems. He is allergic to newsprint and certain perfumes. While trying to narrow down the chemicals he has problems with I have come up with Benzophenone, Benzyl Acetate and Benzyl Alcohol. The biggest problem I have now is how to help him in school where his symptoms are the most severe. (headaches, conjestion, exhaustion, irritability) If anyone has any suggestions as to what I could tell his teachers or how I can help them to provide a safe environment for my son, I would greatly appreciate it.
Thanks, Maria

Maria Wyatt
Seminole, Fl USA - Thursday, June 14, 2001 at 14:58:21 (GMT)
Hi, I actually just read your story on the OO web page,
I think it is great that you were finally able
to change your relationship with food, it must be
so freeing not to have food be your main focus in life anymore. I am just stating my journey, well actually it will be almost a year this july that I started eating in responce to hunger, I have managed to lose 90 Lbs. by listening
to my body but it has been a strugle, especially lately,
I think it is because as I lost I started having too much of a self focus and started thinking about dieting again. I would love to hear where you are at with OO, is it still a big part of your life? I hope that sometime in the future you will update your web page with new pictures and where your life has taken you. I will check back soon.

God bless,
Ladybug

Ladybug
Portland, OR USA - Wednesday, June 13, 2001 at 19:05:37 (GMT)
great site!
rajini
USA - Wednesday, June 13, 2001 at 18:39:39 (GMT)
I AM A GULF WAR VET WHO IS LOOKING FOR THE ANSWER TO MINE AND MY FAMILYS ILLNESS. I CAME ACROSS YOUR SIGHT LOOKING FOR SPECT SCAN. I HOPE AND PRAY THAT YOU WILL FIND THE CURE TO YOUR ILLNESS. THANK YOU FOR YOUR INFORMATION.
SINCERELY YOURS ROBB

ROBERT HOLDGE
YUKON, OK USA - Wednesday, June 13, 2001 at 02:41:26 (GMT)
This is a great site!!! I'm going to try to recommend it to my boss so that he can understand what's really going on with the perfume issues I raise to him at work. Thanks for all you've done!!! It's good to know that SOMEONE understands. Be well and rapid healing.
AC
Pound Ridge, NY USA - Thursday, June 07, 2001 at 04:04:32 (GMT)
Jacki,
I was a member of the folk chore and CYA at Sacred heart Catholic Church, Warner Robins, GA in the late 80. Hi, Michelle. Jacki, Please e-mail me I would like to share some of my feelings about the Catholic church.

christine
Headland, AL USA - Thursday, June 07, 2001 at 01:52:12 (GMT)
What a GREAT website! I have asthma but when I switched to non-toxic products, my health improved greatly! I purchase these products at wholesale price and they are terrific! I hope everyone takes this website to heart!
Barrie
GA USA - Tuesday, June 05, 2001 at 04:56:04 (GMT)
Thank you for your site ! I am looking for information on the environmental effect on children with tourettes. We live in Smyrna, Tn. near the Nissan plant and we just have entirely too many children who are demonstrating symptoms of tourette. I feel something is going on and I believe your site was a good place to start. Thank you.
Sue Ford
Smyrna, Tn USA - Monday, June 04, 2001 at 13:17:47 (GMT)
Profession: Safety Engineer (CAN) working in the Middle East
Lack of info on safety concerns with general public
Awareness program for locals on-going (construction Industry). Basic rights - poor.
Product toxins - - a concern (education)

Grant Wilson
Abu Dhabi, United Arab Emirates - Friday, June 01, 2001 at 11:00:08 (GMT)
I'm adding this site to our favorites. My husband suddenly developed a severe case of MCS 4 years ago at my niece's wedding. I thought I was going to have to take him to the hospital as he couldn't breathe, was ashen, foggy, and almost incoherent. Of course the doctors he went to thought he was crazy and had a panic disorder or something, so we had to begin doing research ourselves. As we slowly switched over to healthier products, removed all scents from our home, and found a more sympathetic doctor, he has gradually gotten to the point where he can actually enjoy going to church again and usually can sit through the entire service (unless someone with perfume sits down near him). It has been a long and arduous journey and it's somehow comforting to know that there are others who also struggle to live in a society that simply doesn't understand or even care to understand. What hurts most is when relatives who know and should care come to family events reeking of perfume, clothes softeners, hair products, etc. Thanks for your web site and product information. God bless you. Wendy
Wendy Davis
Hollywood, MD USA - Wednesday, May 30, 2001 at 18:22:57 (GMT)
I live in south fl, I have ms and I am very chemically
sensitive, I am looking for a dr, to help me with this
problem, can you suggest anyone or remedies that will help
me to feel better and detox slowly thank you sharon

sharon M.
coral springs , fl USA - Wednesday, May 30, 2001 at 01:58:44 (GMT)
i was very impressed about jackies story. when my husband and i moved here from pennsylvania for my daughters health i had no idea my whole life would change. we moved here in 1995 not knowing that they do mosquite spraying in our subdivision. on this one night i couldn't figure out what the noise was and i stepped out to see and the mosquite control truck came down the strret and sprayed me full force i ran in the house told my daughter to close all the windows and i took a shower little did i know the damage was done . i started having alot of problems sinuses bladder female problems and sensitive to everything newspaper tar perfumes cleaning products shampoo nail polish nail polish remover and the list goes on. i have been to 6 doctors and the last one is the one that told me i had mcs i did 30 sessions of chelation therphy and 3 colonics but i still am sensitivie to chemical. i need to see a doctor like jackie did. DR. Albert Robbins in Boca Raton but dont they have one closer to where i live in the tampa bay area.i printed the story of jackie for my doctor and for myself to show my husband that there is help out ther for people with mcs thank you so much god bless you all sincerely natasha terriere
natasha terriere
holiday, fl USA - Tuesday, May 29, 2001 at 20:05:03 (GMT)
Gold/Silver filling's and the Amalgum mercury that held the filling's and cap's in have cost me in many way's, the best part's of my life,that is the bottom line !!!
I thank the non proffit group D.A.M.S for there effort's
to inform person's like me !!
Getting my Gold/Silver filling's taken out along with the Root canal's and the cavitation cleaning's done I feel this has given me back some quality life again ,now I can look for my other half ,Pray for me Please!!
Thank You Jim

jim
seattle area, wa USA - Monday, May 28, 2001 at 08:22:16 (GMT)
Hi! I have MCS - I get migranes from the slightest smell of perfumes , chemicals, etc. Anyone out there with this problem - I would love to talk to you.
I am 50 yrs. old and work with this problem for a doctor and am really struggling to live normally. It is getting harder and harder to cope everyday and remain upbeat and cheery. Pls write. Pat

Pat Bergeron
Putnam, Ct USA - Saturday, May 19, 2001 at 20:21:06 (GMT)
I found this web site to be very informative. I have always felt that the way of the world was causing problems for adults as well as children. People complain about second hand smoke,as they stand there with sprays on that will give one an instant headache. I truly believe in what you are saying.
Karen
Pa USA - Saturday, May 19, 2001 at 02:30:43 (GMT)
This site has been so helpful. I recently found replaced all my cleaning products with a non-toxic brand. It is amazing the difference in my moods. My headaches are gone. I always thought is was strange that as I "cleaned" my I felt sick! Thanks for the great info.
Debbie
USA - Thursday, May 17, 2001 at 17:47:51 (GMT)
Are you insane...or just the "Food Police" in disguise...serving double duty...telling us what NOT to eat...what NOT to use.....Last I checked we were not in a communist country....and thank almighty God for the freedom that we have to wear whatever fragrance we choose... as opposed to smelling badly like way too many people do....
Millie
Elizabeth, NJ USA - Monday, May 14, 2001 at 20:36:11 (GMT)
Please send me the free booklets on MCS. I visited the Tourette's Syndrome & EI section as well as all the other catagories. I didn't get through all the articles, but I wil return to finish reading them. I have 2 Children girl-14yrs. boy-9ys. who both have "Tourette Syndrome". My boy also has asthma. We don't have anyone on either side of the family with T.S. but we have alot of allergies on both sides. I can't explain the emotions I experienced reading on the Tourette's & EI. Can you please send me names & PH#'s of Doctor's close to the State of Mo.? I know my children's symptoms are highly related to allergies. In fact my daughter was tested positive to allergins several years ago. She also has ADHD & OCD. I never had her retested because it took 4 people to hold her down for the pric testing at age 4. I could't put her through that again. My son tested negative to the testing although he is on many medications to control his activity enduced asthma. He uses a Ventolin inhaler-2puffs as needed, Intal inhaler-2puffs 3xdly.,Serevent inhaler-2puffs 2xdly,Pulmicort inhaler-2puffs 2xdly,Claritin Redi-Tabs,& Singulair. I planned on getting a 2nd opinion from a childrens Hospital for his asthma but I feel his medicines to treat his asthma may be triggering it, as well as food & who know's what else. He just started vocal & motor tics about 10mo.'s ago. I will now take a different approach for treatment of their symptoms. I'm excited to know that they probably don't have T.S. That may sound strange, but I have been searching for a reason why they have Tourette's. My 12yr. search has now come to an end & I feel very confident that it is connected to environmental & allergies. I want to thank you so much for putting this web site together. Please send the requested info. via e-mail. Thanks for all your information.
Connie.

Connie Helm
Smithville, MO USA - Saturday, May 12, 2001 at 16:58:35 (GMT)
really liking your site, will return later as I must go to bed, soon, bett
BW Kolk
WI USA - Saturday, May 12, 2001 at 03:42:49 (GMT)
In recognition of MCS Awareness Week May 6 - 12, FREE information packets are available re multiple chemical sensitivities. Simply e-mail me the street address where you would like one sent. Sponsored by the Chemical Injury Information Network (CIIN).
Priscilla
Rogers, AR USA - Tuesday, May 08, 2001 at 18:20:12 (GMT)
I found your website very informative. I love the section "Our Christian Faith". I am waiting for my daughter to teach me how to use the support sections. 12 years ago I was diagnosed with Fibrositis. March 27, 2001 I inhaled chemicals at work and have been sick ever since. After smelling floor polish at a restaurant and having a severe reaction I realized that my fibrositis was somehow related and caused by inhaling floor polish daily while at work as a baker. The damage to my body is unbeleivable, sometimes I have the mobility of a 90 year old woman. I suffer all the resperatory problems along with tingling in my legs and hands and the loss of use of my legs, loss of use of my left arm, heart problems, drooling, loss of bladder & bowel control, & difficulty in feeding myself. PTL these things go away and only happen when I come in contact with certain things. Unfortunately I often don't find out till it is too late. I thank God for your willingness to start such a informative website. I pray that God will move the hearts of people to realize what is going on before it is too late. Even my own family thinks that I am overreacting. Thank you for allowing God to use in such an awesome way. God Bless You
Ritta

Ritta Reynders
Surrey, BC CAnada - Monday, May 07, 2001 at 20:56:26 (GMT)
Sorry about the spelling last time. I am so thrilled to find a Christian site such as yours. Because of the sensitvity I have to perfumes, going to church has turned into a chore. Besides being so sick afterwards, there seems to be so few who actually believe there is a problem. Due to allergies, asthma, chemical sensitivity I am unable to work. Do you know of any Christian chat rooms for those of us with MCS? It would be so nice to talk or type with other Christians who share faith in the Lord and their honest struggles and encouragement. Thanks you so much!!
Teresa
va USA - Monday, April 30, 2001 at 20:46:13 (GMT)
Tahnk you so much for your informative wev site. It is a real blessing.
teresa
va USA - Monday, April 30, 2001 at 20:29:01 (GMT)
I hope you can get help soon!
-Matt

Matt
Costa Mesa, CA USA - Monday, April 30, 2001 at 17:38:58 (GMT)
I am writting in hope that I can get someone to help me.
I have reaction to perfume scent at work. I have gone to my Dr.and to my company Dr.for help.My company Dr. is saying that it is a tolerance thing. My company has threatened to
terminat me if I have any more reaction.
My company is GE/Honeywell At 3333 Unity Dr.Mississauge Ontario Canada. L5L 3S6
Please Help Me!

Thank You

Evelyn Frankland
43 Greenbrair Rd.
Brampton, On
Canada L6S 1V8

Evelyn Frankland
Brampton Ontario, Canada - Thursday, April 26, 2001 at 14:48:11 (GMT)
If you have used sun-blocking film on the windows in your house, did you experience any adverse side effects? What other means have you used to keep the heat out of the house? The Arizona sun is merciless. Any information will be gratefully received. Many thanks.
M. H. Miller
Pearce, AZ USA - Monday, April 23, 2001 at 14:37:39 (GMT)
I need to ask a Nurse Midwife if they will answer some of my Questions
Michelle Lowe
Marshall, IL USA - Monday, April 16, 2001 at 21:52:24 (GMT)
Wow...I can hardly believe it is the same website!! You are progressing so much!! I contacted you last year to link with you. I am just feeling well enough again to work on my website. Going has been tough. Hope you have been doing better. You have done a wonderful job. Hope to report that I am ready to link up soon...will probably have a few questions at that time. Really great job.
Happy Resurrection Day!! Love & Prayers Peggy Voss

Peggy Voss
Beresford, SD USA - Friday, April 13, 2001 at 23:22:32 (GMT)
A Big Arizona Hi to all my fellow MCS friends! I am very glad I found this site. Some of you are so much worse than I am and I am praying for you all. I first became aware that something was wrong with me in 1993, when I turned forty. I had been overcome with a pesticide called Durspan. I had never has asthma, just slight pollen allergies that were seasonal and Seldane put them in there place. I was the CEO of the 5th largest Mental Health Program in the Westen states. I had to leave my job because I was getting sicker and sicker. I have a great education but companies only saw me as a liaability not an asset. After 6 years of being sick I finally discovered what I had, MCS. I have spent the last 3 years working for a very large car dealership in telemarketing and internet sales. I earn enough to live and keep my health insurance. I have been recognized by two doctors in my area as having MCS and EI. Neither knows what to do with me, so I do research and tell them what I want done. Currently the MCS has degenerated to the point that I now have Congestive Heart Failure and Kidney failure. Because of these two wonderful bi-products of MCS I have been recognized and protected in my employment and a Disabled Person. They dont like it but they are Reasonably Accomodating me by making our office fragrance free- That means even the cleaning p[roducts. They have also installed a Heppa Filer, extra ventilation and a window. Sometime when I am to ill to work I am able to do somee of my work from home. I dont know the answers to what ails us but I know we need to keepp on going. I have found a soap that iss for Shampoo aand body washing that has no 'Chemicals' in it. It is primarily Aloe and Lanolin - "SO-Soft can be found at www.SO-Soft.com The company is Astro Sales in Pearce Arizona (520)826-4133. Please feel free to contact me at my e-mail address. I would love to hear from people in Arizona!

Kaydee Thomas-Wieszczak
Tempe, Az USA - Sunday, April 08, 2001 at 04:30:32 (GMT)
after exposure to mold in my mobile home, brand new w/lots of formaldehyde, an allergist gave me lots of broad-spectrum antibotics, now I have candida, mcs, food allergies etc. my boss likes to spray lysol, my doctor says i'm not sick enough to be on disability, and i'm becoming the 'incred.shrinking.woman'
debs
USA - Saturday, April 07, 2001 at 00:32:55 (GMT)
great site
seenu
USA - Wednesday, April 04, 2001 at 16:38:00 (GMT)
as i am sitting here typing this i am in the middle of an allergy attack at 3:30 am .people that dont have allergy,s dont understand. i hurt my wifes feelings over her perfume but i cant help it i want allow any kind of perfume in my house because of my allergy but my kids and wife dont understand . i was in adepartment store two years ago and they had sit out potperia and igot sick at my stomach and dizzy and fainted i found out later it was the smell.i am 46 years old and these allergy,s just started about five years ago and i dont understand why i had not been botherd before
blake guinn
hampton, tn. USA - Tuesday, April 03, 2001 at 08:17:56 (GMT)
It certainly brings back memories of my first encounter with allergies to chemicals and can relate to Jacki's Story. I wish they had the internet 20 years ago!!

Sue Harley-Kidd
Port Robinson , Ont Canada - Tuesday, April 03, 2001 at 01:15:44 (GMT)
Thanks for putting together these webpages. I found them quite helpful as I am a new MCS sufferer (altho no doctor wants to admit that). Maybe someday I'll share my story with you too. I was also encouraged by your Christian faith page - great testimony! I am a missionary teacher, and firm believer in Christ. I will pray for you and the ministry you have to others through these webpages. God bless you!
Kathy O'Brien
Tucson, AZ USA - Monday, April 02, 2001 at 00:13:16 (GMT)
I know that there is alot of truth about all of the toxins
we are subjected too.
With the food industry, I think they ought to try to put a little "food in our poison".

Deneece Lamb
Valley Springs, ca USA - Sunday, April 01, 2001 at 10:48:55 (GMT)
I am writing to ask if anyone is on Section 8 housing
and needs accommodations by landlord for disability
and if those accommodations can be reimbursed to
landlord by the public housing authority. I have seen
web sites stating you can ask your local housing authority
to provide the accommodation instead of the landlord but
I have not seen anyone saying or a web site stating the
exact law governing this. Does anyone know? If and when
you are given an extra l20% rent allowance for the disabilty
to find housing is the difference paid by the low income
person or the housing authority to the landlord.

What do you do for pesticides coming into the home
when spraying is being done? I have windows closed
and clothes dryer closed vent taped shut but still get
in house and become very sick and almost paralized.

Any suggestions?

Thanks.

April

April
Toledo, Oh USA - Saturday, March 31, 2001 at 22:06:35 (GMT)
I was searching the web for enlightening information. Thank you.
Cindy Barbeau
Everett, WA USA - Thursday, March 29, 2001 at 00:30:15 (GMT)
Alternate URL with typical Brain-PET from anamn. MCS-Pat. is http://mcscfs.de/pet or http://mcsmed.de/pet
DGMCS
Bayreuth, BY Germany - Wednesday, March 28, 2001 at 17:07:20 (GMT)
I have yet to look at you site.

Kathy Schmersahl
van vleck, Texas USA - Tuesday, March 27, 2001 at 16:33:29 (GMT)
I was at my brother's house the other day and they had a
Glade plug-in in the kitchen where we were sitting. I
noticed the strong smell when I first got there. After
a while, I started feeling very tired and a little dizzy.
Then, my vision started getting blurry and I was seeing
shimmering "halos," and I was having trouble reading the
words in a book my brother was showing me. I had to leave
because my vision was getting worse. I opened the car windows while I was driving home and after about 10 minutes
I felt better and my vision returned to normal.

Audrey Pettengill
Westfield, MA USA - Tuesday, March 27, 2001 at 02:25:20 (GMT)
We have a Slide from a typical anamn. MCS-Patient. Medical PET-Group, from German Cancer Research Center, Heidelberg, URL: http://mcsmed.de/pet.
DGMCS (German MCS-Ass.)
Bayreuth, BY Germany - Monday, March 26, 2001 at 09:36:22 (GMT)
It is great you have a site in which some one can drop in and see how disabled persons maintain in their every day life Stop by our on line discussion group some time!
A Brother In Disability
Bill

William Charles Tinker
Northfield, NH USA - Thursday, March 22, 2001 at 22:32:38 (GMT)
(CAPS DUE TO VISUAL DISABILITY) WONDERFUL AND HELPFUL INFORMATION TO SHOW THOSE WHO DO NOT UNDERSTAND CERTAIN EFFECTS OF ODORS TO THE BRAIN. AFTER HAVING THREE BRAIN SURGERIES FOR ASTROCYTOMA, I CANNOT TOLERATE MANY TYPES OF ODORS. THIS SITE HELPS ME TO EXPLAIN THE SENSITIVITY LEVEL THAT MANY OF US HAVE TO DEAL WITH ON A DAILY BASIS. THANK YOU, JUNE
JUNE L. DONOVAN
MISSION VIEJO, CA USA - Thursday, March 22, 2001 at 19:26:06 (GMT)
Need to know of physicians who specialize in diagnosing MCS.
Edwin Moyer
Terre Hill, PA USA - Wednesday, March 21, 2001 at 21:27:51 (GMT)
Love the sight and info I will be back. Thanks Cowboyup8521. I will try to get more people to this sight.
Mary L. Moyle
Apache Jct., Az. USA - Wednesday, March 21, 2001 at 15:50:32 (GMT)
I am the only one I know of who has an allergy to chicken.I mean the feathers make me cough, they are in pillows, blankets, coats. When I eat chicken in any form it is like the worse flu ever..green apple trots,headache,tired, exhausted, that's what I thought the flu. Or that I was getting bad food. Everytime we ate out I was sick for 3-5 days..anything fixed where chicken was made me sick..no more french fries,fried cheese, chinese, etc..It was not until I got a flue shot 3 yrs ago and got sick with in 5 minutes and had to go to the doc., and he finally told me what I partly knew..how about you????
Lemara
USA - Tuesday, March 20, 2001 at 15:25:48 (GMT)
Very interesting imformation to me.
Sarah
Brewer, Me. USA - Sunday, March 18, 2001 at 18:43:28 (GMT)
Has anyone had experience with the Hallelujah diet? Did it help and how long did it take to see improvement?
Diane
Beech Bluff, TN USA - Sunday, March 18, 2001 at 16:51:25 (GMT)
I am glad that you guys have this website it means a lot to me I know a person who has a disease caused from chemicals. I like perfume but when Im around certain people I know I try to go lightly on the perfume. I feel bad to know that there are people out there that can't be around perfume at all,when they make perfume they should use all natural ingredients like Vanilla, Peach, and Apple. i use this perfume that smells like coconut and one day my teacher read off some ingredients and while he was reading them I looked at my perfume bottle and none of the ingredients was on there but I know that doesn't necessarily mean that my perfume is safe for everybody.
Andrea Youngblood
Evansville, IN USA - Friday, March 16, 2001 at 02:53:42 (GMT)
I believe that any person who wants to wear perfume to smell good should be aloud. I thought we were free
Andrea Youngblood
Evansville, IN USA - Friday, March 16, 2001 at 02:40:27 (GMT)
Ever heard of a neurological challenge known as ADHD - Attention Deficit Hyperactivity Disorder syndrome? Although it is termed ADHD today, it has previously been known as ADD (Attention Deficit Disorder), Hyperactivity, Hyperkinesis, Minimal Brain Dysfunction and Minimal Brain Damage. A number of years ago with the help of my doctor, Anita Uhl Brothers, M.D., of Berkeley, California it was determined that I could detect some FDA approved food additives which were present in some drugs and foods. In my own case, the hidden food additives acted in me like undisclosed very powerful drugs vs how they were presented by the manufacturers as simply completely inert ingredients/food additives. Dr. Brothers, M.D. called for full disclosure ingredient labeling so that the small number of persons believed to be extremely chemically sensitive to some food additives (such as the FDandC Yellow Food Color No. 5 - tartrazine - and the artificial sweetener, sodium saccharin) would be better informed and could choose to avoid them if they wanted. Here are some educational websites:
http://homepages.msn.com/RightWay/c_thomas_wild
http://www.angelfire.com/biz/addsyndrome/index.html
http://www.merck.com/pubs/mmanual/section19/chapter262/262d.htm
As an adult with very mild ADHD - Inattentive type - I am today (2001) helped with an FDA approved alerting agent/stimulant/special caffeine compound (additive-free)which works better for me than Ritalin and regularly and temporarily tends to reduce distractibility and increase attention span for me. I can tell an enormous difference between a medicine which works for me which is additive-free vs one which is full of additives such as the artificial yellow color FDandC Yellow No. 5 and contains an artificial sweetener such as sodium saccharin. Both Dr. Brothers and I feel that consumers have the right to full ingredient disclosure which is an easy way of informing consumers so that those who are extremely sensitive to some common food additives can avoid them if they want.

Extreme reactions to some everyday chemicals is quite real for at least a small group of persons. Your website helps get that message out to the public and thereby helps people.

Thank you. Best wishes. CTW, Sacramento, CA

C. Thomas Wild
Sacramento, CA USA - Tuesday, March 13, 2001 at 21:54:21 (GMT)
My daughter gave me your internet address. We are both just learning about chemical sensitivity we are grateful
for websites like yours.

Donna McRory
Spokane, WA USA - Saturday, March 10, 2001 at 05:10:16 (GMT)
HI IM DOING A REPORT ON LEUKEMIA. I THINK THIS IS A GREAT IDEA YOU ARE DOINGIM GLAD I CCOULD SIGN YOUR GEUST BOOK AND I HOPE ALL THE PEOPLE WITH LEUKEMIA WILL SURVIV LOVE LESLIE
leslie patterson
coos bay, or USA - Friday, March 09, 2001 at 17:06:13 (GMT)
Hi,

I'm going to write a short one because I am not feeling too well. I might be comming down with something serious. I don't know for sure. I just wanted to say that I was surfing through the website and came upon your site. I was looking up data for walking amonia and it gave me alot of information. Thank god for computers! I think you did a great job and that you should keep up the great work! I got alot of information thanks to you. I'm going to go surfing alittle more so I'll catch ya later! I am a 14 female student and my e-mail is ashley1344@hotmail.com if you decide to email me. E-mail me anytime!

Thanks
Ashley

Ashley
Philadelphia, PA USA - Friday, March 09, 2001 at 02:11:50 (GMT)
Your website is refreshing(in a non-scented fashion!)Chemical inhalents have been the bane of my existence for five decades. I suffer from MCS,CFIDS,acute migraine,severe neurological symptoms and the whole ball of wax. I'm sure anyone interested enough to come anywhere near this site knows the whole story. I've found people to discuss almost every aspect of these problems except the one that counts,inhalent chemical reactivity.This is undeniably and unquestionably the trigger that precipitates my suffering. This conviction is based upon 50yrs. of observation and scrutiny and a focus that can only be brought to bare through an endlessly repeating series of identical and painful episodes. Even healers who acknowlage the problem universally minimize its severity,let alone its prime canidacy as the PRIMARY CAUSE for these disorders. Well, as I stated,I'm sure everyone visiting here is aware of the problem, and of the lack of recognition and response that is currently experienced. But, here I am venting to you who already know,because you are the only ones listening. I did send an e-mail supporting the petition to reclass CK's Eternity(thats how long it takes to clear from my system) thanks to your site's suggestion. I found you,by the way, by entering "perfume manufacturers" into my search. I had just finished a LONG letter to National Geographic berating them for including a sheet of MEN'S COLOGNE sample in my "nature magazine". I cancelled and included a short primer on enviornmental illness for their edification. I was searching for perfume companies to harrass when I found your site, much better! Now I can get all of them! Seriously,in spite of the pain they have caused,I seek more to educate them than to harrass. Perhaps they can yet avoid the path of the cigarette companies,which is to be litigated and legislated out of existence,if they can limit themselves to aiming their products at those who desire them rather than cramming them down the faces of those who are doing everything they can to avoid them. Keep up the good work,andfeel free to publish my comments for anyone interested. I'll be writing the fabric softener people next (those guys really get me downy) and the govt. agencies about the related neurological complaints. I welcome your suggestions as to what other actions or writings I might undertake in this cause. My time,energy,typewriter,and monetary contributions (limited as they all are) are at your disposal. I am fed up with these stinkers being allowed to run roughshod over the health of the nation without the hint of a whiff of regulation or legislation. P.S. suggestion: since the American Academy of Ear Nose and Throat Surgeons is the only association of MD's I have seen to list perfumes and chemicals as a cause of disease(in their letterhead and in their pamphlets) why not push them to get up off it and practice what they preach? They have but one tack to suggest for dealing with chemicals: avoidance. We all Know this is now impossible,but now that a problem has been admitted(to whatever extent) by at least part of the medical establishment, wouldn't it be easier,or more practically possible,for patients to carry out the Rx of avoidance if these MD cowards would open their mouths to the public,the press,and in the medical liturature about what they know and suspect in regard to the dangers of inhalent chemicals and perfumes. I'm off to read the rest of your site now. Please contact me, put me to work while I'm still full of sympathy and anger for myself and the rest of the afflicted. Sincerely, Bruce K. Illig
Bruce Illig
Chicago, Illinois USA - Tuesday, March 06, 2001 at 15:38:12 (GMT)
Has anyone had experience with FOSAMAX for osteoporosis? Were there side effects and, if so, what? Appreciate any information anyone has. Thank you.
MHMiller
Pearce, AZ USA - Sunday, March 04, 2001 at 01:56:15 (GMT)
Thank you so much!!!
This site helped me a lot in our symposium for chemistry.
Mwaah!

Khristine
Las Pinas, Philippines - Wednesday, February 28, 2001 at 11:44:18 (GMT)
Greetings Everyone! I think this is an awesome site! It's the only one on MCS that I've found that's given any helpful suggestions on what products to use! Thanks for a great, helpful, encouraging site!

I am wondering if anyone can help me. I've been sick for 14 years, I'm 28, with other conditions and although I've only been diagnosed with MCS for 1 1/2 years, I've had it for at least 12. I've gotten no help at all from doctors. The past two years it's worsened and now it's to the point I am completely homebound, my already limited, organic, diet doesn't seem to be agreeing with me and my skin is red and oozing from soaps and detergents burning my skin. I've tried regular brands and natural brands of both and nothing seems to help for more than a week. Then it's like they turn on me. I am thrilled to read the suggestions of "no fragance" detergents in the "Neighborhood Health Notice!", but I can't find the products listed. Has anyone tried Allens Naturally Ultra Laundry Powder? That's all I've been able to find in my area. I'd like to try washing my clothes in baking soda, as suggested. Can anyone tell me how much to use per load?

Also, does anyone know of a doctor who treats MCS patients in the state of Minnesota and western Wisconsin? I've been around the major hospitals and can't find anyone. My doctor sent me to the Mayo Clinic for this and they were no help at all.

I would appreciate any ideas, help and suggestions anyone would like to give me. I am pretty new to this all this. I used to be able to just avoid certain triggers, but now it's very bad. I am incredibly sick and uncomfortable and don't have any more ideas on what else to try.

Thank You!

Tammy

Tammy
MN USA - Wednesday, February 28, 2001 at 03:41:59 (GMT)
PEOPLE CAN SAY THY ARE VERY LUCKY THY CAN DRIVE THEM CARS AND TRUCKS,A LOT OF POOR DISABLED AND HANDICAPED PEOPLE AND M.C.S. ECT.... CAN NOT DRIVE, WHEN WE TRY TO WALK OUT-DOORS THEM DRIVEING FUMES MESS U.S. UP. AND THEM TOO....THY TRY TO PUT US INN GROUP HOMES., AND MENTAL WARD LOCK-UPS. AND USE US AS GUINEA-PIGS , AND THATS VERY, VERY, VERY, WROUNG. BE CAUSE THERE WILL BE BURNING TIMES FOR THEM PEOPLE MISTREAMENTING US. IT MIGHT BACKFIRE WHAT THY DO TO THE DISABLED. BECAUSE THE IS ALLWAYS A WARNING BEFORE THE TIMES OF TRUE JUSTIFCATIONS ON THIS OLD SMELLY DANGERUS WORLD.....
mr. m.d.
GEORGIA, , GA. USA 301- - Monday, February 26, 2001 at 15:29:26 (GMT)
OOPS I guess I'm suffering from brainfog. The name of the book is Brain Fog. Pardon me for not putting it in the last post. Oh well those of us with MCS just gotta learn to laugh at our "dumb attacks" sometimes. Thanks again for the site
Bruce Haney
Randle, WA USA - Monday, February 26, 2001 at 09:25:55 (GMT)
Thanks for what you are doing. I have been an MCS person since 1984 and set legal precident in federal court in 87. In 1991 I earned a degree in Environmental Science with a speciality in behavioral toxicology. After earning the degree I was asked, in 1994 by the US Senate Veteran's Affairs Committee to participate in the investigation of Gulf War Illness and the following year wrote a brief for the White House. By the way not many know that the vast majority of us who worked for the Vets did so on a voluntary basis with no pay. I have now written a book about my experience and research. While the book is listed on Amazon .com, I will ship the book at bookstore rates to those reading this page. Just contact me at the e-mail listed and I'll get back to you. By the way this is a really neat site blessings.
Bruce Haney

Bruce Haney
Randle, WA USA - Monday, February 26, 2001 at 09:15:03 (GMT)
I really enjoyed your site. I will bookmark it and come back many times. I suffer from non-allergic rhinitis. It is very frustrating trying to explain to people how I can have an allergic reaction to something even though I do not have allergies. I can't go to work, the grocery store, a movie, or even a basketball game without being affected by someone's perfume! By the way, my daughter & I visited your church last fall and enjoyed it very much. Blessing on you both.
Roberta
Trenton, FL USA - Saturday, February 24, 2001 at 02:26:36 (GMT)
I LOVE CERTAIN PLANTS, AND TREES, AND FLOWERS. BUT SOME I FOUND OUT WHEN I GOT SICK WITH M.C.S. ALLERGYS PUTS OUT THAT OLE PER-FUME SMELLS.THY SAY WE THATS M.C.S. SUFFERING PEOPLE ARE JUST CRAZY. NEED TO BE LOCKED UP. KILL US OFF IT SEEMS. BUT WHEN ARE THE POOR DISABLED GOING TO GET OUT OF THIS SLAVERY.WHEN WE SPEAK OUT, WE GET LOCKED UP, DRUGED UP, AND THY THAKE OUR LITTLE MONEY AWAY. ITS SO, SO, SAD. THY SAY WE ARE JUST A FAB . ITS JUST LIKE BELL-BOTTOMS PANTS THY ARE ALLMOST OUT OF STILE. BUT WHY ARE SO , MANY M.C.S. ALLERGY SUFFERS HAVE SO MANY PHYSICAL HEALTH PROBLEMS. I GUSS THAT MENTAL HEALTH PILL COMES FIRST BEFORE OUR LUNGS, SO, LET U.S. PRAY TO A HIGHER POWER , THE OTHERS MY SEE THE LIGHTS.I HOPE ITS NOT A FRIGHT....... A.L.Z. IN CAREING........A.L.Z.6/78.
mr. M.D.
GEORGIA,U.S.A., GA. USA - Friday, February 23, 2001 at 17:27:06 (GMT)
DESPERATE FOR HELP ON CHEMICAL AND DRUG RELATED ALLERGIES;
DAUGHTER HAS DANGEROUS ALLERGIES TO DRUGS THAT CONTAIN "DEPO", WHITE PRESERVATIVE IN CERTAIN DRUGS. WHERE CAN I FIND RESOURCES. THANKS.

WILLIE MATINPOUR
MONTCALM, WV USA - Thursday, February 22, 2001 at 17:23:52 (GMT)
Do you know if there is such a thing as fragrance free mouse. I have an reactions to certain fragrances. It certainly isn't for me!! I have been looking and haven't come across such a thing. Can you help?
Arlene Stoker
Brampton, Canda - Wednesday, February 21, 2001 at 01:30:22 (GMT)
Excellent website! I am a former Roman Catholic saved by the grace of God. Keep on sharing the truth.

Numbers 6:24-26 "The Lord bless you and keep you; The Lord make His face shine on you, and be gracious to you; The Lord lift up His countenance to you, and give you peace." NASB

Jim Sawchak
Dover, DE USA - Monday, February 19, 2001 at 03:15:23 (GMT)
WELL , I GUSS PEOPLE THINK WE ARE cRAZY, WE are just making it up. that PER-FUMES AND OTHER STUFFS, CANT DO THAT TO NO ONE. BUT THY ARE VERY, VERY, WRONG. PERFUMES ,AND OTHER CHEMICALS WELL THATS CHEMIKILLS, TO M.C.S. PEOPLES SPELLS IT.ITS NICE FOR ME AND OTHERS OUT THERE. I HAVE BEEN PHYCIAL SICK ALL MY LIFE, WITH ALLERGYS, AND JUST 3 YEARS AGO, THOSE SMELLS REALY GOT TO ME.AND I WENT FOR OVER A 1. YEAR. INN AND OUT OF THEM OLE HOSPITALS,GETTING SICKER. AND I GOT THAT BOOK, AND WEB PAGES. IT WAS HEAVEN SENT.TO ME AND OTHERS. PEOPLE BATTER UNDERSTAND WHAT WE ARE SEEING AND SAYING. IT MAY BEE DOING THEM INN, BE FOR ALLERGY M.C.S.,I BELEAVE THAT THOSE ELAMENTS, AND CHEMICALS, AND THAT OLE PER-FUMES...CAN BE LINKED TO ALL KINDS OF DISORDERS.NOT JUST M.C.S. BECAUSE PEOPLE MURDER NOW IN DIFFERNT WAYS. AS WE CAN SEE, AND SMELL NOW..... FUNGUS, AND, MOLDS, AND MEWDEWS,AND SERENT FOODS, AND PILLS, MEDS.IS BAD.WHEN ALL OF THAT OTHER STUFFS COBINED TO GEATHER.WE ARE TURNIG INTO GOOSE FEATHERS. ITS NOT THAT FUNNY TO TURN IN TO THAT.... NOW I AM A MAN WITH M.C.S. ALLERGYS. I WAS BORN WITH BIRTH DEFECTS. AND MY TOWN I LIVE INN HAS ALL KINDS OF ELAMINTS. RIGHT UP MY ROAD. AND THERE ARE MOORE CARZS AND TRUCKS INN MY TOWN THAN THERE ARE PEOPLE. EVERY THING SEEMS THAT THINGS ARE ROTING IN THE FROUNT OF MY EYES....MY TRUTH CAN GO ON. IN WRITEINGS. BUT YOU CAN SEE I CANT SPELL THAT GOOD. P.S. WOULD SOME ON POST ANY GOOD BOOK OUT ON THIS , OR ANY FILM THATS OUT THERE........ IT WOULD HELP US ALL OUT............. THANKS, IN CAREING ,,,,,.
mr.M.D.
GEORGIA. U.S.A., GA. USA - Saturday, February 17, 2001 at 18:13:08 (GMT)
IT looks like the GOVERMINTS would have some kind of a device that can detect those killing smells, and other stuffs thats in our homes and workplaces and even the HOUSE OF WORSHIP.AND out-side. and people can buy it and put it in like a smoke alarm is in. and when there is an killing smells or an UN healthy thing . IT WOULD GO OFF.......... THERE ARE SOME THINGS THAT DONT HAVE A BIG SMELL , OR IT MAY HAVE EVEN A SWEET SMELL OR EVEN TAST. CAN DO US ALL INN. its up to our govermints to band things that are DANGERUS. AND PLACES AND PEOPLE MAKEING IT.... SHOULD BE GIVEN THE FINAL NOTICE.... AND THEN, PUT-OUT-OF-BUSSINESS. WHAT COMES FIRST OUR HEALTH OR MONEY, EVERY ONE SHOULD KNOW THAT Q. BUT WE LOVE THAT MONEY, BUT OUR GOD IN HEAVEN, OUR CREATOR , SAYS FOR THE LOVE OF MONEY IS THE ROOT OF ALLS EVIL......WHEN ARE WE GOING TO HAVE STANDERMINTS IN LIFE.WE ARE INDERURLIZED BY THE OLE DEVIL...... WITCH IS KILLING FILEDS OF HOME..............................................
M.D.
GEORGIA, U.S.A/. , GA. USA - Thursday, February 15, 2001 at 17:09:26 (GMT)
I'm thrilled to find this site! Jacki's Story could be my story. I've given up on finding help from the medical doctors. I've seen counselors and psychiatrist too. They don't seem to have any idea what is wrong with me; you see, I'm happier than I've ever been . . . but, I still feel tired and suffer from chronic pain.
One female doctor told me that they hear these kinds of complaints from women all the time, so they "don't pay much attention to them." I wonder if it has ever crossed her mind that maybe women suffer from these symptoms because they are ususally the ones using all the toxic soaps and cleaners. I bet that as more and more men start taking on more and more of the housework, we will see more and more men coming down with the same symptoms.
I am now facing the task of getting rid of the toxins in my home. I've talked to my husband about this, but, he doesn't seem to be very enthusiastic. Any suggestions on how to throw out the chemicals without causing total shock to the husband???

Janis
Gilbert, AZ USA - Monday, February 12, 2001 at 02:21:11 (GMT)
Hello, my name is Thomas. I'm from Erfurt Germany. I heared from your page in a German Newspaper. I will visit you often now. It is very intresting! Sorry, for my bad english- bat I'm learn it since 3 months.
Have a good time.

Thomas

Thomas Vogler
Erfurt, Th¸r. Germany - Sunday, February 11, 2001 at 19:17:27 (GMT)
well , there must not be a lot of people out there with M.C.S. problems. but i am glad i found out what was wroung with me. it took me just a year to found out. when those smells realy got to me. thy keep puting me inn those white walls and halls do no good hospiltals. and when i got out,. i went to the LIBRARY and got the right books andtyped in the computers on M.C.S. ALLERGYS. and i had the same problems, that the book and this web page discribed. BUT THERE ARE MANY out there the hospitals and docters are not telling these people the truth of whats wroung with them. thy are locked up , druged up, and treated them well us to shut up..... so lets have love from above , and care from below......., and stop putting out that smelly fold.........
M.d.
georgia. , ga. USA - Saturday, February 10, 2001 at 18:48:49 (GMT)
Thank you very much for your site. It is one of the best I have found on Chronic Fatiue. I learned a lot.
Joann
USA - Saturday, February 10, 2001 at 01:20:50 (GMT)
the BIBLE says we are the TEMPLE. and we should keep it holy. but its so hard for people to keep our bodys holy when thoses chemicals are every were. WE as M.C.S. suffers dont have any self-defense...we can ware masks,or leave our househoulds if thy dont belive us. but some times we are traped like a mouse inn our house. thy smokeing those cigeRATS. buying those chemicals, and PER-FUMES. and cooking up food its hard to eat... when you go outdoors , that old DISAL trucks and carzs go by and make you pale as a gost. and all that other stuff thats inn the air.will all the people who have DISABILTYS have to have there own state.....when are people going to understand. because YOUR HEALTH IS THE MOST THING IN LIFE, NOT money or work.... like we here in the south says U. R. WORKING YOUR SELFS TOO DEATH................ THANKS , IN CAREING.
m.d.
the state of georgia., ga. USA - Monday, February 05, 2001 at 17:36:35 (GMT)
this site is very interessting!!!!!!!!!
alex
toronto, canada - Monday, February 05, 2001 at 00:36:20 (GMT)
I found this site very informative. I work with people who do not understand MCS and they should benefit from reading the articles here. Thank you.
Kelley Johnson
Belleville, ON Canada - Sunday, February 04, 2001 at 01:58:02 (GMT)
I read so many chronic illnesses and I would like for all of you to know that there is a product out there that will help you rebuild your immune system. I have been taking it for almost 1 year and feel so much better. I have a friend that has multiple chemical sensitivities and she is feeling somwhat better. I can't get her to take it on a regular basis so her improvment is not as fast as some of the others. If interested, please contact me and I will tell you more. Bonnie
Bonnie L. Sooy
Stanton, Mi USA - Saturday, February 03, 2001 at 14:27:27 (GMT)
This is a very good web site. I will be happy to be updated about it .
Thanks joan

Joan agius
Zejtun, Malta - Wednesday, January 31, 2001 at 21:21:21 (GMT)
Thanks for your fast answer!
Soory my English is probably to poor. I thought a "personal ait purifier" would be something to carry around with you.
What I am looking for is what I have seen some severly allergic people using: a acrilglas or glas helmet which is supplied with activated charcol filtered air. Do have any idea if somethinmh like this is on the market?
Thanks for your help.
Second: I do all this typing, because my wife gets sick working on a PC , a modern flat screen didn¥t help her either - how have you solved the problem? Does a lapto in a aluminum case emit less.
Thanks for reading- answering. Martin

Martin Kaiser
Germany - Tuesday, January 30, 2001 at 15:23:48 (GMT)
well i went out to day, i seen a christan church in our town this morning sprying that CHEM-LAWN on there lawn. i walked by and said some people dont like that kind of stuffs. and he said them people are crazy. well i told him its spelled with a K its KRAZY. and the thing you doning is CRAZY. and he said i have been doing this for over 25 years, and it havent done me in yet . well i said it has me. and allso baby john doe too. this elamints are strong out there.are we becomeing BEAST OF THE FILED.......
m.d.
georgia, usa., ga. USA - Monday, January 29, 2001 at 16:14:43 (GMT)
Thank you so much for your personal and valid information.
I Germany there is very little information available, most
Doc¥s (I am one too consider MCS as a psychosomatic disorder. My wife suffers from MCS too, You site has helped me to make the diagnosis. she racts on organophosphates, parfumes, shoe polish, deoderants. 90 minutes after exposure she becomes red eyes, tehn a disturbed vision,
she becomes clumpsy, finds it hard to think and concentrate and is without any drive, The condition last for 6-9 days, is greatly aleviated by Ca++-antogonists like e.g. nitrendipin.
Could you please supply us some information on your personal air purifier (e-mail address of the producing or delivering company).
Thank you very much for all your effort, it helps to feel you are not alone with probleme that truely chances your life.

Greetings Martin Kaiser

Dr.med. Martin Kaiser
D-72175 Dornhan, Germany - Thursday, January 25, 2001 at 10:05:54 (GMT)
does anyone out thereknow what chemicals are contained in glade plug it in"s....these can't be safe...any info helpful...thanks jon
jon
nj USA - Thursday, January 25, 2001 at 03:41:22 (GMT)
If possible, I would like to be contacted by an attorney that would represent a few people in western Wa. against Boeing for chemical poisoning. I only have a few days to find someone until my lawsuit [only for me alone] will be dismissed. There are however, several of us that have MCS, that would like to file suite against Boeing, the State, and our self insured company, Crawford and Comp., Labor and industries, and the Machinists Union. I was poisoned four years ago. I was sick with chronic bronchitis and Asthma for 3+ years when they sent me to work in the aluminum Cleanline area. This room is huge and contains several vats full of five different kinds of toxic solvents. The parts were loaded in overhead baskets, which is attached to a crane. There was no open windows or doors, or anyother type of ventilation. We could not use any type of respirater, or other protection. When I repeatedly became ill, I had an idea it was the chemicals in there or the paint odor coming from the paint room next door. In 1995, when we went on strike, I got 100% better. We returned to work three months later, and started getting bronchitis again. I knew then for sure it was something in that building making me ill. My Doctor wrote a letter to my supervision explaining this, and to tell them I needed to be off work to get healthy again. My superviser threw it in the garbage after I asked him to please take it to medical. I worked for Boeing for almost 20 years at that time. I asked the superviser to please move me out of that building. They fired me a few days later!!! I am now homeless. I have lost my home, all my savings. my health, and I can no longer work. I have tried to end my life several times. There have been several Boeing workers that have gone through the same thing that have succeded in ending theirs. THIS IS WHAT THE BIG BUISNESS AND THE POLITIONS DO FOR US IN THIS STATE!!!
Carol Manuel
Tacoma, Wa USA - Thursday, January 18, 2001 at 21:13:10 (GMT)
Thank you Jackie for creating this informative website.
Mary
Chagrin Falls, OH USA - Wednesday, January 17, 2001 at 17:27:48 (GMT)
Comments: hi, i have mcs and have had breast cancer and have
>fibromyalgia, interstitail cystitis, vulvodynia, candida and they
>just found 3 nodules on my thyroid. The mcs came when i put new
>carpeting in 8 mo. ago. Now i react to everything. I can't stay in
>the house it' sup for sale because i have gas heat, gas stove and it
>would be too costly to replace everything. Plus I"m across the st.
>from a train stop an am now reacting to the fumes of the diesel, so
>no matter how muchmoney i spend cleaning up the inside the diesel
>will still get me once i open the windows. I'm in s. jersey near
>phila and am willing to move. Do you know anyone else that is
>interested in a safe house? I hear az is the only good place. I
>wanted to move to asheville nc and heard they are having a big
>pollution problem. I'm suicidal. Can u help me please?

Donna
cherry hill, NJ USA - Tuesday, January 16, 2001 at 22:27:43 (GMT)
In response to "Ian Peter Freely" - If you're going to post such derogatory comments on this board, please at least have the courage to post a valid e-mail address so people can respond to your comments and attempt to educate you!! Also - you never responded to my question about why the industry refuses to list the ingredients on their products if they're so "safe"... Instead of calling me a "sheep", why don't you answer the question!!
Jacki
USA - Tuesday, January 16, 2001 at 20:54:37 (GMT)
I have a child with tourette syndrome.I have been told by our neurologist that TS is a genetic disorder. Both my husband and I have not seen any other family members with TS symptoms.The more I read about chemical sensitivities the more I believe that the every day household products do have a severe affect on our health.For a trial test I switched from using Tide laundry detergent to using Arm & Hammer Fragrance & Dye Free and within a week my childs tics had decreased by more than 50%.I am determined to learn as much as I can about household products and foods that are less harmful.Any information on food allergies or diets for people with TS would be greatly appreciated!!AND,YES,I do agree that it's time to demand that the Food and Drug Administration take more responsiblity by being honest with labels! Thank you Jackie for creating this informative website.

Sandra Toscano
Clayton, NC USA - Monday, January 15, 2001 at 04:29:10 (GMT)
I am surprised at the tone of the Island Doctor. The Madagascan sheep is following the flock when he seems frightened to list the ingredients of his product on the package. Many of us know what we are allergic to and look for it on the list of ingredients as a sensible first line of defence for our health.
Sandy Perceval
Ireland - Friday, January 12, 2001 at 18:35:12 (GMT)
I am extremely pleased to have found this site. Thanks.
These "Scents from Hell" could almost kill by depression; they are nothing like the smell of the natural world. It is almost a relief to know that they are poisonous as well. The use of scents breaks every rule of charity, common sense, and social living; and must ruin family and intimate relationships. Can the people who like them be human? Can they not smell the hellish nature of that stuff?! Can it be right that the "smell-deaf" majority can tyrranize over the people who still have a sense of smell, as they do now? Here in London the Hogsmill and Wandle Rivers which lead into the Thames in West London stink of the vicious stench of fabric conditioners. The adversing for these materials is hideously dishonest and often uses children. No wonder children can't concentrate at school, if those smells are in the classroom.

Peter Michael Grant
London, England - Friday, January 12, 2001 at 12:50:56 (GMT)
JACKI,
I'M RESPONDING TO A COMMENT YOU MADE ABOUT A COMMENT MYSELF
AND MY ASSOCIATE LEFT. TO ANSWER YOUR QUESTION ABOUT NOT
ALL THE INGREDIENTS BEING ON THE BOX: WELL MOST PEOPLE ARE
LIKE SHEEP AND WHEN THEY HAVE NO IDEA ABOUT WHAT THEY ARE
TALKING ABOUT THEY TEND TO BE STUPID AND GET VERY SCARED
OVER NOTHING WORTH WORRING ABOUT. FOR SOME REASON I GET THE PICTURE THAT YOU ARE JUST A SHEEP!

Dr. Ian Peter Freely
Madagascar - Friday, January 12, 2001 at 00:50:14 (GMT)
Jacki,

I'm just writing to say how much your web page has helped

me. I have recently found out that I am allergic to the

smell of cows. This really upsets me because I have two

pet cows, whom I love dearely. I'm also allergic to the

following smells: chicken, chocolate, milk, oranges,

leather, cow dung, mud, perfume, purfumed products, mint,

ice cream, iron, fish, and last but not least dust. Well

thank you very much for helping to alert me to my allergies

to the sents of various things.

Karamel

Karamel
Cario, Egypt - Friday, January 12, 2001 at 00:37:10 (GMT)
I truly enjoyed visiting. I am chemically sensitive to perfumes and trying to work in a large government agency. MOST OF MY CO-WORKERS (WHO WEAR PERFUMES) TRY TO STAY AWAY BUT RECENTLY I ENCOUNTERED ONE WHO WANTS TO SEE HOW SICK HE CAN MAKE ME WITH HIS HEAVY PERFUME USAGE. I NOW KNOW THE TRUE VALUE OF PRAYER BECAUSE IF I DIDN'T FALL ON MY KNEES AND PRAY EVERYDAY FOR THIS PERSON, I WOULD BE TRYING TO HARM THIS PERSON. BLESS YOU!!!
B Coopie
Atlanta, GA USA - Thursday, January 11, 2001 at 02:40:02 (GMT)
I stumbled across your website while doing a search for 'Cosmetics'. I am taking a course in Aromatherapy. Your articles are extremely interesting. Most perfumes manufactured today are with synthetic products. I have a sister-in-law that has been experiencing epileptic seizures for the last 5 years & I have told her that it could very well be from perfumes, etc. I will tell her about your site! ;-) Judy Mason
Judy Mason
Invermere, BC Canada - Wednesday, January 10, 2001 at 20:40:28 (GMT)
German Language MCS-VOICE-CHAT - every Thursday 19.00-19.30 MEZ - >>> with Freeware >>> www.paltalk.com - Group: >>>Health ...

MCS-Patienten reagieren ¸blicherweise unmittelbar auf eine Vielzahl inhalativ aufgenommener (Miller/UTSA) allt‰glicher Chemikalien in Niedrigdosis.

Daraus resultiert h‰ufig ein sozialer R¸ckzug, d.h. die Patienten gehen nur noch selten aus dem Haus.

Zus‰tzlich belastet die Patienten ja oft, dass sie in ihrem unmittelbaren sozialen Umfeld nicht verstanden werden.

Wir haben ein Kontakt-Forum (Konferenz) per Internet-Telefon eingerichet (Voice-CHAT), um soziale Kontakte zu Betroffenen zu ermˆglichen.

Notwendig sind hierf¸r ...

1. Internetf‰higer PC (Pentium P 166 reicht aus)

2. duplexf‰hige Soundkarte (alle seit zwei Jahren verkauften Karten)

3. Mikrofon und Kopfhˆrer oder Lautsprecher

4. Die Freeware "PALTALK" und die - kostenlose - Registrierung als Nutzer

Neben den Internetgeb¸hren fallen keine weiteren Kosten an.

Die Treffen finden zun‰chst jeweils Donnerstag, ab 19.00 Uhr - bis mind. 19.30 Uhr - statt.

G‰ste sind willkommen. Es handelt sich um ein offenes Forum

Sie finden uns nach Einwahl in das Internet und Aufruf des Programms PALTALK in der Obergruppe (Groups) >>> Health ... in der TN-Gruppe >>> Umweltkrankheiten

R¸ckfragen sind mˆglich unter Tel. 0921-23582 oder per EMail: zentrale@mcsmed.de

mit freundlichem Gruss

Heinz A. Guth

http://mcsmed.de
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Bundesweite Selbsthilfegruppe MCS / CFS e.V.
Bayreuth, BY Germany - Monday, January 08, 2001 at 18:26:21 (GMT)
About a year ago now I began to adjust my diet because of suffering from reflux and heartburn. Prior to that I had suffered from sensitivity to chemicals and fragrances for about 4-6 years (as previously reported on these pages). After endoscopy I was diagnosed as possible Barretts Oesophagus and I was keen to make the dietary changes that would lessen the possibility of its progression. I have found during the last year that removing the things from my diet that caused the digestive problems has considerably lessened my sensitivity to chemicals and fragrances. At one time when I got into a taxi with one of those dreadful airfreshner things in my lips and eyes would start to feel sore and my nose would burn, ditto for other peoples perfumes and aftershaves. I now find that I feel much much better, have better digestion, have lost a little weight(not massively but a bit is good as it means that less pressure is put on the stomach) and no longer have the reflux or heartburn. A good page to visit for more info on this problem and the diet recommended is Jackson Gastroenterology at:

http://www.gicare.com/pated/ecdgs40.htm

Basically the diet consists of no coffee, tea, alcohol, cigarettes, citrus fruits, tomato products, spices, fizzy drinks (including bottled fizzy water), chocolate, mint. I follow a sort of version of the Hay diet which was rec. by a homeopath and I took a course of detox with him. The improvement in my sensitivities(at the moment) is a great side effect of the diet I have to follow for completely different reason. If anyone wants to mail me to discuss more please feel free. A very Happy New Year to everyone - cheers Katherine.

Katherine
London, UK - Monday, January 08, 2001 at 01:16:26 (GMT)
The wife has allergies to perfumes. We have just move to a house that came with a washer and dryer. The wife's skin is breaking out and she thinks it is the soaps and fabric softeners used by the previous owners. I am currently look wether the perfumes can be remove from the drums.
William de Boer
Ottawa, ON Canada - Wednesday, January 03, 2001 at 16:53:07 (GMT)
I worked for a company who makes nightgowns and I was very healthy before I started to work there. About 3 weeks later i broke out with a rash on my exposed parts of my body its been over a year now and I am not any better. I have see numerous doctors and they can't get it cleared up. I truly believe that I was poisoned by something they use on the material. I am thankful for sites likes this that help people become aware of chemicals and the way they poison your body. I know I am just one of many that has had this happen to them, its time to fight back and help other people become more aware of this serious problem
cindy emerick
Ralston, Pa USA - Tuesday, January 02, 2001 at 16:07:54 (GMT)
A source of varied subjects relation to MCS
Eileen Thomas
USA - Monday, January 01, 2001 at 23:01:45 (GMT)
i wish everyone in my town could read this information we have 2 large refinerys to be-cleaned up the hydrocarbons are making all of us sick-no one does anything about it .one of our elementry schools is right next to it. those children dont have a chance. but i am old and no one listens to me.
alma harmon
cushing, ok USA - Thursday, December 28, 2000 at 11:53:31 (GMT)
It is truelly a Blessing that we found your web site. I have suffered with MCS for years but never had a name for the condition. Thankfully my Doctor listened and I am now on a medical retirement. I worked in a school and it frightens me to think about the poor children that are exposed everyday to the Purfumes, Colognes, Cleaning products, etc. Thank You for giving me a name for my condition. Now when Family Members look at me like I am crazy I can better explain the problem I have with their Perfume.
Jan Dupuie
Avon Park, FL USA - Wednesday, December 27, 2000 at 02:10:05 (GMT)
great web site. as with most of us who suffer with our sensativities, my co-workers just do not seem to care or understand how sick there perfumes make me. the company is not any better. hopefully copies of your articles will help. i drive a delivery vehicle and when others use my van their perfume is all over the seatbelt. it is horrible. my neighbors are scented candle freaks. it would be nice if people could just spend a day in my shoes then they would change their tune. they just look at you like your crazy. thanks for the great articles.
lumbee

lumbee
kailua-kona, hi USA - Monday, December 25, 2000 at 06:33:23 (GMT)
mcs sufferer...thoroughly research these sites...
are these people right...listen you your body...track your history/illness to natural gas exposures...especially gas stoves and hvacs...these people need your help
http://www.geocities.com/RainForest/6847/help.htm
How can you help AEHA?
http://www.geocities.com/RainForest/6847 /
"A new scientific truth does not triumph by convincing its opponents and making them see the light, but rather because its oppenents eventually die and a new generation grows up."
Ç Max Planck

are they right?
the, USA - Saturday, December 23, 2000 at 06:49:29 (GMT)
Praise God!!!! My sister's friend recently told her about your we site. God recently placed on my heart to do a similar ministry. I look forward to communicating with you in the near future.
Janeen-Marie
annapolis, md USA - Sunday, December 17, 2000 at 18:43:52 (GMT)
Australia is one of the Countries with the most Poisoness cars in the World. Of Course this is kept very strictly in the dark & is rarely if Ever mentioned through the Mainstream Media. Time Action is going to be taken & Enforcing Strict Emission Controls. There seem to be many Blind & Ignorant People out there.
Pigeon
Australia - Saturday, December 16, 2000 at 09:07:06 (GMT)
I have Chemical Allergies. Thank you for your info.
Brynne Stevenson
Springfield, Oh USA - Sunday, November 19, 2000 at 22:32:41 (GMT)
I have been diagnosed with Chronic Hepatitis C and have had it for 30 years. Last year I had my Thyroid removed due to malignant Papillory Carcinoma. Yesterday, November 16, after a year of severe nosebleeds due to my failing liver and it's clotting factor decline I finally found out what the term "bleeding out" meant. It was not a good day.
David Smith
Prescott Valley, AZ USA - Sunday, November 19, 2000 at 20:26:34 (GMT)
Does anyone know of a medical professional who has put together a compilation of prooven case histories of illnesses that have been caused by chemical saturation. To include documented case studies where chemically saturated people seized or cured their cancer, multiple schlerosis, lupus, fibromyalgia, endometriosis, etc. by practicing food and environmental chemical avoidance?
To those suffering with MCS and other related ailments:
Remember, extreme food/environmental chemical avoidance means make your living environment and hygiene products safe (research the issues of safe cleaning/hygiene products). Necessary diet changes sometimes means eating only healing foods for weeks and months or even years until symptoms are seized, decreased, or eliminated. Raw vegetables and vegetable juices are an excellent choice. Juicers can be very beneficial. If you see a decline in your symptoms, continue with the vegetable diet. Gradual introduction of other foods should be analyzed. Beware of any increase in symptoms up to 3 days after exposure to bread, meat, processed food or anything else that is not a vegetable. This is your bodies ways of telling you there is a problem. Listen to your body. Over time you may be able to introduce fruit and almonds and other great tasting healthy foods. Choose Life, it beats the unnecessary suffering, surgeries, and medications. Read the book "MD" (doctors talk about themselves). Many doctors are well aware that the medical system needs to be changed. Treating the symptom is not the answer. Prevention is the answer. Now doctors need to find a way to profit fro the unnecessary suffering, surgeries, and medications. Read the book "MD" (doctors talk about themselves). Many doctors are well aware that the medical system needs to be changed. Treating the symptom is not the answer. Prevention is the answer. Now doctors need to find a way to profit from prevention rather than continue the vicious cycles of suffering. In the mean time Thank you Jacki for having a place where real people share real answers.


Choose Life
USA - Sunday, November 19, 2000 at 04:41:31 (GMT)
Great site! I am a christian looking to reduce chemical use in our house and in our food and have been looking around web sites and yours is just wonderful! It was really helpful and showed up some things we thought were 'safe' as quite dangerous. Keep up the good work and get better! Debbie
debbie
USA - Saturday, November 18, 2000 at 08:54:10 (GMT)
well its hard to get the true message out. on those chemikills well the real spelling is chemical. i think we get the idea.i have been singing songs on those PERFUMES AND OTHER STUFF but iam not a good singer i wish that some in BLUEGRASS MUSIC TO SING THOSE TUNES WITH A MESSAGE.i would like to go to some good church but all those WO-MENS have that oldPERFUME ON. nowonder no on can hardley get the HOLY GOST any more. because of all that PERFUMES and chemicals and bright lights in the church.plus i have to walk 10 miles to get there .and as walking there those car- fumes and DESIEL TRUCK fumes will do U.S. ALL INN. before i go any one know what COTTONSEED OIL IS, IT IS ALLMOST EVERY THING WE EAT HERE.
michael d.
the state of georgia,, ga. USA - Friday, November 17, 2000 at 16:01:34 (GMT)
Advocate for a clean Environment.
Join my Sweetgrass Lodge webring
http://www.dxzweaves.org/Sweetgrass/splash.html

Dixie Lewellyn
Houston, TX USA - Friday, November 17, 2000 at 05:37:54 (GMT)
Has anyone had a problem with the substance used to dilate the pupils during an eye exam by an ophthalmologist? Can anyone tell me the make-up of that substance? Has anyone had the doctor use a specially formulated substance? Any information at all that pertains will certainly be appreciated. My daughter responds so intensely to all chemicals, she doesn't want to be blinded. Knew someone who had had a major problem: hence her real concern with the outcome. On the other hand, she is having trouble with her vision and needs to see an ophthalmologist. Do you know any eye doctor in Tucson who understands MCS? Thank you for your response!! MHMiller
Mary-Helen Miller
AZ USA - Thursday, November 09, 2000 at 15:41:23 (GMT)
well to day is voteing day nov.7th. i went out and voteB>
Mary-Helen Miller
AZ USA - Thursday, November 09, 2000 at 15:41:23 (GMT)
well to day is voteing day nov.7th. i went out and voted the first time. but i wish there was a vote on those chemicals like per-fumes and those sented candals thy just do us inn.as i walked to the library to use there computers those car fumes got to me . i have diffcults every day. i went to a dept store the other day and those fumes realy got to me .when i got home i was so up set and mad . my mother wanted to call the po.LICE on me . but thy dont belive those FUMES and do that to all of us. some people that cant detect the smells or cant realy smell it that much is still doing them in.some people get wild when thy get around some FUMES. I been haveing it for allmost 4 years. and put in those bad hospitals.and it done me in worser by going there and put on those mental health pills ,because thy think MULTIPLE CHEMICAL SENSITIVITY is not ture BUT IT IS SO , SO , TRUE. M.C.S. PROPLEMS IS PHYICAL HEALTH PROBLEM. SO i wont to every one to look up addresses of differnt places like hosptials, chemical factorys, mental health places, goverment offices, and dept.stores,and SEND THEM PRINT OUT PAPERS on the Dangerments ofthose chemicals and PER-FUMES,and M.C.S. BECAUSE IT MAKES ALL OF U.S. SICK. THANKS , VERY MUCH . AND IN CAREING............................................/
michael d.
georgia. USA - Tuesday, November 07, 2000 at 17:44:30 (GMT)
Would like to locate a Dr. in my area, whose speciality,is enviromental health testing,for possible lead poisoning.Also anything on effects of Chelation Therapy,Etc
Dianne
Lake City , Fl USA - Tuesday, November 07, 2000 at 16:57:04 (GMT)
I found the site to be really informative and intend to follow up by contacting some of the resources you have listed. Thank you

EF

Evelyn Frankland
USA - Monday, November 06, 2000 at 16:52:05 (GMT)
I have just seen a doctor who practices alternative medicine including herbal treatment and chelation. He offered me hope of real improvement. I would love to hear from anyone who has had chelation and/or oxygenation treatments and the results.
Diane
Beech Bluff, TN USA - Saturday, November 04, 2000 at 14:03:22 (GMT)
well it going on almost 4 years sense i realy got sick with those FUMES getting to me. I have had sickness all my life.and i belive that all of my sickness was my ALLERGYS and those ALLFULL-FUMES IN AND AROUND MY TOWN. i am not mental ill but thy force me to take those pills every day... the goverment needs to come out. and tell the TRUTH ON THOSE CHEMICALS, PER-FUMES, CLEANERS, AND THAT OTHER DANGERMENTS. WELL CHRISTMAS IS ALLMOST HERE AND I KNOW WHATS ON MY AND OTHER M.C.S. WISH LIST IS TO GET RID OF THOSE FUME-A-GATES.
michael d.
carroll,county,ga., ga. USA - Thursday, November 02, 2000 at 14:41:05 (GMT)
Great information!! I'm going to share it here on campus I've been driven out of one class due to mold contamination, now perfume is getting me in another. I'd like to drae on the comparison between perfume and gasolineand/or cigarettes. thanks so much
bhope
fredericton, nb canada - Wednesday, November 01, 2000 at 14:05:39 (GMT)
Ask yourself these questions:
Should a doctor concider removal of a lump or tumor before first encouraging a patient to practice chemical avoidance to see if avoidance results in a decrease in the size of the tumor?
Should chemical dye be run through the body of a patient who
already expresses a number of chemical allergies?
Should an ill patient blindly trust that their doctor has his/her best interest in mind?
Should a patient or family members of the patient be encouraged by a treating doctor to research potential causes of symptoms prior to agreeing with any treament plan?
Does anyone see the benefits of an ill patient providing a doctor with his her own research of symptoms/personal observasions and analysis upon the first office appointment.
Should a patient take notes of a doctors in office verbal analysis and observations ?
Should a doctor encourage a patient to do so?
Should doctors have to provide patient with documented feedback of all in office appointments?
Should all doctors have to study numerous case histories of the chemically exposed prior to getting their medical licence?
Should a doctor ask patients to provide them with any/all potential chemical exposures as well as those of their parents and grandparents?
Why do you think doctors only ask if you smoke, but rarely ask what food/enviromental chemicals you are regularly exposed to?
What types of food/environmental chemicals do you concider a
threat to your health?
Do you feel that there should be some sort of control over the environmental chemicals used or worn in public places?
Why do you think Meg Ryan doesn't wear any fragrance? Why do you think she states that polyester "brings her down"? Are Sher Bono and Michelle Akers faking their MCS? Do you think "Jewels" kidney problems could have been caused by MCS?
What do you think would happen if more exceptional people voiced allergic reactions to food/environmental chemicals?
Would you risk a chemical dye test to prove that chemicals have done damage to your body?
Do you believe damage to your body can possibly repair itself with chemical avoidance?
Just a few questions to ask yourself.
The key to curing MCS is knowledge.
Don't give up.
Choose Life.


Choose Life
The Wonderful , U. S. of A. - Monday, October 30, 2000 at 02:09:24 (GMT)
I have been reading past publications of Our Toxic Times and am interested in the theory that Cindy Duehring has written regarding MCS and porphyria. She reports a 90% incidence of abnormal porphyrin levels in MCS people. (This is part of the metabolism process, in very simple terms.) QUESTION: Has anyone out there had the Porphyrin Metabolism tests done, and what can they tell me about it? Cost, results, done by what lab, etc? QUESTION #2 Has anyone had their P450 Phase I & II detox paths teste d? What ESTION: Has anyone out there had the Porphyrin Metabolism tests done, and what can they tell me about it? Cost, results, done by what lab, etc? QUESTION #2 Has anyone had their P450 Phase I & II detox paths teste d? What can you say about it...cost, results, etc.
These could be possible ways to help validate MCS. Thanks!

Priscilla
Rogers, AR USA - Saturday, October 28, 2000 at 20:34:12 (GMT)
I, too, have MCS. It developed over about six years, thanks to both the ignorance of every medical 'specialist' I went to (neurology, infectious disease, general practice, family practice, internal medicine, neuropsychology, psychiatry, even a so-called "heart" specialist) and the blatant refusal of the many 'physicians' to admit to vaccine reactions (oral polio and tetanus) followed five months later with 'routine' pesticide exposures.

*The government is addressing environmental illnesses right now via panels of "experts" that are formulating the recognition, diagnostic and treatment criteria to be used on a FEDERAL BASIS. This basis will also be the guidelines for medical recognition and testing and treatment to be TAIUGHT IN MEDICAL SCHOOLS. Their basis is pesticide poisoning recognition (chemical poisoning resulting in many health problems especially MCS, the government way of kind of skirting the issue). The panels are comprised of 100 'experts' - farmworker organizations, agriculture, public health, Crop protection, government health organizations, EPA, Ground water and drinking water , primary health care, occupational health and safety, research, labor, epidemiology, midwives, chemical industry. There are two PERSONS cited as from occupational and environmental medicine, neither carries any certification in Environmental Medicine specialty of medicine.
On page 29, it states Environmental Medicine is a resource professional for the primary care providers, as are medical toxicologists. YET THESE SPECIALTIES ARE NOT BEING INCLUDED IN THIS ESSENTIAL FRONT IN TRAINING MEDICAL PROFESSIONALS IN IDENTIFYING, TESTING AND TREATING THESE ILLNESSES. They are asking for public input. Get a copy and make comments call 202-833-2933 FAX 202-261-6464. Copy at 202-833-2933, ext 535. Comments by Dec 1 to pesticides@neetf.org
We all have had an immune assult because of the vaccines - they cause immune damage and GENETIC damage, that is how they 'work'. Add this weakened and 'changed' state to our poor diet (heavy sugars, caffeine, poor nutrition), lack of nutritional foods (mass production = damaged/dead nutrients) and chemicals in all foods (pesticides, fungicides), water (chlorine depresses the immune system, plus pesticides, industrial chemicals now contaminating most all public and private water supplies and are not remov ed by water 'purification' plants), clothing, carpets, cleaners, gas, plastics, air, everything we use, eat, breathe, touch! Many chemicals and pesticides also cause genetic changes.
I was disabled rapidly, over a two week period with three known pesticide exposures (2 on international aircraft). The initial diagnosis - denied vaccines and pesticides - viral encephalitis (though no viruses tested positive). The CAUSES were never 'found', therefore, this illness became CFIDS, fibromyalgia, GULF WAR ILLNESSES (just one of the many causes), and MCS. And, as many will discover, if the health issues are not addressed and the toxins reduced, the neurological illnesses and cancers often r esult. In my case - MS-like disease.
The medical specialty that treats us, AFTER EFFECTIVELY TESTING AND DETERMINING WHAT EXACTLY NEEDS ADDRESSED, is Environmental Medicine specialists. Note - NOT occupational medicine and NOT environmental illnesses specialists. Their site is http://www.aaem.com Their master can send you the addresses of those qualified in your state.
I have wasted 6 years and thousands of dollars searching for recognition (when VA and DOD and some civilian KNEW) from the medical profession and effective treatments. The sooner the testing, the sooner the treatments and you can prevent further devestation.
Great books to help start healing - Tired or Toxic Wellness Beyond all Odds The E.I. Syndrome by Dr. Sherry Rogers (world reknown). Immunizations - Reality Behind the Myth (2nd ed). It's All in Your Head by Dr. Hal Huggins (the amount of heavy metals (mercury, copper, tin) in your mouth proven to damage health and what you can do to recognize this and get rid of the metals.
All part of the care and cure, and something that government and big industry (the drug-physician complex, the chemical-industry, the health insurance/drug companies, politicians) doesn't want you to know and address. The cure is in natural health, organic foods, clean (non-chemical) water, NO VACCINES - support your immune system by getting HEALTHY. All explained in the site and the books. And there are many like us proving it and address. The cure is in natural health, organic foods, clean (non-chemical) water, NO VACCINES - support your immune system by getting HEALTHY. All explained in the site and the books. And there are many like us proving it works.
Hang in there. Big fight but health is worth it. Laura

Here is to better health.

Laura Monfore
Eagle River, AK USA - Friday, October 27, 2000 at 13:24:03 (GMT)
After 24 years of alternate health for mcs, I've been doing NAET for 1 1/2 years in relation to chemicals. Has anyone else gone this route?
Lonnie
Ferndale, WA USA - Thursday, October 26, 2000 at 11:10:11 (GMT)
If any one experienced occupational toxic exposures and dealt with group of QUACKS from Parthenia Medical Group in California and specially a Hindu Quack Ajit Singh Arora, claiming to be Associate Professor at UCLA ( a VOLONTEER at Veteran Hospital associated with UCLA were he donates 24 hours a year as volunteer!)
file the claims with medical Licencing Boards in Alaska, California and Hawaii to get this flee infested turban of this con neck!
One of biggest QUACKS of the industry!

I found great info about those QUACKS at:

http://clubs.yahoo.com/clubs/dangerousdoctors

Rubee Rub
Anchorage, AK USA - Thursday, October 26, 2000 at 01:53:34 (GMT)
as haveing M.C.S. problems, its a problem every day.those FUMES AND ALLERGY problems. but watch out on takeing medacations drugs thy can do you in worser. read up on you drugs be for you take them. i have been taken meds for 10 years befour i got sick, and now it weakens me when i take some medcations. because ALLERGYS and M.C.S. can hurt you in-side out.OH PLEASE America understand that those FUME-A-GATES can DANGER U.S. ALL.
mike d.
carroll county ,georgia., ga. USA - Tuesday, October 24, 2000 at 11:47:12 (GMT)
I want you to know I really appreciate the information you have included in your web page. Written very well so to pass onto others who do not or can not understand MCS and the enviroment and how it is affecting everyone not just us. It is as you say the canary in the cage. Please keep up the good work and we should pass this info on as much as we can. thank you again Louise
Louise
Langley, B.C. Canada - Tuesday, October 24, 2000 at 00:33:09 (GMT)
Natural zeolite mineral absorbs/eliminates chemical odors, gases, formaldehydes, VOC's, volatile organic compounds, hydrocarbons, toxic fumes, carpet outgassing, particle board outgassing, etc. Eliminating these neurotoxins can help reduce/eliminate your MCS symptoms.
ZeoliteDepot
Bloomfield, NJ USA - Saturday, October 21, 2000 at 22:47:58 (GMT)
Several days in and the crystal is working fine, and no rashes. There are many on the market and I understand that they come from the far east. All the best
Katherine
London, UK - Saturday, October 21, 2000 at 18:21:01 (GMT)
I have finally read all the comments posted in your visitor remarks pages! I would like to hear from anyone that has the same initial reaction as I have to perfume, carpet powder, etc. The right side of throat will have a severe stinging effect and I will start coughing. Followed by the watery eyes, stuffy nose, headache. Primarily the initial "throat stinging and coughing". Would appreciate anyone will the same problem to email me directly. Again, thanks for the great website! I will sleep tonight with a s mile knowing I'm not alone. May God Bless......
Jo
USA - Tuesday, October 17, 2000 at 22:16:37 (GMT)
Thank God for the internet! I have finally found other people with the same problems I have suffered for many years! What an awesome website!
Jo
USA - Tuesday, October 17, 2000 at 21:05:43 (GMT)
i use public computers and there are 8 here and some of the users have on a lot of per-fumes here. and it gets to me every day. as haveing M.C.S. problems it hard to go any were and not get FUME-A-GATED. its hard to get it in there heads that PER-FUMES is BAD 4 there health and OURS TOO. people and doctors think we are crazy and put some of us in mental hosptials. and give us those psychiatric drugs. that mess us up worser.i tell them i have ALLERGERYS and multiple-chemical-sensitivity, [ M.C.S.] an d thy still stick me with those drugs.this is so wrong,so,so, wrong.because my crazy is spelled with a K . krazy and i an differnt.yes i tell them that i get upset when i smell that PER-FUMES. AND OTHER STUFF. and thy dont wont to here about M.C.S. like i said before M.C.S. IS A PHYICAL DISORDERS [NOT] a mental.
mike d.
carroll county,, ga. USA - Monday, October 16, 2000 at 11:59:39 (GMT)
After several yeaars of not using deodorant/anti-perspirant because of the very strong reaction they provoke I have just tried using a crystal that you wet and rub under your arms and after a few days all is going well. I presume that this is the same thing that an australian colleague told me about just over a year ago. He had been home to holiday and said that everyone was raving about a natural crystal that kills the bacteria which give us sweaty armpits. There is a website listed which gives US suppliers and other info at:

http://www.pitrok.co.uk

The crystal I bought is completely odour free though they do seem to sell a spray version with a fragrance as well. Just thought I would pass this bit of info on. By the way it seems so far to be very effective.

katherine
London, UK - Saturday, October 14, 2000 at 10:30:35 (GMT)
My brother-in-law is currently undiagnosed with what seems to be chemical poisoning. Drs. can't pinpoint why he can't function. He paints cars and that says it all. He is currently doing a sauna detox and massage. This was very helpful info. that I will be telling them about. Thank you!
Tammy Klein
Karns City, PA USA - Friday, October 13, 2000 at 22:18:09 (GMT)
I am so glad to have found your web sight, people in my family will be sent to it as I have problems with perfumes and colognes. How can I help make the public more aweare of this problem?
Carole Lange
Woodstock, IL USA - Friday, October 13, 2000 at 12:31:44 (GMT)
thank you for all the information. I really need help with this horrible problem. Just came back from cape breton nova scotia and i am very sick now. gladly welcome any e-mails with advice.
laurelalexander
springville, tn USA - Friday, October 13, 2000 at 09:51:33 (GMT)
Correction of my E-mail address. (I'm at the public library and....you guessed it, the chemicals are getting to me) In addition to my previous submission I forgot to mention that with the TBI I sustained in accident the chemicals affect me even greater. Thanks again, Brian.
Brian
Toledo, Ohio USA - Thursday, October 12, 2000 at 13:52:42 (GMT)
I started heving problems with MCS after a dear-death motorcycle wreck in which I also sustained a TBI (closed-head injury related). This, plus my taking employment doing janitorial work while my Immune system was weak (many chemicals on the job) has caused me to be MCS. I am new to computers (less than a year) but felt driven to really put my "nose to the grindstone" and gather some physical data to have handy when someone doesn't understand MCS. The most dis-heartening thing for me is when people tend to "laugh it off" when I try to explain, or worse, when the medical fields writes my "fear of exposure" of as a PANIC ATTACK. I have been given anti-depressants and other medicines to "treat my "hypocondrea"" which only leads me to getting sicker. Drug, Chemical, Perfumes and Dyes......I dread Winter when all of the building recirculate the same air.....of course I panic, as a result! At least I know that when I step outside for air it will be cleaner than in the summer. I agree wholeheartedly wi th the anger/anguish expresses recently in a posting as to how our government etc. will allow all of these harmful chemicals into everyday products until they can be proven to be "harmful". My spin on that is that they won't allow "natural" medicines/therapies until the figure out (I believe) a way that it can profit from them. I have seen people die because the "regulations" wouldn't allow certain things. In my city we had a public building open a few years ago and instantly peole were getting ill. I took forever for them to address the chemical issue.....I heard them guess car emissions, sewer gasses, ventillation problems till I wanted to scream! Duh! It all related to clean air. I hope to become more involved in advocacy but at the current time, just as since 1987 when I started having problems, I will continue trying to heighten awareness/educate. Thank you for creating this and the numerous other sites that are now available, Brian.

Brian
Toledo, Oh USA - Thursday, October 12, 2000 at 13:47:49 (GMT)
Before THE SMELL got to me i was sick. i had allkinds of sickness in my body.i had headachs, digestive problems, joint pain,and others problems. this i had most of my life. but three3, years ago it hit me right in the face. that smells, now i am almost 30 years old. those smells are so ALL-FULL. THAT PER-FUMES, THOSE CHEMICAL CLEANERS, THAT cigeRATS SMOKE,AND THOSE CAR FUMES.AND MANY MORE.THOSE FUME-A-GATES IS GOT TO BE STOPED. YOU MY BE HAVEING SOME SICKNESS NOW, BUT WHEN THOSE SMELLS COME IN TO YOU LIFE LIKE IT IS TO ME ITS NOT ALL THAT FUN ANYMORE. BUT DONT GET TO UPSET.BECAUSE IT IS NOT IN YOUR MIND BECAUSE M.C.S.DISORDERS ARE PHYSICAL HEALTH PROBLEMS. THANKS.
mike.D.
CARROLL,COUNTY., GA. USA - Monday, October 09, 2000 at 11:39:33 (GMT)
Thank you for your wonderful website. I am currently doing research for a persuasive speech on banning fragrances in the workplace and found your website helpful and educational.
Jennifer Lewis
Moorhead, MN USA - Saturday, October 07, 2000 at 17:27:38 (GMT)
I want to thank you very much for your web page with all the information on Chemical Sensitivities and the dangers of all the Chemicals we have in our enviroment. If we can get this out to the public as much as possible, perhaps we can plant a seed, to START to PREVENT, all of the inviromental illness's that are occuring because of these chemicals that are within the day to day living, of each and everyone of us today. Your site is very informative and because of my own problems with Multichemical se nsitivities, Chronic fatigue and fibromyalgia I want to thank you for the time you have put into getting this information on line. Please let's somehow get it out to the "PUBLIC IN GENERAL", who have no idea (because they are not sick,"YET" ). If I was not sick I would probably poo poo the truth's also (sad to say), but with more and more of us getting sick it is getting harder to deny these facts. Thank you again for the information and fact based studies you have included in your web page. Let's pass this information around to our friends and relatives and neighbours. Sad we have to close our doors and windows in the heat because of the fabric softners neighbours use in their dryers. If MORE of us put this information out perhaps people will stop thinking we are "hypocondriac or whatever words some may want to use." Louise
Louise
Langley, B.C. Canada - Saturday, October 07, 2000 at 14:41:00 (GMT)
thank you for creating this web site. i have recently been diagnosed with EI and it has been a rough few weeks. Your web site gave me information I needed to start to understand this condition

thank you so much
liz

liz heller
jacksonville, ark USA - Friday, October 06, 2000 at 13:50:01 (GMT)
I really like that you have a web site about Tourette Syndrome. I have Tourette Syndrome. I am 15 years old and was diagnosed when I was six years old. Keep up the good work. I hope that someday there will be more awareness about Tourette Syndrome. It is a very rare disease and not many people have even heard about it. Only about 1 out of every 3000 people have Tourette Syndrome.
Cassandra Sprague
USA - Thursday, October 05, 2000 at 19:52:16 (GMT)
To Mike in Carroll County, one method of improving (it helped me) is sauna detoxification. This is done at Dr. Rea's clinic in Dallas (the Environmental Health Center www.ehc-d.com) I was able to get the protocol from there and using an inexpensive portable sauna, I "detoxed" at home. It needs to be a low heat (130 +/-) and in a sauna that is not off gassing contaminants. There are books out that cover this subject. I used a booklet from NEEDS 1-800-634-1380 called A Guide to Detoxification for th e Chemically Hypersensitive. The NEEDS catalog has alot of other books and many products for EI folks. I think they will send you a catalog for free. Their web site is www.needs.com It is important to use the sauna with caution because one can get worse if they are not doing it properly. I hope this is helpful. God bless you and me and everyone else out there suffering and suffering with us.
Priscilla
Rogers, AR USA - Thursday, October 05, 2000 at 14:45:09 (GMT)
I have meet 3 people who went to the GULF WAR thy have been been sick.and i have talked to a few people who has chemical sensitivty. but there is differnt levels of both sickness its like 1-10. when it gets to level 10 a mask you would hast to put on to outside. but if you live with people that smoke or use chemicals or that per-fume it would be so, so, upsetting. and if you live in a new house those smells can get to you. or to all of us.GULF-WAR SICKNESS AND M.C.S.are all most the same.to my und erstanding.put i dont know the right treament for them. if any one out there that knows a good treament on G.W.S. OR M.C.S. PLEASE POST IT ON THIS PAGE. THANKS , IN CAREING..... M./D.
mike D.
CARROLL,COUNTY , GA. USA - Wednesday, October 04, 2000 at 10:55:01 (GMT)
Amazing
LaurisJacks
Pensacola, FL USA - Tuesday, October 03, 2000 at 11:14:13 (GMT)
I would definitly like to thank all involved in putting this website together, it is truly amazing and meaningful information. I am a Chemistry Student doing a large report on Enviromental household cleaners, and the information you offered on the website was truly outstanding.
Thank You so much
Melanie

Melanie
Canada - Monday, October 02, 2000 at 19:18:43 (GMT)
I'd never heard of MCS until someone called the Center for Independent Living asking for assistance. Now I am looking for support groups and resources. This site has been very helpful.
Lisa
Tallahassee, FL USA - Monday, October 02, 2000 at 16:02:35 (GMT)
I have decided to reapply for Social Security Disability. Does anyone have any information about disability applications based on MCS and success on getting them approved? I have info from a lady who was approved 10 years ago without a hearing, but I wonder if anyone has any more recent experience? Thank you!

Priscilla Farrell
Rogers, AR USA - Monday, October 02, 2000 at 14:36:26 (GMT)
well i think it is time for some singers to sing abouth that all-full PER-FUME.and other chemical smells.for me i have been singing tones to my self on that all-full stuff. a lot of people dont realize on the dangerment of THAT PER-FUMES. AND OTHER CHEMICAL STUFF.living on low income with people that SMOKE THOSE cigeRATS, and use those CHEMICAL Cleaners. is so all-full, so so all-full.AND when people come to your house with that PER-FUME you hast to put your gas masks on.because the world has become a FUME-A-GATE EARTH.
mike d.
carroll county, , ga. USA - Monday, October 02, 2000 at 12:46:04 (GMT)
Your pages are really great - Thank you. Seems like every day I must feel lousy and cope with perfumes and people who unaware seem to be irritated by their own perfumes. I hope something can be done about this situation.
Dennis L. Baney
Rohnert Park, CA USA - Sunday, October 01, 2000 at 02:55:54 (GMT)
A person in my office wears so much perfume I have trouble breathing, have headaches, nausea, dizziness and sometimes fell as if my body is quivering. I went to my supervisor and the City Manager and was told the person has the right to wear this scent. Quite a few people in my office have been suffering with acute sinus problems, but since I am the only one to become physically ill, it has been discounted that the perfume could be the problem. I feel it is more important for this person to "smell good " than it is for me to breathe. I'm not sure what I can do. Perhaps someone has some suggestions, if so I would appreciate comments.
Alice Knight
Eustis, FL USA - Friday, September 29, 2000 at 06:53:02 (GMT)
new internet user. so happy to find this site!!!!!!!!!!!!!
NANCY LEE ROSS
FORT ATKINSON, WI USA - Wednesday, September 27, 2000 at 10:42:37 (GMT)
a lot of people have sentivity, there a differnt levels of it.our world has all kinds of allergys, and chemicals. and that all-full PER-FUME in it.and allergy shots my not be the anwser for some of us. most allergy shots will hast to be taken for 2 years to see if it is realy workin for you,. and you hast to get them 2 times a week.thats 8 shots a month .and thats 8 times 24. and thats a lot of shots. and for some people thy are ALLERIC to the shots.for me i had to stop takeing the shots because there office had PER-FUME smell in it. and the doctors there dont realy belive in M.C.S. and thy are [not]right. because M.C.S. ALLERGYS IS REAL. THANKS.
mike d.
carroll county,, ga. USA - Tuesday, September 26, 2000 at 11:47:34 (GMT)
WOW...I am glad I have stumbled on this site. About (2) years ago I started to have very negative reactions to common household cleaning and beauty products that never bothered me before. I have been fairly successful in staying away from cleaning products but I could definitley use some help with regard to beauty products. Does anyone know of a makeup line that is chemical/fragrance free? How about hair styling products like pomade/wax and gel? I just got this great haircut but I cannot tolerate a ny styling products (due to the fragrance) which this style needs to look pulled together and professional. This may not seem like a big deal but without makeup and styling products I simply look sloppy and unprofessional. Any help or advice would be greatly appreciated.
Dina
Los Angeles, CA USA - Sunday, September 24, 2000 at 20:42:08 (GMT)
I was very pleased to find your informative website---I am doing some research on MCS and sick house syndrome trying to help my aunt who suffers from severe constant migraines, rashes, and, most recently breathing difficulties--her doctors are of no help; treating the symptoms (unsuccessfully) but not looking at the possibility that she is reacting to all the 'ordinary' home chemicals and preparations. I have earnestly asked God to lead me in my search for an answer to restore her to health. I am tha nkful that He has lead me here. Thanks for an informative resource.
Diddy
Forked River, NJ USA - Saturday, September 23, 2000 at 14:30:59 (GMT)
Please help us get the word out. This is no joke. My family and & were posioned. Don't let this happen to you !!!
Bob Varney < thesootfairy@yahoo.com>
Topsfield, Ma USA - Friday, September 22, 2000 at 14:45:28 (GMT)
I was diagnosed with MCS in 1989 but it took 5 years to persuade the authorities that such a thing existed. During this time I kept on working in an enviroment of UV inks, solvents etc. Three years after leaving work I underwent a triple by-pass after suffering angina disguised as muscle spasms for at least a year. I am shortly to undergo a total hip replacement, all I feel due to ex work. I hope my story will help others.
Miss A Warburton
auckland, New Zealand - Thursday, September 21, 2000 at 22:52:25 (GMT)
This is a really cool web site, thesse guys have put together, I was chemically poeissend, at work, and have been very , very sick now, for 8 years, some of you know who Iam , I moved to Alaska, too breath fresh air, and live as healthy as possible, I found, no matter, where ya, run to , there is no real safe place, free of chemicals,
Although Alaska, dose have good water and air, it is also very toxic in the winter months, I would like to say hi , too all of you that do know me, and also to thosse of you that don"t, My liver, & keddnys, are still failing me,
the pain, is always there even, under, heavy medication, of morphine, I want to wish all of you , well, and nontoxic dreams, clean water, and, non- pestiside, salds,
but most of all, find any happyness you can at all,
and share it with sis always there even, under, heavy medication, of morphine, I want to wish all of you , well, and nontoxic dreams, clean water, and, non- pestiside, salds,
but most of all, find any happyness you can at all,
and share it with some one else, never forget to smile
, and if ya, can don"t pass up a hug, thanks to you all,
I do think about you all, even way up here in alaska,
feel free to e-mail me, at rhandel@ak.net, I know some of you would like to say hi, after so many years gone by,
Rick Handel

Rick Handel
Wasilla , AK USA - Thursday, September 21, 2000 at 05:11:01 (GMT)
In response to Char from Canada who said:
AFTER LISTENING TO A RADIO TALK SHOW RECENTLY, I AM WONDERING IF MY CONDITION(BLOOD TESTS SHOW LIVER ABNORMALITY) COULD BE MCS. PLEASE SUPPLY ANY INFO! THANKS.
char
durham, ontario canada - Friday, September 15, 2000 at 20:05:01 (GMT)
Good for you, Char....definately look into food/chemical avoidance and observe any changes in the blood tests over time. MCS has been know to attack the vital organs. Avoidance and research can't hurt and may save your life.
Choose Life

Choose Life
USA - Monday, September 18, 2000 at 22:29:30 (GMT)
My son is extrememely chemically sensitive and sadly even though we live by the sea and all this fresh air we are bombarded almost daily with pesticides...have been working with a scientist who created a neutralizer so at least I have no more toxic air in my house. We have had a pest control guy monthly for 2 years and could not figure out why my son was so ill!!! Now I am slowly learning all about MCS glad to have some definitions to present to other parents and doctors. Thanks
Kristine Graham
Nassau, Bahamas - Sunday, September 17, 2000 at 13:37:44 (GMT)
AFTER LISTENING TO A RADIO TALK SHOW RECENTLY, I AM WONDERING IF MY CONDITION(BLOOD TESTS SHOW LIVER ABNORMALITY) COULD BE MCS. PLEASE SUPPLY ANY INFO! THANKS.
char
durham, ontario canada - Friday, September 15, 2000 at 20:05:01 (GMT)
HAVEING M.C.S. IS A DALY BATTLE. THOSE FUME-A-GATES REALY GET TO US THATS PEOPLE WITH M.C.S. ITS SO STRANGE THAT PEOPLE PUT THAT PER-FUME ON. AND THY DONT KNOW WHAT IT IS DOING TO US OR EVEN [THIM ].THAT SMELL GOSE RIGHT TO THE BRAIN.I LIVE WITH IT EVERY DAY THY SMOKE IN THE HOUSE , AND THY USE THOSE CLEANERS OF CHEMICALS. THY SAY IN MY FAMILY ITS A MENTAL ILLNESS AND SO DO SOME TOWNSPEOPLE TOO. AND THY ARE WRONG...ITS A ALLERGY TYPE DISORDER. WELL LIKE I SAID ANY THING WITH FUME IN IT LIKE PER-F UME KNOW ITS NOT RIGHT. THANKS ...
MICHAEL D.
CARROLL COUNTY, GA., GA,. USA - Friday, September 15, 2000 at 11:32:05 (GMT)
well the weather has cooled off alittle here in georgia,i can get out and walk and not get to hot but them FUME-A-GATES still get to me and a few others ,that cierRAT smoke gets to me at home AND THAT per-fume gose right to my head. do we need 2,000 dollars gas masKS.,we would has to replace the filters a lot and i dont like to order things in the mail to much for the health.its just abouth MOLD, AND FUNGUS TIME of the year.I BELIVE the AMERCIAN INDIANS GOT SICK OF THOSE ALLERGYS FROM MOLDS , FUNGUS, AND THOSE SMELLING FLOWERS, MADE THEM SO UPSET,SO UPSET. AND NOW IT IS US. AND NOW WE HAVE TOSE ALL-FULL CHIMICALS THAT GOSE RIGHT TO OUR BACK BONES. THANKS , AND IN ALL WAYS IN CARING, MICKY D , OF WEST GEORGIA.
michael d
carrollton, ga. , ga. USA - Tuesday, September 12, 2000 at 11:34:42 (GMT)
Please send me pertinent information regarding multiple chemical sensitivity and toxicoligists in the Rockland County, New York Area.
kaitlyn
Pearl River, NY USA - Sunday, September 10, 2000 at 17:50:46 (GMT)
We [wayne& I] have contacted the U.S. Department of Health & Human Ser.[hhsmail@os.dhhs.gov] hoping to get these items labeled just like the tobacco products with a warning.Some of you might want to contact them also.The add. for letters[200 Independence Ave. S.W. Washington,D.C.20201=Toll free no. 1-877-696-6775 We might get together & get this going to protect ourself @ others.Thank You So Much
Loyce Tucker
Jonesboro, Ar. usa - Sunday, September 10, 2000 at 13:40:05 (GMT)
Jacki, I have a friend who had the same thing and she is taking a product called Reliv Classic and Reliv Fibrestore. This cured her about 90% and then she started to take ReVersAge and it is taking the metal out of her system. We have started another friend on this product and I am anxious to see how she is doing. This is her first day. If you have any questions you can check this out at Reliv.com. It may be worth the effort. Bonnie
Bonnie L. Sooy
Stanton, Mi USA - Friday, September 08, 2000 at 14:14:19 (GMT)
THE INVASION OF THE MOLDS FUNGUS, AND MILDEWS. AND THAT ALL-FULL CHEMICALS, AND PER-FUMES. Allergys can be bad but when it changes over to MULTI. CHEMICAL SENSITIVITY IS another storyay, September 08, 2000 at 14:14:19 (GMT)
T HE INVASION OF THE MOLDS FUNGUS, AND MILDEWS. AND THAT ALL-FULL CHEMICALS, AND PER-FUMES. Allergys can be bad but when it changes over to MULTI. CHEMICAL SENSITIVITY IS another story. M.C.S. PEOPLE have other phycial problems in there bodys and it is NOT a mental illness. it is a real physcal health problems. i have M.C.S. problems for over 3 years now. and some times its like hell on earth, and its hard to but on a MASK to cover up in publick. some one may call the poLICE on us. and we will be call ed a mental person or a 10-96 witch is a mental case in the codes thy call out. witch is WRONG. to be called that... and thy may lode us up and put us in a mental hosptal. and give us the raw deal. like i said we have PHYSCAL health problems and there is a lot trying to get help. and like most of us the money is short hand the averge income on disabilty is around 600 dollers. or even less. and thats hard to come by. when those FUME-A-GATES taken OVER OUR LIVES.
michael d.
carroll county,georgia. , ga. USA - Thursday, September 07, 2000 at 12:33:34 (GMT)
I greatly appreciate this web site, 8 yrs ago I was told that I was allergic to formaldehyde and I did not take it seriously. I did not get tested, now I am having all kinds of health problems. It took a while but I finally found a doctor to do chemical patch testing. (It took forever to find a doc to do just that!) In the meantime, I feel like I'm falling apart, ie. swollen eyes, swollen throat, extremely tired, sleep but don't actually sleep?!?!, my skin feels and looks like I pour acid on my hands, it burns, itches, very painful, short of breath, chest pains, nauseas most all the time, etc. I'm really sick and tired of feeling this way! So, finding your website helps me to think that I'm not losing my mind!! Thank you so much!
Cathy Hallam
Cedarville, OH USA - Wednesday, September 06, 2000 at 14:52:02 (GMT)
I love your site,it's very informative. I am very sensitive to chemical smells,and scents .I have been to a lot of Doctors ,and I have had surgery on my nasal sinus,but I am still having trouble with scents, newspapers, perfumes make me really sick, it triggers something in my forehead,and top of my head enought that it makes me confused. Is there somewhere in the Guelph/Kitchener,Ontario area that I can be tested for this problem. I am having a lot of trouble
trying to work like this.(Iwork in an Hospital) If any one out there can help please e-mail me.

Thank-You

Pansy Ryan
Guelph, ON Canada - Tuesday, September 05, 2000 at 17:11:39 (GMT)
WELL I went out walking to day and those fumes got to me,75percent i have to walk every were i go. and those fumes get to me. I WENT by a house and thy had lots of BLOOMING PLANTS and the smell was like some of that PER-FUME those people PUT-ON.haveing MULTI. CHEMICAL SENSITIVITY ALLERGYS IT is hard to live with. when some of your family members dont belive in it or if you been in mental wards hospatals,because you have been upset with ALLERGYS, AND CHEMICALS. and thy PUT you on those ALL-FULL D RUGS.BECAUSE M.C.S. IS NOT A mental illness IT IS A PHYSCAL ILLNESS.
michael d.
carrollton, GA. , GA. USA - Tuesday, September 05, 2000 at 12:36:35 (GMT)
I love your site,it's very informative. I am very sensitive to chemical smells,and scents .I have been to a lot of Doctors ,and I have had surgery on my nasal sinus,but I am still having trouble with scents, newspapers, perfumes make me really sick, it triggers something in my forehead,and top of my head enought that it makes me confused. Is there somewhere in the Guelph/Kitchener,Ontario area that I can be tested for this problem. I am having a lot of trouble
trying to work like this.(Iwork in an Hospital) If any one out there can help please e-mail me.

Thank-You

Pansy Ryan


Guelph, ontario Canada - Monday, September 04, 2000 at 14:15:43 (GMT)


my sister just had a baby hes 5 days old shes a school teacher for cosmetology but she does acrylic nails at home with polish n chemicals to make the nails n bond them and also build them up when i go in the house whens shes doing it it smells like u dont know but she has baby in the next room shes been in the smell for years n dont believe its bad i know its got to be lung n brain bad but i need more info and proof can u help me out ?.......... thank u ROB :)
rob
baldwin, ny USA - Monday, September 04, 2000 at 12:29:47 (GMT)
I have an allergy to Quartnimn which is a preservitive that is found in 95% of everything on the market. This allergy provents me from working out of my home. I am always looking for all natural toiletries.

Any natural salutions would be helpful.

Thank you!!!! Marty

Martha Gasche
Albion, Mi USA - Sunday, September 03, 2000 at 09:24:36 (GMT)
As I sit here in the Traverse City Public Library, accessing your website so that I can print our the information you have compiled on Perfume, there is a women sitting next to me with perfume on, stinking up the air space. Thanks for the information in your website, as my wife is extremely sensitive to perfumes and this information needs to be disseminated. Keep up the good work! Thanks for the information and let me know how to help.
Best Regards,
Rick Schadt

Rick Schadt
Traverse City, MI USA - Saturday, September 02, 2000 at 14:37:42 (GMT)
THJIS MY FIRST TIME TO ADD ON YOUR GUESS BOOK
ED H.APARTA
QUEZON CITY, PH PHILIPPINES - Friday, September 01, 2000 at 13:57:10 (GMT)
When I introduced myself before now two years here with my TrueMedia forum - which is led primarily in German language, in in addition, English contributions are very welcome sent me someone from the USA information about the condemnation of a Speptikers criminal for my understanding, which had verhoehnt in many homepage patient with MCS and despite available scientific proofs scientifically not provable statements sets up. Therefore he was condemned by a US court to a high fine. President Clinton ha d announced this law, as one indicated to me, 1990. They will surely know, of which language pipe of the chemical industry I speak. Unfortunately these info. was lost to me. But we need these info. here in Germany urgently. Who knows details about this condemnation.
Harald Haack
Hamburg, HH Germany - Friday, September 01, 2000 at 07:07:34 (GMT)
I have been living with what I believed to be CFS for 5 years now. I have been noticing worsening symptoms of MCS in the last 2 years. My doctor, of course, is worthless. I had to diagnose myself with MCS. I have recently quit taking all my medications as I felt they were making me worse. I was right. I haven't improved much by not taking them except that I sleep better and my nerve endings are no longer raw and my circulation has improved. I have been looking for answers through the internet as that's the only place I can find some answers. I worked at a plant that makes diesel fuel pumps. I was constantly exposed to diesel-based calibrating oils. The building was well-ventilated until EPA came in and said that it was polluting the air. So now all the chemicals are trapped in the building harming the workers. (Tell me that makes sense!) I felt that was the cause of my problems. All the doctors and; of course, the plant payed no attention to it. This week, I was at the Fire Station where I am a volunteer. We sprayed a pesticide throughout the building. I had severe gas pains, felt very lightheaded and weak. That's when I realized that I may have been misdiagnosed. Your website has given me hope when I had given up all hope of any kind of recovery. I now feel I can regain control of my life. For the first time in five years, someone has told me the truth and given me a way to beat this illness. Thank you for giving me my life back.
Stacey Dann
Midway Park, nNC USA - Thursday, August 31, 2000 at 02:26:26 (GMT)
It is great how much coverage there is on MCS now, you site has helped me in many ways. Thanks, Liz Makela.
Liz Makela
Battle Ground, WA USA - Wednesday, August 30, 2000 at 02:10:27 (GMT)
We bought a house in Russellville Al. & owner had 22 air[Renuzit]fresheners in house=concealed more soo,We were there 3wk.& Wayne went in Hosp. with poison blood.We been told by Dr. it was the air fresheners Or water that did this.The real estate commissioner is working with this matter at present time.Thank you for all you have on website.We have contacted the Dial Co. also.They say they donot release any data,but I bet our Att. will find out a few things Dial doesn't want to tell.These can cause ane mia& lung problems plus bone marrow problems .Thanks for all the help we find with the website.
Loyce Tucker
Jonesboro, Ar. USA - Tuesday, August 29, 2000 at 22:06:15 (GMT)
Jalung problems plus bone marrow problems .Thanks for all the help we find with the website.
Loyce Tucker
Jonesboro, Ar. USA - Tuesday, August 29, 2000 at 22:06:15 (GMT)
Jacki & Gorden - Thanks for your beautiful story of faith and perseverance. I have been living with MCS for almost two years. It has turned our world upside down. I am thankful that I found a doctor in the beginning who diagnosed the condition and helped me get it under control. One day I want to thank Job for his example. I have read the book a number of times since this began, and each time I am challenged to remain close to God through the bad days and be doubly thankful for the good ones. I kn ow God works ALL things for good for his children.
Diane Johnson
Beech Bluff, TN USA - Tuesday, August 29, 2000 at 08:15:56 (GMT)
Great site and information. More needs to be done to get the word out about how people poison themselves unknowingly while creating huge profits for the poisoners. I always thought that knowingly poisoning someone was illegal. I am a member of an environmental group at my church and this site will be used to help educate others. THANK YOU!!!
Jory Pradjinski
Shorewood, WI USA - Monday, August 28, 2000 at 10:57:59 (GMT)
I found your web site after reading Jackie's article in the Rest Ministries Newsletter. Thank you, Jackie for creating a most informative site....a fun one too!! God Bless.
Lynn
USA - Monday, August 28, 2000 at 03:20:09 (GMT)
Thank you for being there....my 12 year old son has tourettes...I am trying to learn all I can before having to submit him to any kinds of drugs....I am especially interested in alterntive medicines
Michael McCoy
Phoenix, AZ USA - Friday, August 25, 2000 at 23:57:20 (GMT)
the suffering of haveing M.C.S. problems i have every day i live with people that smoke in the house, i tell them its makes me sick thy tell me its all in my mind. i live in a town were there a chemicals made. and you can walk by there place and smell that stuff.if people dont think M.C.S. is real one of these days thy may come down with it. thanks , in careing.michael d. carrollton, ga.
michael d.
carrollton,ga., ga. USA - Wednesday, August 23, 2000 at 12:20:57 (GMT)
a site for anyone to use for research into chemical injury and exposures. Done by a professional who was chemicaly injured on the job as a nurse
Janice Homer
brockton, ma USA - Tuesday, August 22, 2000 at 20:20:02 (GMT)
I live in Southern California. Orange County, Yorba Linda. I have had CFS for 12 years and Fibro for 6. I am divorced, 5 years now. Have full custody of 15 1/2 year old boy. I'm male. I guess this makes me a, single white male, LOL. I enjoy writing. I have two screenplays finished. Photograpy, hikeing God willing, movies.
Keith Carden
Yorba Linda, CA USA - Monday, August 21, 2000 at 10:30:13 (GMT)
Seen on CBS news, Dr. Sam Epstein, FDA director, warns consumers to read the labels on personal hygiene and beauty products for harmful ingredients and carcinogens such as propylene glcyol, cocoamide DEA, sodium lauryl sulfate, petrolatum, mineral oil, lanlolin. The Public Has the Right to Know whats In their products, and that there are alternatives available to them.
Shelley Kramer
MAlibu, CA USA - Sunday, August 20, 2000 at 14:30:04 (GMT)
i love your page may our LORD give you many blessings
your sister bernadette

bernadette
orlando, fl USA - Saturday, August 19, 2000 at 19:50:15 (GMT)
that smell OH' that SMELL i wish it would all go to HELL. THAT WO- MANS PER-FUMES IS GOT TO GO' SO THROW IT OUT THE DOOR. HOW DO WE GET RID OF THAT FUM-A-GATEING STUFF. BE CAUSE WE ARE NOT KRAZY. IF U SEE US WHITH A MASK ON, WE MAY NOT BE THE K.K.K. THE GOVERMENT HAS BAND WAREING MASK IN THE STREETS.THATS IN PUBLICK.WHAT ARE WE GOING TO DO........................................................................................................................................................... ........................................................................................--..,,;;[[]].
M.D. MARSHMELLO
GA ., US A. - Thursday, August 17, 2000 at 12:25:46 (GMT)
i was reading someting in a magazine it said that in the year 2020 that 50 percent of the people will have some type ofsensitivity. well it came upon me less than a year. and i suffer every day. i think parts of our goverment has let our people down it seems things are getting dirty around the u.s.a. the air smells bad from dust, to car fumes and chemicals in the air, land, and waters. i thank our goverments all over the world like to mess with those chemicals and fumes thy get high on them i think . but theres death in messing whith that suff. any thing can happen . what are thy going to make up NEX. thanks ,in careing, michael d.
michael d.
carroll county,, ga. USA - Thursday, August 17, 2000 at 11:19:44 (GMT)
This is the best page for people with allergies I can see why we are getting sick!! Thank you for this information!!!I hope this will open others to the fact that they are making others SICK!!!!THANK YOU
Judy
USA - Thursday, August 17, 2000 at 07:48:49 (GMT)
regarding:http://www.ourlittleplace.com/testimony.html

Praise God! living in a small town that is literally 97% catholic, I decided to search for a little encouragement...

I found it.. thanks.

glad to see someone making the angels rejoyce.


oh, btw: reading your testimony... it's the book of revelation.. singular. there is only one Revelation given...it was given by God the Father to Jesus (1:1)..

but enough squibbling about details! have a wonderfully joyous and salvation secured day!

reece mcconkey

reece mcconkey
ottawa, oh USA - Wednesday, August 16, 2000 at 14:11:43 (GMT)
I have been working on and looking for help for the chemically injured for years and have found some very helpful products and organizations. Anyone interested please feel free to contact me. God Bless!!
Julia Williams
St. Pete, FL USA - Monday, August 14, 2000 at 09:35:44 (GMT)
It's great to discover a christian web site.
Ginger
Jonesboro, AR USA - Thursday, August 10, 2000 at 22:39:22 (GMT)
My sister has mcs she needs to buy her own home and safe guard it. She needs to know what kind of heat is required?
Is it gas and hot water? Also can she use a stain for hardwood floors? If so what is the least toxic? If anyone knows can they please e-mail me back the answers?

Thank You,
I would really appreciate any information anyone has on this subject.

michelle
dallas, pa USA - Thursday, August 10, 2000 at 19:25:13 (GMT)
I love this site! It is Kim from The Muffs favorite web site she recomdes it on her favorie links page @
http://www.rotodesign.com/muffs/



Jon
Salt Lake City, UT USA - Wednesday, August 09, 2000 at 02:31:49 (GMT)
thank you for the help on your site. i have cfs/fm/mcs and now my dr. says i have environmental illness. have been ill for a number of years. we are renovating an old farm house in NE texas that was my husband's grandparents and is now ours. the building matierials and dust, dirt and chemicals plus paint, etc has taken it's toll on me. am very sick right now. we are christians. again thank you for your help from your site. have sent your web site address to others who have cfs.
s.smoak

s.smoak
jefferson, tx USA - Tuesday, August 08, 2000 at 17:40:22 (GMT)
some people told me long time ago the u.s.goverment put suff in the ground,.like chemcials.and ect... in diff. parts of the u.s. is this true. and the other day on the radio news that 100,000 gulf war vets. are sick with there health.
mike d.
carroll county, ga., ga. USA - Monday, August 07, 2000 at 12:57:35 (GMT)
I was looking for some links about people leaving the Roman Catholic Church, I am thinking of adding your site to my homepage list, stop bye or email me somtime to let me know if this is okay!
maisy's website for Jesus

Nice site, and I told my Mom about your findings about perfume, she said she was going to stop wearing it for a week to see if her headaches go away, please pray for her!
GOD BLESS!

MAISY
FREEDOM-IN-JESUS, :) USA - Sunday, August 06, 2000 at 22:29:30 (GMT)
Thank you for sharing. I am a chemically hypersensitive person who is trying to problem solve how to successfully rejoin the workforce. Last year didn't go too well, I'm hoping for better results this school year. The buttons are wonderful! And I already have a button maker! Thanks
Nancy
USA - Friday, August 04, 2000 at 21:31:59 (GMT)
I am visiting your site the second time this month and I must say your resources are most helpful in my line of work. I am runing an alternative health foundation in Lugoj, Romania, and I've just recently discovered the ever-resourcesful Web. I must say I am most pleased that so many alternative health professionals can come out of their forced 'shadow retreat' and spread the word on things all of us can do for their own health. I hope we can actually interact in person on some further date. Once agai n, thank you for being there and doing the good work

God bless you
Virginia Faur

Virginia Faur
Lugoj, Romania - Thursday, August 03, 2000 at 05:26:00 (GMT)
I just now found your site, and have to go to bed. It looks great! Thank you! I'm suffering from perfumes in shampoo and conditioners. Can't find any fragrance-free hair products. Can you help me? Thanks for any help you can give.
Mary-Alice Devor Dickinson
Montrose, CO USA - Wednesday, August 02, 2000 at 23:34:00 (GMT)
we have jehovah witnesses come to our house some times and thy printed a message on M.C.S. in there AWAKE magazine of Aug-8-2000 Iss.print called everyday chemicals are thy making you sick/. it tells of m.c.s. and it helped me to understand it better i have m.c.s. problems.what went wrong to have this. thanks, in careing,mike d.
mike d.
carroll county, georgia, ga. USA - Tuesday, August 01, 2000 at 11:39:06 (GMT)
Steps should be made to ensure that offending products are labeled properly just as cigarettes are labeled. Then let the potential buyer read the label and decide whether he/she feels "lucky" today. Hospitals, Doctor/Dental offices, Churches, Schools and Grocery stores could benefit from a no scent/no harsh chemicals policy. Those seeking such may be rewarded if enough people politely request this in writing. Always, always, always, make your requests in writing. In the mean time, HOLD YOUR TONGUE, a nd put on your mask. Bring an oxygen tank if if it helps you function. But there are polite/respectful ways to get the message across to others. Raging in public is not the solution.
I personally feel there are sacred places where people should have the right to wear perfume.. ie. movie theatres, concert halls, weddings, large department stores, and clothing stores and of course outdoors. Most of us with MCS could not work in places like this without a mask.
When out and about, if I smell a strong scent like detergent/ bleach/or someones perfume I hold my breath and walk to another part of the store for fresh air. Due to years of chemical/food avoidance my reaction to scents/foods has reduced dramatically. I have a clean bill of health, but I still avoid even traces of chemicals after repeatedly observing how they slowly progress to signs of the debilitating symptoms that almost destroyed my good health. I feel thankful that progress is being made to edu cate the public.
Jacki, the old archives you have here of peoples symptoms and exposures is something I have not observed anywhere else on the net. I often return to read the old, old archives in your visitor remarks pages. Interesting news there.
I'm seeing the progress in MCS awareness. Thanks for regularly updating your site with news. I'm sure your site has opened many eyes.
B.

B.
USA - Thursday, July 27, 2000 at 01:28:59 (GMT)
Some people and places dont understand people with M .C. S. Ihave been band from places because i had a bad reations to per-fumes and ect... stuff. i was band at all local city parks and even the Hospatal and some doctors offices thy all have that per-fumes in them witch makes me verey upset. i allso have physcal health probs.thy treat me like a test hamster or a rat. but i am a human i have rights. thy exspose people to dangers stuff in these places. thy even put me in jail for talking of M. C. S. . THY ARE THE ONES THAT ARE CRAZY.
MIKE D.
CARROLLTON, GA., GA. USA - Wednesday, July 26, 2000 at 11:46:22 (GMT)
Vast amount of information on your web site. I suffer from perfume allergies, major problem being office with very little sensitivity from co-workers or management. Told that it's employees rights to wear fragrance, I suffer.
J. Coleman
USA - Sunday, July 23, 2000 at 19:50:04 (GMT)
WELL TO DAY IS SATERDAY JULY THE22 OF2000 I HAVED WALKED TO TOWN ,FIRST I WENT TO THE LOCAL BANK TO CASH A SMALL CHECK AND AS STPPING INSIDE IN LINE THEM PERFUMES HIT ME IN THE FACE, AS WALKING CAR FUMES GOT TO ME AS IN THE SOUTH IT CAN GET VERY HOT IN THE SUMMER AND ALSO VERY COLD TOO.; I WALK MOST PLACES I GO I CANT DRIVE A CAR. MY TOWN I LIVE IN WAS ON A LIST AIR PLOUTIONS. NOT MANY PEOPLE GET OUT AND WALK IN MY TOWN. WHEN I AM OUT WALKING I SEE ONE OR TWO. WE EVEN HAVE A COLLAGE IN OUR TOWN APROX. 17,000 STUDINTS GO THERE.I DONT KNOW WHAT THY DO THERE. THERE IS NO PUBLIC TRANSPOTATION HERE BUT THERE IS A TAXI CAB SERVICE HERE. AS HAVEING M,C,S, ITS NOT FUN SOMETIMES. AND BEING ON LOWICOME.ITS HARD. LIVEING WITH PEOPLE WHO SMOKE CIGERATS.AND USE BLEACH CLEANING IT JUST BURNS ME UP.AND WHEN WE GET SICK THY PUT SOME OF US IN A MENTAL HOSPTAL.AND GIVE US THEM PILL AND ,SHOTS. BECAUSE YOU DONT KNOW WHAT THY ARE PUTTING IN OUR BODYS. THE LAW NEEDS TO COME DOWN ON THEM.WE ARE LIKE POLISH JEWS PUT INA KI LLING PLACE. THANKS FOR A NICE AND EAZY WEB. PAGE.GOD BLESS,IN CARING.
michael D.
CARROLL COUNTY , GA. USA - Saturday, July 22, 2000 at 10:41:00 (GMT)
a lot of mental health doctors try to brain was us and say that m.c.s. allergys a false. and thy LIE. M.C.S. which is Multiple Chemical Sentivty is TRUE . AND THY WONT US ALL IN A LOCKUP AND PUT SOME PILLS IN US THIS DRUGS A VERY DANGERUS THY MAKE US SLEEP A DAY LONG. FOR ME I HAVE TRYED MOST MENTAL HEALTH MEDS. AND THY MAKE ME PHYCIAL SICK THY MESS WITH THE HEART,AND OTHER BODY PARTS.IN A WAY I HAD M.C.S. PROBLEMS ALL MY LIFE. AND THEM MENTAL HEALTH DOCS. NEED TO BE LOCKUP FOR PUTTING SOME PEOPLE O N THESE BAD MEDICATIONS. WE ALL AS AMERCIANS HAVE RIGHTS DONT WE, THIS MISSTREATMENT IS GOT TO BE STOPED WHITH ALL MIGHT. WHITH THE GOOD LORDS HELP IT WILL SOME DAY.
mike d.
carroll county, ga. USA - Friday, July 21, 2000 at 16:09:54 (GMT)
For the past year, I have been having various effects from my work environment stemming from exposure to perfumes. A friend recommended this site to visit to get more information on the effects. Thank you for providing this site for others to learn from.
H S Saunders
Charlottesville, VA USA - Wednesday, July 19, 2000 at 13:47:20 (GMT)
i have learned so much from your site .my son and i aren`t very allergic, though my mom is .i plan on changing my living to "nontoxic"living asap! i like to clean with bleach and i`m a scented candle fan... but now i`m so turned off because of the things i`ve read, that i have thrown away most of my cleaning products , and DRYER SHEETS!!!! thank you very much for sharing your story and knowledge!
dina lombardi
boca raton, fl USA - Wednesday, July 19, 2000 at 09:44:27 (GMT)
As a person with mcs symptoms under control through food/chemical avoidance I have to laugh a little at these people who try to say mcs is non existant.
If they are so sure that no one could get mcs.... that there are no causes for mcs in our society.....and that no one has been exposed to anything that could possibly cause mcs.... I have one question.
Are you willing to gamble with your own health to prove it. It doesn't exist right? So do this. Why not. After all,nothing in this society can affect Your health, right? So do this.
Over the next... Oh... say...10...20 years...every time you're at the gas station pumping gas (MTB) take deep... deep breaths, hold those fumes deep within your lungs as long as you can. It won't have any detrimental health affects on You right? Nothing does. Not on You. And perfume? Load it on. I would give some special brands I've tried personally, but thats not nice...so lets just say most of the best smelling should suffice. Rub in into the pores on your head even. And whenever your out and about, if anyone around you is wearing a strong scent be sure to breathe deep...in fact chase around anyone with a stong scent and suck it up....always and hold it in. When using cement, or common household bleach, or airplane glues, or nail glue, or acrylic dust....breath deep (remember, it won't cause mcs...because according to you...mcs does not exist). Heavy dust on the road, cement, or plaster dust, breathe deep. If youre so sure it doesn't exist than you be a guinea pig with witnesses/documentation to prove you have been exposed to all these things and you have no mcs symptoms. Now THAT would be one for the record books. If you could do that over a 10-20 year period without getting MCS symptoms and document it with witnesses you are one rare tweety. In fact, you could probably sell parts of your DNA for your myraculous immune system alone.
Note: MCS does exist. How do you know what people and their ancestors were exposed to that could have cause MCS symptoms. Would you think differently if I said I lived in a town where there was a plutonium spill, or I was one of the Love Canal Victims, and I now react to small traces of chemicals in everything. If you do not believe anyone can get MCS, that is your choice. We with MCS have either been over exposed ourselves, and/or our parents or grandparents were overexposed and passed it on to us. We in Jacki's visitor remarks page choose to share our symptoms and solutions and help one another stop the cycle of exposure, suffering and unnecessary surgeries. It it our choice. And knocking our desire to help one another is Your choice.
Know this. Doing the experiment above is a death sentence. Do not gamble with your body. Do not do any of this thinking your are immune because you have great genetics. Science will probably one day prove that no one is immune if exposed to the right combination of chemicals. And they could be out there in your hairspray, your perfume, your hairgel, your milk, your fertalizer, you roach bombs, your ant killer, you bug spray, you nail polish, your.........
Awareness is a gift..... Everyone doesn't share.
..but then there are people like Jacki. .... wonder why?


B.
USA - Monday, July 17, 2000 at 03:07:16 (GMT)
This is a wonderful site! I'm glad to see such good information being published.
Kelli
Kent, WA USA - Monday, July 17, 2000 at 02:25:29 (GMT)
My struggle with MCS disability began 12 years ago. I did everything imaginable to deal with MCS as MCS. I was defeated on every front until I had no more strength. I am now "in the closet" and have been for several years. I'd love to come back out again if anyone can convince me that I could survive it. The emotional pain of "beating my head against a brick wall" for almost 10 years was intolerable. I now live a marginal life trying to survive and support myself with a disability that I no longe r will talk about. It's very hard.
Charla Keck
USA - Saturday, July 15, 2000 at 12:39:48 (GMT)
You people are sick. I've never seen such hysteria and obsession in my entire life. You may have started out with allergies, but you have made yourselves even worse. Have you ever heard of the term "psychosomatic'? Look it up. I can't believe that some crack pot doctor is agreeing with you. Do you know anything at all about anatomy or physiology? Learn. Learn why this explanation is a bunch of crap, and heal yourselves by coming to terms with the real issue, which is your obsession, and need fo r attention.And MY GOD stop teaching little Stephanie, a CHILD, to think this way, and live this way. She got it from a perfume fight. Yeah. What have you done to her? You've forced your obsession on her, and that is truly sick. Oh, and by the way Jackie, 80% of bottled water is tap water, and there's no guarantee what is in any of it, because the FDA doesn't regulate them, they are on the honor system. And they don't care about your "disease" they just want to make money. You do the math. Please, don't freak out and suddenly develop "reactions" to water. I'm not trying to be mean or offensive here, honestly I'm not. Think of it as tough love. I'm trying to smack the hell out of you untill you come to your senses. Stop This. Stop It Now. And For God's Sake Don't Raise Children This Way. Spyteful
Spyteful
Denver, CO USA - Friday, July 14, 2000 at 17:14:25 (GMT)
I appreciate the comprehensive site you have put together. Your book list is excellent. I am a non-MCS person speaking out about the growing problem of building exposures and environmental toxins. I noticed that you have included Tom's of Maine in your non-toxic toothpastes. Not so. It includes Sodium Laurel Sulfate, identified by Roberta Baskin on CBS 2 years ago as a carcinogen. I would also like to submit that Organic Essentials should be considered, as it is 100% organic and vegetable-based, toxic ingredient free and essential oil scented. Contact me for more information.
Elizabeth Rose
Yachats, OR USA - Wednesday, July 12, 2000 at 10:49:22 (GMT)
I am not a christian but I think this is one of the best sites around for easy to understand info on chemical sensitivity. I have a mild case of MCS - it doesn't stop me doing much but I have a lot of headaches and nerve pain to deal with. So thanks for your hard work on this great site and best wishes from me :-)
Lilitu Babalon
Bellingen, NSW Australia - Wednesday, July 12, 2000 at 09:07:31 (GMT)
Just thought I would pass on some info about a few products I have just started using and like very much. All come from Australia so there must be some good stuff going on down under. I buy them from the Hale Clinic in London (for those in the UK) which is a big centre for alternative medicine.

Flaxseed overall body moisturiser. Made by NATURAL SECRETS 23 Fairway West Yokine, 6060 Western Australia - this moisturiser has the shortest list of ingredients of any I have ever found and is fragrance free (Water, Tricthanolamine, Stearic Acid, Palmatic Acid, Wheatgerm Oil, Flaxseed Oil, Glycerol, Germall II)

Unscented very gentle shampoo for sensitive scalps and babies. THE PURIST COMPANY 33 Govell Street Katoomba NSW 2780. Free call 1800 63 1283.

Jurlique Calendula C cream - a wonderful facial moisturiser which is sadly very expensive. JURLIQUE is more widely available but as I said is very expensive (here in the UK anyway, its probably cheaper in US)

I continue to use Aveda Allsensitive Shampoo/conditioner/hair gel, and am quite happy with some of the Kiehl's products especially their 'extra-strength styling gel' which has better hold than Aveda and no fragrance. Kiehl's also do a Castile Shampoo and a baby shampoo which I like very much. If anyone - especially in the UK wants to mail me please feel free. My sensitivity to fragrance is much improved recently after I changed my diet and started taking nutritional supplements to control reflux. A very positive side effect as far as I am concerned, as you can imagine. Best wishes to all whether involved in God or not - cheers Katherine
Katherine
London, UK - Wednesday, July 12, 2000 at 04:43:27 (GMT)


Enjoyed the tip on alternative cleaning and personal hygiene products. Two products I use that you did not mention are Fruit of the Earth 100% Pure Aloe Vera Gel. I use it as a skin lotion & aftershave as well as a hair mousse. It works wonderfully. Also, I use Johnson's Ultra Sensitive Baby Wash. It is the only liquid soap I've found that is completely fragrance free. I am extremely sensitive to fragrances, even in so-called hypo-allergenic products so I am highly dependant on getting the aforeme ntioned products. Too bad they are usedmainly for sunburn (the aloe vera) and baby products. Many sensitive folks such as I would benefit if these were more widely marketed as allergy free products.
David E. Goyette
Lacey, WA USA - Monday, July 10, 2000 at 01:14:09 (GMT)
Your site is so fantastic! It's great to find that perfume info to pass on to other people. Yes, carpeting shuts down my detox systems, gives me vertigo, and a long recovery! Your links to non-toxic products - also a fantastic list. Thank you so much.
Lisa
USA - Thursday, July 06, 2000 at 18:15:49 (GMT)
I was grateful to find your "little place" and the links so full of valuable information.Tara Fetterly's story sounded so familiar. There are some things that have improved my condition: A healthy,sensible diet with lots of steamed distilled water and herbal teas (stinging nettle #1). Vitamin and mineral supplement, expecially a vitamin B-Balanced Complex and Co-Enzyme Q10. A personal air supply from Breathefree Products (permitted me to stay at worship many times that would have been intolerabe,othew ise). A 12 inch box fan with a 3M, 1000 filter attached to the back that I run every night in my bedroom (as per a TX allergy doctor from the internet who says that it is as good an air purifier as money can buy and cost about $25.00). A colon and parasite cleanse (which, had I done first, I might have been spared much turmoil). The allergies are still there, but I am now able to cope. Thanks so much for sharing the information. Joy
Joy Young
TN USA - Thursday, July 06, 2000 at 17:41:11 (GMT)
THANKS, FOR A GOOD WEB PAGE, I HAVE M.C.S. ALLERGYS. PER-FUME. REALY DOSE ME IN.IAM 29 YEARS OLD AND I WAS BORN WITH BIRTH DEFECTS.AND 3 YEARS A GO IN 1998. THEM SMELLS GOT TO ME.I AM UNABLE TO WORK MUCH I GET DISABILTY INCOME BUT ITS NOT MUCH TO LIVE ON.I HATE THESE SMELLS ,PERFUMES, cigeRATSMOKE,CARFUMES,ASPHALT ON THE ROAD.SENTED CANDELS,AND MUCH MUCH,MORE.ITS LIKE IT RAYDATES MY BRAIN. IT SEEMS THE GOVERMENT DONT OUTLAW ANYTHING ANY MORE. IT SEEMS THAT THY ARE TRYING TO KILL OFF PEOPLE.we ARE PLA NTED FALSE FLOWERS AND THY ARE MAKEN US SICK. THANKS , A LOT ,IN GOD WE TRUST, IN CAREING, MICHAEL DENNEY , CARROLL COUNTY, GEORGIA.....
mr. michael denney
carroll county,, GA. USA - Wednesday, July 05, 2000 at 12:34:57 (GMT)
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