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| Name: Michelle From: NC E-mail: micki@ourlittleplace.com |
Hi Jacki, Interesting site. Thanks for all you do to help people! I love you sis!
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| Name: Lex Blair From: Saskatoon, Canada E-mail: blblair@shaw.ca |
Admin reply: Thanks so much for your comments - I wish you all the best...
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| Name: Luanne From: Ontario, CANADA E-mail: lovechild19642002@yahoo.ca |
Sometimes I feel the need to be rescued. This is a SERIOUS request for prayer. My husband and I (could) be on the verge of bankrupcy. We have two young children. (9 yrs. and 1 yr. - both girls) We are very afraid and stressed out. We don't know what tomorrow will bring. (My husband is a business man, 52; I am a stay at home mom, 41.) Please...whoever reads this, please pray for us. It is a very frightening time and we need to know someone is out there caring for us. We belong to a wonderful church, and there are people there praying as well. My husband is a litle scared about telling our pastor how bad things are for fear of being blamed for our situation. We are trying to be brave through this for our children, but it is hard to even get up in the morning because we don't know what tomorrow will bring. Please pray. If anyone would like to e-mail me I would loveto hear from you. ONLY POSITIVE WORDS THOUGH PLEASE. ALL OTHERS WILL BE DELETED. Blessings.
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| Name: Meg Simmons |
Thank-you for your excellent and informative website. I suffer from CFS with neurological, endocrine, pain and exhaustion after exertion- which I have had for one year and six months. Also, chemicals are increasing debilitating. A few days ago, my husband purchased an aerosol "air freshener" and one evening sprayed this stuff in the living room. Within seconds, these chemicals went up my nose and I felt powerful burning and irritation and pain. I had to run to the bedroom, close the door and put a towel at the bottom of the door. I escaped from the stench that hung in the living room, but I could taste the chemicals and I coughed and sneezed for hours and my nasal passages swelled. The after effects from this poison continued for days. After this, my husband who is healthy realized that we can not have any of these products in the house. I did some research on these "air fresheners" and the way that these poisons work is that the aerosol is designed to cover and coat your nasal passages with these "perfumes" and linger in your sinuses so any bad odors will be covered and every time you inhale you get this dangerous poison into your system.. Everyone (even if you don't show sensitivity) should not purchase this stuff and throw out all plug-ins, "aroma therapy" discs and aerosols. I have removed fabric softener sheets, bathroom chemicals, candles, double rinse my clothes, etc…. The research of Dr. Martin Pall that Sal Salvador e-mail comments pointed out is very important. The common cellular dysfunction in his hypothesis is found in CFS, FM, MCS. Dr. Paul Cheney is doing fascinating research into CFS, and his theory ( he credits Dr. Pall also) is that this disease is a cellular level energy dysfunction, that then goes on to produce a dyastolic heart dysfunction, which then goes on to produce microcirculation problems and this cycle goes round and round. Dr. Jay Goldstein, was looking at the brain problems of CFS sufferers, and his theory was that the nasal olfactory system was so permeable, causing substances to be inhaled and would go right to the limbic system in the brain, causing terrible neurological and systemic problems. Some studies indicate that some people have genetic deficiencies that don't allow us to clear chemicals as well as "normals." Many canaries will have CFS & MCS both or combos such as FM, MCS. Our food supply is swimming in chemicals- just read a soup can label! You will find chemicals with names as long as your arm in processed food such as frozen convenience foods, junk foods, sauces and flavorings, cereals, canned foods, hydrogenated garbage such as margarine, putrified oils such as canola , corn (all those light bleached oils) , soft drinks (new research is finding more benzene than previously reported), etc…. As we must stay totally away from those awful fragrance chemicals, I also find myself trying to avoid food loaded with chemicals, preseratives and poison and belive me it is a struggle. as a society, our tastebuds crave all this MSG and artificial and chemical flavors. My husband makes terrible food choices when he goes shopping alone. Cutting this stuff out brings you down to more basic choices. Even our vegetables are loaded with pesticides! Here is a fascinating bit of information I read recently about airplanes. I had no idea that it is routine when planes fly from destination to destination, that during refueling it is routine for huge sprays of pesticides to be infused into the plane's air recirculation system, and this must keep accumulating time after time. In Hillary Johnson's excellent book OSLER"S WEB, she explores the huge increase of CFS in pilots and filght attendants in airline industry (medical field such as hospitals is the highest). No doubt MCS and FM also are rampant. One book that I will be getting is SKEWED by Martin Walker. He exposes the petrochemical industry and its huge tenticles to everyone from the chemical mongers (Better living through chemicals) which include pharma (who very deeply influence medical dogma and the medical practices that are defined and delineated by our insurance companies.) drug producers as well as the food industry. This industry is TRILLION dollar business and the rich and powerful have stock in this business. They sit on the boards of powerful medical, universities and private sector affiliates. They are NOT going to open research up and do studies to come to these conclusions showing direct cause-and-effect of these poisons. The sad part is that so many people don't make any connection at all to the numerous environmental poison and toxins, and don't even have a clue that those "plug-ins", etc… are damaging their families and their personal health. It is ironic how the average American believes and boasts that the U.S. has a high level of health compared to other countries. The U. S. way down below the level of many countries considered to be at a lower economic level such as third world countries. The U. S. is experiencing a growing population especially in the area of chronic degenerative disease which is rampant and escalating even in youth. The only area that has improved is in acute coronary emergency medical life saving techniques. Medicine has made progress in this E.R. area probably because they have had plenty of people with acute coronary life threatening problems to deal with and learn from in the first place. Medical schools education are not doing much with CFS or FM. MCS also. Education is the key to understanding these diseases. Your website and others help baffled patient who becomes more isolated and disabled in sickness that is called "mysterious" and "nonexistant" by the health industry. Thank-you for the bridge of understanding that you are creating. More and more people with these diseases are coming forward and their voices are being heard in greater and greater numbers. Our prayers hopefully will lead to the truth and disclosure about these diseases of CFS, FM and MCS.
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| Name: Laura From: Central NY State E-mail: lhawkings@gmail.com |
Awesome pages! Please check out my Melaleuca website for 4 lines of non-toxic household safe products. I have auto immune Graves and have been trying to let others know of the dangers of what they are exposed to on a daily bases!
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| Name: Deb Leonard From: Alabama E-mail: deb35802@yahoo.com |
I'm so happy to have found your website! I've suffered from migraines and muscle weakness caused by fragrances for over 15 years. I'm very much a homebody because if it. Very, very rarely go out to a concert, theatre or mueseum. Working is absolute hell for me but yet when I tell co-workers about how toxic perfumes/colognes, air freshners,, etc are they don't believe me. Now I can give them your website address. Thanks so very much! Our society has become OVER fragranced. Stores spray scents and they're even being put into clothes. Lipsticks are scented. (Why would a woman want to wear a scented lipstick/gloss anyway??) ![]()
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| Name: Erik |
I have also had all of my amalgam (mercury) fillings removed! My doctor has been very helpful in educating me about the dangers of toxins, and has quite a bit of experience treating "toxic" people. He has an interesting, online risk a**sment that you can do to get an estimate of your body's toxic burden. Take the quiz at: http://www.mundall.com/liberty/chelate.htm Blessings to you!
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| Name: Ross Banerjee From: London, Ontario, Canada E-mail: ross.banerjee@gmail.com |
Your site is a veritable font of information. For more information about the various difficulties associated with cosmetics, please see: http://www.ewg.org/reports/skindeep2/ as well as the rest of the site: http://www.ewg.org. You will find it very helpful. Cheerio Ross
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| Name: Lourdes "Sal" Salvador From: Hawaii E-mail: salvadorlourdes@yahoo.com |
I developed mercury poisoning in 1999 and was diagnosed and treated in 2002. At that time I developed MCS, Hashimoto's Thyroidosis, and Adrenal disorders that still to this day baffle doctors. Before MCS my life was full with my own business, a home I owned on Maui in Hawaii, active competitive bodybuilding, cla**, reading, and more. Since MCS my life has become a shambles and I've lost everything but a vehicle I sleep in. That is my only safe haven from the laundry fumes in traditional housing neighborhoods that trigger seizures and my world becomes smaller and more lonely each day. I advocate tirelessly for recognition of MCS and public accomodations for sufferers. The most painful part of MCS is the insinuation that MCS is all in your head when the physial symptoms are very real and very debilitating. I am hopeful that Dr. Martin Pall's research will soon be completed showing the cause of MCS as eleveated levels of peroxynitrite and nitric oxide so that doctors will take us seriously. The last thing in the world I was to do is live on disability but what choice do I have? I'd prefer in a heartbeat to have my life back the way it was before I was poisoned by mercury in 1999. Thank you for this wonderful site. Aloha! Sal
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| Name: karen thomas From: Marysville, WA E-mail: karenthomas7@MSN.com |
I have had various symptoms of my MCS, but want to know; is an allergic reaction to calla lillies common?
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