Visitor Remarks
Thank you for visiting our pages. We would love
it if you would share your thoughts! (Due to spamming, this page has been shut down and we now have a brand new guestbook, so if you'd like to sign it, it is HERE!)
I found this site tinight while I was simply surfing. Your story about your beloved Dusty reminds me of my beloved "toby: my 6yo shih-tzu. Your dusty& my Toby would have enjoyed playing together so much, I just realized they are probably running all aroound the rainbow bridge together & chasing the squirrels endlessly!
my toby died 8-26-05, just as you described the passing of Dusty. this site is so comforting to me. I have missed my little boy more that my friends can understand. He was such a "mess" & pee'd & snapped & loved me so much more than any human could ever begin too.
God is so good to allow us to experience the love that our "children"have given us in their lifetimes.
thank you for sharing your Dusty with me. Just imagine how much fun your
Dusty& my Toby are having while waiting for us to join them in the future!
thanks
CAtherine
catherine <tmolly1@aol.com>
Greenville, NC USA - Monday, January 23, 2006 at 08:06:36 (GMT)
When I read this, I was just ASTONISHED! It was as though I was reading my own testimony!! There were so many similarities to what happened in my life. God bless you, Jacki!!
Connie <conkur@bis.midco.net>
USA - Thursday, January 19, 2006 at 22:28:49 (GMT)
I first visited your site in fall 2001. My realization that something was terribly wrong, and it wans't just chronic allergies, ran in "reverse order" compared to most of the stories I read from MCS sufferers. I was a carrier of extreme levels of electricity. This was common for me and had been for years, so I thought nothing of it. In fact, I had been hit by lightening in 2000, while sitting in the living room of the residential home in which I worked. I was peeling potatoes for dinner and the lightening hit the knife in my hand. My hand was frozen, possibly by awe. What seemed like minutes, but in reality was only seconds, I and two of the boys, watched transfixed by the arch of white light streaming from the window to my hand. My husband and I cared for youth in state's custody, with the homes from which we worked located high on one of the mountain ranges in Tennessee. With the storm raging and winds in excess of 60 mph (true! National Geographic came to study the phenomemon once because of the frequency of unusually strong winds even without storms), getting to a doctor was not an immedicate option. By morning, no sysptoms had developed, so I put it off as God's protection and decided I did not need a doctor. Little did know that I would continue to attract electicity. Other minor events occured, but one particular night set the stage for my next event in February 2001.
We had moved to Virginia to work as houseparents in a sister facility for the children's home. The boys' rooms were upstairs. A nightly devotion was held in the common room of the second floor. I usually did the paperwork involved with houseparenting, while my husband got the boys through their nightly routine. On the first floor, I entered the office and turned on the light. As I looked toward the ringing phone, my left hand was still on the light switch. Unexpectedly, (memory recall shows it in slow motion) a blue arch came from my left hand, about a 6 inches as its peak, and then dropped to touch my right hand. My hands were over a foot apart from one another. My daughter screamed out, "Mom, are you alright?" I did not immediately respond, still watching the arch as it faded. I removed my hand from the switch and told her I felt fine. I finished what I had intended to work on and then went upstairs for devotion. During devotion, I began to feel weakness in my left arm. It slowly radiated across my shoulder and down my back. When devotions were completed, I began to walk down the stairs. As I did, I could no longer grip the stair rail. Then, my left leg buckled. By the time I got to the hospital, the left side of my face had visibly drooped. I had no sensation on my left side, but all tests, including an EKG, showed no problems. I was kept in the E.R. for observation. Because the doctor there knew me from brining in the boys on occassion, she gave credit to what was occuring, but after consulting with a specialist who worked with electic shock cases (we were near the local coal mines), determined there was no treatment, except for time. I was told my body would heal when it was ready. My condition was consistent with having had a stroke, but without the "stroke" qualifications. It took my body two months to heal. I was told I was fortunate that the current did not "blow out of my body" or burn my skin in any way. A side note to this event is that the home had wood flooring, I was wearing sneakers with a 2" rubber sole, I was wearing cotton clothing, there was no storm, there was no power surge (our computer would have shown signs of it), and an electrician came in the morning, only to say there was no wiring problem. During the healing process, I had to be helped to walk, could not use my left arm, and my face continued to sag on the left side. It was that same year, about six months later, after several months of enjoying good health, except for my "usual allergies", that fatigue began to set in. I was sleeping every time I had the chance. My allergies increased tremendously, as did my migraines. I became nauseated several times per day, was disoriented and irritable, would suddenly fall to one side, became intolerant to all but four foods (black decaf coffee, water, white rice, and low-fat milk), developed extremely dry skin, developed a spot in the middle of each palm that would not heal but would bleed frequently (not the spots the electrical archs touched), and more symptoms than I care to remember. Excluding fatigue, these symptoms did not create one another, but all occured practically overnight. The boys were joking with my husband, asking if I was pregnant. My husband and I knew the truth... that after successfully birthing a daughter and son, we would never attempt a pregnancy again, due to multiple miscarrages, and a full-term baby that we lost a day before the due date, on my daughter's birthday. I went to my PCP, who, fortunately, knew me well. He did not believe it was psyciatric, and in fact helped in diagnosing a severe, sudden kidney infection, shingles, and endometriosis. If that wasn't enough, I had bronchitis, tintinitis (spelling?), sinusitis, and two other disgnosis of which I don't recall at present. Additiaonally, he reaffirmed the disgnosis of my migraimes and also referred me to a gastreologist. In all, I had twelve separate disgnosable issues occur at the same time.
The immunologist did an allergy test (the type where they inject 100 sites on the back and measure the skin reaction by the size the site swells), and unlike so many MCS sufferers who do not test positive for multiple "natural" allergies, I tested positive for 98 out of 100, over 75% of which were in the high range and 2% that were in the critical level. Other than the two that were negative, none rated at a low level. The two negative injection sites were the type of lawn grass I grew up with as a child and a type of palm tree I grew up with as a child. Three of the sites took a month to clear and one site remained raw longer than I tracked. I began to receive immunology injections 3 times per week, was placed on several prescription medications, was instructed to utilize air purifies, facial masks, cotton bedding and wash it frequently, and had to carry an epipen on my person at all times. Finally, he instructed me not to go outside, even with a mask on, except for two specific times of day.
The kidney infection cleared. I had surgery for the endometriosis. I rested often. But, I still could not walk unaided and I began to realize I could no longer tolerate certain activities. Now, here come the familiar parts to MCS sufferers... I had to sit in the back row of my church because I could not breathe while in the church. I was still getting sick in the shower. I could not focus to drive the car. The migraines were still occuring at a high rate. My hearing and sight actually increased to hypersensative levels. And, I began putting out electrical current from my body. I could not kiss my kids goodnight, because as I got close to them our hair would fly out like magnets, touch, them and "zap and crack", sometimes sounding like a punch and causing pain to us both. I began wearing gloves. Because I earned certain nicknames from the boys we cared for, I now fondly refer to a collection of some of these symptoms as "the comic book superhero syndrome". Nicknames included Superwoman, Storm, and Rogue. The boys did not like that I could clearly and coherently hear whispers from upstairs as if they were in my ear. At the smae time as my hearing became exceptional, the pain in hearing things, such as static on the radio, created pain. While my electrical output increased, I could no longer touch people with my bare hands. My kids had to pump the gas due to the fumes, as well as fear of me setting a fire at the pump. In fact, to deal with it, I made it a game by touching a piece of paper and placing it on the wall. The paper would stay on the wall for up to an hour, as if pinned there. My sense of smell lead me to tobacco like a scent dog. Often, the boys wouldn't even have to smoke. I was known to smell unopened tobacco while still in its hiding place. I would go directly to it, without searching for it. Keep in mind this was a three story, five bedroom home, with two living rooms, three bathrooms, a dining room, a kitchen, two stairwells, a basement, a laundry room, and an office. After a while, some of the boys quite trying. But, everytime a new boy came in who smoked, they loved watching the events transpire and the shock on the boy when he found out about my hearing, sense of smell, and "electric level".
This was the beginning. It got so bad, I became nearly bed-ridden all of the time. My doctors recommened that I move either to the desert or to the beaches were I grew up, and choose a low population community in which to live. I did paperwork at the cottage from bed until we moved on and had to change our line of work due to illness. It was during the bed-ridden stage that my hopes began to fade. My husband and I believed there was a major illness the doctors had not yet diagnosed. At the rate my body was shutting down, we thought I was dying. My kids began taking care of me, instead of the other way around. One night I recall my 14 year old daughter coming to my bed and asking, "Mom, what if you die during the night?" My 11 year old son could not look at me without crying and feeling afraid he would lose me. My only peace was my religous upbringing and my personal faith. It was during a prayer that a renewed sense of hope came. The next day, I began to reflect on the illnesses throughout my life, and the most recent events of illness and injury. I went to the internet and looked up various sites, which led me to sites on Environmental Illness, and specifically "electrical hypersensitivity". This in turn, led me to the MCS sites. Jacki's story hit home. I searched the entire site, and cried in fear and relief, as I recognized so many more similarities than I have shared in the paragraphs above. I cleansed my house as entirely as possible for two years, using all of your suggestions. It was a long road. I was still eating limited foods, because my doctor explained that with my level of allergies, my body read the DNA in an item and if the DNA was close to one of the things I was allergic to, my body would reject it as a "protection factor". Fortunately, I was never accused of anorexia. He never did directly diagnose MCS, as it is not recognized in much of the medical community. He did teach me a few things about how the body works, which paired with what I later learned, has allowed me to improve.
My main goal for writing in to "Share Your Thoughts" is to tell others. I have come from being bed-ridden in late 2001 through early 2003, to being back to work at a full time job in the community. I can once again shop in public. I no longer wear a mask, but am careful to wear a cotton scarf to help filter the air when going to certain places. I am back to color in my cotton wardrobe from the white I had to use every day. And, I can eat again. This happened a little at a time. I have gained weight, I suppose partly because my body is storing food as a "protection" factor. I still have a "basics" list. I use baking soda, vinegar, and lemon juice to clean. Determined not to let MCS take away everything I love, I use natural food extracts and pure essental oils to make my own "perfume". I use pure 100% almond oil as a skin moisturizer and as a hot oil treatment for my hair. I use refined clay powder as a make-up (not the one on the infomercials, as I am afraid of chemical bases). I still had a way to go in order to fully "detoz" my home, but before completing everything, I began to improve. I plan on finishing the detoxification in my home, as I have noted that when I "slip up like an addict", I begin to get more ill. It's funny to think of something like clothing or a food as an addiction, especially since I am not a "shop-aholic", nor do I have an eating disorder. I make the best of good days, and rest on the bad. My husband and children have been my biggest strength, never doubting my sanity. In recent times, i count it a privilege to share with people how to be strong in difficult situations, how to watch for signs of mild MCS, how to treat mild MCS, etc. I always encourage people to establish a good repor with a doctor prior to illnesses. The doctor can be your best ally or worst enemy. If a doctor knows you, he is more likely to believe you when events begin.
I am currently in what I refer to as a "quiet period". This means my sensitivity and allergies are at a low level. Active periods are usually presequented by an increased electrical activity in my body. In a sense, I have an "internal alarm". If I listen and tighten up on my environmental, medical, and emotional triggers, I can often limit the severity or lenght of episodes. I use vitamin and herbal therapy daily. I keep treatment with metals to a minimum, except when treating electrical hypersensitivity not reduces by lowering MCS triggers. So far, metals are the only treatment I have discovered to help reduce residual effects of electrical hypersensativity. I am not sure if my electtical hypersesativity created / increased my MCS, or if the reverse is true. I do know the two go hand in hand.
One last note... and this is a dangerous topic in my opinion. I am a Christian and try to limit anything that will confuse a person not grounded in faith. However, certain "supernatural" phenomemon, such as visions of actual events in the present or future, and an increased level of "discerment" about people and their intentions tends to occur during elevated periods of my electrical hypersensativity. I am careful to tell my visions in advance of an event, and at that, to only tell individuals mature enough to understand my intention. With this "side effect", I can see why a doctor might assume schizophrenic disorders accompany, are symptomatic of, or are the cause of this disorder. I cannot make these visions occur. I also cannot make them disappear. They are random and infrequent, but always as clear as if occuring in front of me. I have found two lost objects for friends, going to them in a direct manner, avoided a car running over me and my friend by sharing my vision and moving our position 15 minutes in advance of a car crashing onto my property, and numerous other minor instances. I only include this portion of the disorder to help people understand, that if "visions" are real, clear, and validated (not smoky dreams or side effects of medicines, etc), perhaps they are not "supernatural", but a natural part of our human functioning stimulated or activated because our senses with what is in the real world are changed by comparison to our neighbor. And, of course, I always give God the credit for the positive nature/outcome of what is both a curse and a blessing. So, if this occurs to you, rest assured, you are not crazy. Don't dwell on it. I also suggest you don't elaborate on it with people who do not share the problem. It usually does more damage than good. Finally, seek help from a grounded advisor and not one of the people caught up in a cult or into it for the fame and money. Unfortunately, even some pastors do not give the best advice on this issue. I have found my husband and my prayer life to be my only support for this part of my life.
My prayers are with each of you who have any of these illnesses, disorders, or symptoms. May God give you strength in learning to live in a world where you have to recreate how you think of material things. I found that my spiritual life increased tremedously during my bed-ridden days. At no other time did it occur in a more exact message. I often thought that if I live in Biblical times and by Biblical standards, I would not have been sick in the way I am today. When I am at my strictest with myself, I am at my closest to God. I pray that I maintain that closeness each day that I improve.
Once again, thank you.
Carol
Carol H Farragher <fotopla35@yahoo.com>
Nashville, TN USA - Saturday, January 14, 2006 at 05:51:56 (GMT)
Incredible job on this! I love I love I love this site!
I have address to your site from my friend.
My friends enjoy it as much as I do. Congrats!
That must have been hard to make.
Carl <carl473@mail.com>
UK, UK UK - Friday, January 13, 2006 at 03:42:05 (GMT)
Your page on the dangers of "air fresheners" is excellent. Thanks. BUT, for the likes of us wo have to endure months of winter smog (valley location, Swiss Jura nr. France) - there is NO such thing as fresh air when we open the windows - because the neighbours burn wood for everything all winter - or else there are dreadful mazout oil fumes in the air. It's dire. I've developed chronic bronchitis/asthme and now MCS after living in this for a few years (summer is not a lot better because of BBQs and road traffic pollution) - it's unbelievable. What Switzerland? Yes - I have photos of the nasty brown haze in the air if anyone wants them. Lots of folks here cough - but they attribute it to viruses and "poor constitution" - and then, guess what, out come the AIR FRESHENERS!!! I don't know know which is worse - the smoke or the "perfumes". I've had to stop work, I can't socialise and I'm on strong medication. I cough and wheeze all the time - and we can only air the house in the middle of the night (but not always in winter!). I was NEVER like this back in UK (our home land)- but no one here believes that - including the doctors (who were surprised when the tests for biological allergies all came out NEGATIVE). No - it's chemical - and did you know that wood smoke is even more poisonous than cigarette smoke? And that hypersensitivity to wood smoke can extend to "perfumes" & "fresheners" because these artificial products contain many of the same chemicals as wood smoke! Another real nasty for MCS and broncho-asthma sufferers is "deodorant" - especially the sprays. Also avoid wardrobe sprays and over-cleaners.
My best regards to you all for 2006. Sat optimistic and fight it back! So much of this poisoning in the air is about companies wanting to make MONEY. As you correctly point out, we don't even NEED these scented products. it may be useful to remind folks how much they can SAVE by not buying them. Or give the money to a charity in 2006? Thank you again - very nice, clearly written articles.
josephine Cock <jocock@bluewin.ch>
Delemont, CH Switzerland - Tuesday, January 10, 2006 at 11:24:29 (GMT)
1/5/06 For all those individulas who are living in the north east part of Ohio, Please, take note.I had written (last November)about the new PURE OEGANIC FOOD COOP which is starting in this area.
There was an error in the farms E-mail address the new adress is: HWGreen100@aol.com
All those indivuals who may having problems with the organic foods ,recentsly ,--such as to cause them to go into allergic reaction. Please notifly the farm or myself and we will be glad to help out. We love to hear from you. Gerry
gerry <olliesmom1@hotmail.com>
oh USA - Thursday, January 05, 2006 at 18:29:26 (GMT)
Site was very interesting for me
I wish you and your site everything best!
Ben <ben140@yahoo.com>
NY, NY UK - Thursday, January 05, 2006 at 11:11:29 (GMT)
I have had MCS for over 10 years. I am 68 yrs. in age, and my research has been extensive. I am writing a handbook to be used as a directory to identify, what next, where to get help, work towards housing nationwide, make your home safe, all information to find enviromental doctors, lawyers, make all of the problems known to each corner of our country, where to find reports, safe food in most of the big chain grocery stores, and for the teacher of languages how to detox her work enviroment, guide her students with a simple list of products to use, and, what units can make home, office, cars, furniture safe by an overnight detoxing, in most cases. Like restaurants, casinos, all air filtrations systems. Many new homes being built today use safe products for nearly everything. It can be done now!!! It is all available for you to learn and do, now. From safe swimming pools, to natural foods and enzymes. Can I help? I talked to our Michigan Governors aide when MCS was acknowledged that week and asked if he knew of housing for MCs persons. He said no. He told me to send information and he would send on to the enviromental agency. I have spoken to them before. At that time they knew nothing about the complex problems we face. I know how to get the word out. I speak to people regularly that haven't a clue what is wrong with them or what to do. Not sure they want to do what it takes to get back to normal. Most can do just that. I have seen it done many times. Making your home safe and keeping it safe is first. Paints, new anything can be brought into your home and it can in most instances be detoxed overnight. I lost everything I had because of this condition. Along with carbon monoxide when I moeve in this tiny house. And, after nearly 3 years and 5 or 6 gas leaks I went backwards, but, I now know I can move anywhere and make the place I live safe. Needs to be a house 'tho because of other's products in apt. buildings. I have many stories to tell. You can be healed. Eat again. Be out of pain. First you need to make the place you live, sleep safe. I will be checking on-line regularly. Everything you need is out there. Not like it was 10 years ago. Natural ways to heal. Feel good. Be out of pain. Eat right. Exercise as much as you can. I found when I was in pain, I mopped a floor. I realized laying down made me, worse. So much to tell you. I carry one dry thin washcloth in my purse to use when I am in a store, and need to leave. Another one wet ready in my car, so I run over my face, ears, hair to help detox until I get home. I carry water to be able to wash if needed, and extra outfits to wear if necessary. When I get home in most instances I can put my clothing in the dryer on delicate and run until it shust off, and the chemical will be gone. If bad enough I shower and shampoo. Sometimes I wait to do that until I return from shopping anyway.
Hope this helps. I am new. Did I write too much?
Lorraine
Lorraine Newton <betzkay3@yahoo.com>
Owosso, Mi. USA - Monday, January 02, 2006 at 02:42:15 (GMT)
I just heard your song about your little dog, I cried, really lovely, As an animal communicator I deal with lots of people dealing with pet loss, thank you for your beautiful song of love. Joann
Joanne Hull <joannesanimals@aol.com>
joanne, UK - Saturday, December 31, 2005 at 12:54:20 (GMT)
Well done, this site is really great. Just wanted to say hello, keep up the good work!
Barry <barry555@email.com>
UK, NY UK - Monday, December 26, 2005 at 07:55:51 (GMT)
Great information here on your site. I have added it to the safety/resources section of my site at:
http://autismspectrumdisorders.bellaonline.com
Bonnie Sayers <bonniesa@pacbell.net>
Los Angeles, CA USA - Sunday, December 25, 2005 at 21:35:16 (GMT)
Excellent website! Congratulations.
Brent <brent213@mail.com>
NY, NY UK - Sunday, December 25, 2005 at 01:14:16 (GMT)
You have made a very intersting website. My congratulations.
Steven <steven127@hotmail.com>
UK, NY UK - Saturday, December 24, 2005 at 19:00:12 (GMT)
I thank God for this site. No one is believing me when I say I can smell things and It makes me sick. I was at church wednesday Night December 14, 2005, I was singing and enjoying the service when I noticed a strong smell that irritated my eyes and I could taste it on my tongue. I covered my mouth and nose with my shall, It got stronger, a lady 2 sets in front of me perfume was causing it. I got up and moved about 9 feet away and sit down, with in minutes I could not move or speak. I could hear and smell.
I sat there until after service about 1 1/2 hr and when I did not move, My Church members said they knew something was wrong I was not smiling or moving during service. They called 911 and took me to ETMC emergency room.
I was there for 7 days, and they ran all kinds of tests, they could fine nothing, but while I was there I got exposed to perfumes, cleaning products which caused the same symptons on 3 occasions the called a code and started try to revieve me. My blood pressure went up to 198/180
I called my brother and told them to get me out of the hospital it was making me sick the cleaning chemicals. If they had not come a got me I know I would have died. The staff was so mean acting like it was all in my head and that I was acting crazy when I could not talk or move.
I call my doctor and told the nurse what happened. She said I would have to be seen in order to treat me. I explained what happened and she just said if I come to bring someone with me. I was presistant and then she said she would call the Allergy Clinic, They called a day later and asked what were my synspotms she said they don't treat that. I asked if anyone did, she said no, and that she would call my doctor. I am still not feeling my best, by legs wabble and speech I stutter. Do anyone know of any help I can get in Texas. My e-mail address is Peachessweet_42@hotmail.com
A Matter of life and Death
One Voice can be heard BY Many.
church members new is was
Linda Rhymes <Peachessweet_42@hotmail.com>
Tyler, TX USA - Friday, December 23, 2005 at 17:03:26 (GMT)
i agree with wat u r talking about another thing about air freasheners is that if a child grows up in a house that uses air freasherners when they go to kinder they will get sick because they wouldnt have built up an imune system to germs and unless u go to a million dollar kinder they probly wont use air freashener so the kids will get really really sick
thanks for your time
michelle
michelle
USA - Monday, December 19, 2005 at 06:07:29 (GMT)
MY WIFE AND I HAVE BEEN FEELING ILL FOR A LONG PERIOD OF TIME,BOTH WITH SIMULAR SYMPTOMS,BEFORE DISCOVERING YOR WEBSITE AND OTHERS LIKE IT,I KNEW THERE HAD TO BE SOMETHING POISIONING US BOTH IN OUR HOUSE,MY FIRST THOUGHT WAS DOMESTIC GAS,BUT WE HAVE A DETECTOR SO I KNEW IT COULD NOT BE THAT,SO THE ONLY OTHER THING I THOUGHT IT COULD BE WAS AIR FRESHNERS,SO I DECIDED TO CHECK THEM OUT AND 'WALLA'
I DISCOVERED YOUR INFOMATION ON THE CONTETS THAT ARE USED AND THE AFFECTS THEY CAN CAUSE PEOPLE,AND THAT IS WHAT MY WIFE AND I HAVE BEEN SUFFERING FOR AT LEAST 4 YEARS.
I CLEARED OUR HOUSE OF SO CALLED 'AIRFREHNERS' AND WE FELL LIKE WE HAVE BEEN REBORN.
thank you for your infomation and notice board,this is our shortaned story we intend to follow our problem through.
alan maslin <alan@maslin3.fsnet.co.uk>
uk - Saturday, December 17, 2005 at 11:47:05 (GMT)
Great site!!! I have fibromyalgia and recently had surgery to remove uterine fibroids, which is caused by estrogen dominance, from all the chemicals in our environemnt. You have great info on toxic free living!
Beside all the great info on this site, Does anyone have any suggestions on detoxing from general anesthesia after surgery????
THANKS!
Cindy <cindy.degraw@mail.sprint.com>
FL USA - Wednesday, December 07, 2005 at 04:00:06 (GMT)
Does anyone know if there are any websites lilke this one for TBI victims? (TBI stands for "Traumatic Brain Injury") When I was 15 I was hit by a car without his headlights on - my head hit the curb, leaving me comatose for 5 weeks. BUT PRAISE The LORD!!! JEHOVAH RAPHA is "The LORD our HEALER!"
As I think I alluded to earlier, my wife, at 29, was told she was going through "early Menopause" - since the 3 tests at Kaiser Hospital showed that her WOMB was DEAD!!! But when we got home I found Psalm 113:9, in the Bible, says of GOD: "HE gives the BARREN woman a Home, and makes her the JOYFUL MOTHER of CHILDREN. PRAISE the LORD!" {Emphasis MINE!}
So I showed that to my Sulking wife, and we just PRAISED GOD for the next 10 weeks - when our PASTOR stopped in the middle of our Sunday Service and called out: "The LORD is HEALING a woman in her Female organs."
{My wife had been noticing "a GLOWING WARMTH, like WARM HONEY Covering my WOMB" just prior to our pastors welcome outburst!}
I Must get to bed! BUT IF you know Anyone who Wants children and the Medical Profession cannot help, we wold LOVE to share with them how GOD MIRACULOUSLY gave us our 19 year old MIRACLE DAUGHTER, Felicia Elise -- "Happy and Prosperous" "GIFT of the LORD" --- and how "JESUS CHRIST is the SAME, Yesterday, Today, and Forever" (Hebrews 13:8?) and GOD is no respecter of persons, and will do the SAME for WHOEVER "Asks in FAITH, BELIEVING."
Mark David Griswold <jesusislord777@verizon.net>
Oneonta, NY USA - Tuesday, December 06, 2005 at 10:15:00 (GMT)
Jacki and Family,
Love your web site! I've had MCS for over 8 years now and yours was one of the first ones that help me figure out what was wrong with me, over 3 years ago.
Thanks,
Joyce
Vancouver, WA
jjorsusie@aol.com
Joyce <jjorsusie@aol.com>
Vancouver, WA USA - Tuesday, December 06, 2005 at 02:01:39 (GMT)
ATTENTION! All those individuals with Multiple Chemical allergies (or have Chronic Fatique Sydrome, Fibromangia, Arthritis, or even Irritable Bowlel Sydrome) who happen to be living in Northeast Ohio (particular the Cleveland and Akron area)-------Have I got news for you........
H-W Organic Farm is now taking membership in a unque type of farm coop. They will be providing the opportunity to:
1.BUY your organic vegetables, grains and meats fresh from the farm, 2.CHOOSE the actually food you would like them to grow. 3. CHOOSE the purchasing style of either harvesting your own food or obtaining it from their store If you are inteseted in this. Contact them at: HWGreen @aol.com
What I like about this is that they:
*** CATER TO individuals that have MCS.***
Their definition of ORGABIC FARMING is very simple:
"Organic faming is farming without sythetic chemicals" This means the Sythetic chemicals or Petroleum- base Products (and its derivatvers ) are NOT USED in growing , storage or in selling of thier foods. This includes : FETRILIZERS, (SEWAGE SLUDGE), PESTICIDES, hERICDIES, PRESEVATIVES, HORMONES AND ANTIBIOTISCS.
Please NOTE, THAT MOST INPORTANTLY THEIR PRODUCE ARE NOT STORED OR SOLD IN PLASTIC CONTAINERS OF BAGS. THE REASON FOR THIS IS THAT THE SYNTHETIC CHEMICALS-PHENOL AND FORMALDEHYDE are use in the production of plastic. They allow tha plastic to be either very flexible or rigid. These chemical
***DO AND WILL LEACH OR MIGRATE ***
from the plastic into the food or liquide in which they are stored in. Individual who do ingest these porduct will go into a phenol or formaldehyde reaction Therefor,they want to continue to insure the belief in the products of
PURE ORGANIC FOODS.
So if you have Environmental / food allergies and /or want to improve you health status, Please, notify the above address or contact me (an MCS individual) at
olliesmom@hotmail.com
I hope this will help out many people . God Bless you all and I hope to hear from you soon, Gerry
Gerry <olliesmom1@hotmail.com>
Ohio USA - Wednesday, November 30, 2005 at 20:57:23 (GMT)
I recently changed from Tide to Arm and Hammer Det and my daughters tics stopped I was trying to find your article relating to this. I almost began to cry when this site came up because if this has been the cause for my daughters tics that she had for almost a year we need to take action in informing MD about this.
RH <JRARUBA@verizon.net>
Peabody, MA USA - Monday, November 21, 2005 at 01:53:47 (GMT)
oh praise God i found your page. no one understands me and i am struggling every time we use cleaners and i am around many kinds of detergent, coloring etc... it is so hard and discouraging to me...... today my son colored his hair and it was not even 10 min and i was sick for several hours ..he did much of the process downstairs but my body started shaking and i got confusion, dizziness...oh my heart pounded...i had to grab the baby and go outside for several hours.... they opened up the whole house...and i am in here again... boy what a high price to pay... i still have a headache and feel a bt weak. no on understnads..but i can see you do. bless your heart. :0) thank youfor your site and sotry. i am so glad you are well! PTL!
Diane Mills
diane mills <dianelmills@gmail.com>
limerick, me USA - Monday, October 31, 2005 at 19:24:45 (GMT)
very good
jim
new york, USA - Friday, October 28, 2005 at 13:01:37 (GMT)
I have heard that some perfumes are made from human sweat. Also, I have been told that some high priced perfumes are made of some/not all from pigs urine. Is this true?
thank,you,
Sherry
sherry <sherrylee,b@netzero.net>
portland, or USA - Saturday, October 22, 2005 at 02:14:38 (GMT)
I've just visited your beautiful website - my husband and I lost our little 15 1/2 year old poodle Penny last Saturday - we're devastated, she was our baby too -we can truly relate to your story - they're such a beautiful part of our lives - thank you for sharing that...it was comforting. Sue Elger (Australia)
Sue <sue.elger@phimr.monash.edu.au>
USA - Monday, October 10, 2005 at 23:34:00 (GMT)
I have suffered from m.c.s. for over 10 yrs. I wish more people would realize just what these things do to you even if you aren't sick. Life is sure different once you are a m.c.s. sufferer.The sad thing is people don't care if you are sick. Also they think you are dreaming things up and it is an imagination thing. It is not. It is real and I wish they could come up with something to rid those of us with It.Life is hard but with this it is almost unlivable. You just pray each day to stay well and safe and hope people will accept you for what you have and for who you are. becky
becky
indiana USA - Thursday, October 06, 2005 at 02:51:29 (GMT)
I too am very happy with your site. I know most of the pages on MCS by heart. I use them often in educatng my friends and health aids.
A dear friend has just been told that she has Lupus and has three scars on her brain. Can anyone help us with information on treatment.
Thanks
Leveda
Leveda <mplpput2@juno.com>
Scottdale, PA USA - Saturday, October 01, 2005 at 05:33:16 (GMT)
Thanks for the article on air fresheners. I have been trying to convince my daughter not to use these, especially with three small children in the house. She thinks "smells good" means "clean".
Rick <rickricardito@wmconnect.com>
Coon Rapids, MN USA - Wednesday, September 28, 2005 at 17:11:14 (GMT)
I began suffering with this syndrome 17 yrs ago after an exposure to cleaning products used in the air ducts at my place of employment.
After many years of restricted living and treatments by my medical doctor who uses desentization shots for foods and fumes, I was able to continue working.
However, 5 yrs ago, I found acupuncture. This has been the best thing which has happened to me and has brought me back to an almost normal life. I have had most of my food allergies removed and can tolerate many of the chemicals of our environment now. Vertigo is still my major problem and paints and perfumes are still my biggest challenges.
I would recommend any one suffering with this syndrome to try acupuncture.
Do not let any one try to convince you that you have psychitric problems and that this is not real.....I am now 63 yrs old and have most of my life back because I found an internist who believed me and an acupuncturist who can help remove many of these toxins.
Nan Boyer <westingrp@aol.com>
doylestown, pa USA - Thursday, September 22, 2005 at 19:47:42 (GMT)
May God bless you for such informative web site. I am interested in Dr. Miller's Maximum Intradermally Tolerated Dose Method for treating Food and Other Allergy. My Wife is Suffering from Blocked Nose and is using Decongestant nasal drops for the last Forty Years. Tried various treatments . She is Allergic to almost all foods . Can She be Treated by this method by Dr. Miller.Can Homeopathic medicines be tested by intradermal method to find the correct medicine.With best regards. Dr. Murtaza,King Abdul Aziz University Hospital,P.O.Box 80215,Jeddah 21589.Saudi Arabia.
Dr.Murtaza <murtazasg@yahoo.com>
Jeddah,, Saudi Arabia - Saturday, September 17, 2005 at 18:08:38 (GMT)
I loved your tribute to dusty. We have a 13 year old lhasa apso named Jack- black and white, beautiful, bossy, spoilt, darling. Today he was mauled by a big dog across the road. The brave boy is ok but very quiet. How do you cope when they are gone, he is my best friend, I live in outback australia, and often he is the only one I talk to for days. When he was overnight at the vet ( i had to drive 85 kilometres through the isolated bush - no houses, towns etc, then drive back home) it was so quiet. Your strength has comforted me.
Anne <amaso20@eq.edu.au>
australia - Friday, September 16, 2005 at 08:39:21 (GMT)
I am a 40 yr old mother of six in 1990 I became allergic to fish it closes my throat as the month continued I couldn't take anything to stop the reaction, now I can't take any medacines, no antistetic, almost all chemicals, most make up, lotion, shampoo etc. I have a tumor that makes my usual blood pressure 176/195 I am still active I also have a tumor in my tubes, I fight daily god only gives me what I can handle, our local hospital and doctors won't see me becuz I won't try the drugs that have already put me in the hospital for mild heart attack from being allergic to them, my little guy is 7 please if you have any info on something that would help me. PLEASE I still work every day I'm a single mom cuz after I couldn't walk for a year, my mom raised my 5th son till he was 2, my husband found a more energetic women becuz I had changed so much. My head still says I can but my body won't let me,when I get home from work I cook and go to sleep most of the time they fall asleep by me on the couch. I was born premature, I guess I had heart problems, I had rhematic fever at 9months and at 18 they found a donar for my kidney transplant but my dad said no. Just another daily battle .
Kim Collier <kimc@ever-ready.com>
Milan, NM USA - Monday, September 12, 2005 at 21:16:59 (GMT)
Thank you for this wonderful sight. I have suffered from MCS for years. Right now I am in a bettle with my place of employment for the recent use of chemicals that sent me into a major attack. Ironically I am a teacher and several children have suffered thi time but all they want to know is "What do you want us to do?" This after years of articles and exposure issues.
The one thing we all need to remember is that Jesus is the answer and there is healing for this horrible disease!
Debbie <kndrgrtn7@sbcglobal.net>
Akron, OH USA - Monday, September 12, 2005 at 13:49:32 (GMT)
what a truly beautiful site, only skipped through it but later on will get back to it, I have suffered from mcs for over 40 yrs, no help has been given, doctors ignored it, turning their backs on me, some laughed , others asked me if I was sniffing glue, and I had to insist on allergy tests being carried out, as no one was bothering, Even friends thought I was exhaggerating even making it up , until I had to aviod most friends and family, as most either smoked or were doused in petrol Trying to tell them is fruitless, people just dont want to listen. For years I thought I was going mad, as I didnt know of anyone who had these symptoms at all, Over the years its got progressively worse, and I fee. I dont want to go on at times, but with the help of some people at this and other sites it has given me hope for the future, lets hope we get the proper help soon.
donna robertson <donnarobertson7@msn.com>
glasgow, uk - Thursday, September 08, 2005 at 14:24:22 (GMT)
Is anyone aware of efforts to find housing for MCS sufferers who have lost homes to Katrina?
Diane <djinhishands@bellsouth.net>
Beech Bluff, Tn USA - Wednesday, September 07, 2005 at 20:32:50 (GMT)
My sister has MCS and has found a fantastic, line of products to clean her entire house! If anyone would like information on what she uses, feel free to email me.
AJ Vetere <frvetere@yahoo.com>
Bethlehem, Pa USA - Sunday, September 04, 2005 at 18:46:51 (GMT)
Your tribute to Dusty is beautiful. And your song was heart-wrenching. I just eased the passing of my cat Pepe yesterday, and it's hard to believe he's gone.
Pepe's Mom
Marina, CA USA - Friday, August 26, 2005 at 22:53:32 (GMT)
I recently purchased Progestelle for Endometriosis. After day 1 I noticed my stomach was less bloated and since then I have less abdominal pain.
H Riggins
FL USA - Wednesday, August 17, 2005 at 16:12:17 (GMT)
Thank you so much for your website and for sharing your "Dusty" with us. I have listened to your little song over and over and cry every time. I ordered the C.D. I just lost my Little Megan on July 27, 2005 - kidney failure. She was only seven years old and was so very special, sweet and loving. Thanks again for your site.
Terry <maxmegan@aol.com>
Pearl, MS USA - Thursday, August 11, 2005 at 02:52:20 (GMT)
THANKYOU SO MUCH FOR CREATING THIS SITE! YOUR SITE AND ALL THE VISITOR COMMENTS ARE A TREMENDOUS HELP!!!
KEEP UP THE GREAT WORK!
GOD BLESS YOU AND ALL WHO ENTER HERE!
LOVE & HUGS, PEACE & JOY TO ALL!
PURE AND SIMPLE
http://www.godslovepureandsimple.com
Pure and Simple <pureandsimple@godslovepureandsimple.com>
IL USA - Monday, August 08, 2005 at 00:31:26 (GMT)
This is a wonderful site. Everytime I come to this site I read about dusty and I cry everytime. I have a dog named charlie and I never want him to leave this earth but everyone has a time. I'm catholic and I belive everyone goes to heaven. I can't imagine a life without my dog. Charlie suffers from strokes and it is very sad. Charlie is a jack russell and I love him to death to us part. Sounds weird but true. So god bless you family and enjoy the est of your life.
Genesis <DoggySheltie@aol.com>
Brooklyn, Ny USA - Friday, August 05, 2005 at 16:31:05 (GMT)
I was so touched by your song to Dusty,and the story on his little life.I cried so hard I had to take my glasses off several times. I had to call my baby Haley and hold her on my lap as I read. I also have a retired Greyhound named Cody. They are my heart.Isn't it wonderful that God understands our love for them, and they are not gone,just waiting on us to join them someday.God bless you,and I hope that your hearts have healed.
diane harrell <codysmnd@aol.com>
lakeland, fl USA - Saturday, July 30, 2005 at 23:55:21 (GMT)
I have always loved 'Rainbow Bridge' but it became particularly important to me when I lost my "Libby" 3 weeks ago. She was my baby, my buddy, my friend, and I will miss her until, of course, I cross the Bridge. I take comfort in knowing she will be there to meet me, to make me feel better, as she did here on earth. Thank you for not only caring, but for making our love for our pets not seem stupid or unimportant.
Carol <Gem2nt@aol.com>
Las Vegas, NV USA - Thursday, July 28, 2005 at 18:37:26 (GMT)
I found this site by accident when I was looking for information on what I've come to relize, I seem to have some sort of extreme chemical sensitivity I used to work for over 10 yr's as the Manager/Customer service Director of a high volume,Very High End Beauty salon I worked around alot of nail glue's, resin's,& pure Acetone that the girl's used to dump into thier paper towel's [when they were done w/client's] & then throw it right in the trash by me! Also we did alot of color work- Foil's-highligting, bleaching, chemical straighting, I was around all these service's because I constantly was checking on the stylist's to see if they needed anything not to mention the amount of hairspray that we used was ungodly!! beside's the fact that the salon in my opinion needed a better venalation system but in those 10 yr's I was getting increasingly sicker and sicker.I worked 4 day's a week around 9-11 hour's a day, I sometime's would be out 2 to 3 time's a week w/ a severe migraine which would require me to go to the emergency room at least once of those time's.just this last nov. my boss /owner fired me because of my headache's said I no longer had a future there gave me no severence pay either, & 3/ 1/2 week's before christmas now we've been selling personal thing's just to pay bill's &buy; food. I can't go out much it seem's when i do I come home w/ a headache but I haven't gotten a headache like I used to get when I worked around all those chemical's I havn't been to the emergency room once except once when my husband and I and some friend's went on a trip and my friend & I came up to the bathroom & they were cleaning it & I had to run back to our suv fast but it wasn't fast enough cause I was sooo sick the whole trip there & back 8 hr's of hell I truly couldv'e had someone put me out of my misery that's how much pain I was in all from someone cleaning the bathroom!!& I didn't even go in it I was about 5 ft away now I stay at home as much as I can. to clean at all I use a bio-hazerd mask just to use widex or joy ,etc.I feel like the girl in the bubble and I to think I used to think I'd be working there for ever and that they would take care of me when I retire HaH he wouldn't even return my phone call's [my boss] when I begged!! and cried in front of him for a job in the office cause I told him I never would make it w/out my salery & He said "I'm a smart Girl I can get a job any where!"when I sit in my home now I feel sometime's like a prisnor even though I don't have as many headache's I might as well be in prison as for today I had to fill a prescription at my local pharm. but cause of the carpet's I got sick so tonite I lay sick w/ a headache -how Ironic? Sick & Tired of being Sick & Tired!!!!!!!!!!!!
pati carlson <pmcx3@hotmail.com>
naples, fl USA - Tuesday, July 26, 2005 at 07:32:06 (GMT)
This is fantastic. You are doing a wonderful job. I thought I was all alone and started my own site to educate people and to create a support system, and then I searched the net. You are on front page for MCS and so you get seen a lot! Great! I have been suffering for decades and didn't know why. I began my own experiments on myself almost two years ago and found from firsthand experience what is called MCS. My information I gathered matches info I now see on the net. I had no preconceived ideas that I mentally assumed were the case and so found symptoms to "match" what I had assumed. I deducted through observation and came to pretty much the same conclusion what I see posted in various places. That is proof enough for me that it is a real condition and not a figment of anyone's imagination! Keep up the good work!
Linda Linsley <sonshiner1111@yahoo.com>
Leslie, MI USA - Saturday, July 16, 2005 at 14:14:51 (GMT)
With tears streaming down my face, I am so comforted to have found this web-site. I have suffered from MCS since 1992. I am a former foreign language teacher, who has had to give up her career due to MCS. My life changed so drastically that one word describes it best..."Recluse". The migraines and anxiety of avoiding perfumes, print, plastic, tires etc became too difficult. I must tell you, that my students did try very hard to abstain from these fragrances and other triggers such as deodorants etc. My principal even built me a classroom upstairs..we called it "The Upper Room". Despite all of their efforts, nothing could keep all chemical offenders away from me. I decided that it was easier for me to quit, than to ask the world to refrain from "baptizing" themselves in all these "scents". I MISS TEACHING SO VERY MUCH! God has gifted me with the ability to speak many languages, and now I speak only to myself. I miss my Sunday school class, I miss people in general. I began feeling an overwhelming "guilt" when people would say things like, "Oh, I'm sorry, I wished I'd know you were coming, I would not have sprayed perfume." (I had been a member for several years.) But I felt it was my problem, not theirs. I can't go to malls, nor eat out with friends (what friends are left). I feel like a leper, and have become very sad indeed. My tears though, at this moment are not of self pity, but rather a sense of relief in knowing I'm not crazy and that more people like myself are out there. A lawyer friend found this web-site for me, and I could not wait to get home and log on. Thank you so much for creating this web-site...you are saving my life...as I've become so despondent, not having anyone to talk to about this condition. Just yesterday I found out that my imitrex shots are not being covered totally, and to get them will cost$567.70. I came home both angry and sad. My qulity of life has changed and I feel as though I'm a prisoner of my own home. I do love to read, and study much, so please keep up the good work and keep us informed. I want to get involved in educating more people about MCS..perhaps that can take the place of my teaching career. I also just lost my best friend, my cat of 11 years. Furball has been my life-line and I still run to the door during the night, thinking I hear her meow. Again, thank you so much for your valuable information..."I'm not crazy afterall" smile. Sincerely, Mrs. Tovah Ruth Hagan
Tovah Ruth Hagan <TovahRuth@msn.com>
Lexington, Ok USA - Thursday, July 07, 2005 at 19:16:03 (GMT)
I was so touched and moved by your sweet story of Dusty, I cried and cried. I lost my precious Saint-Snoop just 3 weeks ago and I still cry each day over him. Thank you for sharing such a heartfelt story of your love for precious furbaby.
Jaime Wilson <mysaintbernard@yahoo.coms>
St. George, Utah USA - Tuesday, June 28, 2005 at 15:57:25 (GMT)
I enjoy your site & appreciate the time & effort you've put into educating others about chemical injuries. I am in a group at http://health.groups.yahoo.com/group/MCS-Global/
I & others are working for the same enlightenment as you are. We are making up bus. cards with our logo on them. I also want to make a 1/2 sheet to inform my church members of my chemical sensitivity. I would really like to ask the artist John M. Brooks (?) if I can use his Tweetie image on my little flyers. Of course I'd leave his name on them. I'm not soliciting anything but really need the understanding of my fellow church members. Please give me an email or phone for him or ask him to contact me. As one Christian to another you know I wouldn't misuse anyone elses art or written projects. Tweety is a trademarked image & I believe with the changes made to include the gas mask the artist has gained permission or changed it sufficiently not ot have to. I can't steal someone elses art but this image would get across to the people in my church the reason I sit in back with a respirator, fan & sign asking for perfume area please. Please reply as you can. God Bless, Sandy
Sandy Mozingo <PlumSweetUSA@Yahoo.Com>
Seattle, WA USA - Saturday, June 18, 2005 at 08:39:12 (GMT)
I just wanted to add as well, that you know our world has reached a sick state when there is a debate over whether non-toxic, clean fresh air is something that is a "special need" as opposed to a basic right that all human beings need to survive. When you really think about it, doesn't that sound ironic?
get rid of Chemicals to reply.
AJS <ariannah@chemicals.gmail.com>
USA - Friday, June 17, 2005 at 16:01:52 (GMT)
Scent is one of the last allowable ways that big companies can legally drug us and poison us via household cleaners and toiletries and make us sick. Chemical scents are a narcotic and a powerful manipulator. I live in a Canadian province that is making some progress and headway in this area with scent-free environments.
I am mildly sensitive to chemicals, and have gotten rid of everything I used to buy based on the smell alone! Some of these products were terribly and shamefully expensive. Embarrasing for someone to admit, who proudly proclaimed herself to be a frugal household manager. I am already quickly feeling the health benefits of detoxifying my home of these pollutants wearing the guise of "cleaners". I've not had a headache nor felt as tired. Chemical scents used to give me raging headaches and I would ignore it because I "liked the way it smelled".
Chemical scents are a DRUG which interfere with our reasoning skills. It desensitizes our olfactory senses so we don't even KNOW what smells good anymore. Our noses scream for more and more because we are tranced by the powerful effect.
Scent plays a part in recall of good memories and bad, I can recall several memories a day triggered by what any given environment happens to smell like. Given this alone, it stands to reason that companies can take advantage of this and lure people "by the nose" to con them into spending hundreds, if not thousands, of dollars on - let's face it - poison!
I really appreciate this page, and hope that more people become aware of this as one of the biggest sources of indoor pollution. People who are mildly to severely sensitive to the chemicals are unfortunately forced to be the most aware, but it is toxic for everyone, not just those of us who acutely feel the effects. Medical science simply cannot advance as quickly as the rate at which we are willingly poisoning ourselves and this planet. It's like trying to shovel snow in a blizzard with a teaspoon! It is so needless and can be stopped.
It is sad that only those who are affected understand this. Understandably, it is very hard to make changes which involve educating oneself and adopting a new mindset, but this is what makes it so difficult. People by and large do not want to change. I used to be one of them.
AJS <ariannah@gmail.com>
- Thursday, June 16, 2005 at 12:02:03 (GMT)
Hi jacki, my name is Jackie with the e. i stumbled across your site looking at info for CFS, and fibromylagia. i am in benzo withdrawal, an addictive class of drugs like valium. i have been suffering for a year and now that i can feel my body again, i am hurting so bad in my joints and my muscles, i am exhausted, and feel sad. i reallly found the info on the chemical sensitivity problem worth looking into. and i cried when i read about your little dog. I lost my petie, my yellow tabby cat, this past year. i can relate to you exactly in your feelings. I miss him so. you seem like such a kind and loving person. i am glad that you have taken the time to develop you site thank you very much. jackie m
Jackie mcknight <jmcknight2@mac.com>
mason, TN USA - Sunday, May 29, 2005 at 08:11:00 (GMT)
Good information, Thank you! It allows us to be informed consumers. We need to disseminate this information but we should NOT wish the offensive products be withdrawn from the market because there are many other citizens who use and benefit from products such as fabric softeners. To do so would be pretentious and selfish.
Philip Sterling <rock@rockislandlodge.com>
Kenai, AK United States - Friday, May 27, 2005 at 08:05:14 (GMT)
Thank you for this site. I need help with my new life as a Christian. I belong to a group of women who are going through the book "Purpose Driven Life" by Rick Warren and it has done wonders for me and the others.
Jill <jilschw@hotmail.com>
Kamloops , BC Canada - Thursday, May 26, 2005 at 18:37:17 (GMT)
I lost my hamster Sandy the day before Christmas eve. I still grieve about it. She was the sweetest little thing. You could hold her the first year or so. She was 2 when she passed on.
Emily <EmilyGerren@neo.rr.com>
USA - Monday, May 23, 2005 at 12:51:30 (GMT)
Wish I had known about your site back in 1993.
My mother just could not/would not understand that her perfume made me sick. She kept asking me why I didn't like the smell of her perfume. I kept repeating that it was not the scent, but the chemicals in the perfume. Finally she gave in & quit wearing it around me, but she started wearing perfumed deodorant.
When I was forced financially to move in with mother I counted 8 different scented cleaning products stored under the kitchen sink.
Thank you for providing such valuable information.
Debbie Hart <djhart1@charter.net>
Haltom City, TX USA - Saturday, May 21, 2005 at 01:00:21 (GMT)
I would like to order "Fragrance-Free Encounters and No-Fragrance Spaces", but the link to Paraquad doesn't work. This is a very infomative brochure and I hope you can get an ordering address for us.
Sue Pendarvis <sueoui@marshallnet.com>
Marshalltown, IA USA - Saturday, May 14, 2005 at 17:08:44 (GMT)
Growing up, I always got headaches immediately after smelling certain things. I never thought anything of it but remember how it hindered my life in so many ways. Now, as an adult, this problem has become so much worse. I am a teacher in a high school and in the past 6 months, this condition I have but always thought was an allergy has become increasingly worse. I have become irritable, moody, emotional, and physically sick, having coughing spells, burning in my throat, my voice has changed, I wheeze and all of this has affected who I am as a person and my everyday life. It is a major disability and I can't take it anymore. This morning, a student walked into my classroom and immediately, I had a reaction and asked her to leave my room. She didn't take me seriously and I got really upset and left my classroom in tears and cried my eyes out and all I could think is, "I can't function like this anymore." I couldn't get the taste out of my mouth and went into a coughing spell for quite a while. The student, was very offended and took this personal which made me feel even worse. The student who knows how perfume affects me, swore she had no perfume on, yet I didn't have this reaction until she came into the room. I explained that it had to be something that she had on. I also tried to make her understand that it was not her I was upset at or with but simply something she was wearing, was causing me to have a terrible reaction. I am at my wits end. Especially since I can't control this situation and am completely powerless. If anyone has any advice at all, please let me know. This is unbearable and I really need help.......Thank you!
Sherry <sherryb@esasd.net>
Moscow, Pa USA - Saturday, May 14, 2005 at 05:03:01 (GMT)
I am so thankful for this article. It is at this time in my own life that I am going through so many changes and I just need to be reassured that All things happen in its season. I have been blessed everyday of my life; I can only hope that GOD continues to shine his powerful rays of light upon me so that I am able to brighten another persons day. Please keep me in prayer, and thank you again for allowing GOD to speak using your voice.
Saraea Alston-Leslie <coralskye02@yahoo.com>
Upper Darby, Pa USA - Sunday, May 08, 2005 at 04:54:32 (GMT)
Wow, I didn't realize the differences between Catholicism and the rest of us.
Nikkee <NorrisGrimes@hotmail.com>
Gainesville, FL USA - Wednesday, May 04, 2005 at 19:55:24 (GMT)
I also have MCS, along with the attendant ditziness when exposed to perfumes, hair gels, lotions, deodorants, etc. I do feel for those who have problems, AND we must take responsibility for our own health and well-being! Why aren't you eating organic fresh foods instead of take-out pizza? Wear a mask! Move away from your mold-infested town! We all have choices. I know this illness seems to limit our choices, and when exposed often, our judgement, too. Sometimes we sound crazy, and that can only work against us in our goal of educating those who don't yet understand. Let's do all we can to stay in amusement, maintain a reasonable tone, and remember to use SPELLCHECK!
Suzanne <sannyg@peak.org>
Monmouth, OR USA - Monday, May 02, 2005 at 02:10:20 (GMT)
Thank you so much for sharing this valuable information. I have a frankincense and myrrh essential oils business and always try to educate my audiences about the harmful chemicals that they pay so dearly for. It is total insanity when you think of how much money people pay for poison in a bottle! Frankincense and myrrh are the ancient essence that was the base of all perfumes. They are naturally antiviral and have many beneficial qualities. Unfortuneately big business had to corrupt our sense of smell. I love to share with people what true, natural, unadulterated scents really smell like and it is almost miraculous to what they can do for the human condition, physically, mentally and spiritually.
Michele Hammerton <info@ancientessense.com>
Clermont, FL USA - Wednesday, April 27, 2005 at 01:36:45 (GMT)
Thank you so much for your wonderful work!!!!
Diana Buckland Founder & Global Coordinator MCS-Global
www.mcs-global.org
Global Recognition Campaign for Multiple Chemical Sensitivity
Diana Buckland <diana@mcs-global.org>
Kallangur, Queensland Australia - Wednesday, April 20, 2005 at 04:18:46 (GMT)
update- I still feel very sick and lethargic after this experience. Though
I seemed to be doing semi ok sometimes, off and on I just don't feel well. Prior to this I wasn't feeling that bad at all, and these cologne fumes are on everything- I can't believe the amount of cologne this creep was wearing because the fumes just linger on, it's insane. I just don't feel good overall, very sick. I feel like suing this company and I suspect there's a possibility they did this on purpose. This is what this cruel world is like- instead of helping out sick people today, people sabotage and ruin their health intentionally and there's nothing you can do about these criminal acts. All because of this stupid pathetic delivery boy, my health is now in a mess. I haven't encountered this much cologne in many years, and this situation was a nightmare. If he did it on purpose, hope he gets whats coming to him, but even out of negligence it's bad enough. Doesn't anyone have any compassion for others these days? people are so evil, and cruel and especially to sick people..it's liek sneaking sugar into a diabetic person's food just to hurt their health, but with MCS, it's legal and there's nothing you can do about it when these sick companies or people do this to you and your health. I'm very upset, helpless, and angry. This is the kind of trial a person with MCS is constantly trying to avoid, and then somehow it just comes knocking at your door and affects you without you even expecting it. It's
terrible...
bleh <anon@yahoo.com>
none, fl USA - Monday, April 04, 2005 at 01:01:46 (GMT)
Having Mcs sux :( I keep using this place as a venting post, but maybe some others can understand what it's like to have an illness like this. I ordered take out from a pizza place I always do. I always request a male delivery driver b/c the men usually don't have cologne and the women have perfume in their cars and body sprays. I was once almost harassed by a manager there who was liek "oh so men's colognes don't bother you, but women's do." This was really bad on her part to do so. Well, today I ordered take out, and the guy who comes to bring me my food, is wearing more cologne than I've ever smelled on a person in my life. My question is that this stupid restaurant KNOWS I'm chemically sensitive yet, they sent a guy who is wearing so much cologne on him. I think they most likely did it on purpose- because most guys who work at 10:00pm usually don't spray cologne on themselves while on the job, it has worn off by that time. seems like someone may have intentionally sabotaged me. Now my porch, and sun room is reeking of cologne fumes which are making me dizzy and I have no air filter. This is sick, and these kind of situations are what make me so upset when it comes to having this illness. You have no control, power, or choice. If someone, or some corrupt or bad company or group of evil people want to hurt your health, they can do so and nothing will be blamed on them. I hate these kind of people- they are more than evil because they intentionally hurt people's health in such a cruel way. I can't guarantee this was done on purpose, but this guy was wearing so much cologne you don't have to be chemically sensitive to notice it. It makes me sick that this world is so bad, and that people with MCS are treated like this. I wish liability could be placed on those people or companies who intentionally hurt people with mcs's health in this cruel and ridiculous horrible way.
bleh <none@yahoo.com>
none, fl USA - Thursday, March 31, 2005 at 03:28:06 (GMT)
I have been told,i have vasa motor rhinitis,one doctor told
me,I had chemicals in my body.all I know is,I had to leave my job of 30 years,because perfumes,along with everything
else smothered me to death.I have cleared my home of everything that has a odour to it.Does anyone out there have this?and is it due to chimicals.I believe mine is
chemical related.I worked where candels were made.The odours were terrible.I would appreaite your help.I have
been this way for 6 years.
were terrible.
ann young <annyoung40403@peoplepc.com>
berea, ky USA - Wednesday, March 30, 2005 at 05:15:51 (GMT)
The songs are lovely! I have Jackies CD with PRECIOUS LITTLE FRIEND on it and I LOVE it!
My Website is www.marcswebs.com where I have a link to where you can get a book titled WILL I SEE FIDO IN HEAVEN? It is a WONDERFUL book which clearly points out the verses of Scripture that indicate that we WILL see our poets again! I also have a Web Page illustrating my concept of Heaven--of course I am not 100% certain it will be anything like that, but I DO have my hopes.
God bless you all:
Marc
Marc V. Ridenour <marcvridenour@hotmail.com>
Show Low, AZ USA - Tuesday, March 29, 2005 at 23:00:39 (GMT)
What your visitors NEED to know BEFORE they come to visit you.
For your friends and Family:
I now have "What you NEED to know BEFORE you visit someone with MCS" in WORD format and can send the attachment to anyone who would like to see it/print it out for your needs.
I also have the "Fragrance Free Home" Front Door sign available in WORD Format as an attachment
Please email me with request to:
maggie _ panion @ yahoo . com
if you would like me to forward either or both to you.
Hugs,
Kathy
Kathy Houghton <maggie_panion@yahoo.com>
Anchorage, AK USA - Tuesday, March 29, 2005 at 02:25:57 (GMT)
How ignorant to put people down. Do any of you insulting people with mcs have any clue as to what people with this illness have to go through on a day to day basis? I've heard claims from "people seeking attention" to all sorts of nonsense and trash. mcs is interrelated with cfs and many other types of illnesses and immune system problems. There are people whose lives have been damaged due to people just liek you who say "it's all in your head" while they suffer daily with no hope and no cure. As for the 'walking out' scenario--maybe that is possible for some people, who knows, but for most people the illness is not "a fear of odors" it is REAL, and it is painful, and most of the time odors have little to do with anything, it's the chemicals, and chemicals can affect a person whether you smell them or not. Gastrointestinal problems, along with so many other problems also have an impact on this situation and illness...it's not "running away from odors" though yes, for many you do have to run away from chemicals because around them they can pretty much ruin your health. Anyway, I'm sick of the ignorant people ruining any hope for those afflicted with mcs, cfs, fibromyalgia or any other interrelated illness by putting these people down or calling them names. I just hope one day someone deciphers the mystery of this illness and finds some type of legitimate cure or resolution for it, and that people start recognizing the reality and seriousness of it.
youareignorant
city, ca USA - Tuesday, March 22, 2005 at 05:37:41 (GMT)
nice site, keep it up and carry gooooooooo
Dr,Onyebo <onyebo@asaba.com>
abidjan, cote d'ivoire - Monday, March 21, 2005 at 10:24:14 (GMT)
For people who are putting the idea of MCS down or calling it psychological. MCS and CFS affect many different parts of the body ..the endocrine system, the immune system, the neurological system. Being affected by an illness like this, even shown in brain scans does have an impact on the brain. This could very well relate to a decreasing strength in the blood brain barrier, allowing more toxins or chemicals to surpass the barrier and create problems for people that are neurological in nature. If you do have MCS, for many people, being exposed to a toxin does have an impact on their brain--sometimes even causing seizures. Because this is such a complicated illness, and because corporations do not want to take the blame for having dangerous chemical products, they have convinced doctors and most likely the pharmaceuticals that run medicinal education, that this is a psychosomatic illness. The unfortunate problem is, this is a very real illness, a devastating one, and more and more people are being affected by it every year. Not enough research has been done on MCS to understand the nature of how these chemicals have damaged the body, or the cumulative types of damage that have been done, but in most cases it seems apparent that there is some type of organ damage done--most likely to the liver, and also damage to the endocrine system. On top of this damage, there are so many other parts and areas affected, it's too difficult and complex for doctors to understand, and especially doctors who now believe it is psychological--without enough research to even prove it, and who are uninterested in helping people out. In order for doctors to call something "psychological" they first need to, through research, rule out the possibility of it being biological, and in this case this just hasn't happened yet. Medicine is uninterested at this time in taking responsibility for MCS patients, so people have to end up going around from one doctor to the next or to environmental doctors to receive diagnosis or medical advice. Just like many illnesses from the past that were one called 'psychosomatic' such as asthma, or ms, MCS is that new illness now being called this, but in the future as more and more people get it, they will have to deal with the reality of MCS and start recognizing it and helping and treating people with it.
anon <anon@yahoo.com>
anon, ga USA - Saturday, March 19, 2005 at 04:15:13 (GMT)
Regarding awareness of MCS. I know there are organizations out there who are advocating awareness of MCS, but I think that there needs to be more done. Corporations don't want to legitimize MCS and want to continue for it to be a 'mystery' illness or a psychosomatic illness. I think there needs to be some kind of a national organization created, and the reason I say this is because people with MCS are often mistreated, abused, shunned, and have their health hurt even more. If there is a national organization, that goes around and does a lot of work, with bringing awareness to the general public, then more people will understand what MCS is. People who are ill do not deserve to even have to go around and prove their illness..this is of course an abomination, especially for a 'civilized' society. But since people with MCS are in this position, they are the ones who need to get together and try to do something about spreading awareness about MCS. If you have children, or work, you can easily make pamphlets, or buy pamphlets from organizations and teach others about this illness. You can go to your local newspaper and ask them to do interviews with you regarding the illness. Try to get doctors who understand mcs or env doctors to back up your claims and just spread general knowledge to the public. At this point, the only people who can fight for the rights of those with MCS are people with MCS themselves. It may be difficult, but it's the best option for now..
.. <anon@yahoo.com>
anon, ga USA - Saturday, March 19, 2005 at 03:57:10 (GMT)
i think your website is awesome and i think i cried when i read your article about dusty and crystal b/c i lost my dog baby this year nov 1 2004 and she had breast cancer i miss her so much but thanks for the site jacki i liked it alot hope to hear more from you thanks ! Kristine, B
Kristine B
memphis, tn USA - Monday, March 14, 2005 at 22:58:31 (GMT)
I just wanted to find out about catscaI have a problem when ever I hae one done when the dye is being injected I feel nausiated and have chest pain can this be an alergic reation from the dye juring the procedure ?
sharon lagueux <sharonlagueux155@global.net>
east hartford, ct. USA - Monday, March 14, 2005 at 16:56:02 (GMT)
I have benefited from this site greatly. It has led me to a Doctor that verified my MCS and Chronic Fatigue. Knowing my illness and being treated professionaly is a great deal of the battle.
I can draw on my knowledge of it when I am down. My Allergist was greatly impressed with my aggressive adaption of my illness. My apartment door is sealed when I am in. My two Oreck air cleaners are suitable to my two and a half rooms. I carry one in a small suitcase when I attend my Christain meetings or visit my Mom. Of course most of the time I require assistance due to my constant fatigue. My husband is disabled and requires some care from me.
He is a gem and his humor is a great asset in our every day life. Of course our spirtual relationship with our Creator, the "God of Comfort" is our foundation that keeps our house of faith standing in these troublesome times.
I have needed eyelid surgery for nine months. I was turned down by a clinic and two hospitals due to their stand on MCS. The 14th of March I am supposed to have the surgery performed at a teaching hospital in Pittsburgh PA. If it goes well, They may allow me to have a much needed knee replacement.
Love to all and perservere until we see the fullment of (Job 33:25) 25 Let his flesh become fresher than in youth; Let him return to the days of his youthful vigor. and (Isaiah 33:24) 24 And no resident will say: I am sick. The people that are dwelling in [the land] will be those pardoned for their error.
with much love to all and those who accept "the Good News Of God's Kingdom"
Leveda
Leveda <mplpput2@juno.com>
Scottdale, Pa USA - Sunday, March 13, 2005 at 05:19:22 (GMT)
very very good , please contack to me
NGADI <ngadi@pln-jawa-bali.co.id>
surabaya, Indonesia - Friday, March 11, 2005 at 15:50:28 (GMT)
I think this is a wonderful website and keep up the great work!I'm sorry for all of those people who lost their pet. I lost my cat too. But I know they are all happy and enjoying the painless place. A place where they can rest their aching bones. A place where they will no longer be sore... and that place is rainbow bridge. RIP.
Sarah
USA - Friday, March 11, 2005 at 03:02:21 (GMT)
This site has proved to be priceless, I have recomended it to many people, even those unaware of this illness. I know it will make a change for the better, in future generations. I have also shared information from this site, with my doctor, which reconizes this illness. Specifically the page from Govorner Jeb Bush, declaring MCS week. I will continue to refer people here for the rest of my life, which I thank-you all for extending, through your information. I would be happy to talk with anyone interested in this illness. Herejustfornow@aol.com
David <Herejustfornow@aol.com>
Fl USA - Friday, March 11, 2005 at 02:57:12 (GMT)
Thank-you so much for your site on Toxic Perfumes. I used to wear perfume all the time and it made my mom feel headachey and nauseous and quite grumpy! I didn't believe her complaints to be legitimate and so I kept using it. Now, at age 28 I am highly sensitive to a large variey of chemicals. Perfume is still the largest problem for me especially since I work with the public. My reactions vary from instant runny nose, to stinging gums and eyes, to a very itchy throught with a dry cough, and instant headaches! I really hate it! Currently I am looking for alternative soaps etc, but I wish that there was more public awareness, how can I help?
Maria <mariajonesart@rogers.com>
Oshawa, ON Canada - Saturday, March 05, 2005 at 20:28:01 (GMT)
Thank you for sharing your information on MCS and your testimony. I have a friend who has MCS and wanted to find out more info so I can help make her life more comfortable. Your testimony about grace and salvation was awesome! God bless you!
Karen F.
VA USA - Friday, February 18, 2005 at 23:09:31 (GMT)
please help if anyone can- I have mcs and my family is abusive towards me. I am in a compromising position and my mother who is abusive just makes sure I do not get better. I have dealt with a lot of abuse due to my situation, and just don't know what to do. My family has the money but refuses to fund me and put me on disability just to bring me down more. I don't know what to do and now air filters that I want to buy to help my health out, my family refuses to fund and I can't pay for that with my disability money. I have no friends and no one to turn to and I have an endocrine abnormality .. if anyone knows where people with mcs can get additional funding or support please let me know thanks.
jamie <rjenkinss@hotmail.com>
miami, fl USA - Friday, February 18, 2005 at 22:27:07 (GMT)
"Go to sleep, my little one, little one. Go to sleep, my baby, my own." - This is from an old Perry Como song called 'Turnaround' - Here are the words:
Turnaround, turnaround,
Turnaround and you're a young girl going out of the door!
Where are you goin' my little one, little one,
Where are you goin' my baby, my own?
Turnaround and you're two, turnaround and you're four,
Turnaround and you're a young girl going out of the door!
Turnaround, ( turnaround! )
Turnaround and you're a young girl . . .
Going out of the door!
Makes me cry every time I hear it. Lots of people have played it at their daughter's wedding. I think it's very apt for losing a beloved pet as well....
Just lost my German Shepherd Moshie, 2 weeks ago, and your song touched my heart and brought tears but I thank you so much for sharing it.
Jill "Moshie's Mom"
Jill <tech-write@ns.sympatico.ca>
Elmsdale, NS Canada - Friday, February 11, 2005 at 18:18:00 (GMT)
Thank you for your story about Dusty. I cried the whole way thru. I have 3 pugs, My papa Jake just turned 16 on Jan. 21st. My vet said I would be luck if he made it to Christmas. We fooled her. I am thankful for that. My little guy is deaf and partly blind. He also has no use of his back legs, but, he does have a wheelchair. I could go on and on and on. My other two, his wife Jazz and his daughter Ane are doing great. Once again thank you for your story.
Lynn <pugsfisher@aol.com>
Longview, wa USA - Monday, January 31, 2005 at 02:34:31 (GMT)
i am so sorryto hear that you loss your dogs i loss my cat who was half siamses mix her name was Misty.I am having a hard time with it to accept she is gone.
Sue Plante <splante1@new.rr.com>
Appleton, Wi USA - Tuesday, January 25, 2005 at 15:14:45 (GMT)
i have a lustron home for sale that would be perfect for someone with MCS. description: Carl Strandlund's post WWII, porcelain enamel on steel, all-metal, prefabricated house. In production from 1947-1950. Approximately 2500 Lustrons were built in the United States. price 85k or best offer. it is in beverly ohio but can be moved. call Don Hottinger at 740-984-2688
viki thomas <izzy4usa2002@yahoo.com>
Beverly , ohio USA - Sunday, January 23, 2005 at 07:26:13 (GMT)
PTL!!! You're site is so wonderful; I loved listening to your sweet angelical voice. I was comforting a friend today who was going to a memorial service, and sent him your site link. Pray for Bill to come to know the love of Christ our Redeemer!!!
Be blessed in the Mighty Name of Jesus Christ!
Rev. Jodi Knapp
Jodi <jcformedaily@aol.com>
Las Vegas, NV USA - Saturday, January 22, 2005 at 21:27:52 (GMT)
Thanks for the great site!
Ann
USA - Tuesday, January 18, 2005 at 03:38:50 (GMT)
im interested in a hairloss program and i was wondering if you could please help me on thyis thanks marty fox
martyfox <mrtyfox@yahoo.com>
charlottesville, va USA - Tuesday, December 14, 2004 at 13:05:14 (GMT)
I suffered from MCS/EI for @ 10 years, the key word being suffered. Best I can tell Im free now. I tried what I thought was everything. I have 25 years of nutrional background, that didnt work. I took saunas that didnt work. I wore a mask all that did was create fear in my life. Fear of this chemical fear or that chemical. I finnaly found the answer.
All MCS/EI victims have a few things in common:#1 they have a broken heart at some level. I was able to find help and am now able to eat whatever I want, go wherever I want. I dont freak out when someone with perfume walks by me, I enjoy the smells now. You know there are 2 smells really for a MCS/EI person the one you avoid and the one behind it. That what I found anyway after walking out of the illness. In the past I would run from that smell and some times get anger at the person.
Dont jump to any conclusions that I didnt have the dis-ease or I dont know what I am talking about. I did have the dis-ease and I got straight A's in college in anatomy and biology, although spelling was a different story. LOL!
I found a book and a man that was willing to listen and teach on this illness they helped me and have from what they claim have help 1000's walk out of MCS/EI I watched people right in front of my eyes "walk out" of it one of them actually walked the soap isle at Wal-Wart. Same here I can go there now in the past I couldnt I would be sick for days.
I am thankful for getting my life back I cant help but share with others now. I will respect the moderaters advice and not post anything regarding the book or the people that have help me and others. I just want to give back. If you want you can contact me and I will share all I can privately
God Bless
sean <sean45@cox.net>
USA - Friday, December 10, 2004 at 15:30:57 (GMT)
I was searching for the midi tune "He Washed My Eyes With Tears," an old gospel bluegrass song and stayed a while at your site. I played "I Surrender All" and simply closed my eyes and worshipped. Many a time in my life I have released burdens to this great song of love to my Savior. The emotion of it all simply flooded my heart. I had just finished reading the gospel of John through Jesus prayer for his own in John 17 and had already broke down and wept just knowing Jesus prayed this prayer for me! That's what prompted my search. I did not find the tune that came to my mind, but instead came upon one even more personal and dear to me. I believe God intended me to hear I Surrender All. Thank you so much for making this beautiful tune availble. May God bless you for it!
Marie Parsons <parsrus@valliant.net>
Ringold, OK USA - Wednesday, December 08, 2004 at 03:03:28 (GMT)
http://www.yahoo.com Yahoo the BestClick Here
NastyGay <nastygay@mail.com>
n/a, n/a USA - Tuesday, December 07, 2004 at 18:32:55 (GMT)
very nice site, thx
=http://www.sportwettenonline.com/>sportwetten online wetten</a>
USA - Monday, December 06, 2004 at 23:37:04 (GMT)
Hey everyone have you heard of the products called the Majestic and the Defender 360 they are the anwser to alot of the problems we face in our own homes Indoor Air Pollution is horrible its worse inside our homes than it is oustside. and I can prove it. do you feel sick when you walk in your own house I did until I found out about this the defender is a class II medical device its the only one approved by the FDA and it has been proven to eliminate 99.99% of indoor air pollutants. I had trouble breathing at night I would wake up and blow my nose and tons of stuff would come out. After getting my machine I could definitely tell
[Older posts above. Post form below.]
a difference in the quality of air in my house. but it doesn't stop there not even close where do you think the pollutants come from? dustmites, pet dander, cig smoke areosal cans mold pollen etc. all are highly dangerous to our health and well being thats where the Majestic 360 comes in it gets the source of the problem the couch cushions the mattress we all sleep on. those of you out there that have this system know what I am saying. Indoor air polution is going to kill us all some day we need to stop it now before its to late and you think your vaccum is going to help with all the filters and bags. they don't its just polluting your air in your home. do you ever smell dust when vaccuming your home thats the exhaust from your vaccum polluting your air and ruining your appliances not to metion what it does to your lungs. did you know that the dust you see is acctually only 2% of what is there and if you could see it all you wouldn't be able to see your own hand in fron of your face. I thought that was the most disgusting thing I have ever heard. and that the average person loses 5 lbs of skin a week mostly deposited in our mattresses I used my majestic to clean my mattress and was very surprised on what I pulled out I never sleeped so good than I did that night never woke up once to blow my nose and when I got up in the morning I didn't feel sick lke I did every morning for about 3 yrs. I have been to the doctor and same as everyone they couldn't find anything wrong and just like everyone I still got the HUGE unreasonable HUGE medical bill. I feel everyone could benefit from this system if you have anymore questions on how to get one or just want to know more my email is mnlakelover@hotmail.com hope this helps alot of people that could use it thank you for your time in reading this. would love to tell as many people about this as possible we could all use some help getting healthier without the bills and dangerous chemicals that are suppose to help sincerely matt k
matt <mnlakelover@hotmail.com>
stcloud, mn USA - Monday, December 06, 2004 at 01:57:45 (GMT)
I just wanted to add that I did purchase a trial package from Melaleuca and all of their products were what was said to be, I didnt continue to purchase because I lost interest and lacked the money due to a recent layoff. Im not benefiting in any way by telling you about this site, and the gent who told me was a rep who I havent spoken to in 9 months, but he and his family were users of the products.
He gave me a melaleuca oil sample and I added it to my shampoo. My severe skin condition on my scalp went away after 3 days. My condition was due to the various shampoos, gels, sprays, conditioners I have used over the last 10 years, and most recently the trial samples my girlfriend kept bringing me from her salon. I had serious scalp scaling and if you know of any other products that I could use without having to smell like a MINT factory, I would appreciate it. The product I was using worked, but was quite strong, much like PURE TEA TREE OIL. Please email me at michael _doucette@mynlc.com
Michael Doucette <michael_doucette@mynlc.com>
Santa Rosa, CA USA - Monday, December 06, 2004 at 01:10:21 (GMT)
Hi everyone, I was online researching solvents, lacquers, wood finishes, and urethanes today because my roommate (the homeowner) decided to stain the deck again for the 3rd time in 3 months and left the window open so he could listen to music. The smell was so strong I couldnt finish eating and I came up to my office and turned on the heater. Well as I was reading another site that I mistakenly came across (it was a manufacturer page rather than a health report page) they were saying that there was no risk associated as long as there was proper ventilation. BS, I said. Then I saw that it said not to heat these products, and I realized the the smell in the house had changed when I turned the element heater on. This changed the properties in the molecules of vapor in my upper room. It smelled like burning kerosene. I went down and complained to him and he finally agreed to close the window. He wasn't even wearing a respirator. I am amazed by the ignorance of other people and their tacit inability to realize they are endangering other people. Anyhow, I came across this site and found a lot of valuable information that has scared me silly.
I was recently aware of a company called Melaleuca and NO THIS IS NOT AN AD FOR THEIR COMPANY, AS I JUST CAME TO REALIZE TODAY HOW IMPORTANT THEY ARE. AGAIN THIS IS NOT A PLUG!!!!!! I didn't take them very seriously when the rep first told me of the dangers in dishwashing soaps, laundry soap, deoderant.
He showed me a ziplock bag with aluminum foil in it and some dishwashing detergent. It had been 2 weeks and the Cascade diswashing liquid completely disolved the aluminum foil. VERY SCARY. The chemicals and fillers added to an detergents especially powders can slowly cut the fibers of your clothing and eat your skin. DID YOU KNOW THEY PUT CRUSHED GLASS IN TIDE???????? VERY FINELY CRUSHED. AND WHEN YOU LOOK FOR THE INGREDIENTS, THEY DONT SHOW THEM.
The detergents never really disolve in the water either. This rep also showed me where they had poured 1/4 cup of tide into a 1 gallon jug of water and by the end of the day it all settled to the bottom again even after being put through the shaking cycle of a newly shaken can of paint.
You can check them out at Melaleuca.com They are a company that provides all natural products, soaps, shampoos, deoderants, chemical free dryer sheets, chemical free laundry soap, foods, vitamins at 98% absorption rate (the best in the industry and patented), natural supplements that stop illnesses, and homeopathic medicines. All at good prices. I take this company very seriously now.
Now that I have seen your site, Im not buying that perfume for my GF or asking for the cologne I wanted. I am dumping the laundry liquid, dryer sheets, and cascade.
Michael Doucette <michael_doucette@mynlc.com>
Santa Rosa, CA USA - Monday, December 06, 2004 at 01:03:54 (GMT)
Thanks so much for your website. I particularly appreciated your poem set
to music; it may be sappy but then again I'm a sappy person, too, and I cried
when I read it. I have had MCS/EI for 20 years, disabled on social security disability
for the last 4 years; also diagnosed with chronic fatigue and fibromyalgia. My
physician calls it "immune system dysfunction syndrome"; her name is
Dr. Dorothy Calabrese, M.D.; she's an environmental medicine specialist.
I want to tell people about her as she has given me hope of some improvement
in my condition. She ONLY treats people like us; she's located in Laguna
Hills, California and is as far as I know the only such doctor in California.
She has been fighting with Medicare for over two years now to save her practice
as the treatment she uses Medicare won't reimburse her for although it has
been found effective for people like us. She uses preservative-free antigens
(like allergy shots, but she custom-makes them herself in her office laboratory
for each patient) and something called "transfer factor"--(it has a
long scientific name to it; this is the shortened version)--if you look this
term up on the Internet you get a product that is made of cow colostrum--this
is NOT what Dr. Calabrese uses. She uses a product that is injectable only; it
is a HUMAN blood product. The idea of it is that it is derived from a healthy
donor; once injected into a sick person, the human transfer factor "teaches" the
sick person's immune system how to function normally. Because of her limited
financial resources due to her Medicare battle, Dr. Calabrese can take only a
limited # of Medicare patients at a time; right now I'm on a "wait" mode
for treatment. She does have private insurance patients (unfortunately, non-HMO
insurances only; companies like Kaiser won't fund for this type of treatment
because they take their cues from Medicare)who are getting transfer factor, and
whose insurance is paying the costs. Her website is www.enviromed.org or you
can write to her at enviromed@msn.com I consider it a major crime that a treatment
is available to us, but the government is blocking payment for it. Right now
Dr. Calabrese has California Senator Barbara Boxer on her side, some Congressmen,
and the U.S. Department of Justice investigating the case. I'll let people
know the outcome of her fight; if she's successful this treatment may then
become more readily available to all of us who need it as other insurance companies
will have to follow suit and pay for the treatment if Medicare is forced to pay
for it. P.S. thanks Andre from Fresno about the information on the concrete slab
problem re: mold; I'm living in a house with a concrete slab and the soil
is hard clay with poor drainage; I really suffer with mold in the winter; find
that air filters help with some of this; whereever I find mold in the house,
I treat it with apple cider vinegar to kill the visible mold, and then tape plain
old aluminum foil over it to act as a barrier; it does help. I also water the
plants outside very infrequently in the spring and summer so the soil dries out
thoroughly between waterings; I water rarely in the fall and winter, letting
what little rain we get in Southern California do most of the watering. I've
killed some plants that way, and the grass is dead (the only house in an upscale
neighborhood without a green lawn)but my health is more important than a beautiful-looking
yard thanks.
Liora Leah
Liora Leah <lioralea@yahoo.com>
Los Alamitos, CA USA - Saturday, December 04, 2004 at 06:10:43 (GMT)
I want to thank you guys for this site. I never could figure out why I was always getting sick...but know it makes sense. Also, the information on this site really helped me with chemistry assignments. Im going to tell people about this site....like my mom, who has suffered multiple undergoings of cancer.
Sarah <genniegirl1@hotmail.com>
Acton, ONT Canada - Friday, December 03, 2004 at 17:38:10 (GMT)
I was made in France born in the USA, having many great experiences with a wide variety of people I see everything... better still I understand. Unfortunately tho as a human being I have been poisoned by the robots of society called CONSUMERS and now I have MCS/EI... so now I smell everything. Funny no? Anyhow, during the 90's I puchased a new home in a upscale even pretigious part of our city. The community was a park setting interconnected w/walk & bike paths and homes with all the upgrades, postcard perfect. Yet like the saying goes, "beauty is only skin deep" is a lesson I almost died in order to learn. Forget about personal relations and the beautiful girls I chased after. It was my house that turned out to be the real killer. My new home was built defectively from the ground up in fact so was much of the community. To make a long story short water from any source does not percolate well because the ground in our community is Hardpan. It's a type of clay mix that can be harder than cement. So the water be it from rain or sprinklers tends to stay at the surface ponding or the ground always looks dark and wet, saturated. So since homes are built on a concrete slab foundation if your lot and building pad are not properly graded or if the proper moisture barriers are not put in place. The concrete slab foundation acts like a sponge and wicks moisture up into the house, into the walls and underneath carpets and other flooring. Moisture and mold spores without sunlight makes poison. So, week after week, month after month, year after year, I became more and more sick after moving into this new home. All the while I was going to Kaiser Permanente (my care? provider) who never figured out that toxic mold/spores were killing me. In fact at one point they were giving me penicillin, this is what pushed me over the edge. Only after being rescued by Paramedics/Fire Dept since I was going into a coma due to kidney failure and severe dehyration, did I learn of having a systemic fungal infection. For a period of time I was fighting hard to stay alive, now life for me is just plain hard to live. Having MCS/EI now most everything chemical or organic can cause me to have a bad reaction. I can even smell things the average person can not. All of this is due to a defective society (I'm being polite). One example, everyone in our city waters their perfect lawns and gardens at night and since the water does not percolate most of the ground in our city is constantly saturated. The perfect breeding ground for molds. In fact anywhere you go in our city you will find green or black mold, depending on amount of exposure to sunlight, on the ground, sidewalks, fences, trees, shingle roofs etc. Due to man's un-natural activities we have caused an imbalance in nature allowing molds to proliferate. I have learned that first California then Texas have the worst mold problems in our nation and all of this was preventable but now it CAN'T BE STOPED. Since like most everything else wrong with society nothing was being done about it and now mold spores spred like a wildfire. But of course there is a good excuse for all of this, have'nt you heard, "Nobody is perfect". That's because NOBODY TRIES
Andre K <not1of2@yahoo.com>
Fresno, CA USA - Sunday, November 28, 2004 at 07:55:00 (GMT)
I just wanted to say hello!
Hello <hello@hotmail.com>
chestertown, md usa - Friday, November 26, 2004 at 19:35:52 (GMT)
Jackie and Gordon, where do I even begin. I'm 21 years old and my brother Robert which is 25 had came onto this beautiful website, heard about it from a friend. Well we have to both say that your story about Dusty is just about the same story that my brother and I have about our dog "Niekko" we both sat here and read all about dusty and we cried the whole time because it was like if it was our story. We actually just lost our dog 6 days ago. We have had Niekko since I was 4 years old, so yea I grew up with my little guy. he will be 17 years old on Dec 19th. To make a long story short I just thought that I would tell the both of you that I know what you both went through, it's the hardest thing that I went through and I'm still going through alot. That was a nice story that you wrote about Dusty, thank you for sharing it, it actually made us feel some what better because we were not the only ones that went threw that. Everything from loving chocoalate to falling asleep in his water bowl and not eating was the same thing with us and our dog. Till this day its so hard I cry all the time. We haven't even cleaned up his poop it's still in the backyard, his water bowl is the same way he left it. I know it was the right thing we did for him and I know he is better off but sometimes I feel it gets harder every day. How did you both cope with it? Anyways again thank u and I ordered the CD "Precious Little One" thats the BEST!!!! :) Well now Niekko is up there with Dusty and I'm sure there both having a blast and eating all the chocolate and cake. Priscilla & Robert (WE LOVE U NIEKKO)
Priscilla And Robert <DanCePri05@aol.com>
Indio, Ca USA - Monday, November 22, 2004 at 08:15:18 (GMT)
Thank you so much...as an RN, I've known my health was deteriorating 2/to multiple exposures to various chemicals...I'm NOT CRAZY...thank you!!!!! knowing there are proactive things I can do has given me a sense of reempowerment...thank you again. God Bless you both.
Janis <tencmrn@msn.com>
USA - Sunday, November 21, 2004 at 23:59:56 (GMT)
Hi ,we had a water leaking almost 1 year.black& green mold ,wow.it was terible looking,so i pulled out the refrigator,after we saw the mold on the walls,in the cabnets about 15 feet they tore out fixing the problem after 3 months remedation was done.sears fault leaky line.told them,safeco insurance co.did the remedation work.so we were sick,our grandbabywas sick for months,also wife sick with a big coughing spells,she has pph disease,thays heart and lung disease.and 6 of us went to drs to get checked out for the mold,which test showed was very bad!we cant get a lawyer here to take case,they want around 25,000 dollers.we cant afford this.does anyone no how i can get our money back for the testing and what i am out here around 3,000 dollers.and some of us are still sick with the mold?thanks bob wanda & family
robert kimmerle <batmanbob@frontiernet.net>
kingman, az USA - Thursday, November 18, 2004 at 17:07:28 (GMT)
On June 10th, 2004 I took my German Shepard molly to the vet to receive medication.
I left her there and went home to go to sleep. My wife contacted the Vet a 3
PM and agreed to start Molly ( 12 1/2 Yrs) on antibotics. Molly was doing fine.
I called at about 3:05 Pm and asked the vet assistant if Molly was ready to go
home. The assistant told me I needed to talk to the Vet. When the Vet got on
the phone she stated Molly had passed. I asked her what did she mean. She stated
they gave her a shot and then she started to bleed out of the mouth and died.
I'm a grown 57 year old man that works as a Correctional Lieutenant.I served 3 tours of duty in Viet Nam. This was the worst news I have ever received.
I arrived with my wife at the Vets around 5PM. Today is 11-10-2004 and I still cry. I hugged her lifeless body and my World was crushed.
As I write this I have tears in my eyes. I loved her so much. I hope some day to see her again.
For all who will listen, love them every day. When it's over it's hard to believe. I read your story and I cried for you. Some day I hope you and your little guy will be together again.
I know God is listening and is aware of the sorrow in our hearts. Until then I will continue to cry. Molly, I love you---Daddy
Ronald J. McCarty Sr. <soccer101@att.net>
Hartly, De USA - Wednesday, November 10, 2004 at 21:00:32 (GMT)
I am so happy to see more non-toxic products and information out to the public. However, because I have been inundated with so much christian religion lately I wish you could keep your personal beliefs separate.
pam spevack <pam_wctss@yahoo.com>
Oakland, CA USA - Wednesday, November 10, 2004 at 19:44:18 (GMT)
I work with a woman that wears excessive perfumes and lotions that make me very ill, my eyes run, I feel dizzy, I cough and she doesn't seem to understand that she wears way too much of it and I can't handle it. She's been in the office 20 years and I'm new. She is in her 60's. How can I tactfully teach her to stop poisoning me?
Linda <lfarrell@shentel.net>
Front Royal, VA USA - Friday, November 05, 2004 at 14:46:20 (GMT)
Great classical music, that is why I keep coming back!
Little Sorrel <StonewallBrigade_10@hotmail.com>
Lorain, OH USA - Friday, November 05, 2004 at 01:07:38 (GMT)
I an compelled by your site. I was diagnosed with Fibromyalgia 4 years ago with most of the symptoms you have listed. I quit smoking 9 weeks ago and am feeling as if I am dying. I am a believer in God that I will not go w/o a fight. After all, I am only 28 years old now. The all over pain is continuous. My eyes hurt and I am always sleepy and too often hungry. Your site was really helpfull. Thank you!
Brenda <bambi25@aol.com>
Dunedin, FL USA - Friday, November 05, 2004 at 00:44:57 (GMT)
I just came across your site...its great- full of information I'm looking for. I'm new to the world of MCS. Last January, I was exposed to fumes from a muriatic acid leak while at working at the pool. I've never had a sense of smell. I walked right into it and I was in an enclosed room where the leak was for about 3 minutes. About 10 minutes after the exposure, I had chest pain and tightness, dizziness and a horrible headache. I spent the day at the clinic on oxygen and returned to work 4 days later. I toughed out the next 3 months, feeling horrible and still having headaches and trouble with breathing. I was finally diagnosed with lung damage and asthma. I was relocated to a new job for the last month of the school year. During the summer, my health improved greatly and I was feeling like myself again. Our family spent much of the summer camping and fishing in Ontario and enjoying the fresh air. I got severe headaches from the grocery store and gas stations so I quit going there. After my return to work in Sept, my world fell apart. Now I react to everything...cleaners, perfumes and gas fumes have been the worst so far. I had tons of trouble with my breathing, headaches, overall aches, chills, trouble sleeping, blurry vision, dry mouth, hoarse voice etc... I lasted 12 days before I the doctor ordered me off work. My saliva and mucus systems have been damaged from the inhalation of the acid so my body is absorbing whatever I inhale. My quads and biceps get swollen and buldging after an exposure and its quite painful. I've been off work for 7 weeks now and am starting to feel better. I'm also trying to take care of my 13 year old daughter with severe disabilities. She is in a wheelchair so there's a lot of lifting to do every day. My husband and 15 year old daughter have been very supportive and let me know when they smell something I might have trouble with. I'm making lots of lifestyle changes, limiting my outings and looking forward to feeling better soon.
Michelle <faskerti_17@hotmail.com>
Mn USA - Thursday, November 04, 2004 at 20:03:47 (GMT)
We are glad we came across this webpage. My husband has been a carpet installer for over 30 years and last year it was discovered he had a form of leukemia. When testing was done it was discovered he had a rare type of chromosome abnormality in the cancer cells. After doing some research on the internet imagine our surprise when we discovered all the types of chemicals that are/were used in carpet, pad, adhesives, and solvents. These included such things as benzene, toulene, formaldehyde, and many more. Since than we recently set up a webpage and yahoo support group for carpet installers and others working in the floor covering industry to be able to connect with one another and gain more information on what types of health problems might be associated with these occupations. Some so far we have come across are leukemia, lung cancer, other types of cancer, central nervous system disorders, and many other symptoms. The group is called carpet_installers_health under health/support a yahoo group the webpage will be listed under geocities as wind_decor/Carpet_Installers_Health under the EPA category.
I have come across many sites in reference to these toxins and health issues contact us at wind_decor@yahoo.com with any questions you have.
Clayton <wind_decor@yahoo.com>
Iowa USA - Saturday, October 30, 2004 at 16:30:54 (GMT)
I found your website while looking up the Rainbow Bridge.
I had a beautiful Chesapeake Bay Retriever for 12 1/2 years. My special friend developed cancer and was having a very hard time breathing, I held him close to me his last night and I knew that he no longer had quality time left.
He developed a sore that kept breaking open, his breathing was labored and he started choking.
My beautiful puppy no longer had that sparkle in his eyes, I knew that I would have to take him on his last "ride going bye-bye". He loved to go for rides even if it was just around the block. His last ride took him to his vet, where he was given a shot to relieve his pain. I held him and cried the whole time. I had him creamated and will bury him along with his mother, my "Beezer". Tank had his mother's personality, and loved every one.
His passing was hard for me,
coming home, putting my key into the door and not having Tank run to greet me at the door. No more having him hold hands (he would put his paw on my hand as if he was holding hands.) My husband missed him too, those two were "Best Buds" as my daughter would say. He went and bought me a new little furry friend, this time we have a 5.9 pound toy poodle, by the name of Tinker. Tinker does not take the place of Tank, he has his own little personality, and is so loving. I know that Tank must be the one playing with Tinker, it is as if the two of them play together all of the time.
I know in my heart that we will meet again, he was a wonderful dog and many of our friends loved him too.
Your website was wonderful.
May the Creator bless you and the beautiful memories you have of your special little furry friend.
Patty Sam
Patricia Sam <zoogipoequay@aol.com>
Minneapolis, Mn USA - Friday, October 29, 2004 at 18:40:11 (GMT)
Thank you for the helpful information. I am in the process of preparing information to present to my Church regarding the negative impact of the use of incense. Where do I find the names of authors of your articles and can you offer any help in connecting incense to illness. Thank you, Joanne Wright
Joanne Wright <Wrightsjj@netzero.com>
Wilmington, NC USA - Wednesday, October 27, 2004 at 13:18:53 (GMT)
I WOULD JUST LIKE TO SAY THAT DEALING WITH MCS IS VERY HARD,
BECAUSE THERE ARE NO DOCTORS THAT CAN TRULY DIAGNOSE THIS PROBLEM!I HAVE A PROBLEM OUTDOORS WHERE CHEMICAL COMPANIES ARE RELEASING VOCS THAT CAUSE NUMBNESS IN MY HEAD ,PALPITATIONS ,ASTHMA, FLUSHING INSTANTLY!! THE FUNNY THING ABOUT IT IS THAT THERE IS NO ODOR ! THEY ARE ODORLESS!!
WITH THE MODERN EQUIPMENT THAT IS USED TODAY THE SMELL IS REMOVED BEFORE IT HITS THE AIR. IT REALLY AFFECTS MY LIFE STYLE BECAUSE CERTAIN AREAS I ALWAY HAVE AN ATTACK.
IF ANYONE CAN RELATE TO THIS OR GIVE ME SOME HELP WITH WHAT TO DO OR WHAT DOCTORS TO SEE CALL ME
THANKS
MIKE MORSE
295 MILLBURN AVE
MILLBURN NJ 07041
973-376-9484
MIKEEENJ@AOL.COM
MIKE MORSE <MIKEEENJ@AOL.COM>
MILLBURN, NJ USA - Wednesday, October 20, 2004 at 22:49:56 (GMT)
Thanks Jackie. I was searching google for a possible reference to benzene in newspaper print because I suffer severe allergy to newsprint. Low and behold I found your stupendess well written site where you explain a whole lot more of my multiple chemical allergy which I suffer from for more than thirty years. Got it in mid-sixties from working as a lab technician in California. It helps a lot to see other people explain their story and the way they got ill. Thanks again and I wish you the best of luck. Larry
Larry Richardson <LarryAloha@webtv.net>
Kihei, Hi USA - Sunday, October 17, 2004 at 09:40:18 (GMT)
It is good to see a site devoted to this problem. My entire family of 3 suffer from this after a chemical exposure in 1999. We are lucky in that our family doctor works with us to try to locate products that we can use that are not chemically loaded. In fact she would rather have us use a natural item if at all possible (ex: my daughter must drink extra juice daily for a bowel problem but the doctor would rather that then a laxitive - which another doctor had wanted her on and we said no way) We also watch for things like food dyes because we discovered years ago they trigger asthama attacks. The hardest part is most people have no clue what the extra costs associated with this means to us. I have also had to home school my child to keep her out of a chemically filled environment.
Louise
USA - Friday, October 15, 2004 at 04:15:56 (GMT)
Great work on your site!
-- GK at ephesys@cashette.com
George Kaplan <ephesys@cashette.com>
USA - Wednesday, October 13, 2004 at 15:57:55 (GMT)
I am looking for a doctor in the Washington, DC area who treat MCS.
Tijuana Madison <TMadison@cms.gov>
Washington, DC USA - Thursday, September 30, 2004 at 14:51:21 (GMT)
Yes this illness is terrible, and there is much abuse involved of people who have this illness. I currently have to take a lot of irrational anger and hatred from none other than my parents just because I have this illness. They believe the illness is mental and any requests I make regarding it are met with a lot of strong hostility and hatred coming from my parents. I don't believe people who treat others like this are good people at all. they are only evil abusive people who take advantage of helpless or weak people or people with strange illnesses such as MCS. I only wish that there was something people could do or some way people could be protected from these kind of people, especially while having this illness.
mel <mell@yahoo.com>
city, ga USA - Saturday, September 25, 2004 at 04:03:34 (GMT)
In August 1994, I had to put my precious maltese, Meigan, down. It sure is not easy and even 10 years after, I still cry sometimes when I think of her. I absolutely adored your song to Dusty and cried as I was reading about his last weekend.
Keith
Portland, OR USA - Monday, September 20, 2004 at 06:31:42 (GMT)
hen money is lost NOTHING is Lost, When when health is lost something is lost and when character is lost------- EVERYTHING is LOST.
GUL NAWAZ.
DR.GUL NAWAZ WARRAICH <gulnawaz293@yahoo.com>
Multan, punjab PAKISTAN. - Saturday, September 18, 2004 at 22:25:02 (GMT)
I was looking into caring for a MCS woman ans she gave me all these web sites for research..I make fragrance free and dye free soaps for my own uses and sell sometimes. Now it's all vegetable oils and sodium hydroxide and distilled water. I was lead to believe that the lye and iol chemically saponifies and all the CURES out of the soap. She's telling me there is lye in the soap. My soap is gentle enough for babies. Is there still minute lye in the 8-12 week cured soap I make? I have rosasea and dry itchy skin which is why I make my own soap.
Lorraine Brelsford <folkartist76@yahoo.com>
Noxen, PA USA - Sunday, September 12, 2004 at 21:17:20 (GMT)
alison wrote:
> First of all, I agree with the possibility of what that
> study says, but the problem is many people develop mcs
> later in life--after a breakdown of their body systems.
That's a very good point. MCS is viewed by many (but not
all) investigators as being an induced condition. If it
were caused by a defective toxin-metabolizing enzyme, one
would expect it to be a chronic, inborn condition. That's
another reason why I suggest that the place to look is the
regulatory system which controls the toxin-metabolizing
enzymes rather than the enzymes themselves. SXR has been
described in the scientific literature as a general sensor
for xenobiotics (chemicals originating outside the cell,
including both natural and artificial chemicals), and
activation of SXR promotes the production of toxin
transporters like P-gp and MRP2 and toxin-destroying
enzymes like CYP3A4. I think it is more plausible that
there could be polymorphisms of the SXR alleles that lead
to an unstable regulatory system, one that is more likely
to "lock up" in some sort of state in which these enzymes
are not promoted.
About your comment with regard to abusive people taking
advantage of people with MCS, I find it particularly
repulsive that the distributors for the Neways multi-level
marketing network try to exploit MCS people where ever
they can find them, including in this discussion forum.
I wish the management here would be more aggressive about
deleting messages from people trying to snare customers
for their MLM.
Mark Thorson
USA - Sunday, August 29, 2004 at 17:52:05 (GMT)
First of all, I agree with the possibility of what that study says, but the problem is many people develop mcs later in life--after a breakdown of their body systems. I was fine until many things occurred to me which affected my body tremendously, and the end result was mcs. Prior to that, I could tolerate any chemical without a problem. I'm not sure if that metabolizing gene study has to do with a breakdown due to being more genetically prone or what. Secondly, I would like to know if anyone has any information on how people with MCS can receive financial or emotional support. The problem with MCS is that this is an illness, where abusive people can take advantage of you, and unfortunately, we live in a cold and evil world and many people do take advantage of people with mcs. I have been taken advantage of by many people including my family. People become bullies, very mean, and abusive, and will purposely use chemicals or other things to sabotage or make a person's health worse. It's a very cruel and terrible thing to do, but the unfortunate thing is, many many people do it, heartlessly and without shame. They feel they have the right to abuse people 
