Archived Guestbook – Page 3
I found this site tinight while I was simply surfing. Your story about your beloved Dusty reminds me of my beloved "toby: my 6yo shih-tzu. Your dusty& my Toby would have enjoyed playing together so much, I just realized they are probably running all aroound the rainbow bridge together & chasing the squirrels endlessly!
my toby died 8-26-05, just as you described the passing of Dusty. this site is so comforting to me. I have missed my little boy more that my friends can understand. He was such a "mess" & pee'd & snapped & loved me so much more than any human could ever begin too.
God is so good to allow us to experience the love that our "children"have given us in their lifetimes. thank you for sharing your Dusty with me. Just imagine how much fun your Dusty & my Toby are having while waiting for us to join them in the future!
thanks
CAtherine
catherine
Greenville, NC USA - Monday, January 23, 2006 at 08:06:36 (GMT)
When I read this, I was just ASTONISHED! It was as though I was reading my own testimony!! There were so many similarities to what happened in my life. God bless you, Jacki!!
Connie
USA - Thursday, January 19, 2006 at 22:28:49 (GMT)
I first visited your site in fall 2001. My realization that something was terribly wrong, and it wans't just chronic allergies, ran in "reverse order" compared to most of the stories I read from MCS sufferers. I was a carrier of extreme levels of electricity. This was common for me and had been for years, so I thought nothing of it. In fact, I had been hit by lightening in 2000, while sitting in the living room of the residential home in which I worked. I was peeling potatoes for dinner and the lightening hit the knife in my hand. My hand was frozen, possibly by awe. What seemed like minutes, but in reality was only seconds, I and two of the boys, watched transfixed by the arch of white light streaming from the window to my hand. My husband and I cared for youth in state's custody, with the homes from which we worked located high on one of the mountain ranges in Tennessee. With the storm raging and winds in excess of 60 mph (true! National Geographic came to study the phenomemon once because of the frequency of unusually strong winds even without storms), getting to a doctor was not an immedicate option. By morning, no sysptoms had developed, so I put it off as God's protection and decided I did not need a doctor. Little did know that I would continue to attract electicity. Other minor events occured, but one particular night set the stage for my next event in February 2001.
We had moved to Virginia to work as houseparents in a sister facility for the children's home. The boys' rooms were upstairs. A nightly devotion was held in the common room of the second floor. I usually did the paperwork involved with houseparenting, while my husband got the boys through their nightly routine. On the first floor, I entered the office and turned on the light. As I looked toward the ringing phone, my left hand was still on the light switch. Unexpectedly, (memory recall shows it in slow motion) a blue arch came from my left hand, about a 6 inches as its peak, and then dropped to touch my right hand. My hands were over a foot apart from one another. My daughter screamed out, "Mom, are you alright?" I did not immediately respond, still watching the arch as it faded. I removed my hand from the switch and told her I felt fine. I finished what I had intended to work on and then went upstairs for devotion. During devotion, I began to feel weakness in my left arm. It slowly radiated across my shoulder and down my back. When devotions were completed, I began to walk down the stairs. As I did, I could no longer grip the stair rail. Then, my left leg buckled. By the time I got to the hospital, the left side of my face had visibly drooped. I had no sensation on my left side, but all tests, including an EKG, showed no problems. I was kept in the E.R. for observation. Because the doctor there knew me from brining in the boys on occassion, she gave credit to what was occuring, but after consulting with a specialist who worked with electic shock cases (we were near the local coal mines), determined there was no treatment, except for time. I was told my body would heal when it was ready. My condition was consistent with having had a stroke, but without the "stroke" qualifications. It took my body two months to heal. I was told I was fortunate that the current did not "blow out of my body" or burn my skin in any way. A side note to this event is that the home had wood flooring, I was wearing sneakers with a 2" rubber sole, I was wearing cotton clothing, there was no storm, there was no power surge (our computer would have shown signs of it), and an electrician came in the morning, only to say there was no wiring problem. During the healing process, I had to be helped to walk, could not use my left arm, and my face continued to sag on the left side. It was that same year, about six months later, after several months of enjoying good health, except for my "usual allergies", that fatigue began to set in. I was sleeping every time I had the chance. My allergies increased tremendously, as did my migraines. I became nauseated several times per day, was disoriented and irritable, would suddenly fall to one side, became intolerant to all but four foods (black decaf coffee, water, white rice, and low-fat milk), developed extremely dry skin, developed a spot in the middle of each palm that would not heal but would bleed frequently (not the spots the electrical archs touched), and more symptoms than I care to remember. Excluding fatigue, these symptoms did not create one another, but all occured practically overnight. The boys were joking with my husband, asking if I was pregnant. My husband and I knew the truth... that after successfully birthing a daughter and son, we would never attempt a pregnancy again, due to multiple miscarrages, and a full-term baby that we lost a day before the due date, on my daughter's birthday. I went to my PCP, who, fortunately, knew me well. He did not believe it was psyciatric, and in fact helped in diagnosing a severe, sudden kidney infection, shingles, and endometriosis. If that wasn't enough, I had bronchitis, tintinitis (spelling?), sinusitis, and two other disgnosis of which I don't recall at present. Additiaonally, he reaffirmed the disgnosis of my migraimes and also referred me to a gastreologist. In all, I had twelve separate disgnosable issues occur at the same time.
The immunologist did an allergy test (the type where they inject 100 sites on the back and measure the skin reaction by the size the site swells), and unlike so many MCS sufferers who do not test positive for multiple "natural" allergies, I tested positive for 98 out of 100, over 75% of which were in the high range and 2% that were in the critical level. Other than the two that were negative, none rated at a low level. The two negative injection sites were the type of lawn grass I grew up with as a child and a type of palm tree I grew up with as a child. Three of the sites took a month to clear and one site remained raw longer than I tracked. I began to receive immunology injections 3 times per week, was placed on several prescription medications, was instructed to utilize air purifies, facial masks, cotton bedding and wash it frequently, and had to carry an epipen on my person at all times. Finally, he instructed me not to go outside, even with a mask on, except for two specific times of day.
The kidney infection cleared. I had surgery for the endometriosis. I rested often. But, I still could not walk unaided and I began to realize I could no longer tolerate certain activities. Now, here come the familiar parts to MCS sufferers... I had to sit in the back row of my church because I could not breathe while in the church. I was still getting sick in the shower. I could not focus to drive the car. The migraines were still occuring at a high rate. My hearing and sight actually increased to hypersensative levels. And, I began putting out electrical current from my body. I could not kiss my kids goodnight, because as I got close to them our hair would fly out like magnets, touch, them and "zap and crack", sometimes sounding like a punch and causing pain to us both. I began wearing gloves. Because I earned certain nicknames from the boys we cared for, I now fondly refer to a collection of some of these symptoms as "the comic book superhero syndrome". Nicknames included Superwoman, Storm, and Rogue. The boys did not like that I could clearly and coherently hear whispers from upstairs as if they were in my ear. At the smae time as my hearing became exceptional, the pain in hearing things, such as static on the radio, created pain. While my electrical output increased, I could no longer touch people with my bare hands. My kids had to pump the gas due to the fumes, as well as fear of me setting a fire at the pump. In fact, to deal with it, I made it a game by touching a piece of paper and placing it on the wall. The paper would stay on the wall for up to an hour, as if pinned there. My sense of smell lead me to tobacco like a scent dog. Often, the boys wouldn't even have to smoke. I was known to smell unopened tobacco while still in its hiding place. I would go directly to it, without searching for it. Keep in mind this was a three story, five bedroom home, with two living rooms, three bathrooms, a dining room, a kitchen, two stairwells, a basement, a laundry room, and an office. After a while, some of the boys quite trying. But, everytime a new boy came in who smoked, they loved watching the events transpire and the shock on the boy when he found out about my hearing, sense of smell, and "electric level".
This was the beginning. It got so bad, I became nearly bed-ridden all of the time. My doctors recommened that I move either to the desert or to the beaches were I grew up, and choose a low population community in which to live. I did paperwork at the cottage from bed until we moved on and had to change our line of work due to illness. It was during the bed-ridden stage that my hopes began to fade. My husband and I believed there was a major illness the doctors had not yet diagnosed. At the rate my body was shutting down, we thought I was dying. My kids began taking care of me, instead of the other way around. One night I recall my 14 year old daughter coming to my bed and asking, "Mom, what if you die during the night?" My 11 year old son could not look at me without crying and feeling afraid he would lose me. My only peace was my religous upbringing and my personal faith. It was during a prayer that a renewed sense of hope came. The next day, I began to reflect on the illnesses throughout my life, and the most recent events of illness and injury. I went to the internet and looked up various sites, which led me to sites on Environmental Illness, and specifically "electrical hypersensitivity". This in turn, led me to the MCS sites. Jacki's story hit home. I searched the entire site, and cried in fear and relief, as I recognized so many more similarities than I have shared in the paragraphs above. I cleansed my house as entirely as possible for two years, using all of your suggestions. It was a long road. I was still eating limited foods, because my doctor explained that with my level of allergies, my body read the DNA in an item and if the DNA was close to one of the things I was allergic to, my body would reject it as a "protection factor". Fortunately, I was never accused of anorexia. He never did directly diagnose MCS, as it is not recognized in much of the medical community. He did teach me a few things about how the body works, which paired with what I later learned, has allowed me to improve.
My main goal for writing in to "Share Your Thoughts" is to tell others. I have come from being bed-ridden in late 2001 through early 2003, to being back to work at a full time job in the community. I can once again shop in public. I no longer wear a mask, but am careful to wear a cotton scarf to help filter the air when going to certain places. I am back to color in my cotton wardrobe from the white I had to use every day. And, I can eat again. This happened a little at a time. I have gained weight, I suppose partly because my body is storing food as a "protection" factor. I still have a "basics" list. I use baking soda, vinegar, and lemon juice to clean. Determined not to let MCS take away everything I love, I use natural food extracts and pure essental oils to make my own "perfume". I use pure 100% almond oil as a skin moisturizer and as a hot oil treatment for my hair. I use refined clay powder as a make-up (not the one on the infomercials, as I am afraid of chemical bases). I still had a way to go in order to fully "detoz" my home, but before completing everything, I began to improve. I plan on finishing the detoxification in my home, as I have noted that when I "slip up like an addict", I begin to get more ill. It's funny to think of something like clothing or a food as an addiction, especially since I am not a "shop-aholic", nor do I have an eating disorder. I make the best of good days, and rest on the bad. My husband and children have been my biggest strength, never doubting my sanity. In recent times, i count it a privilege to share with people how to be strong in difficult situations, how to watch for signs of mild MCS, how to treat mild MCS, etc. I always encourage people to establish a good repor with a doctor prior to illnesses. The doctor can be your best ally or worst enemy. If a doctor knows you, he is more likely to believe you when events begin.
I am currently in what I refer to as a "quiet period". This means my sensitivity and allergies are at a low level. Active periods are usually presequented by an increased electrical activity in my body. In a sense, I have an "internal alarm". If I listen and tighten up on my environmental, medical, and emotional triggers, I can often limit the severity or lenght of episodes. I use vitamin and herbal therapy daily. I keep treatment with metals to a minimum, except when treating electrical hypersensitivity not reduces by lowering MCS triggers. So far, metals are the only treatment I have discovered to help reduce residual effects of electrical hypersensativity. I am not sure if my electtical hypersesativity created / increased my MCS, or if the reverse is true. I do know the two go hand in hand.
One last note... and this is a dangerous topic in my opinion. I am a Christian and try to limit anything that will confuse a person not grounded in faith. However, certain "supernatural" phenomemon, such as visions of actual events in the present or future, and an increased level of "discerment" about people and their intentions tends to occur during elevated periods of my electrical hypersensativity. I am careful to tell my visions in advance of an event, and at that, to only tell individuals mature enough to understand my intention. With this "side effect", I can see why a doctor might assume schizophrenic disorders accompany, are symptomatic of, or are the cause of this disorder. I cannot make these visions occur. I also cannot make them disappear. They are random and infrequent, but always as clear as if occuring in front of me. I have found two lost objects for friends, going to them in a direct manner, avoided a car running over me and my friend by sharing my vision and moving our position 15 minutes in advance of a car crashing onto my property, and numerous other minor instances. I only include this portion of the disorder to help people understand, that if "visions" are real, clear, and validated (not smoky dreams or side effects of medicines, etc), perhaps they are not "supernatural", but a natural part of our human functioning stimulated or activated because our senses with what is in the real world are changed by comparison to our neighbor. And, of course, I always give God the credit for the positive nature/outcome of what is both a curse and a blessing. So, if this occurs to you, rest assured, you are not crazy. Don't dwell on it. I also suggest you don't elaborate on it with people who do not share the problem. It usually does more damage than good. Finally, seek help from a grounded advisor and not one of the people caught up in a cult or into it for the fame and money. Unfortunately, even some pastors do not give the best advice on this issue. I have found my husband and my prayer life to be my only support for this part of my life.
My prayers are with each of you who have any of these illnesses, disorders, or symptoms. May God give you strength in learning to live in a world where you have to recreate how you think of material things. I found that my spiritual life increased tremedously during my bed-ridden days. At no other time did it occur in a more exact message. I often thought that if I live in Biblical times and by Biblical standards, I would not have been sick in the way I am today. When I am at my strictest with myself, I am at my closest to God. I pray that I maintain that closeness each day that I improve.
Once again, thank you.
Carol
Carol H Farragher
Nashville, TN USA - Saturday, January 14, 2006 at 05:51:56 (GMT)
Incredible job on this! I love I love I love this site!
I have address to your site from my friend.
My friends enjoy it as much as I do. Congrats!
That must have been hard to make.
Carl
UK, UK UK - Friday, January 13, 2006 at 03:42:05 (GMT)
Your page on the dangers of "air fresheners" is excellent. Thanks. BUT, for the likes of us wo have to endure months of winter smog (valley location, Swiss Jura nr. France) - there is NO such thing as fresh air when we open the windows - because the neighbours burn wood for everything all winter - or else there are dreadful mazout oil fumes in the air. It's dire. I've developed chronic bronchitis/asthme and now MCS after living in this for a few years (summer is not a lot better because of BBQs and road traffic pollution) - it's unbelievable. What Switzerland? Yes - I have photos of the nasty brown haze in the air if anyone wants them. Lots of folks here cough - but they attribute it to viruses and "poor constitution" - and then, guess what, out come the AIR FRESHENERS!!! I don't know know which is worse - the smoke or the "perfumes". I've had to stop work, I can't socialise and I'm on strong medication. I cough and wheeze all the time - and we can only air the house in the middle of the night (but not always in winter!). I was NEVER like this back in UK (our home land)- but no one here believes that - including the doctors (who were surprised when the tests for biological allergies all came out NEGATIVE). No - it's chemical - and did you know that wood smoke is even more poisonous than cigarette smoke? And that hypersensitivity to wood smoke can extend to "perfumes" & "fresheners" because these artificial products contain many of the same chemicals as wood smoke! Another real nasty for MCS and broncho-asthma sufferers is "deodorant" - especially the sprays. Also avoid wardrobe sprays and over-cleaners.
My best regards to you all for 2006. Sat optimistic and fight it back! So much of this poisoning in the air is about companies wanting to make MONEY. As you correctly point out, we don't even NEED these scented products. it may be useful to remind folks how much they can SAVE by not buying them. Or give the money to a charity in 2006? Thank you again - very nice, clearly written articles.
josephine Cock
Delemont, CH Switzerland - Tuesday, January 10, 2006 at 11:24:29 (GMT)
1/5/06 For all those individulas who are living in the north east part of Ohio, Please, take note.I had written (last November)about the new PURE OEGANIC FOOD COOP which is starting in this area.
There was an error in the farms E-mail address the new adress is: HWGreen100@aol.com
All those indivuals who may having problems with the organic foods ,recentsly ,--such as to cause them to go into allergic reaction. Please notifly the farm or myself and we will be glad to help out. We love to hear from you. Gerry
gerry
oh USA - Thursday, January 05, 2006 at 18:29:26 (GMT)
Site was very interesting for me
I wish you and your site everything best!
Ben
NY, NY UK - Thursday, January 05, 2006 at 11:11:29 (GMT)
I have had MCS for over 10 years. I am 68 yrs. in age, and my research has been extensive. I am writing a handbook to be used as a directory to identify, what next, where to get help, work towards housing nationwide, make your home safe, all information to find enviromental doctors, lawyers, make all of the problems known to each corner of our country, where to find reports, safe food in most of the big chain grocery stores, and for the teacher of languages how to detox her work enviroment, guide her students with a simple list of products to use, and, what units can make home, office, cars, furniture safe by an overnight detoxing, in most cases. Like restaurants, casinos, all air filtrations systems. Many new homes being built today use safe products for nearly everything. It can be done now!!! It is all available for you to learn and do, now. From safe swimming pools, to natural foods and enzymes. Can I help? I talked to our Michigan Governors aide when MCS was acknowledged that week and asked if he knew of housing for MCs persons. He said no. He told me to send information and he would send on to the enviromental agency. I have spoken to them before. At that time they knew nothing about the complex problems we face. I know how to get the word out. I speak to people regularly that haven't a clue what is wrong with them or what to do. Not sure they want to do what it takes to get back to normal. Most can do just that. I have seen it done many times. Making your home safe and keeping it safe is first. Paints, new anything can be brought into your home and it can in most instances be detoxed overnight. I lost everything I had because of this condition. Along with carbon monoxide when I moeve in this tiny house. And, after nearly 3 years and 5 or 6 gas leaks I went backwards, but, I now know I can move anywhere and make the place I live safe. Needs to be a house 'tho because of other's products in apt. buildings. I have many stories to tell. You can be healed. Eat again. Be out of pain. First you need to make the place you live, sleep safe. I will be checking on-line regularly. Everything you need is out there. Not like it was 10 years ago. Natural ways to heal. Feel good. Be out of pain. Eat right. Exercise as much as you can. I found when I was in pain, I mopped a floor. I realized laying down made me, worse. So much to tell you. I carry one dry thin washcloth in my purse to use when I am in a store, and need to leave. Another one wet ready in my car, so I run over my face, ears, hair to help detox until I get home. I carry water to be able to wash if needed, and extra outfits to wear if necessary. When I get home in most instances I can put my clothing in the dryer on delicate and run until it shust off, and the chemical will be gone. If bad enough I shower and shampoo. Sometimes I wait to do that until I return from shopping anyway.
Hope this helps. I am new. Did I write too much?
Lorraine
Lorraine Newton
Owosso, Mi. USA - Monday, January 02, 2006 at 02:42:15 (GMT)
I just heard your song about your little dog, I cried, really lovely, As an animal communicator I deal with lots of people dealing with pet loss, thank you for your beautiful song of love. Joann
Joanne Hull
joanne, UK - Saturday, December 31, 2005 at 12:54:20 (GMT)
Well done, this site is really great. Just wanted to say hello, keep up the good work!
Barry
UK, NY UK - Monday, December 26, 2005 at 07:55:51 (GMT)
Great information here on your site. I have added it to the safety/resources section of my site at:
http://autismspectrumdisorders.bellaonline.com
Bonnie Sayers
Los Angeles, CA USA - Sunday, December 25, 2005 at 21:35:16 (GMT)
Excellent website! Congratulations.
Brent
NY, NY UK - Sunday, December 25, 2005 at 01:14:16 (GMT)
You have made a very intersting website. My congratulations.
Steven
UK, NY UK - Saturday, December 24, 2005 at 19:00:12 (GMT)
I thank God for this site. No one is believing me when I say I can smell things and It makes me sick. I was at church wednesday Night December 14, 2005, I was singing and enjoying the service when I noticed a strong smell that irritated my eyes and I could taste it on my tongue. I covered my mouth and nose with my shall, It got stronger, a lady 2 sets in front of me perfume was causing it. I got up and moved about 9 feet away and sit down, with in minutes I could not move or speak. I could hear and smell.
I sat there until after service about 1 1/2 hr and when I did not move, My Church members said they knew something was wrong I was not smiling or moving during service. They called 911 and took me to ETMC emergency room.
I was there for 7 days, and they ran all kinds of tests, they could fine nothing, but while I was there I got exposed to perfumes, cleaning products which caused the same symptons on 3 occasions the called a code and started try to revieve me. My blood pressure went up to 198/180
I called my brother and told them to get me out of the hospital it was making me sick the cleaning chemicals. If they had not come a got me I know I would have died. The staff was so mean acting like it was all in my head and that I was acting crazy when I could not talk or move.
I call my doctor and told the nurse what happened. She said I would have to be seen in order to treat me. I explained what happened and she just said if I come to bring someone with me. I was presistant and then she said she would call the Allergy Clinic, They called a day later and asked what were my synspotms she said they don't treat that. I asked if anyone did, she said no, and that she would call my doctor. I am still not feeling my best, by legs wabble and speech I stutter. Do anyone know of any help I can get in Texas. My e-mail address is Peachessweet_42@hotmail.com
A Matter of life and Death
One Voice can be heard BY Many.
church members new is was
Linda Rhymes
Tyler, TX USA - Friday, December 23, 2005 at 17:03:26 (GMT)
i agree with wat u r talking about another thing about air freasheners is that if a child grows up in a house that uses air freasherners when they go to kinder they will get sick because they wouldnt have built up an imune system to germs and unless u go to a million dollar kinder they probly wont use air freashener so the kids will get really really sick
thanks for your time
michelle
michelle
USA - Monday, December 19, 2005 at 06:07:29 (GMT)
MY WIFE AND I HAVE BEEN FEELING ILL FOR A LONG PERIOD OF TIME,BOTH WITH SIMULAR SYMPTOMS,BEFORE DISCOVERING YOR WEBSITE AND OTHERS LIKE IT,I KNEW THERE HAD TO BE SOMETHING POISIONING US BOTH IN OUR HOUSE,MY FIRST THOUGHT WAS DOMESTIC GAS,BUT WE HAVE A DETECTOR SO I KNEW IT COULD NOT BE THAT,SO THE ONLY OTHER THING I THOUGHT IT COULD BE WAS AIR FRESHNERS,SO I DECIDED TO CHECK THEM OUT AND 'WALLA'
I DISCOVERED YOUR INFOMATION ON THE CONTETS THAT ARE USED AND THE AFFECTS THEY CAN CAUSE PEOPLE,AND THAT IS WHAT MY WIFE AND I HAVE BEEN SUFFERING FOR AT LEAST 4 YEARS.
I CLEARED OUR HOUSE OF SO CALLED 'AIRFREHNERS' AND WE FELL LIKE WE HAVE BEEN REBORN.
thank you for your infomation and notice board,this is our shortaned story we intend to follow our problem through.
alan maslin
uk - Saturday, December 17, 2005 at 11:47:05 (GMT)
Great site!!! I have fibromyalgia and recently had surgery to remove uterine fibroids, which is caused by estrogen dominance, from all the chemicals in our environemnt. You have great info on toxic free living!
Beside all the great info on this site, Does anyone have any suggestions on detoxing from general anesthesia after surgery????
THANKS!
Cindy
FL USA - Wednesday, December 07, 2005 at 04:00:06 (GMT)
Does anyone know if there are any websites lilke this one for TBI victims? (TBI stands for "Traumatic Brain Injury") When I was 15 I was hit by a car without his headlights on - my head hit the curb, leaving me comatose for 5 weeks. BUT PRAISE The LORD!!! JEHOVAH RAPHA is "The LORD our HEALER!"
As I think I alluded to earlier, my wife, at 29, was told she was going through "early Menopause" - since the 3 tests at Kaiser Hospital showed that her WOMB was DEAD!!! But when we got home I found Psalm 113:9, in the Bible, says of GOD: "HE gives the BARREN woman a Home, and makes her the JOYFUL MOTHER of CHILDREN. PRAISE the LORD!" {Emphasis MINE!}
So I showed that to my Sulking wife, and we just PRAISED GOD for the next 10 weeks - when our PASTOR stopped in the middle of our Sunday Service and called out: "The LORD is HEALING a woman in her Female organs."
{My wife had been noticing "a GLOWING WARMTH, like WARM HONEY Covering my WOMB" just prior to our pastors welcome outburst!}
I Must get to bed! BUT IF you know Anyone who Wants children and the Medical Profession cannot help, we wold LOVE to share with them how GOD MIRACULOUSLY gave us our 19 year old MIRACLE DAUGHTER, Felicia Elise -- "Happy and Prosperous" "GIFT of the LORD" --- and how "JESUS CHRIST is the SAME, Yesterday, Today, and Forever" (Hebrews 13:8?) and GOD is no respecter of persons, and will do the SAME for WHOEVER "Asks in FAITH, BELIEVING."
Mark David Griswold
Oneonta, NY USA - Tuesday, December 06, 2005 at 10:15:00 (GMT)
Jacki and Family,
Love your web site! I've had MCS for over 8 years now and yours was one of the first ones that help me figure out what was wrong with me, over 3 years ago.
Thanks,
Joyce
Vancouver, WA
jjorsusie@aol.com
Joyce
Vancouver, WA USA - Tuesday, December 06, 2005 at 02:01:39 (GMT)
ATTENTION! All those individuals with Multiple Chemical allergies (or have Chronic Fatique Sydrome, Fibromangia, Arthritis, or even Irritable Bowlel Sydrome) who happen to be living in Northeast Ohio (particular the Cleveland and Akron area)-------Have I got news for you........
H-W Organic Farm is now taking membership in a unque type of farm coop. They will be providing the opportunity to:
1.BUY your organic vegetables, grains and meats fresh from the farm, 2.CHOOSE the actually food you would like them to grow. 3. CHOOSE the purchasing style of either harvesting your own food or obtaining it from their store If you are inteseted in this. Contact them at: HWGreen @aol.com
What I like about this is that they:
*** CATER TO individuals that have MCS.***
Their definition of ORGABIC FARMING is very simple:
"Organic faming is farming without sythetic chemicals" This means the Sythetic chemicals or Petroleum- base Products (and its derivatvers ) are NOT USED in growing , storage or in selling of thier foods. This includes : FETRILIZERS, (SEWAGE SLUDGE), PESTICIDES, hERICDIES, PRESEVATIVES, HORMONES AND ANTIBIOTISCS.
Please NOTE, THAT MOST INPORTANTLY THEIR PRODUCE ARE NOT STORED OR SOLD IN PLASTIC CONTAINERS OF BAGS. THE REASON FOR THIS IS THAT THE SYNTHETIC CHEMICALS-PHENOL AND FORMALDEHYDE are use in the production of plastic. They allow tha plastic to be either very flexible or rigid. These chemical
***DO AND WILL LEACH OR MIGRATE ***
from the plastic into the food or liquide in which they are stored in. Individual who do ingest these porduct will go into a phenol or formaldehyde reaction Therefor,they want to continue to insure the belief in the products of
PURE ORGANIC FOODS.
So if you have Environmental / food allergies and /or want to improve you health status, Please, notify the above address or contact me (an MCS individual) at
olliesmom@hotmail.com
I hope this will help out many people . God Bless you all and I hope to hear from you soon, Gerry
Gerry
Ohio USA - Wednesday, November 30, 2005 at 20:57:23 (GMT)
I recently changed from Tide to Arm and Hammer Det and my daughters tics stopped I was trying to find your article relating to this. I almost began to cry when this site came up because if this has been the cause for my daughters tics that she had for almost a year we need to take action in informing MD about this.
RH
Peabody, MA USA - Monday, November 21, 2005 at 01:53:47 (GMT)
oh praise God i found your page. no one understands me and i am struggling every time we use cleaners and i am around many kinds of detergent, coloring etc... it is so hard and discouraging to me...... today my son colored his hair and it was not even 10 min and i was sick for several hours ..he did much of the process downstairs but my body started shaking and i got confusion, dizziness...oh my heart pounded...i had to grab the baby and go outside for several hours.... they opened up the whole house...and i am in here again... boy what a high price to pay... i still have a headache and feel a bt weak. no on understnads..but i can see you do. bless your heart. :0) thank youfor your site and sotry. i am so glad you are well! PTL!
Diane Mills
diane mills
limerick, me USA - Monday, October 31, 2005 at 19:24:45 (GMT)
very good
jim
new york, USA - Friday, October 28, 2005 at 13:01:37 (GMT)
I have heard that some perfumes are made from human sweat. Also, I have been told that some high priced perfumes are made of some/not all from pigs urine. Is this true?
thank,you,
Sherry
sherry
portland, or USA - Saturday, October 22, 2005 at 02:14:38 (GMT)
I've just visited your beautiful website - my husband and I lost our little 15 1/2 year old poodle Penny last Saturday - we're devastated, she was our baby too -we can truly relate to your story - they're such a beautiful part of our lives - thank you for sharing that...it was comforting. Sue Elger (Australia)
Sue
USA - Monday, October 10, 2005 at 23:34:00 (GMT)
I have suffered from m.c.s. for over 10 yrs. I wish more people would realize just what these things do to you even if you aren't sick. Life is sure different once you are a m.c.s. sufferer.The sad thing is people don't care if you are sick. Also they think you are dreaming things up and it is an imagination thing. It is not. It is real and I wish they could come up with something to rid those of us with It.Life is hard but with this it is almost unlivable. You just pray each day to stay well and safe and hope people will accept you for what you have and for who you are. becky
becky
indiana USA - Thursday, October 06, 2005 at 02:51:29 (GMT)
I too am very happy with your site. I know most of the pages on MCS by heart. I use them often in educatng my friends and health aids.
A dear friend has just been told that she has Lupus and has three scars on her brain. Can anyone help us with information on treatment.
Thanks
Leveda
Leveda
Scottdale, PA USA - Saturday, October 01, 2005 at 05:33:16 (GMT)
Thanks for the article on air fresheners. I have been trying to convince my daughter not to use these, especially with three small children in the house. She thinks "smells good" means "clean".
Rick
Coon Rapids, MN USA - Wednesday, September 28, 2005 at 17:11:14 (GMT)
I began suffering with this syndrome 17 yrs ago after an exposure to cleaning products used in the air ducts at my place of employment.
After many years of restricted living and treatments by my medical doctor who uses desentization shots for foods and fumes, I was able to continue working.
However, 5 yrs ago, I found acupuncture. This has been the best thing which has happened to me and has brought me back to an almost normal life. I have had most of my food allergies removed and can tolerate many of the chemicals of our environment now. Vertigo is still my major problem and paints and perfumes are still my biggest challenges.
I would recommend any one suffering with this syndrome to try acupuncture.
Do not let any one try to convince you that you have psychitric problems and that this is not real.....I am now 63 yrs old and have most of my life back because I found an internist who believed me and an acupuncturist who can help remove many of these toxins.
Nan Boyer
doylestown, pa USA - Thursday, September 22, 2005 at 19:47:42 (GMT)
May God bless you for such informative web site. I am interested in Dr. Miller's Maximum Intradermally Tolerated Dose Method for treating Food and Other Allergy. My Wife is Suffering from Blocked Nose and is using Decongestant nasal drops for the last Forty Years. Tried various treatments . She is Allergic to almost all foods . Can She be Treated by this method by Dr. Miller.Can Homeopathic medicines be tested by intradermal method to find the correct medicine.With best regards. Dr. Murtaza,King Abdul Aziz University Hospital,P.O.Box 80215,Jeddah 21589.Saudi Arabia.
Dr.Murtaza
Jeddah,, Saudi Arabia - Saturday, September 17, 2005 at 18:08:38 (GMT)
I loved your tribute to dusty. We have a 13 year old lhasa apso named Jack- black and white, beautiful, bossy, spoilt, darling. Today he was mauled by a big dog across the road. The brave boy is ok but very quiet. How do you cope when they are gone, he is my best friend, I live in outback australia, and often he is the only one I talk to for days. When he was overnight at the vet ( i had to drive 85 kilometres through the isolated bush - no houses, towns etc, then drive back home) it was so quiet. Your strength has comforted me.
Anne
australia - Friday, September 16, 2005 at 08:39:21 (GMT)
I am a 40 yr old mother of six in 1990 I became allergic to fish it closes my throat as the month continued I couldn't take anything to stop the reaction, now I can't take any medacines, no antistetic, almost all chemicals, most make up, lotion, shampoo etc. I have a tumor that makes my usual blood pressure 176/195 I am still active I also have a tumor in my tubes, I fight daily god only gives me what I can handle, our local hospital and doctors won't see me becuz I won't try the drugs that have already put me in the hospital for mild heart attack from being allergic to them, my little guy is 7 please if you have any info on something that would help me. PLEASE I still work every day I'm a single mom cuz after I couldn't walk for a year, my mom raised my 5th son till he was 2, my husband found a more energetic women becuz I had changed so much. My head still says I can but my body won't let me,when I get home from work I cook and go to sleep most of the time they fall asleep by me on the couch. I was born premature, I guess I had heart problems, I had rhematic fever at 9months and at 18 they found a donar for my kidney transplant but my dad said no. Just another daily battle .
Kim Collier
Milan, NM USA - Monday, September 12, 2005 at 21:16:59 (GMT)
Thank you for this wonderful sight. I have suffered from MCS for years. Right now I am in a bettle with my place of employment for the recent use of chemicals that sent me into a major attack. Ironically I am a teacher and several children have suffered thi time but all they want to know is "What do you want us to do?" This after years of articles and exposure issues.
The one thing we all need to remember is that Jesus is the answer and there is healing for this horrible disease!
Debbie
Akron, OH USA - Monday, September 12, 2005 at 13:49:32 (GMT)
what a truly beautiful site, only skipped through it but later on will get back to it, I have suffered from mcs for over 40 yrs, no help has been given, doctors ignored it, turning their backs on me, some laughed , others asked me if I was sniffing glue, and I had to insist on allergy tests being carried out, as no one was bothering, Even friends thought I was exhaggerating even making it up , until I had to aviod most friends and family, as most either smoked or were doused in petrol Trying to tell them is fruitless, people just dont want to listen. For years I thought I was going mad, as I didnt know of anyone who had these symptoms at all, Over the years its got progressively worse, and I fee. I dont want to go on at times, but with the help of some people at this and other sites it has given me hope for the future, lets hope we get the proper help soon.
donna robertson
glasgow, uk - Thursday, September 08, 2005 at 14:24:22 (GMT)
Is anyone aware of efforts to find housing for MCS sufferers who have lost homes to Katrina?
Diane
Beech Bluff, Tn USA - Wednesday, September 07, 2005 at 20:32:50 (GMT)
My sister has MCS and has found a fantastic, line of products to clean her entire house! If anyone would like information on what she uses, feel free to email me.
AJ Vetere
Bethlehem, Pa USA - Sunday, September 04, 2005 at 18:46:51 (GMT)
Your tribute to Dusty is beautiful. And your song was heart-wrenching. I just eased the passing of my cat Pepe yesterday, and it's hard to believe he's gone.
Pepe's Mom
Marina, CA USA - Friday, August 26, 2005 at 22:53:32 (GMT)
I recently purchased Progestelle for Endometriosis. After day 1 I noticed my stomach was less bloated and since then I have less abdominal pain.
H Riggins
FL USA - Wednesday, August 17, 2005 at 16:12:17 (GMT)
Thank you so much for your website and for sharing your "Dusty" with us. I have listened to your little song over and over and cry every time. I ordered the C.D. I just lost my Little Megan on July 27, 2005 - kidney failure. She was only seven years old and was so very special, sweet and loving. Thanks again for your site.
Terry
Pearl, MS USA - Thursday, August 11, 2005 at 02:52:20 (GMT)
THANKYOU SO MUCH FOR CREATING THIS SITE! YOUR SITE AND ALL THE VISITOR COMMENTS ARE A TREMENDOUS HELP!!!
KEEP UP THE GREAT WORK!
GOD BLESS YOU AND ALL WHO ENTER HERE!
LOVE & HUGS, PEACE & JOY TO ALL!
PURE AND SIMPLE
http://www.godslovepureandsimple.com
Pure and Simple
IL USA - Monday, August 08, 2005 at 00:31:26 (GMT)
This is a wonderful site. Everytime I come to this site I read about dusty and I cry everytime. I have a dog named charlie and I never want him to leave this earth but everyone has a time. I'm catholic and I belive everyone goes to heaven. I can't imagine a life without my dog. Charlie suffers from strokes and it is very sad. Charlie is a jack russell and I love him to death to us part. Sounds weird but true. So god bless you family and enjoy the est of your life.
Genesis
Brooklyn, Ny USA - Friday, August 05, 2005 at 16:31:05 (GMT)
I was so touched by your song to Dusty,and the story on his little life.I cried so hard I had to take my glasses off several times. I had to call my baby Haley and hold her on my lap as I read. I also have a retired Greyhound named Cody. They are my heart.Isn't it wonderful that God understands our love for them, and they are not gone,just waiting on us to join them someday.God bless you,and I hope that your hearts have healed.
diane harrell
lakeland, fl USA - Saturday, July 30, 2005 at 23:55:21 (GMT)
I have always loved 'Rainbow Bridge' but it became particularly important to me when I lost my "Libby" 3 weeks ago. She was my baby, my buddy, my friend, and I will miss her until, of course, I cross the Bridge. I take comfort in knowing she will be there to meet me, to make me feel better, as she did here on earth. Thank you for not only caring, but for making our love for our pets not seem stupid or unimportant.
Carol
Las Vegas, NV USA - Thursday, July 28, 2005 at 18:37:26 (GMT)
I found this site by accident when I was looking for information on what I've come to relize, I seem to have some sort of extreme chemical sensitivity I used to work for over 10 yr's as the Manager/Customer service Director of a high volume,Very High End Beauty salon I worked around alot of nail glue's, resin's,& pure Acetone that the girl's used to dump into thier paper towel's [when they were done w/client's] & then throw it right in the trash by me! Also we did alot of color work- Foil's-highligting, bleaching, chemical straighting, I was around all these service's because I constantly was checking on the stylist's to see if they needed anything not to mention the amount of hairspray that we used was ungodly!! beside's the fact that the salon in my opinion needed a better venalation system but in those 10 yr's I was getting increasingly sicker and sicker.I worked 4 day's a week around 9-11 hour's a day, I sometime's would be out 2 to 3 time's a week w/ a severe migraine which would require me to go to the emergency room at least once of those time's.just this last nov. my boss /owner fired me because of my headache's said I no longer had a future there gave me no severence pay either, & 3/ 1/2 week's before christmas now we've been selling personal thing's just to pay bill's &buy; food. I can't go out much it seem's when i do I come home w/ a headache but I haven't gotten a headache like I used to get when I worked around all those chemical's I havn't been to the emergency room once except once when my husband and I and some friend's went on a trip and my friend & I came up to the bathroom & they were cleaning it & I had to run back to our suv fast but it wasn't fast enough cause I was sooo sick the whole trip there & back 8 hr's of hell I truly couldv'e had someone put me out of my misery that's how much pain I was in all from someone cleaning the bathroom!!& I didn't even go in it I was about 5 ft away now I stay at home as much as I can. to clean at all I use a bio-hazerd mask just to use widex or joy ,etc.I feel like the girl in the bubble and I to think I used to think I'd be working there for ever and that they would take care of me when I retire HaH he wouldn't even return my phone call's [my boss] when I begged!! and cried in front of him for a job in the office cause I told him I never would make it w/out my salery & He said "I'm a smart Girl I can get a job any where!"when I sit in my home now I feel sometime's like a prisnor even though I don't have as many headache's I might as well be in prison as for today I had to fill a prescription at my local pharm. but cause of the carpet's I got sick so tonite I lay sick w/ a headache -how Ironic? Sick & Tired of being Sick & Tired!!!!!!!!!!!!
pati carlson
naples, fl USA - Tuesday, July 26, 2005 at 07:32:06 (GMT)
This is fantastic. You are doing a wonderful job. I thought I was all alone and started my own site to educate people and to create a support system, and then I searched the net. You are on front page for MCS and so you get seen a lot! Great! I have been suffering for decades and didn't know why. I began my own experiments on myself almost two years ago and found from firsthand experience what is called MCS. My information I gathered matches info I now see on the net. I had no preconceived ideas that I mentally assumed were the case and so found symptoms to "match" what I had assumed. I deducted through observation and came to pretty much the same conclusion what I see posted in various places. That is proof enough for me that it is a real condition and not a figment of anyone's imagination! Keep up the good work!
Linda Linsley
Leslie, MI USA - Saturday, July 16, 2005 at 14:14:51 (GMT)
With tears streaming down my face, I am so comforted to have found this web-site. I have suffered from MCS since 1992. I am a former foreign language teacher, who has had to give up her career due to MCS. My life changed so drastically that one word describes it best..."Recluse". The migraines and anxiety of avoiding perfumes, print, plastic, tires etc became too difficult. I must tell you, that my students did try very hard to abstain from these fragrances and other triggers such as deodorants etc. My principal even built me a classroom upstairs..we called it "The Upper Room". Despite all of their efforts, nothing could keep all chemical offenders away from me. I decided that it was easier for me to quit, than to ask the world to refrain from "baptizing" themselves in all these "scents". I MISS TEACHING SO VERY MUCH! God has gifted me with the ability to speak many languages, and now I speak only to myself. I miss my Sunday school class, I miss people in general. I began feeling an overwhelming "guilt" when people would say things like, "Oh, I'm sorry, I wished I'd know you were coming, I would not have sprayed perfume." (I had been a member for several years.) But I felt it was my problem, not theirs. I can't go to malls, nor eat out with friends (what friends are left). I feel like a leper, and have become very sad indeed. My tears though, at this moment are not of self pity, but rather a sense of relief in knowing I'm not crazy and that more people like myself are out there. A lawyer friend found this web-site for me, and I could not wait to get home and log on. Thank you so much for creating this web-site...you are saving my life...as I've become so despondent, not having anyone to talk to about this condition. Just yesterday I found out that my imitrex shots are not being covered totally, and to get them will cost$567.70. I came home both angry and sad. My qulity of life has changed and I feel as though I'm a prisoner of my own home. I do love to read, and study much, so please keep up the good work and keep us informed. I want to get involved in educating more people about MCS..perhaps that can take the place of my teaching career. I also just lost my best friend, my cat of 11 years. Furball has been my life-line and I still run to the door during the night, thinking I hear her meow. Again, thank you so much for your valuable information..."I'm not crazy afterall" smile. Sincerely, Mrs. Tovah Ruth Hagan
Tovah Ruth Hagan
Lexington, Ok USA - Thursday, July 07, 2005 at 19:16:03 (GMT)
I was so touched and moved by your sweet story of Dusty, I cried and cried. I lost my precious Saint-Snoop just 3 weeks ago and I still cry each day over him. Thank you for sharing such a heartfelt story of your love for precious furbaby.
Jaime Wilson
St. George, Utah USA - Tuesday, June 28, 2005 at 15:57:25 (GMT)
I enjoy your site & appreciate the time & effort you've put into educating others about chemical injuries. I am in a group at http://health.groups.yahoo.com/group/MCS-Global/
I & others are working for the same enlightenment as you are. We are making up bus. cards with our logo on them. I also want to make a 1/2 sheet to inform my church members of my chemical sensitivity. I would really like to ask the artist John M. Brooks (?) if I can use his Tweetie image on my little flyers. Of course I'd leave his name on them. I'm not soliciting anything but really need the understanding of my fellow church members. Please give me an email or phone for him or ask him to contact me. As one Christian to another you know I wouldn't misuse anyone elses art or written projects. Tweety is a trademarked image & I believe with the changes made to include the gas mask the artist has gained permission or changed it sufficiently not ot have to. I can't steal someone elses art but this image would get across to the people in my church the reason I sit in back with a respirator, fan & sign asking for perfume area please. Please reply as you can. God Bless, Sandy
Sandy Mozingo
Seattle, WA USA - Saturday, June 18, 2005 at 08:39:12 (GMT)
I just wanted to add as well, that you know our world has reached a sick state when there is a debate over whether non-toxic, clean fresh air is something that is a "special need" as opposed to a basic right that all human beings need to survive. When you really think about it, doesn't that sound ironic?
get rid of Chemicals to reply.
AJS
USA - Friday, June 17, 2005 at 16:01:52 (GMT)
Scent is one of the last allowable ways that big companies can legally drug us and poison us via household cleaners and toiletries and make us sick. Chemical scents are a narcotic and a powerful manipulator. I live in a Canadian province that is making some progress and headway in this area with scent-free environments.
I am mildly sensitive to chemicals, and have gotten rid of everything I used to buy based on the smell alone! Some of these products were terribly and shamefully expensive. Embarrasing for someone to admit, who proudly proclaimed herself to be a frugal household manager. I am already quickly feeling the health benefits of detoxifying my home of these pollutants wearing the guise of "cleaners". I've not had a headache nor felt as tired. Chemical scents used to give me raging headaches and I would ignore it because I "liked the way it smelled".
Chemical scents are a DRUG which interfere with our reasoning skills. It desensitizes our olfactory senses so we don't even KNOW what smells good anymore. Our noses scream for more and more because we are tranced by the powerful effect.
Scent plays a part in recall of good memories and bad, I can recall several memories a day triggered by what any given environment happens to smell like. Given this alone, it stands to reason that companies can take advantage of this and lure people "by the nose" to con them into spending hundreds, if not thousands, of dollars on - let's face it - poison!
I really appreciate this page, and hope that more people become aware of this as one of the biggest sources of indoor pollution. People who are mildly to severely sensitive to the chemicals are unfortunately forced to be the most aware, but it is toxic for everyone, not just those of us who acutely feel the effects. Medical science simply cannot advance as quickly as the rate at which we are willingly poisoning ourselves and this planet. It's like trying to shovel snow in a blizzard with a teaspoon! It is so needless and can be stopped.
It is sad that only those who are affected understand this. Understandably, it is very hard to make changes which involve educating oneself and adopting a new mindset, but this is what makes it so difficult. People by and large do not want to change. I used to be one of them.
AJS
- Thursday, June 16, 2005 at 12:02:03 (GMT)
Hi jacki, my name is Jackie with the e. i stumbled across your site looking at info for CFS, and fibromylagia. i am in benzo withdrawal, an addictive class of drugs like valium. i have been suffering for a year and now that i can feel my body again, i am hurting so bad in my joints and my muscles, i am exhausted, and feel sad. i reallly found the info on the chemical sensitivity problem worth looking into. and i cried when i read about your little dog. I lost my petie, my yellow tabby cat, this past year. i can relate to you exactly in your feelings. I miss him so. you seem like such a kind and loving person. i am glad that you have taken the time to develop you site thank you very much. jackie m
Jackie mcknight
mason, TN USA - Sunday, May 29, 2005 at 08:11:00 (GMT)
Good information, Thank you! It allows us to be informed consumers. We need to disseminate this information but we should NOT wish the offensive products be withdrawn from the market because there are many other citizens who use and benefit from products such as fabric softeners. To do so would be pretentious and selfish.
Philip Sterling
Kenai, AK United States - Friday, May 27, 2005 at 08:05:14 (GMT)
Thank you for this site. I need help with my new life as a Christian. I belong to a group of women who are going through the book "Purpose Driven Life" by Rick Warren and it has done wonders for me and the others.
Jill
Kamloops , BC Canada - Thursday, May 26, 2005 at 18:37:17 (GMT)
I lost my hamster Sandy the day before Christmas eve. I still grieve about it. She was the sweetest little thing. You could hold her the first year or so. She was 2 when she passed on.
Emily
USA - Monday, May 23, 2005 at 12:51:30 (GMT)
Wish I had known about your site back in 1993.
My mother just could not/would not understand that her perfume made me sick. She kept asking me why I didn't like the smell of her perfume. I kept repeating that it was not the scent, but the chemicals in the perfume. Finally she gave in & quit wearing it around me, but she started wearing perfumed deodorant.
When I was forced financially to move in with mother I counted 8 different scented cleaning products stored under the kitchen sink.
Thank you for providing such valuable information.
Debbie Hart
Haltom City, TX USA - Saturday, May 21, 2005 at 01:00:21 (GMT)
I would like to order "Fragrance-Free Encounters and No-Fragrance Spaces", but the link to Paraquad doesn't work. This is a very infomative brochure and I hope you can get an ordering address for us.
Sue Pendarvis
Marshalltown, IA USA - Saturday, May 14, 2005 at 17:08:44 (GMT)
Growing up, I always got headaches immediately after smelling certain things. I never thought anything of it but remember how it hindered my life in so many ways. Now, as an adult, this problem has become so much worse. I am a teacher in a high school and in the past 6 months, this condition I have but always thought was an allergy has become increasingly worse. I have become irritable, moody, emotional, and physically sick, having coughing spells, burning in my throat, my voice has changed, I wheeze and all of this has affected who I am as a person and my everyday life. It is a major disability and I can't take it anymore. This morning, a student walked into my classroom and immediately, I had a reaction and asked her to leave my room. She didn't take me seriously and I got really upset and left my classroom in tears and cried my eyes out and all I could think is, "I can't function like this anymore." I couldn't get the taste out of my mouth and went into a coughing spell for quite a while. The student, was very offended and took this personal which made me feel even worse. The student who knows how perfume affects me, swore she had no perfume on, yet I didn't have this reaction until she came into the room. I explained that it had to be something that she had on. I also tried to make her understand that it was not her I was upset at or with but simply something she was wearing, was causing me to have a terrible reaction. I am at my wits end. Especially since I can't control this situation and am completely powerless. If anyone has any advice at all, please let me know. This is unbearable and I really need help.......Thank you!
Sherry
Moscow, Pa USA - Saturday, May 14, 2005 at 05:03:01 (GMT)
I am so thankful for this article. It is at this time in my own life that I am going through so many changes and I just need to be reassured that All things happen in its season. I have been blessed everyday of my life; I can only hope that GOD continues to shine his powerful rays of light upon me so that I am able to brighten another persons day. Please keep me in prayer, and thank you again for allowing GOD to speak using your voice.
Saraea Alston-Leslie
Upper Darby, Pa USA - Sunday, May 08, 2005 at 04:54:32 (GMT)
Wow, I didn't realize the differences between Catholicism and the rest of us.
Nikkee
Gainesville, FL USA - Wednesday, May 04, 2005 at 19:55:24 (GMT)
I also have MCS, along with the attendant ditziness when exposed to perfumes, hair gels, lotions, deodorants, etc. I do feel for those who have problems, AND we must take responsibility for our own health and well-being! Why aren't you eating organic fresh foods instead of take-out pizza? Wear a mask! Move away from your mold-infested town! We all have choices. I know this illness seems to limit our choices, and when exposed often, our judgement, too. Sometimes we sound crazy, and that can only work against us in our goal of educating those who don't yet understand. Let's do all we can to stay in amusement, maintain a reasonable tone, and remember to use SPELLCHECK!
Suzanne
Monmouth, OR USA - Monday, May 02, 2005 at 02:10:20 (GMT)
Thank you so much for sharing this valuable information. I have a frankincense and myrrh essential oils business and always try to educate my audiences about the harmful chemicals that they pay so dearly for. It is total insanity when you think of how much money people pay for poison in a bottle! Frankincense and myrrh are the ancient essence that was the base of all perfumes. They are naturally antiviral and have many beneficial qualities. Unfortuneately big business had to corrupt our sense of smell. I love to share with people what true, natural, unadulterated scents really smell like and it is almost miraculous to what they can do for the human condition, physically, mentally and spiritually.
Michele Hammerton
Clermont, FL USA - Wednesday, April 27, 2005 at 01:36:45 (GMT)
Thank you so much for your wonderful work!!!!
Diana Buckland Founder & Global Coordinator MCS-Global
www.mcs-global.org
Global Recognition Campaign for Multiple Chemical Sensitivity
Diana Buckland
Kallangur, Queensland Australia - Wednesday, April 20, 2005 at 04:18:46 (GMT)
update- I still feel very sick and lethargic after this experience. Though I seemed to be doing semi ok sometimes, off and on I just don't feel well. Prior to this I wasn't feeling that bad at all, and these cologne fumes are on everything- I can't believe the amount of cologne this creep was wearing because the fumes just linger on, it's insane. I just don't feel good overall, very sick. I feel like suing this company and I suspect there's a possibility they did this on purpose. This is what this cruel world is like- instead of helping out sick people today, people sabotage and ruin their health intentionally and there's nothing you can do about these criminal acts. All because of this stupid pathetic delivery boy, my health is now in a mess. I haven't encountered this much cologne in many years, and this situation was a nightmare. If he did it on purpose, hope he gets whats coming to him, but even out of negligence it's bad enough. Doesn't anyone have any compassion for others these days? people are so evil, and cruel and especially to sick people..it's liek sneaking sugar into a diabetic person's food just to hurt their health, but with MCS, it's legal and there's nothing you can do about it when these sick companies or people do this to you and your health. I'm very upset, helpless, and angry. This is the kind of trial a person with MCS is constantly trying to avoid, and then somehow it just comes knocking at your door and affects you without you even expecting it. It's terrible...
bleh
none, fl USA - Monday, April 04, 2005 at 01:01:46 (GMT)
Having Mcs sux :( I keep using this place as a venting post, but maybe some others can understand what it's like to have an illness like this. I ordered take out from a pizza place I always do. I always request a male delivery driver b/c the men usually don't have cologne and the women have perfume in their cars and body sprays. I was once almost harassed by a manager there who was liek "oh so men's colognes don't bother you, but women's do." This was really bad on her part to do so. Well, today I ordered take out, and the guy who comes to bring me my food, is wearing more cologne than I've ever smelled on a person in my life. My question is that this stupid restaurant KNOWS I'm chemically sensitive yet, they sent a guy who is wearing so much cologne on him. I think they most likely did it on purpose- because most guys who work at 10:00pm usually don't spray cologne on themselves while on the job, it has worn off by that time. seems like someone may have intentionally sabotaged me. Now my porch, and sun room is reeking of cologne fumes which are making me dizzy and I have no air filter. This is sick, and these kind of situations are what make me so upset when it comes to having this illness. You have no control, power, or choice. If someone, or some corrupt or bad company or group of evil people want to hurt your health, they can do so and nothing will be blamed on them. I hate these kind of people- they are more than evil because they intentionally hurt people's health in such a cruel way. I can't guarantee this was done on purpose, but this guy was wearing so much cologne you don't have to be chemically sensitive to notice it. It makes me sick that this world is so bad, and that people with MCS are treated like this. I wish liability could be placed on those people or companies who intentionally hurt people with mcs's health in this cruel and ridiculous horrible way.
bleh
none, fl USA - Thursday, March 31, 2005 at 03:28:06 (GMT)
I have been told,i have vasa motor rhinitis,one doctor told
me,I had chemicals in my body.all I know is,I had to leave my job of 30 years,because perfumes,along with everything
else smothered me to death.I have cleared my home of everything that has a odour to it.Does anyone out there have this?and is it due to chimicals.I believe mine is
chemical related.I worked where candels were made.The odours were terrible.I would appreaite your help.I have
been this way for 6 years.
were terrible.
ann young
berea, ky USA - Wednesday, March 30, 2005 at 05:15:51 (GMT)
The songs are lovely! I have Jackies CD with PRECIOUS LITTLE FRIEND on it and I LOVE it!
My Website is www.marcswebs.com where I have a link to where you can get a book titled WILL I SEE FIDO IN HEAVEN? It is a WONDERFUL book which clearly points out the verses of Scripture that indicate that we WILL see our poets again! I also have a Web Page illustrating my concept of Heaven--of course I am not 100% certain it will be anything like that, but I DO have my hopes.
God bless you all:
Marc
Marc V. Ridenour
Show Low, AZ USA - Tuesday, March 29, 2005 at 23:00:39 (GMT)
What your visitors NEED to know BEFORE they come to visit you.
For your friends and Family:
I now have "What you NEED to know BEFORE you visit someone with MCS" in WORD format and can send the attachment to anyone who would like to see it/print it out for your needs.
I also have the "Fragrance Free Home" Front Door sign available in WORD Format as an attachment
Please email me with request to:
maggie _ panion @ yahoo . com
if you would like me to forward either or both to you.
Hugs,
Kathy
Kathy Houghton
Anchorage, AK USA - Tuesday, March 29, 2005 at 02:25:57 (GMT)
How ignorant to put people down. Do any of you insulting people with mcs have any clue as to what people with this illness have to go through on a day to day basis? I've heard claims from "people seeking attention" to all sorts of nonsense and trash. mcs is interrelated with cfs and many other types of illnesses and immune system problems. There are people whose lives have been damaged due to people just liek you who say "it's all in your head" while they suffer daily with no hope and no cure. As for the 'walking out' scenario--maybe that is possible for some people, who knows, but for most people the illness is not "a fear of odors" it is REAL, and it is painful, and most of the time odors have little to do with anything, it's the chemicals, and chemicals can affect a person whether you smell them or not. Gastrointestinal problems, along with so many other problems also have an impact on this situation and illness...it's not "running away from odors" though yes, for many you do have to run away from chemicals because around them they can pretty much ruin your health. Anyway, I'm sick of the ignorant people ruining any hope for those afflicted with mcs, cfs, fibromyalgia or any other interrelated illness by putting these people down or calling them names. I just hope one day someone deciphers the mystery of this illness and finds some type of legitimate cure or resolution for it, and that people start recognizing the reality and seriousness of it.
youareignorant
city, ca USA - Tuesday, March 22, 2005 at 05:37:41 (GMT)
nice site, keep it up and carry gooooooooo
Dr,Onyebo
abidjan, cote d'ivoire - Monday, March 21, 2005 at 10:24:14 (GMT)
For people who are putting the idea of MCS down or calling it psychological. MCS and CFS affect many different parts of the body ..the endocrine system, the immune system, the neurological system. Being affected by an illness like this, even shown in brain scans does have an impact on the brain. This could very well relate to a decreasing strength in the blood brain barrier, allowing more toxins or chemicals to surpass the barrier and create problems for people that are neurological in nature. If you do have MCS, for many people, being exposed to a toxin does have an impact on their brain--sometimes even causing seizures. Because this is such a complicated illness, and because corporations do not want to take the blame for having dangerous chemical products, they have convinced doctors and most likely the pharmaceuticals that run medicinal education, that this is a psychosomatic illness. The unfortunate problem is, this is a very real illness, a devastating one, and more and more people are being affected by it every year. Not enough research has been done on MCS to understand the nature of how these chemicals have damaged the body, or the cumulative types of damage that have been done, but in most cases it seems apparent that there is some type of organ damage done--most likely to the liver, and also damage to the endocrine system. On top of this damage, there are so many other parts and areas affected, it's too difficult and complex for doctors to understand, and especially doctors who now believe it is psychological--without enough research to even prove it, and who are uninterested in helping people out. In order for doctors to call something "psychological" they first need to, through research, rule out the possibility of it being biological, and in this case this just hasn't happened yet. Medicine is uninterested at this time in taking responsibility for MCS patients, so people have to end up going around from one doctor to the next or to environmental doctors to receive diagnosis or medical advice. Just like many illnesses from the past that were one called 'psychosomatic' such as asthma, or ms, MCS is that new illness now being called this, but in the future as more and more people get it, they will have to deal with the reality of MCS and start recognizing it and helping and treating people with it.
anon
anon, ga USA - Saturday, March 19, 2005 at 04:15:13 (GMT)
Regarding awareness of MCS. I know there are organizations out there who are advocating awareness of MCS, but I think that there needs to be more done. Corporations don't want to legitimize MCS and want to continue for it to be a 'mystery' illness or a psychosomatic illness. I think there needs to be some kind of a national organization created, and the reason I say this is because people with MCS are often mistreated, abused, shunned, and have their health hurt even more. If there is a national organization, that goes around and does a lot of work, with bringing awareness to the general public, then more people will understand what MCS is. People who are ill do not deserve to even have to go around and prove their illness..this is of course an abomination, especially for a 'civilized' society. But since people with MCS are in this position, they are the ones who need to get together and try to do something about spreading awareness about MCS. If you have children, or work, you can easily make pamphlets, or buy pamphlets from organizations and teach others about this illness. You can go to your local newspaper and ask them to do interviews with you regarding the illness. Try to get doctors who understand mcs or env doctors to back up your claims and just spread general knowledge to the public. At this point, the only people who can fight for the rights of those with MCS are people with MCS themselves. It may be difficult, but it's the best option for now..
..
anon, ga USA - Saturday, March 19, 2005 at 03:57:10 (GMT)
i think your website is awesome and i think i cried when i read your article about dusty and crystal b/c i lost my dog baby this year nov 1 2004 and she had breast cancer i miss her so much but thanks for the site jacki i liked it alot hope to hear more from you thanks ! Kristine, B
Kristine B
memphis, tn USA - Monday, March 14, 2005 at 22:58:31 (GMT)
I just wanted to find out about catscaI have a problem when ever I hae one done when the dye is being injected I feel nausiated and have chest pain can this be an alergic reation from the dye juring the procedure ?
sharon lagueux
east hartford, ct. USA - Monday, March 14, 2005 at 16:56:02 (GMT)
I have benefited from this site greatly. It has led me to a Doctor that verified my MCS and Chronic Fatigue. Knowing my illness and being treated professionaly is a great deal of the battle.
I can draw on my knowledge of it when I am down. My Allergist was greatly impressed with my aggressive adaption of my illness. My apartment door is sealed when I am in. My two Oreck air cleaners are suitable to my two and a half rooms. I carry one in a small suitcase when I attend my Christain meetings or visit my Mom. Of course most of the time I require assistance due to my constant fatigue. My husband is disabled and requires some care from me.
He is a gem and his humor is a great asset in our every day life. Of course our spirtual relationship with our Creator, the "God of Comfort" is our foundation that keeps our house of faith standing in these troublesome times.
I have needed eyelid surgery for nine months. I was turned down by a clinic and two hospitals due to their stand on MCS. The 14th of March I am supposed to have the surgery performed at a teaching hospital in Pittsburgh PA. If it goes well, They may allow me to have a much needed knee replacement.
Love to all and perservere until we see the fullment of (Job 33:25) 25 Let his flesh become fresher than in youth; Let him return to the days of his youthful vigor. and (Isaiah 33:24) 24 And no resident will say: I am sick. The people that are dwelling in [the land] will be those pardoned for their error.
with much love to all and those who accept "the Good News Of God's Kingdom"
Leveda
Leveda
Scottdale, Pa USA - Sunday, March 13, 2005 at 05:19:22 (GMT)
very very good , please contack to me
NGADI
surabaya, Indonesia - Friday, March 11, 2005 at 15:50:28 (GMT)
I think this is a wonderful website and keep up the great work!I'm sorry for all of those people who lost their pet. I lost my cat too. But I know they are all happy and enjoying the painless place. A place where they can rest their aching bones. A place where they will no longer be sore... and that place is rainbow bridge. RIP.
Sarah
USA - Friday, March 11, 2005 at 03:02:21 (GMT)
This site has proved to be priceless, I have recomended it to many people, even those unaware of this illness. I know it will make a change for the better, in future generations. I have also shared information from this site, with my doctor, which reconizes this illness. Specifically the page from Govorner Jeb Bush, declaring MCS week. I will continue to refer people here for the rest of my life, which I thank-you all for extending, through your information. I would be happy to talk with anyone interested in this illness. Herejustfornow@aol.com
David
Fl USA - Friday, March 11, 2005 at 02:57:12 (GMT)
Thank-you so much for your site on Toxic Perfumes. I used to wear perfume all the time and it made my mom feel headachey and nauseous and quite grumpy! I didn't believe her complaints to be legitimate and so I kept using it. Now, at age 28 I am highly sensitive to a large variey of chemicals. Perfume is still the largest problem for me especially since I work with the public. My reactions vary from instant runny nose, to stinging gums and eyes, to a very itchy throught with a dry cough, and instant headaches! I really hate it! Currently I am looking for alternative soaps etc, but I wish that there was more public awareness, how can I help?
Maria
Oshawa, ON Canada - Saturday, March 05, 2005 at 20:28:01 (GMT)
Thank you for sharing your information on MCS and your testimony. I have a friend who has MCS and wanted to find out more info so I can help make her life more comfortable. Your testimony about grace and salvation was awesome! God bless you!
Karen F.
VA USA - Friday, February 18, 2005 at 23:09:31 (GMT)
please help if anyone can- I have mcs and my family is abusive towards me. I am in a compromising position and my mother who is abusive just makes sure I do not get better. I have dealt with a lot of abuse due to my situation, and just don't know what to do. My family has the money but refuses to fund me and put me on disability just to bring me down more. I don't know what to do and now air filters that I want to buy to help my health out, my family refuses to fund and I can't pay for that with my disability money. I have no friends and no one to turn to and I have an endocrine abnormality .. if anyone knows where people with mcs can get additional funding or support please let me know thanks.
jamie
miami, fl USA - Friday, February 18, 2005 at 22:27:07 (GMT)
"Go to sleep, my little one, little one. Go to sleep, my baby, my own." - This is from an old Perry Como song called 'Turnaround' - Here are the words:
Turnaround, turnaround,
Turnaround and you're a young girl going out of the door!
Where are you goin' my little one, little one,
Where are you goin' my baby, my own?
Turnaround and you're two, turnaround and you're four,
Turnaround and you're a young girl going out of the door!
Turnaround, ( turnaround! )
Turnaround and you're a young girl . . .
Going out of the door!
Makes me cry every time I hear it. Lots of people have played it at their daughter's wedding. I think it's very apt for losing a beloved pet as well....
Just lost my German Shepherd Moshie, 2 weeks ago, and your song touched my heart and brought tears but I thank you so much for sharing it.
Jill "Moshie's Mom"
Jill
Elmsdale, NS Canada - Friday, February 11, 2005 at 18:18:00 (GMT)
Thank you for your story about Dusty. I cried the whole way thru. I have 3 pugs, My papa Jake just turned 16 on Jan. 21st. My vet said I would be luck if he made it to Christmas. We fooled her. I am thankful for that. My little guy is deaf and partly blind. He also has no use of his back legs, but, he does have a wheelchair. I could go on and on and on. My other two, his wife Jazz and his daughter Ane are doing great. Once again thank you for your story.
Lynn
Longview, wa USA - Monday, January 31, 2005 at 02:34:31 (GMT)
i am so sorryto hear that you loss your dogs i loss my cat who was half siamses mix her name was Misty.I am having a hard time with it to accept she is gone.
Sue Plante
Appleton, Wi USA - Tuesday, January 25, 2005 at 15:14:45 (GMT)
i have a lustron home for sale that would be perfect for someone with MCS. description: Carl Strandlund's post WWII, porcelain enamel on steel, all-metal, prefabricated house. In production from 1947-1950. Approximately 2500 Lustrons were built in the United States. price 85k or best offer. it is in beverly ohio but can be moved. call Don Hottinger at 740-984-2688
viki thomas
Beverly , ohio USA - Sunday, January 23, 2005 at 07:26:13 (GMT)
PTL!!! You're site is so wonderful; I loved listening to your sweet angelical voice. I was comforting a friend today who was going to a memorial service, and sent him your site link. Pray for Bill to come to know the love of Christ our Redeemer!!!
Be blessed in the Mighty Name of Jesus Christ!
Rev. Jodi Knapp
Jodi
Las Vegas, NV USA - Saturday, January 22, 2005 at 21:27:52 (GMT)
Thanks for the great site!
Ann
USA - Tuesday, January 18, 2005 at 03:38:50 (GMT)
im interested in a hairloss program and i was wondering if you could please help me on thyis thanks marty fox
martyfox
charlottesville, va USA - Tuesday, December 14, 2004 at 13:05:14 (GMT)
I suffered from MCS/EI for @ 10 years, the key word being suffered. Best I can tell Im free now. I tried what I thought was everything. I have 25 years of nutrional background, that didnt work. I took saunas that didnt work. I wore a mask all that did was create fear in my life. Fear of this chemical fear or that chemical. I finnaly found the answer.
All MCS/EI victims have a few things in common:#1 they have a broken heart at some level. I was able to find help and am now able to eat whatever I want, go wherever I want. I dont freak out when someone with perfume walks by me, I enjoy the smells now. You know there are 2 smells really for a MCS/EI person the one you avoid and the one behind it. That what I found anyway after walking out of the illness. In the past I would run from that smell and some times get anger at the person.
Dont jump to any conclusions that I didnt have the dis-ease or I dont know what I am talking about. I did have the dis-ease and I got straight A's in college in anatomy and biology, although spelling was a different story. LOL!
I found a book and a man that was willing to listen and teach on this illness they helped me and have from what they claim have help 1000's walk out of MCS/EI I watched people right in front of my eyes "walk out" of it one of them actually walked the soap isle at Wal-Wart. Same here I can go there now in the past I couldnt I would be sick for days.
I am thankful for getting my life back I cant help but share with others now. I will respect the moderaters advice and not post anything regarding the book or the people that have help me and others. I just want to give back. If you want you can contact me and I will share all I can privately
God Bless
sean
USA - Friday, December 10, 2004 at 15:30:57 (GMT)
I was searching for the midi tune "He Washed My Eyes With Tears," an old gospel bluegrass song and stayed a while at your site. I played "I Surrender All" and simply closed my eyes and worshipped. Many a time in my life I have released burdens to this great song of love to my Savior. The emotion of it all simply flooded my heart. I had just finished reading the gospel of John through Jesus prayer for his own in John 17 and had already broke down and wept just knowing Jesus prayed this prayer for me! That's what prompted my search. I did not find the tune that came to my mind, but instead came upon one even more personal and dear to me. I believe God intended me to hear I Surrender All. Thank you so much for making this beautiful tune availble. May God bless you for it!
Marie Parsons
Ringold, OK USA - Wednesday, December 08, 2004 at 03:03:28 (GMT)
http://www.yahoo.com Yahoo the BestClick Here
NastyGay
n/a, n/a USA - Tuesday, December 07, 2004 at 18:32:55 (GMT)
very nice site, thx
=http://www.sportwettenonline.com/>sportwetten online wetten
USA - Monday, December 06, 2004 at 23:37:04 (GMT)
Hey everyone have you heard of the products called the Majestic and the Defender 360 they are the anwser to alot of the problems we face in our own homes Indoor Air Pollution is horrible its worse inside our homes than it is oustside. and I can prove it. do you feel sick when you walk in your own house I did until I found out about this the defender is a class II medical device its the only one approved by the FDA and it has been proven to eliminate 99.99% of indoor air pollutants. I had trouble breathing at night I would wake up and blow my nose and tons of stuff would come out. After getting my machine I could definitely tell
[Older posts above. Post form below.]
a difference in the quality of air in my house. but it doesn't stop there not even close where do you think the pollutants come from? dustmites, pet dander, cig smoke areosal cans mold pollen etc. all are highly dangerous to our health and well being thats where the Majestic 360 comes in it gets the source of the problem the couch cushions the mattress we all sleep on. those of you out there that have this system know what I am saying. Indoor air polution is going to kill us all some day we need to stop it now before its to late and you think your vaccum is going to help with all the filters and bags. they don't its just polluting your air in your home. do you ever smell dust when vaccuming your home thats the exhaust from your vaccum polluting your air and ruining your appliances not to metion what it does to your lungs. did you know that the dust you see is acctually only 2% of what is there and if you could see it all you wouldn't be able to see your own hand in fron of your face. I thought that was the most disgusting thing I have ever heard. and that the average person loses 5 lbs of skin a week mostly deposited in our mattresses I used my majestic to clean my mattress and was very surprised on what I pulled out I never sleeped so good than I did that night never woke up once to blow my nose and when I got up in the morning I didn't feel sick lke I did every morning for about 3 yrs. I have been to the doctor and same as everyone they couldn't find anything wrong and just like everyone I still got the HUGE unreasonable HUGE medical bill. I feel everyone could benefit from this system if you have anymore questions on how to get one or just want to know more my email is mnlakelover@hotmail.com hope this helps alot of people that could use it thank you for your time in reading this. would love to tell as many people about this as possible we could all use some help getting healthier without the bills and dangerous chemicals that are suppose to help sincerely matt k
matt
stcloud, mn USA - Monday, December 06, 2004 at 01:57:45 (GMT)
I just wanted to add that I did purchase a trial package from Melaleuca and all of their products were what was said to be, I didnt continue to purchase because I lost interest and lacked the money due to a recent layoff. Im not benefiting in any way by telling you about this site, and the gent who told me was a rep who I havent spoken to in 9 months, but he and his family were users of the products.
He gave me a melaleuca oil sample and I added it to my shampoo. My severe skin condition on my scalp went away after 3 days. My condition was due to the various shampoos, gels, sprays, conditioners I have used over the last 10 years, and most recently the trial samples my girlfriend kept bringing me from her salon. I had serious scalp scaling and if you know of any other products that I could use without having to smell like a MINT factory, I would appreciate it. The product I was using worked, but was quite strong, much like PURE TEA TREE OIL. Please email me at michael _doucette@mynlc.com
Michael Doucette
Santa Rosa, CA USA - Monday, December 06, 2004 at 01:10:21 (GMT)
Hi everyone, I was online researching solvents, lacquers, wood finishes, and urethanes today because my roommate (the homeowner) decided to stain the deck again for the 3rd time in 3 months and left the window open so he could listen to music. The smell was so strong I couldnt finish eating and I came up to my office and turned on the heater. Well as I was reading another site that I mistakenly came across (it was a manufacturer page rather than a health report page) they were saying that there was no risk associated as long as there was proper ventilation. BS, I said. Then I saw that it said not to heat these products, and I realized the the smell in the house had changed when I turned the element heater on. This changed the properties in the molecules of vapor in my upper room. It smelled like burning kerosene. I went down and complained to him and he finally agreed to close the window. He wasn't even wearing a respirator. I am amazed by the ignorance of other people and their tacit inability to realize they are endangering other people. Anyhow, I came across this site and found a lot of valuable information that has scared me silly.
I was recently aware of a company called Melaleuca and NO THIS IS NOT AN AD FOR THEIR COMPANY, AS I JUST CAME TO REALIZE TODAY HOW IMPORTANT THEY ARE. AGAIN THIS IS NOT A PLUG!!!!!! I didn't take them very seriously when the rep first told me of the dangers in dishwashing soaps, laundry soap, deoderant.
He showed me a ziplock bag with aluminum foil in it and some dishwashing detergent. It had been 2 weeks and the Cascade diswashing liquid completely disolved the aluminum foil. VERY SCARY. The chemicals and fillers added to an detergents especially powders can slowly cut the fibers of your clothing and eat your skin. DID YOU KNOW THEY PUT CRUSHED GLASS IN TIDE???????? VERY FINELY CRUSHED. AND WHEN YOU LOOK FOR THE INGREDIENTS, THEY DONT SHOW THEM.
The detergents never really disolve in the water either. This rep also showed me where they had poured 1/4 cup of tide into a 1 gallon jug of water and by the end of the day it all settled to the bottom again even after being put through the shaking cycle of a newly shaken can of paint.
You can check them out at Melaleuca.com They are a company that provides all natural products, soaps, shampoos, deoderants, chemical free dryer sheets, chemical free laundry soap, foods, vitamins at 98% absorption rate (the best in the industry and patented), natural supplements that stop illnesses, and homeopathic medicines. All at good prices. I take this company very seriously now.
Now that I have seen your site, Im not buying that perfume for my GF or asking for the cologne I wanted. I am dumping the laundry liquid, dryer sheets, and cascade.
Michael Doucette
Santa Rosa, CA USA - Monday, December 06, 2004 at 01:03:54 (GMT)
Thanks so much for your website. I particularly appreciated your poem set to music; it may be sappy but then again I'm a sappy person, too, and I cried when I read it. I have had MCS/EI for 20 years, disabled on social security disability for the last 4 years; also diagnosed with chronic fatigue and fibromyalgia. My physician calls it "immune system dysfunction syndrome"; her name is Dr. Dorothy Calabrese, M.D.; she's an environmental medicine specialist. I want to tell people about her as she has given me hope of some improvement in my condition. She ONLY treats people like us; she's located in Laguna Hills, California and is as far as I know the only such doctor in California. She has been fighting with Medicare for over two years now to save her practice as the treatment she uses Medicare won't reimburse her for although it has been found effective for people like us. She uses preservative-free antigens (like allergy shots, but she custom-makes them herself in her office laboratory for each patient) and something called "transfer factor"--(it has a long scientific name to it; this is the shortened version)--if you look this term up on the Internet you get a product that is made of cow colostrum--this is NOT what Dr. Calabrese uses. She uses a product that is injectable only; it is a HUMAN blood product. The idea of it is that it is derived from a healthy donor; once injected into a sick person, the human transfer factor "teaches" the sick person's immune system how to function normally. Because of her limited financial resources due to her Medicare battle, Dr. Calabrese can take only a limited # of Medicare patients at a time; right now I'm on a "wait" mode for treatment. She does have private insurance patients (unfortunately, non-HMO insurances only; companies like Kaiser won't fund for this type of treatment because they take their cues from Medicare)who are getting transfer factor, and whose insurance is paying the costs. Her website is www.enviromed.org or you can write to her at enviromed@msn.com I consider it a major crime that a treatment is available to us, but the government is blocking payment for it. Right now Dr. Calabrese has California Senator Barbara Boxer on her side, some Congressmen, and the U.S. Department of Justice investigating the case. I'll let people know the outcome of her fight; if she's successful this treatment may then become more readily available to all of us who need it as other insurance companies will have to follow suit and pay for the treatment if Medicare is forced to pay for it. P.S. thanks Andre from Fresno about the information on the concrete slab problem re: mold; I'm living in a house with a concrete slab and the soil is hard clay with poor drainage; I really suffer with mold in the winter; find that air filters help with some of this; whereever I find mold in the house, I treat it with apple cider vinegar to kill the visible mold, and then tape plain old aluminum foil over it to act as a barrier; it does help. I also water the plants outside very infrequently in the spring and summer so the soil dries out thoroughly between waterings; I water rarely in the fall and winter, letting what little rain we get in Southern California do most of the watering. I've killed some plants that way, and the grass is dead (the only house in an upscale neighborhood without a green lawn)but my health is more important than a beautiful-looking yard thanks.
Liora Leah
Liora Leah
Los Alamitos, CA USA - Saturday, December 04, 2004 at 06:10:43 (GMT)
I want to thank you guys for this site. I never could figure out why I was always getting sick...but know it makes sense. Also, the information on this site really helped me with chemistry assignments. Im going to tell people about this site....like my mom, who has suffered multiple undergoings of cancer.
Sarah
Acton, ONT Canada - Friday, December 03, 2004 at 17:38:10 (GMT)
I was made in France born in the USA, having many great experiences with a wide variety of people I see everything... better still I understand. Unfortunately tho as a human being I have been poisoned by the robots of society called CONSUMERS and now I have MCS/EI... so now I smell everything. Funny no? Anyhow, during the 90's I puchased a new home in a upscale even pretigious part of our city. The community was a park setting interconnected w/walk & bike paths and homes with all the upgrades, postcard perfect. Yet like the saying goes, "beauty is only skin deep" is a lesson I almost died in order to learn. Forget about personal relations and the beautiful girls I chased after. It was my house that turned out to be the real killer. My new home was built defectively from the ground up in fact so was much of the community. To make a long story short water from any source does not percolate well because the ground in our community is Hardpan. It's a type of clay mix that can be harder than cement. So the water be it from rain or sprinklers tends to stay at the surface ponding or the ground always looks dark and wet, saturated. So since homes are built on a concrete slab foundation if your lot and building pad are not properly graded or if the proper moisture barriers are not put in place. The concrete slab foundation acts like a sponge and wicks moisture up into the house, into the walls and underneath carpets and other flooring. Moisture and mold spores without sunlight makes poison. So, week after week, month after month, year after year, I became more and more sick after moving into this new home. All the while I was going to Kaiser Permanente (my care? provider) who never figured out that toxic mold/spores were killing me. In fact at one point they were giving me penicillin, this is what pushed me over the edge. Only after being rescued by Paramedics/Fire Dept since I was going into a coma due to kidney failure and severe dehyration, did I learn of having a systemic fungal infection. For a period of time I was fighting hard to stay alive, now life for me is just plain hard to live. Having MCS/EI now most everything chemical or organic can cause me to have a bad reaction. I can even smell things the average person can not. All of this is due to a defective society (I'm being polite). One example, everyone in our city waters their perfect lawns and gardens at night and since the water does not percolate most of the ground in our city is constantly saturated. The perfect breeding ground for molds. In fact anywhere you go in our city you will find green or black mold, depending on amount of exposure to sunlight, on the ground, sidewalks, fences, trees, shingle roofs etc. Due to man's un-natural activities we have caused an imbalance in nature allowing molds to proliferate. I have learned that first California then Texas have the worst mold problems in our nation and all of this was preventable but now it CAN'T BE STOPED. Since like most everything else wrong with society nothing was being done about it and now mold spores spred like a wildfire. But of course there is a good excuse for all of this, have'nt you heard, "Nobody is perfect". That's because NOBODY TRIES
Andre K
Fresno, CA USA - Sunday, November 28, 2004 at 07:55:00 (GMT)
I just wanted to say hello!
Hello
chestertown, md usa - Friday, November 26, 2004 at 19:35:52 (GMT)
Jackie and Gordon, where do I even begin. I'm 21 years old and my brother Robert which is 25 had came onto this beautiful website, heard about it from a friend. Well we have to both say that your story about Dusty is just about the same story that my brother and I have about our dog "Niekko" we both sat here and read all about dusty and we cried the whole time because it was like if it was our story. We actually just lost our dog 6 days ago. We have had Niekko since I was 4 years old, so yea I grew up with my little guy. he will be 17 years old on Dec 19th. To make a long story short I just thought that I would tell the both of you that I know what you both went through, it's the hardest thing that I went through and I'm still going through alot. That was a nice story that you wrote about Dusty, thank you for sharing it, it actually made us feel some what better because we were not the only ones that went threw that. Everything from loving chocoalate to falling asleep in his water bowl and not eating was the same thing with us and our dog. Till this day its so hard I cry all the time. We haven't even cleaned up his poop it's still in the backyard, his water bowl is the same way he left it. I know it was the right thing we did for him and I know he is better off but sometimes I feel it gets harder every day. How did you both cope with it? Anyways again thank u and I ordered the CD "Precious Little One" thats the BEST!!!! :) Well now Niekko is up there with Dusty and I'm sure there both having a blast and eating all the chocolate and cake. Priscilla & Robert (WE LOVE U NIEKKO)
Priscilla And Robert
Indio, Ca USA - Monday, November 22, 2004 at 08:15:18 (GMT)
Thank you so much...as an RN, I've known my health was deteriorating 2/to multiple exposures to various chemicals...I'm NOT CRAZY...thank you!!!!! knowing there are proactive things I can do has given me a sense of reempowerment...thank you again. God Bless you both.
Janis
USA - Sunday, November 21, 2004 at 23:59:56 (GMT)
Hi ,we had a water leaking almost 1 year.black& green mold ,wow.it was terible looking,so i pulled out the refrigator,after we saw the mold on the walls,in the cabnets about 15 feet they tore out fixing the problem after 3 months remedation was done.sears fault leaky line.told them,safeco insurance co.did the remedation work.so we were sick,our grandbabywas sick for months,also wife sick with a big coughing spells,she has pph disease,thays heart and lung disease.and 6 of us went to drs to get checked out for the mold,which test showed was very bad!we cant get a lawyer here to take case,they want around 25,000 dollers.we cant afford this.does anyone no how i can get our money back for the testing and what i am out here around 3,000 dollers.and some of us are still sick with the mold?thanks bob wanda & family
robert kimmerle
kingman, az USA - Thursday, November 18, 2004 at 17:07:28 (GMT)
On June 10th, 2004 I took my German Shepard molly to the vet to receive medication. I left her there and went home to go to sleep. My wife contacted the Vet a 3 PM and agreed to start Molly ( 12 1/2 Yrs) on antibotics. Molly was doing fine. I called at about 3:05 Pm and asked the vet assistant if Molly was ready to go home. The assistant told me I needed to talk to the Vet. When the Vet got on the phone she stated Molly had passed. I asked her what did she mean. She stated they gave her a shot and then she started to bleed out of the mouth and died.
I'm a grown 57 year old man that works as a Correctional Lieutenant.I served 3 tours of duty in Viet Nam. This was the worst news I have ever received.
I arrived with my wife at the Vets around 5PM. Today is 11-10-2004 and I still cry. I hugged her lifeless body and my World was crushed.
As I write this I have tears in my eyes. I loved her so much. I hope some day to see her again.
For all who will listen, love them every day. When it's over it's hard to believe. I read your story and I cried for you. Some day I hope you and your little guy will be together again.
I know God is listening and is aware of the sorrow in our hearts. Until then I will continue to cry. Molly, I love you---Daddy
Ronald J. McCarty Sr.
Hartly, De USA - Wednesday, November 10, 2004 at 21:00:32 (GMT)
I am so happy to see more non-toxic products and information out to the public. However, because I have been inundated with so much christian religion lately I wish you could keep your personal beliefs separate.
pam spevack
Oakland, CA USA - Wednesday, November 10, 2004 at 19:44:18 (GMT)
I work with a woman that wears excessive perfumes and lotions that make me very ill, my eyes run, I feel dizzy, I cough and she doesn't seem to understand that she wears way too much of it and I can't handle it. She's been in the office 20 years and I'm new. She is in her 60's. How can I tactfully teach her to stop poisoning me?
Linda
Front Royal, VA USA - Friday, November 05, 2004 at 14:46:20 (GMT)
Great classical music, that is why I keep coming back!
Little Sorrel
Lorain, OH USA - Friday, November 05, 2004 at 01:07:38 (GMT)
I an compelled by your site. I was diagnosed with Fibromyalgia 4 years ago with most of the symptoms you have listed. I quit smoking 9 weeks ago and am feeling as if I am dying. I am a believer in God that I will not go w/o a fight. After all, I am only 28 years old now. The all over pain is continuous. My eyes hurt and I am always sleepy and too often hungry. Your site was really helpfull. Thank you!
Brenda
Dunedin, FL USA - Friday, November 05, 2004 at 00:44:57 (GMT)
I just came across your site...its great- full of information I'm looking for. I'm new to the world of MCS. Last January, I was exposed to fumes from a muriatic acid leak while at working at the pool. I've never had a sense of smell. I walked right into it and I was in an enclosed room where the leak was for about 3 minutes. About 10 minutes after the exposure, I had chest pain and tightness, dizziness and a horrible headache. I spent the day at the clinic on oxygen and returned to work 4 days later. I toughed out the next 3 months, feeling horrible and still having headaches and trouble with breathing. I was finally diagnosed with lung damage and asthma. I was relocated to a new job for the last month of the school year. During the summer, my health improved greatly and I was feeling like myself again. Our family spent much of the summer camping and fishing in Ontario and enjoying the fresh air. I got severe headaches from the grocery store and gas stations so I quit going there. After my return to work in Sept, my world fell apart. Now I react to everything...cleaners, perfumes and gas fumes have been the worst so far. I had tons of trouble with my breathing, headaches, overall aches, chills, trouble sleeping, blurry vision, dry mouth, hoarse voice etc... I lasted 12 days before I the doctor ordered me off work. My saliva and mucus systems have been damaged from the inhalation of the acid so my body is absorbing whatever I inhale. My quads and biceps get swollen and buldging after an exposure and its quite painful. I've been off work for 7 weeks now and am starting to feel better. I'm also trying to take care of my 13 year old daughter with severe disabilities. She is in a wheelchair so there's a lot of lifting to do every day. My husband and 15 year old daughter have been very supportive and let me know when they smell something I might have trouble with. I'm making lots of lifestyle changes, limiting my outings and looking forward to feeling better soon.
Michelle
Mn USA - Thursday, November 04, 2004 at 20:03:47 (GMT)
We are glad we came across this webpage. My husband has been a carpet installer for over 30 years and last year it was discovered he had a form of leukemia. When testing was done it was discovered he had a rare type of chromosome abnormality in the cancer cells. After doing some research on the internet imagine our surprise when we discovered all the types of chemicals that are/were used in carpet, pad, adhesives, and solvents. These included such things as benzene, toulene, formaldehyde, and many more. Since than we recently set up a webpage and yahoo support group for carpet installers and others working in the floor covering industry to be able to connect with one another and gain more information on what types of health problems might be associated with these occupations. Some so far we have come across are leukemia, lung cancer, other types of cancer, central nervous system disorders, and many other symptoms. The group is called carpet_installers_health under health/support a yahoo group the webpage will be listed under geocities as wind_decor/Carpet_Installers_Health under the EPA category.
I have come across many sites in reference to these toxins and health issues contact us at wind_decor@yahoo.com with any questions you have.
Clayton
Iowa USA - Saturday, October 30, 2004 at 16:30:54 (GMT)
I found your website while looking up the Rainbow Bridge.
I had a beautiful Chesapeake Bay Retriever for 12 1/2 years. My special friend developed cancer and was having a very hard time breathing, I held him close to me his last night and I knew that he no longer had quality time left.
He developed a sore that kept breaking open, his breathing was labored and he started choking.
My beautiful puppy no longer had that sparkle in his eyes, I knew that I would have to take him on his last "ride going bye-bye". He loved to go for rides even if it was just around the block. His last ride took him to his vet, where he was given a shot to relieve his pain. I held him and cried the whole time. I had him creamated and will bury him along with his mother, my "Beezer". Tank had his mother's personality, and loved every one.
His passing was hard for me,
coming home, putting my key into the door and not having Tank run to greet me at the door. No more having him hold hands (he would put his paw on my hand as if he was holding hands.) My husband missed him too, those two were "Best Buds" as my daughter would say. He went and bought me a new little furry friend, this time we have a 5.9 pound toy poodle, by the name of Tinker. Tinker does not take the place of Tank, he has his own little personality, and is so loving. I know that Tank must be the one playing with Tinker, it is as if the two of them play together all of the time.
I know in my heart that we will meet again, he was a wonderful dog and many of our friends loved him too.
Your website was wonderful.
May the Creator bless you and the beautiful memories you have of your special little furry friend.
Patty Sam
Patricia Sam
Minneapolis, Mn USA - Friday, October 29, 2004 at 18:40:11 (GMT)
Thank you for the helpful information. I am in the process of preparing information to present to my Church regarding the negative impact of the use of incense. Where do I find the names of authors of your articles and can you offer any help in connecting incense to illness. Thank you, Joanne Wright
Joanne Wright
Wilmington, NC USA - Wednesday, October 27, 2004 at 13:18:53 (GMT)
I WOULD JUST LIKE TO SAY THAT DEALING WITH MCS IS VERY HARD,
BECAUSE THERE ARE NO DOCTORS THAT CAN TRULY DIAGNOSE THIS PROBLEM!I HAVE A PROBLEM OUTDOORS WHERE CHEMICAL COMPANIES ARE RELEASING VOCS THAT CAUSE NUMBNESS IN MY HEAD ,PALPITATIONS ,ASTHMA, FLUSHING INSTANTLY!! THE FUNNY THING ABOUT IT IS THAT THERE IS NO ODOR ! THEY ARE ODORLESS!!
WITH THE MODERN EQUIPMENT THAT IS USED TODAY THE SMELL IS REMOVED BEFORE IT HITS THE AIR. IT REALLY AFFECTS MY LIFE STYLE BECAUSE CERTAIN AREAS I ALWAY HAVE AN ATTACK.
IF ANYONE CAN RELATE TO THIS OR GIVE ME SOME HELP WITH WHAT TO DO OR WHAT DOCTORS TO SEE CALL ME
THANKS
MIKE MORSE
295 MILLBURN AVE
MILLBURN NJ 07041
973-376-9484
MIKEEENJ@AOL.COM
MIKE MORSE
MILLBURN, NJ USA - Wednesday, October 20, 2004 at 22:49:56 (GMT)
Thanks Jackie. I was searching google for a possible reference to benzene in newspaper print because I suffer severe allergy to newsprint. Low and behold I found your stupendess well written site where you explain a whole lot more of my multiple chemical allergy which I suffer from for more than thirty years. Got it in mid-sixties from working as a lab technician in California. It helps a lot to see other people explain their story and the way they got ill. Thanks again and I wish you the best of luck. Larry
Larry Richardson
Kihei, Hi USA - Sunday, October 17, 2004 at 09:40:18 (GMT)
It is good to see a site devoted to this problem. My entire family of 3 suffer from this after a chemical exposure in 1999. We are lucky in that our family doctor works with us to try to locate products that we can use that are not chemically loaded. In fact she would rather have us use a natural item if at all possible (ex: my daughter must drink extra juice daily for a bowel problem but the doctor would rather that then a laxitive - which another doctor had wanted her on and we said no way) We also watch for things like food dyes because we discovered years ago they trigger asthama attacks. The hardest part is most people have no clue what the extra costs associated with this means to us. I have also had to home school my child to keep her out of a chemically filled environment.
Louise
USA - Friday, October 15, 2004 at 04:15:56 (GMT)
Great work on your site!
-- GK at ephesys@cashette.com
George Kaplan
USA - Wednesday, October 13, 2004 at 15:57:55 (GMT)
I am looking for a doctor in the Washington, DC area who treat MCS.
Tijuana Madison
Washington, DC USA - Thursday, September 30, 2004 at 14:51:21 (GMT)
Yes this illness is terrible, and there is much abuse involved of people who have this illness. I currently have to take a lot of irrational anger and hatred from none other than my parents just because I have this illness. They believe the illness is mental and any requests I make regarding it are met with a lot of strong hostility and hatred coming from my parents. I don't believe people who treat others like this are good people at all. they are only evil abusive people who take advantage of helpless or weak people or people with strange illnesses such as MCS. I only wish that there was something people could do or some way people could be protected from these kind of people, especially while having this illness.
mel
city, ga USA - Saturday, September 25, 2004 at 04:03:34 (GMT)
In August 1994, I had to put my precious maltese, Meigan, down. It sure is not easy and even 10 years after, I still cry sometimes when I think of her. I absolutely adored your song to Dusty and cried as I was reading about his last weekend.
Keith
Portland, OR USA - Monday, September 20, 2004 at 06:31:42 (GMT)
hen money is lost NOTHING is Lost, When when health is lost something is lost and when character is lost------- EVERYTHING is LOST.
GUL NAWAZ.
DR.GUL NAWAZ WARRAICH
Multan, punjab PAKISTAN. - Saturday, September 18, 2004 at 22:25:02 (GMT)
I was looking into caring for a MCS woman ans she gave me all these web sites for research..I make fragrance free and dye free soaps for my own uses and sell sometimes. Now it's all vegetable oils and sodium hydroxide and distilled water. I was lead to believe that the lye and iol chemically saponifies and all the CURES out of the soap. She's telling me there is lye in the soap. My soap is gentle enough for babies. Is there still minute lye in the 8-12 week cured soap I make? I have rosasea and dry itchy skin which is why I make my own soap.
Lorraine Brelsford
Noxen, PA USA - Sunday, September 12, 2004 at 21:17:20 (GMT)
alison wrote:
> First of all, I agree with the possibility of what that
> study says, but the problem is many people develop mcs
> later in life--after a breakdown of their body systems.
That's a very good point. MCS is viewed by many (but not
all) investigators as being an induced condition. If it
were caused by a defective toxin-metabolizing enzyme, one
would expect it to be a chronic, inborn condition. That's
another reason why I suggest that the place to look is the
regulatory system which controls the toxin-metabolizing
enzymes rather than the enzymes themselves. SXR has been
described in the scientific literature as a general sensor
for xenobiotics (chemicals originating outside the cell,
including both natural and artificial chemicals), and
activation of SXR promotes the production of toxin
transporters like P-gp and MRP2 and toxin-destroying
enzymes like CYP3A4. I think it is more plausible that
there could be polymorphisms of the SXR alleles that lead
to an unstable regulatory system, one that is more likely
to "lock up" in some sort of state in which these enzymes
are not promoted.
About your comment with regard to abusive people taking
advantage of people with MCS, I find it particularly
repulsive that the distributors for the Neways multi-level
marketing network try to exploit MCS people where ever
they can find them, including in this discussion forum.
I wish the management here would be more aggressive about
deleting messages from people trying to snare customers
for their MLM.
Mark Thorson
USA - Sunday, August 29, 2004 at 17:52:05 (GMT)
First of all, I agree with the possibility of what that study says, but the problem is many people develop mcs later in life--after a breakdown of their body systems. I was fine until many things occurred to me which affected my body tremendously, and the end result was mcs. Prior to that, I could tolerate any chemical without a problem. I'm not sure if that metabolizing gene study has to do with a breakdown due to being more genetically prone or what. Secondly, I would like to know if anyone has any information on how people with MCS can receive financial or emotional support. The problem with MCS is that this is an illness, where abusive people can take advantage of you, and unfortunately, we live in a cold and evil world and many people do take advantage of people with mcs. I have been taken advantage of by many people including my family. People become bullies, very mean, and abusive, and will purposely use chemicals or other things to sabotage or make a person's health worse. It's a very cruel and terrible thing to do, but the unfortunate thing is, many many people do it, heartlessly and without shame. They feel they have the right to abuse people with MCS, for unfounded and sick reasons, and this makes the person's health so much worse and prevents them from getting better. My health was made worse by my own family member, and I became housebound after that due to their abuse and negligence. Do people with MCS have rights in these kinds of situations? If people are using everyday household products around a 'sick' person, it doesn't seem like something you could report anywhere because no one would care, believe you, or consider it abuse since they are common everyday household products tolerated by everyone. I find it appalling and atrocious that people can get away with this kind of abuse towards people with mcs. All I have to say is that it is a very difficult and frightening world with this terrible illness, and people not only make it worse for you, they intentionally assault your health and prevent you from getting better, which only continues this terrible cycle. If anyone knows where a person can receive help--financial or emotional regarding mcs, or any advocacy groups that are helpful, please let me know. I've tried contacting many groups and received no response from them either, and called one (CIIN) and had to deal with a very rude and abrasive woman. Even advocacy groups are mean and rude to people with mcs, so there is nowhere to turn to, and it's very difficult.. thx...
alison
city, st USA - Sunday, August 29, 2004 at 14:10:35 (GMT)
I love your site! I lost my dog "mindy" two years ago and i am still greiving for her. i lost her at when i was 13,and i am now 15 and i still cry every once and a while. i look at the poems that might help me, but it makes it worse.
stephanieavery
blytheville, ark USA - Sunday, August 29, 2004 at 01:53:35 (GMT)
I've got the McKeown-Eyssen, et al. paper and read it,
and I'm not very impressed.
Before going further, I should explain two key concepts
you need to know in order to understand this paper.
An ALLELE is the particular form of a gene a person has.
For example, there's a gene for eye color, and if you have
blue eyes, you have the blue allele. Because humans have
a double set of genes (one from each parent), you actually
have two eye-color alleles, and because blue is recessive
both alleles must be blue for you to have blue eyes.
If you have two brown alleles or one brown allele and one
blue allele, then you have brown eyes.
A POLYMORPHISM refers to the fact that some genes have
more than one allele, as in the case of the gene for eye
color. If there were no eye color polymorphisms, we'd
all have the same eye color.
This paper studied the polymorphisms which occur in the
alleles for certain toxin-metabolizing enzymes, comparing
MCS cases against controls (non-MCS people). They only
found significant differences between these two groups
in the alleles for two enzymes: CYP2D6 and NAT-2.
Although they had a fairly large total number of people in
the study population, some of the alleles (and combinations
of alleles) were represented by fairly small numbers of
people, sometimes only 1 or 2. The authors caution about
drawing conclusions from such small numbers. Certainly
looking at the raw data, the association with MCS is not
obvious -- a statistical analysis has to be applied to
tell you whether the data is significant or not. The
authors note that the association with NAT-2 is only
marginally significant.
What is most surprising about the results claimed in this
paper is that for both CYP2D6 and NAT-2, the effect is
the opposite of what one would expect. The most common
CYP2D6 allele is the active form, the other three CYP2D6
alleles in this study being inactive forms. (If you have
one active allele and one inactive allele, you have
intermediate CYP2D6 activity.) The strongest association
for MCS is having both alleles in their active form.
Because CYP2D6 destroys toxins, one would expect having
both alleles active would place you at the least risk
for MCS, and having both alleles inactive would place you
at greatest risk. But that's exactly the opposite of
what they found.
The same situation occurs with NAT-2. There were four
NAT-2 alleles in this study, one rapid form and three
slow forms. Again, you would expect having two alleles
of the rapid form would mean your body could efficiently
handle toxins, and having one or two copies of the slow
form would impair that ability. But, the association
with MCS is greatest with having two copies of the
rapid form.
What's going on? I should emphasize that number of
people in the categories of genetic polymorphisms
in this study were often quite small. I don't think
any conclusions should be drawn from this study alone,
though it may be worth keeping in the back of the mind,
just in case future studies report the same relationship.
I like the fact that they looked at genetic polymorphisms
for toxin-metabolizing enzymes, but in my opinion they
looked at the wrong ones. They should have looked at the
main enzymes P-glycoprotein and CYP3A4, and more importantly
the common regulatory mechanisms shared by these enzymes,
in particular the steroid and xenobiotic receptor (SXR),
the constitutive androstane receptor (CAR), the farnesoid X
receptor (FXR), and their auxiliary molecules, the retinoid
X receptor (RXR), the small heterodimer partner (SHP),
and the steroid receptor coactivators (SRC-1, SRC-2, and
SRC-3). I would find it much more plausible that MCS
could be caused by a defective allele for one of these
molecules than any of the ones in the study. Gene assays
don't exist for all of these, but there is one for SXR,
and that's the first place I'd look. No doubt about it,
SXR is at the top of my list of suspects.
Mark Thorson
USA - Saturday, August 28, 2004 at 03:16:38 (GMT)
your work is excellent. Thank you so much for providing information Hello,
I am a customer and a business builder of a company who offers non toxic products. I am looking to expand my business so I can continue to grow and quit my full time job to spend more time with my daughter while being able to pay my bills! =) I am looking for any way to obtain leads for people who really are concerned about their Health and Wellness and the chemicals in their home. If anyone has any websites or additional information as to where would be a good place to chat or get more people involved I would appreciate it. Thank you for your time. Good Health To You,
Beth Zavadis
Email: I_live_well@yahoo.com
Phone: 815-521-1714
Beth Zavadis
Minooka, IL USA - Wednesday, August 25, 2004 at 17:26:28 (GMT)
I know your pain of losing your baby Dusty. The song is just so beautiful my tears won't stop. I lost my Tammy over 4 years ago I miss her every day. If you ever have time I would like to invite you to her site www.mytammy.co.uk
Thank you for creating the wonderful song.
With best wishes
Jannet
UK - Monday, August 23, 2004 at 22:54:38 (GMT)
Here is the abstract from a very recent paper claiming
to have found statistically significant differences in
genetic polymorphisms of toxin-metabolizing enzymes
between MCS patients and controls. Until I get the paper,
I can't say much about it, but this could be the first
hard evidence toward establishing a physiological
basis for MCS -- the existence of alleles (individual
variations in genes) which impair a person's ability
to metabolize toxins. It seems odd that this association
would have been identified in relatively minor enzymes
like CYP2D6. If I were looking for a genetic variation
in toxin-metabolizing enzymes, I would look first at the
major toxin-metabolizing pathways mediated by P-gp and
CYP3A4, or even more likely the transcriptional regulatory
mechanisms for these enzymes mediated by nuclear receptors
SXR and CAR. What were these people thinking? Why did
they choose to study the genetics of these minor, obscure
enzymes, rather than the 800-pound gorillas? I'm sure I'll
have further comment once I see the paper.
Int J Epidemiol. 2004 Jul 15 [Epub ahead of print]
Case-control study of genotypes in multiple chemical
sensitivity: CYP2D6, NAT1, NAT2, PON1, PON2 and MTHFR.
McKeown-Eyssen G, Baines C, Cole DE, Riley N, Tyndale RF,
Marshall L, Jazmaji V.
Department of Public Health Sciences, University of Toronto,
Toronto; Department of Nutritional Sciences, University of
Toronto, Toronto.
BACKGROUND: Impaired metabolism of toxic chemicals is a
postulated mechanism underlying multiple chemical
sensitivity (MCS). Because genetic variation alters
the rate of chemical metabolism, this study was designed
to determine if MCS cases differed from controls for genetic
polymorphisms in drug-metabolizing enzymes.
METHODS: Female Caucasian participants (203 cases and
162 controls) were drawn from a larger case-control study
based on a reproducible and validated case definition.
Common polymorphisms for CYP2D6, NAT1, NAT2, PON1, and PON2
were genotyped. RESULTS: Comparing cases and controls,
significant differences were found in genotype distributions
for CYP2D6 (P = 0.02) and NAT2 (P = 0.03). Compared
with the referent homozygous inactive (CYP2D6) or slow (NAT2)
metabolizers, the odds for being CYP2D6 homozygous active
(OR = 3.36, P = 0.01) and NAT2 rapid (OR = 4.14, P = 0.01)
were significantly higher in cases than controls. The odds
for being heterozygous for PON1-55 (OR = 2.05, P = 0.04)
and PON1-192 (OR = 1.57, P = 0.04) were also significantly
higher in cases.
CONCLUSIONS: A genetic predisposition for MCS may involve
altered biotransformation of environmental chemicals. The
CYP2D6 enzyme activates and inactivates toxins; the NAT2
enzyme bioactivates arylamines to protein-binding metabolites.
A gene-gene interaction between CYP2D6 and NAT2 suggested
that rapid metabolism for both enzymes may confer substantially
elevated risk (OR = 18.7, P = 0.002). Our finding parallels
others' observation of a link between PON1 heterozygosity
and neurological symptoms in Gulf War syndrome. This first
demonstration of genetic variation in drug-metabolizing
enzymes in association with MCS requires replication. However,
it suggests new research directions on genetically variable
toxin pathways that might be important in MCS.
Mark Thorson
USA - Saturday, August 21, 2004 at 23:17:05 (GMT)
Thank you!!!!! Thank you for taking the time to put together this website and confort people like myself, suffering from the loss of a beloved pet. Thank you for sharing your faith with me, the scripture passages have been the only ones to bring some consolation after this hard and unexpected sad day. Thank you for sharing every detail of your experience, specially of the last moments with Dusty, it is helping to heal my aching soul as I can relate and understand better how and why things happen when you put your friend to sleep. Your love for Dusty also reached my heart and I again thank you for it. MAy God bless you,
Lylian
Sabbie rested on Monday, August 16, 2004
My preciuos, beloved, careful, considerate little doggie.
Lylian Munoz
indio, ca USA - Tuesday, August 17, 2004 at 07:50:35 (GMT)
I was wondering if u could find me a midi i have been looking for along time for. Its called Spanish Carivan by George Winston.
Thanx
zoops
E.L., Mass USA - Wednesday, August 11, 2004 at 22:34:50 (GMT)
Tis website is veri veri good...Its can helps us understand God better n can let those whichare not Christian to be Christian...
Jane
Singapore - Tuesday, August 03, 2004 at 08:29:37 (GMT)
There is also more we can do. Our society and planet is being poisoned by these chemicals and slowly more and more people are becoming affected by MCS and many other related illnesses. People with MCS need to go out in the community and educate people on the dangers of chemicals and what industrialization and this kind of living is doing to animals, humans, and the environment. People are destroying this precious planet and many are ignorant that the chemicals they're doing are so dangerous and hazardous, and even if they find out they don't care. People with MCS deserve to be protected and helped instead of harassed. This is a very terrible illness, and it's being ignored, and people with it are being treated as if they're crazy or want attention, instead of being given the help and support they so desperately need and deserve. This is a different illness because outsiders can affect a person's health and most of the time people do. Ignoring the reality of MCS is a huge problem in this ignorant society, and we can't just sit back and let it happen. If anyone has any ideas about how to educate others and try to get more research done about this illness, do something about it. Form a group or coalition, not just on the internet but in your community and city. Let your voice be heard, educate people about this illness. It will not go away, only more and more people will be affected by it, only to be ignored and ridiculed the way same many are. This is not justice, and this is not how a civil society works. Everyone with MCS should try to do what they can to tell others about this illness, and to gain support for it. This is a huge problem in this society and something needs to be done about it...
Jenny
miami, FL USA - Thursday, July 29, 2004 at 04:48:49 (GMT)
Your tribute to Dusty is so profoundly moving. I was glued
to my computer screen. I cried a river of tears. I, too,
am facing the loss of my dog who has been in my family for
12 years. I am wondering how it is going to be, I am so
feeling sad about it all. I share in your pain. There are
those who would call us crazy because they don't understand
or don't have the capacity to love like we do. I know you
will never forget Dusty as I will also never forget my Sally
(that's my dog's name). And I will never forget this lovely
tribute I have read today. Thank you so much for writing it.
Love,
Mary
Mary Ratcliff
Anmoore, WV USA - Sunday, July 25, 2004 at 02:09:13 (GMT)
Help! Two months ago I bought a second-hand Automatic bed (as I have a broken pelvis ) and the guy who sold it to me thought he was doing me a favour by generously spraying the mattress with Febreeze. I am unable to sleep in it , as I was choking for breath and had a splitting headache, in fact I cannot even go into the room where the bed is....so much for comfort ! Please, can anyone advise me of how long it takes for the effects of this product to vanish. Or can you advise me of something else I can use to make it go away.? I have tried vapourising with Lavender essential oil in water, but that does not do the trick. The room is well ventilated with the window open to allow this horrible thing to 'off-gas'. Must say I am really annoyed that someone would take it upon themselves to do such a thing without asking first if I would like that.
Thanks for reading this.....
Roisin Russell
Bantry, Ireland - Saturday, July 24, 2004 at 10:32:50 (GMT)
Living in a rural agricultural area, within walking distance of where I work are four
grain mills, various chemical application companies. Living in a rural area on 22 acres
should be considered wonderful, but I have to be careful when the crop service trucks are circling!
For 30 years I have been treated with anti anxiety medications. I began to email a woman on a regular
basis five years ago and realized after keeping her emails that my symptoms of panic were virtually non existant
during the winter months. I always thought of my problem as being seasonal, as far back as 1974 I can remember asking
the psychiatrist I had been referred to as why is it that it only happens during certain times of the year.
I could go on and on. I had given up on locating a physician who might have the slightest interest in chemical sensitivity.
I have a good doctor, but when I went to him with my latest episode he said it is very difficult to determine chemical sensitivity, even tho I have two verified instances where chemical applications containing 2-4D in the area I was created the same physical distress, he recommended that I be put back on paxil, or prosac...
Talk about depressing. Yet, this site has helped me tremendously to believe in myself. Depressed yes I am from time to time. Depressed when I find that I can't breathe, I can't think, I have no muscle strength when just a few minutes ago I was *normal*. Panic, yes I have panic, when you drive down a road and become naseous and disorientated. I drive with my air conditioner on the majority of the time now a days.
Most times I no longer panic when out of the blue I am suddenly ill, I know it will pass in time and so far I haven't died. I do the things I know will bring me relief. I drink lots of bottled water, I breath filtered air till I feel better. It is difficult to make it through summer months, but I do. Rambling ... when all I wanted to say was YES I know what you are talking about!
Hazel
KS USA - Friday, July 23, 2004 at 21:01:17 (GMT)
After using Lindane on my son repeatedly for headlice he developed eye blinking, unusual movements and sounds.
He was diagnosed with Tourettes syndrome after his symptoms persisted over a year.
I've done alot of reading on Lindane and see there is a connection with Lindane and Parkinson's Disease.
Seeing as these are both movement disorders why are there no studies on the relationship between Lindane and Tourettes?
Pamela
NY USA - Wednesday, July 21, 2004 at 04:42:51 (GMT)
I have read and cried my eyes out over Dusty,what a beautiful tribute the two of you did for him.I am grandma to a very special little dog that was put to sleep on Sunday July the 18th,she had cancer,and our daughter who was her mom for almost 13 years,is grieving her heart out for her,and worse of all second guessing having put her to sleep,she feels she could have doen more for her,I know for sure that she did every thing possiable for that baby,I had no idea loosing a pet could be so painful for a person.I know how I feel,as I was the only baby sitter she ever had,so I know my daughter is in so much pain.I read all about Dusty and then passed it on to her,I hope that in reading it she will finally know she did what was right for Deogee.
Her Email address is Deogee7@aol.com,if you have any suggestions to give her on how to cope,and since Dusty has been gone for a while,maybe let her know how long she will feel this guilt,please feel free to either send it to me or to her address,I am not sure if she has hers blocked or not,if so send to Cappysue@aol.com and I will forward on to her.
Thank you,and God Bless both of you.
C Pierce
Cathy Pierce
Ruckersville, Va USA - Tuesday, July 20, 2004 at 16:33:37 (GMT)
Anyway, you had the detox baths that I needed for my son, who is experiencing some problems with patchy facial hair loss I believe to be due to possible skin contact when he sprayed for an infestation of mosquitoes this summer.
I have a couple that you may or may not be interested in adding to the list. I am a reflexologist, and these were shared with me by my mentor.
HEAVY METAL DETOX - 1/4 cup of Clorox to a tub of water. Soak for 20 minutes; then bathe thoroughly. While you should never use bleach to wash your clothes, as the skin will absorb the chemicals into the system, when diluted, clorox will safely detox the system.
PH BALANCE DETOX - Squeeze the juice of 1/2 of a lemon into a tub of water, then throw the lemon rind into the water. Soak for 20 minutes; then bathe. This detox is extremely refreshing.
Thank you again for your site.
Healthfully,
Cheryl Scott
Cheryl Scott
Niles, Oh USA - Tuesday, July 20, 2004 at 16:07:21 (GMT)
I have been chemically-sensitive for the past 30+ years. I am now living in Nova Scotia, one of the cleanest-air places I could find in Canada and have achieved significant recovery from my illnesses. I also suffer from Chronic Fatigue Syndrome and Fibromyalgia, both of which often affect persons with chemical sensitivities. Other linked conditions include Lupus and similar immmune system disorders. The Environmental Health Centre here in Nova Scotia is an excellent resource which I use a lot. I go for different types of body work and therapy and their website contains a significant amount of good information. Their URL is http://www.nsehc.com/. Another good resource is immunesupport.com at http://www.immunesupport.com/. In our household we use only Nature Clean, Simply Clean or Atmosphere (body) products or baking soda, borax and lemons. We can create a healthier world but it sure is hard working against all the advertisers who want to tell people they smell bad so have to use highly scented products. One of the scariest 'tips' I was sent by e-mail recently was to rub a "Bounce" dryer sheet over yourself or your child to repel mosquitos. Well it might repel mosquitos, but it might also kill your child! I don't know why people don't stop to think what is in these products. Even the scent of a dryer sheet wafting to me from someone's house as I walk down a street makes me ill. Still, I have the good fortune to live in the countryside and as much as my daughter dislikes the smell of manure, we have good clean food (I can buy free range and organic from source) and there are becoming more and more like-minded people I consider myself lucky since I can avoid the 'scented' world. I welcome e-mail from anyone who wants to chat about this all-too common problem (and it's on the increase) and what we can do to help ourselves.
Blessings,
Hilary
Hilary
Canning, NS Canada - Monday, July 19, 2004 at 21:34:16 (GMT)
thanks. great site. I was looking for products to build with that had no chemicals...very few. Anyway, to Kate White: next time one of jehovah's Witnesses comes by...invite them in.
Brenda Morris
Wallace, Id USA - Sunday, July 18, 2004 at 23:41:06 (GMT)
My daughter is suffering from "multiple cerebral cysticercosis" for the last 28 years and she is totally dependent on anti-convulsants at high doses. She is highly educated and very intelligent. Despite taking anti-epileptic medicines regularly, she gets epileptic attacks once in 30-45 days with flashes in eyes, headache, blurred eye vision, tremors, sometimes violent attacks and at times mild attacks. She is now 35 years old. I have immense faith in homoepathy as an alternative medicine. But, unfortunately, unless the attending doctor takes special care/interest taking it as a challenge with devotion and dedication, it is not possible to find out a correct remedy--specific medicine with the right potency. In our country, it is sad to state that the doctors are money minded and lack interest in treating such patients with a chronic disease. Another disturbing factor is that the homoepathic physicians here in this country insist that we should stop giving allopathic medicines before he actually commences treatment which is fraught with danger and disaster. Therefore, I am interested to give her proper treatment in Germany or in some other advanced country with generous financial assistance from a charitable trust/donor or a free medical hospital. Whether any one shall come forward to help her to solve her problem on a permanent basis. We are pure vegetarians yet she has got this infection when she was hardly 7 years old. These countless cysts have become lesions/scars on the brain surface. Something tells me that there might be some permanent cure to her for this type of epilepsy. We belong to lower middle class community and can't afford treatment abroad. It is an unending suffering and we want her complete recovery without withdrawing the allopathic medicines--carbamezapine and eptoin endangering her life until such time that she gains the necessary confidence that the homoepathic medicine is working and then we can think of slowly tappering the doses of allopathic medicines over a period of time. Any good samaritan who can come to her rescue? Early diagnosis could not be done as the first CAT SCAN came to this country only in April, 1978 as a gift from SIDA installed at the AIIMS; New Delhi. Only carotid angiogram, pneumo-encephalogram and brain X-rays carried out and NAD. When Catscan was donein the year 1978, it was confirmed as cerebral neurocysticercosis (diffused) and by then it was too late. If there is any forewarning and indications of impending attack, 'Diazipam' is administered to her intravenous to avoid severe attack and the same is repeated if the condition persists putting her to heavy sedation with its inevitable side effects. Any philanthropic organisation which can assist her under the circumstances as to "serve man is to serve God"?
Mrs s. vijayalakshmi
Hyderabad-500034, Andhra Pradesh India - Sunday, July 18, 2004 at 07:17:09 (GMT)
Just lost our Thunder Boy. He and his Sister lived with us for 10.5 years. Sister, Kodi, is doing fine,sort of; but "T-Bone" has been called to The Rainbow Bridge. We miss him very much. Your site has helped me get through a 'down' moment, especially the page with the 'Comfort for those who mourn' page. Going to book mark it so I can visit it again, if and when it's needed.
Thank You
Thunder Mom
USA - Thursday, July 15, 2004 at 22:51:10 (GMT)
Prof.Dr.Dr. F. Boudaghi
TEHERAN
IRAN
PARS UNIVERSITY
TEHERAN, TEHERAN IRAN - Sunday, July 11, 2004 at 19:55:40 (GMT)
My mom had many of the symptoms described on this site. She had severe allergic-type reactions to perfumes, cleaning supplies, soaps, etc. At times, when exposed to these triggers, she would experience a severe increase in blood pressure (240/140 and higher) as well as intense itching and asthma. Her blood pressure would return to normal (and the itching and asthma would abate) only after a high intravenous dosage of an antihistamine such as Benadryl. Blood pressure meds would not help at all and would sometimes cause it to go higher.
After many years of this and more doctors than I care to remember telling her that it was "all in her head" and that chemical sensitivity didn't really exist, she found a doctor at Duke who diagnosed her with Mastocytosis, a rare disease that affects the production of mast cells produced by the body. It manifests itself in innumerable ways, including, but certainly not limited to, skin rashes and severe asthma. It can be triggered by perfumes and cleaners but also odd things like the smell of burning popcorn or the taste of Pepsi (even when previous exposure to these same things caused no response). This doctor helped her successfully manage the Mastocytosis (it can't be cured) and improved the quality of her life beyond description.
My mom was lucky. Mastocytosis is so rare; it is barely covered in medical school. Ive found, unfortunately, that a lot of doctors feel that because they have never heard of a disease, the patient cant possibly have it (even when given the name of the disease and presented with case studies). One cardiologist told me that if he hadnt heard of it, it couldnt be a big deal and he wasnt going to waste his time reading about something so trivial. I then explained to him that I didnt feel that it was a big deal that my hands were around his throat and I wasnt going to do something as trivial as removing them. He later said that I needed psychiatric treatment, just like my mother did . . . but he said it in a raspy, squeaky, high-pitched voice.
Anyway, Im certainly not telling anyone here that you have this disease. Because its so rare, 99 out of 100 doctors have never heard of it, so I just thought that some of you might find this information helpful. It would have saved my mother years of trauma had someone said to her, "Gee, your symptoms sound familiar"
Lynette Thompson
Raleigh, NC USA - Sunday, July 11, 2004 at 06:56:26 (GMT)
I was going to recommend this government-operated
search engine for chemicals in household products:
http://householdproducts.nlm.nih.gov/index.htm
But after trying out a few searches, something seems
to be wrong here. I get very few hits. For example,
ionone is a commonly used fragrance, but it gets zero
hits. Simethicone is a widely used silicone oligomer
(low molecular-weight polymer) which gets about a
page of hits, but it should be a much longer list.
I suspect the database is very small or incomplete.
Or it could be a software problem.
It may be worth checking in now and then to see
if it improves. Maybe writing your congressperson
could get some action. It sure would be nice
if there was a comprehensive database on household
products, cosmetics, and food. That would only cost
a few hundred thousand dollars to create and maintain,
and it would be far more valuable to the average
citizen than the next space shuttle mission.
Mark Thorson
USA - Sunday, July 11, 2004 at 02:02:45 (GMT)
I find it so hard to find support and information from doctors/society in general on this condition. am thankful for the iinet and sites such as these
kathy
Perth, WA Australia - Saturday, July 10, 2004 at 09:47:55 (GMT)
Jacki and Gordon... Good to have checked your site after many years. Jacki please send me your e-mail so we can catch up. Lindsay
Lindsay Van Sicklen
Arkadelphia, AR USA - Friday, June 18, 2004 at 19:52:38 (GMT)
I have this illness for two years now. I cant go to church or stores and people dont understand when I tell them about my breathing problem . I cant be in the house when my wife cooks bacon or uses hair spray, nail polish and many other products. ive lost most of my friends and my wife doesnt seem to understand how these things affect me. thanks Logan Bynum
Logan Bynum
Tucson, Az USA - Tuesday, June 15, 2004 at 21:00:28 (GMT)
A listing of fragrance-free places at www.nontoxic.com/nontoxic/fragrancefree
eve
USA - Sunday, June 13, 2004 at 07:49:34 (GMT)
I developed occupational asthma from chronic exposure to fragrances in a very prestigous hospital in Massachusetts where I am employed full time. I had to jump through hoops to get a HEPA filter installed at my desk because my workplace does not have Fragrace Free Policy (our partner hospital Brigham and Women's hospital does. Even cancer patients who are immunosupressed must endure the ill effects of fragrances worn by their caregivers!!!! I am astonished that the hospital I work at will not take this issue seriously and I've been told to keep my mouth shut and just endure my symptoms!!!! I'm relieved to know that I am not alone!!! Thanks to you all for your postings! LMS
L Shaver
Boston , MA USA - Friday, June 04, 2004 at 17:18:14 (GMT)
I stumbled over your site whilst doing a search on air fresheners and health. I found your information most helpful. Thanks.
Hilary Dyer
UK - Thursday, June 03, 2004 at 20:22:11 (GMT)
Loved the web page.full of good info! I haven't been in Fl. very long and I'm wanting to move back to MN..as soon as I can! I'm braking out on my face.....I'm wondering about black mold......?? What do you think? I dont feel at all like I used too, I feel so lazy.....so does my husband. We are both disabled.it hard for us to move and pack all of our things but we are trying. Have a place in Mn. it's just getting there.....Blessings Geri
geri
ft.walton, fl USA - Thursday, June 03, 2004 at 18:50:55 (GMT)
Thank you so much for all the good MCS info on your site. Had I found you before I started noscents.org, I might have not started it.. but we need all the help we can get in stopping "perfume pollution"
Thank you, again
David Sparks, founder noscents.org
David Sparks
Wheat Ridge, CO USA - Wednesday, June 02, 2004 at 21:53:28 (GMT)
I lost my beloved dog Abby some 7 mths ago, I am a registered nurse and a qualified counsellor. I never knew the pain I would feel after 17 years of love. I lost my eldest and only son as a 5mth old baby and this pain is the same. I am starting a counselling practice for people who have lost pets, so found your page on the internet thank you for all you have put so lovingly onto the net, and for your scipture readings
kathy box
Duncraig, WA Western Australia - Sunday, May 30, 2004 at 04:24:55 (GMT)
This message is for Kathy White who is having trouble coping with her husband's death...read the book by Dr Joyce Brothers, WIDOWED..& look for a Widowed Person's Support (WPS) group sponsored by AARP..it usually is in the phone book...you will find comfort in a support group for widowed persons...I know first hand..If you post your email, I will reply to you...
Vicky
USA - Wednesday, May 26, 2004 at 21:46:27 (GMT)
Hello, my name is Kathy, I need help???? My husband passed away 3 yrs ago. I am still having problems coping with it. We were married 31yrs. I need help. Sometimes I can't go on. I do not want to go on. Please can you help me???? I am at the end of my rope. My husband was 50yrs. old when he passed away,leaving me alone at at a young age. we had planned to grow old together. Now I am alone on this lonely earth. Please,please can you help me can you tell me what church will help me I have tried several I felt Like a stranger in them they did not make me fel at home.Please can you help me. Thank you Kathy white
Kathy White
Slidell, la USA - Saturday, May 15, 2004 at 04:24:39 (GMT)
I read about your baby and I laughed some and cried some because I just lost my kitty of almost 14 years on Sunday May 9,2004.I'm not sure why she died and that is killing me. Maybe I can go on and start to think of all the good times we had because she was loved like your baby and she knew it.Thank you for this site so we can maybe learn to go on. I get up every morning and wait for her to could to the bed and when she doesn't and I remember, my heart gets so big I think I will die.Night time is so hard for me because sometimes she would come in the bedroom and lay next to me and put one paw on my chest.
Thanks again for this site I'm sure it wil began to help me and others.
Love
Edith
Edith Ossowski
Baker, La. USA - Friday, May 14, 2004 at 15:09:35 (GMT)
I am glad there is a resource to send to my daughter's grandmother who chooses to use fabric softeners and scented laundry detergent. I am worried about my newborn's exposure. Thanks for the links!
Val
South Bend, IN USA - Friday, May 14, 2004 at 14:30:16 (GMT)
Mumu my friends call me, Please keep up the good work this is a great site to those on the web.
Aba Guyman
LA, CA USA - Tuesday, May 11, 2004 at 20:42:54 (GMT)
This site a great discovery. New to the Internet! Very
"youthful" 53-year-old man contending with limitations from
MCS seeks similar others interested in making new connections. Very much attracted to the natural environment. Love animals, too==especially dogs. Health and nutrition oriented. naturequest51@yahoo.com
denis
Los Angeles , Ca. USA - Monday, May 10, 2004 at 20:33:58 (GMT)
Today I saw segment on Extra Tv. The National Resource Defense Counsel(NRDC), an environmental group, had event in Hollywood and the after party was sponsored by Ralph Lauren fragrances. Are they ignorant? What a betrayal to the environment and the environmentally ill. I'm so angry.
Liz
USA - Saturday, May 08, 2004 at 06:43:04 (GMT)
This is an excellent site! I could respond to many of the posts in the visitor's remarks section, but am currently away from home base. I do wish to suggest people check out the website of my organization, Toxics Information Project (TIP) at www.toxicsinfo.org (We are a non-profit, 501C3 - this is not a commercial site). We have about 90 informational handouts, most available there.
Blessings,
Liberty G
Liberty Goodwin
Providence, RI USA - Thursday, May 06, 2004 at 14:47:11 (GMT)
GREAT site! I love it!
Dr. Mark Hoppus
USA - Wednesday, April 28, 2004 at 11:02:54 (GMT)
Hi, me again. I should have mentioned. I am one of those affected by perfumes. I get terrible headaches from them. I thought it was an allergy to flowers but now I know different. Thanks!
Diane
Darlington, SC USA - Tuesday, April 27, 2004 at 18:11:33 (GMT)
Thank You for listing all the "toxic" and "non-toxic" information.
Diane
Darlington, SC USA - Tuesday, April 27, 2004 at 18:07:46 (GMT)
Hi
I am so pleased to find this site. I have recently become sensitive to fragrences/chemicals. Deodorants and air freshners affect my eyes, nose and throat, the fumes from glue made my eyes feel like they were on fire, and smoke fumes make my eyes sting and water. It is the best to happen for my little dog, however, because I stopped using the hairspray. We noticed she started yapping when I put on the hairspray just before taking her for a walk and thought that she was connecting the hairspray to her walkies time but after reading about hairspray and pets on here I realize that the hairspray was getting up her nose. So
jen howells
Eastbourne, UK - Friday, April 23, 2004 at 14:18:30 (GMT)
I love your web site You have alot of sipfaly for those who lost thier pets. also i have perfure comanys that teat THRE STUPIED PERFUMES ON INOCENT ANIMALS BUT I DO LIKE THE ONES THAT SAY NOT TESED ON ANIMALS I ONLY THOSE KIND OF PERFUMES SO YOU ALL CAN FOGET ME WAERING YOUR PERFUMES THODSE ANIMALS DID NOTHING WTRONG SO KISS OFF I 13 AND BEEN AN ANIMAL LOVE FOR YRS IT SHOULD BE THE LAW NOT TO TEST TOXIXS ON ANIMALS
Catherine
Sandusky, Ohio USA - Thursday, April 22, 2004 at 15:52:07 (GMT)
Jacki - Thanks for sharing your story. My sister recently passed away from severe asthma, cfs, and fibromyalgyia. I didn't learn of multiple chemical sensitivity, until my friend was diagnosed with it I now think my sister suffered from it. At any rate, Thanks so much for trying to make people aware of this disease. I inquired about MCS because my friend has such a challenge living from day to day. -Florence
Florence Bex
Puyallup, WA USA - Wednesday, April 21, 2004 at 06:30:35 (GMT)
for others about MCS, and giving people's stories. I would like to submit my story if possible. I have mcs and am being harassed by a neighborhood of people because I stay inside my house and can't leave my house for now. They've been harassing and bullying me for months now, because they are just very evil, and sick people, and the police do nothing about them. they trespass on my property, touch my property and do horrible things. They think they can do these things to people just because they have health problems. I can't believe behavior like this is allowed to go on in a 'civil' society that is monitored by police officers who are corrupt themselves. I don't know what to do about this situation and am trying hard to find out more information about citizen's rights, and corrupt police. If anyone has any information on this please email me, any advice or help would be appreciated.
rachel
oviedo, fl USA - Friday, April 16, 2004 at 02:48:11 (GMT)
Hi,
Your web page is excellent. Please continue the good work.
Try and add on some sites that truly inform about how to obtain social security benefits for MCS. I have been disable for a year and a half, My doctor says I'm disabled, but I can't get SSA to forward my son and myself benefits. We have lost everything we had, and I am an only parent.
Thanks,
God Bless
Safeena Barrish
JOHNSON CITY, TN USA - Thursday, April 15, 2004 at 23:58:36 (GMT)
This is a great site, thank you very much
H. Stern
Las Vegas, NV USA - Thursday, April 15, 2004 at 23:11:17 (GMT)
Great website it will help me with my school project, thanks a bundle!
Larry
Canada - Monday, April 12, 2004 at 19:25:23 (GMT)
The full article reporting the results of the Gibson
survey on reported efficacy of alternative medicine
(and conventional treatment) for MCS is available
on-line here as a PDF file:
http://ehp.niehs.nih.gov/members/2003/5936/5936.pdf
Or here in HTML:
http://ehp.niehs.nih.gov/members/2003/5936/5936.html
There's lots of other good articles on MCS at this
web site available for free downloading. It's a
journal which publishes U.S. Government-supported
research. Click on the SEARCH or ADVANCED SEARCH
buttons in the upper left corner (of the HTML version
of the article) to search for articles on MCS.
Mark Thorson
USA - Friday, April 09, 2004 at 07:52:09 (GMT)
Very touching website. Brings a tear to my eye. Thanks for sharing this experience.
Rim Feltcher
Dubay, UAE - Thursday, April 08, 2004 at 17:25:07 (GMT)
Wow. It must be a nightmare for you, going through life alergic to all chemicals. How do you cope? You must be very brave living with it all the time. At least your faith's helping you through. I guess that's something.
Lewis Screwtape
KY USA - Wednesday, April 07, 2004 at 15:17:29 (GMT)
i think this is a very useful site. good work!
jack
USA - Wednesday, April 07, 2004 at 13:38:10 (GMT)
I too lost a dog named Dusty. It has only been 4 months since I laid him to rest. When I heard your song I cried so hard. I miss my baby just like you do. I would love to get another small baby. One that goes no more then 20 lbs when fullgrown. But in my area you have to be rich to buy one like that. So I keep on looking. No one can replace my Dusty. But I'm sure there is a puupy out there who will help me mend my broken heart. God Bless you and your family. MJ
MJ
PA USA - Wednesday, April 07, 2004 at 12:45:05 (GMT)
of othjer faith but i enjoy your page all the same
ritchie@thethinkfactory.com
USA - Sunday, April 04, 2004 at 01:59:03 (GMT)
Your story of Dusty's life so touched me and the song you wrote for him was wonderful, though how you ever sing it goodness knows...
Love Lynda XX.
Lynda Kelly
Gosport, UK - Thursday, April 01, 2004 at 15:12:44 (GMT)
I loved you site. The people in America and around the world have no idea what all these chemicals are doing to them and their families. We need more more people like yourself to get the message out.
Joe Margolis Sr.
Joe Margolis Sr.
Lantana, Fl USA - Thursday, April 01, 2004 at 12:24:59 (GMT)
Hi Jakie Thank you for Mailing Me Your website I love To visit here You Site is wonderful God bless You & Your Family http://www.freewebs.com/johnwalk51/index.htm
John
John Walker
Manchester, UK - Wednesday, March 31, 2004 at 21:35:59 (GMT)
I read your poem, Remember me,It took by breath away, I cried, my life has changed from chemical/perfume alergies, I cannot believe how much it has effected so many others.
Eleanore
Fort McMurray, Canada - Sunday, March 28, 2004 at 18:18:10 (GMT)
The stupidest thing people could ever do is cover up one toxic odor with another. I was furious upon hearing that there are air fresheners out there to 'deaden' our sense of smell because I rely on my great sense of smell for protection to warn me when there's something in my environment I desire not to breathe into my bloodstream, such as cancer-causing chemicals, and diesel exhaust, and pestcides, and health harming scented products. Without my sense of smell I'd be breathing freely, and unintentionally harming my health. Many people do not understand why we can't breathe perfumes, etc. And I think it's total negligence and laziness on their part to cover it up with toxic masking fragrances, and 'trick' us into thinking it's not still in the air. One of the worse also is them 'beads' or 'bombs' they put in the vehicles today to cover up smoke smells ... I wouldn't be caught dead behind the wheel driving a vehicle with this junk in it. Once drove for a limousine company who used this scented junk in their vehicles and it gave me a severe pulsating headache with a sharp pain that lasted for 2 days afterwards, leaving me feeling 'hung over' on the 3rd. So you tell me just how powerful this stuff is. Looking at new cars I could smell the stuff standing a five feet away from the car even with it's windows up, that's how potent it is. And they say 'don't worry, it'll dissipate, but no, it never does, it's designed to last. The only reason why they think it dissipates is because after a while of breathing it's harsh odor, the olfactory nerves shut down and you lose your sense of smell. What idiots!
It's a shame more people don't get smart and wipe out these toxic chemicals we CAN live without from our environment. I hate being deprived of good health and a great sense of smell because others are smothering me in their toxic trash!
Debbie
NY USA - Sunday, March 28, 2004 at 13:36:33 (GMT)
I've spent a lot of time looking around your site. I arrived here through a pet loss link and am very touched by your loss of Dusty and Crystal. The Multiple Chemical Sensitivity pages are of great interest to me. I had to sell my house, have one of my cats put to sleep and give the other to my friend because of a severe reaction to something in the house. Doctors haven't helped me at all with trying to find the cause of the problem, but I'm very sure now that it's multiple chemical sensitivity - not nearly as severe as Jacki's, thank goodness. But it's affected my life tremendously. I'd like to know whether I could tolerate a hypoallergenic little dog such as a cockapoo. Please email me - Jacki, or anybody - if you have some ideas on this. Thanks so very much for sharing your story and your music. How beautiful.
Joy
AB Canada - Saturday, March 27, 2004 at 22:06:52 (GMT)
Bonjour;je découvre votre site qui est très très émouvant...We have old dogs and our Jéween(10 years) is very ill...no comment ,not hope...and Boy : 13 years in september 2...not easy...my passion: my dogs: http://www.collie-marialan.net
Poulain Marie
vittel, vosges France - Friday, March 26, 2004 at 13:54:54 (GMT)
I have more of a question than a remark. What causes a person to crave and eat all purpose flour? I will also mention that the flour is uncooked.
Jasmine
Dayton, oh USA - Friday, March 26, 2004 at 12:48:19 (GMT)
Hi keep up the good work - we run a Christian Detox Clinic in Derby, UK to help people. www.4healthandvitamins.com
Manjit Biant
Derby, UK - Sunday, March 21, 2004 at 10:26:41 (GMT)
I have noticed that many of the chemical-free beds on the market are made from or with latex. Yet, there are many websites dedicated to latex allergies and talking about people who have died from exposure to it. So, what is going on? Are we talking two different types of latex here? I understand that many types of latex have chemicals in them (and that may be causing part of the problem), but I've read that it's the protein in latex that is so allergenic and it seems like that would be present with or without any added chemicals. Can anyone explain this to me or point me to a source of information that might answer this question? I need to get a chemical free bed for my 6-year old son. The latex sounds good from many angles, but I don't want to make a mistake. Thanks,
Betsy
Betsy
Utah USA - Saturday, March 20, 2004 at 19:07:35 (GMT)
Congresswoman Jan Schakowsky (D-IL) HR1947-Safe Notification and Information for Fragrances Act (SNIFF)---ask your Congressperson to support
liz
oh USA - Monday, March 15, 2004 at 04:08:02 (GMT)
i think that they should put something about the dangers of mixing perfumes at home
anonymous
wisconsin, milwaukee USA - Thursday, March 11, 2004 at 15:44:55 (GMT)
Thanks for your words and your site - I feel
Richelle
Kirkland, IL USA - Wednesday, March 10, 2004 at 03:10:12 (GMT)
Hi Jackie - thank you so much for sharing your story with us and for giving some great tips on how to help ourselves. I had a very similar experience to you - I have experienced serious allergic reactions (from fainting and vomiting to hives covering almost my entire body and my hands, feet and mouth swelling up about 3 - 4x their normal size). The hives and swelling were caused by a Bounce sheet. In fact, I cannot even touch a Bounce sheet without having a serious reaction. The fainting results from some sort of chemical in drinks in restaurants I have dined in. Doesn't have to be an alcoholic beverage - maybe it is the bar-lime - a synthetic lime juice? Whatever it is I am too afraid to figure it out. I've come to the conclusion that the best thing for me to do is drink/eat/wear only natural and/or organic. Here are some things I have learned which are truly amazing. I had sweaty palms and feet since I was a teen. My feet were always cold. I switched to ORGANIC COFFEE and no longer experience any of those effects. Honestly. Also, I notice that you say you are not 100% better. For me, I notice that sugar brings me spiralling into the tiredness that you describe in your story. Have you changed your eating habits? I understand that many people are seriously intolerant to eggs. I have switched to natural shampoo and hair products, all of my skin care (see http://www.saje.ca/ - their products are incredible - you should SEE my skin!) also using a natural laundry soap and handsoap and everything that goes on to my skin is natural. I feel so much better now - no rashes - no crawling skin. I love to go to the Health Food Store to check out what is best for my body. We have a store called Capers which appears to be affiliated with Wild Oats - located in Florida. Have you gone there? I wish you and all of the others who check out this web site all the best as we learn what is causing our illness - and how to avoid illness for good!! Take care all
Karen
Vancouver, BC Canada - Tuesday, March 09, 2004 at 01:28:33 (GMT)
I quit smoking finally this past fall. It seems that right after that I started to become sensitive to chemicals, in particular cleaning products. When I complain about someone who just sprayed aerosol air freshner in the office or cleaned the bathroom with some product, they make fun of me. The building I work in is very old and has had water damage - hence there is mold in there. They are currently remodeling and ripping out most of that - in an area closed off to me. However, the new materials they are bringing in are probably just as bad for me. I may have to find another job!
My skin has always been sensitive, but now it seems to be even worse and I am searching for natural make-ups (I have an ivory,extremely pale complexion. I need a little help in adding slight color to my face or I look sick all the time.
Mostly my symptoms are headaches, flu-like feeling, low grade fever. I can't stand most scents from any cleanser, soap, shampoo, air freshener and so on. I have long used natural potpourri to frshen my home. We put various herbs in a pot with water and heat and it smells great! For economical purposes I have also always used things like vinegar, lemon and such for cleaning because I couldn't afford all the traditional products.
As well, I am using your tips for switching over to non-chemical cleansers, laundry products, etc. My husband and I might not be able to save the world, but we can help ourselves and the little piece of land we live on to be less toxic at least.
Your website has provided us with an vast amount of information. Thank you
Laurie
USA - Saturday, March 06, 2004 at 15:19:18 (GMT)
I understand...And it is good to read about others who understand also. This MCS came on slowly in 9/03 and then hit me hard 11/03 - my breathing is affected by smoke, perfume, some clothes, etc. I'm on this journey, searching for answers, asking for what I need and sometimes demanding it. And now I see I am not alone. I'm in the process of reading the candida connection. It's 3/04 and I think I've stopped hoping it will be gone every morning when I wake up. Thanks for your comments, it helps me to read them.
Brigette
Brigette Ogden
Mesa, AZ USA - Friday, March 05, 2004 at 19:09:19 (GMT)
I have never heard the term MCS until yesterday when I came across your website. I realized about a year ago that chemicals in perfumes, cleaners, soaps, inks, and many more were causing my extreme hives and skin problems. No one else I know has such extreme reactions to these. I have been trying to eliminate everything that does this. Now I have more information. Thanks!
Carrie
WA USA - Thursday, March 04, 2004 at 18:24:05 (GMT)
My father has been having some health problems with his stomach growing for some reason, the doctor said he would run some tests, and that it could be related ti his liver, i was wondering if it could be linked to this disease.
Sonya Mejia
Monett, MO USA - Tuesday, March 02, 2004 at 03:56:46 (GMT)
I am a friend of some who has been suffering from an undiagnosed illness that has been dibilitating to her and decided to do some research for her.(She does not have a puter.) I think you just answered a lot of questions. THANK YOU! Jeff
Jeffrey M. Smith
Copiagu, NY USA - Monday, February 16, 2004 at 20:56:43 (GMT)
Glad to see the "health effects of perfume" section expanded. There is new scientific research that chemical sensitivity is partly a result of damage to the "blood-brain barrier". And, this is why we experience low level toxicity. By the way, one person wrote about cutting her olfactory nerves. DON'T. Anything you inhale will still go into your brain(causing headaches) and travel through your oxygen/blood (bypassing a damaged blood-brain barrier)effecting your lungs, immune system and cns. Look up blood brain barrier! --Also, as described in "Making sense of sense" under statement perfume ingredients destroy nerve covering(pg2), new Washington State research is confirming the chemical solvents toluene, styene, etc that are used in paints and PERFUMES are linked to multiple schlorosis(sp?). Well, ms is damage to the mylin shealth nerve covering which toluene destroys. Would so many people wear so many scents if they knew it causes ms, especially minorities?
eve
USA - Sunday, February 15, 2004 at 07:49:25 (GMT)
I was wondering if anyone had a recipe for a "Febreeze" type product made with non-toxic ingredients. Thanks.
Theresa
Aurora, Oregon USA - Thursday, February 05, 2004 at 01:39:41 (GMT)
Happened to find your site today. I have tingling in feet and legs ,double vision, weakness in arms and legs, no sense of smell or taste. Been seeing doctors for 3 years with no diagnosis or much help. I have used alot of bleach and bleach products and believe from the inhalation I am convinced this has damaged my health and body. What are yours or anyone elses thoughts on this subject. Gail Zakas
Gail Zakas
Riverside, CA USA - Thursday, January 29, 2004 at 16:49:00 (GMT)
Very interesting site! I actually stumbled upon it while researching something else. While I do not suffer from MCS I can sympathize with those who get headaches from different smells/odors. The worse is opening a magazine with one of those little perfume samples. These teenagers also lather themselves in sooooo many different lotions, and then perfumes. Even the shampoos are heavily scented. Ugggghhhhh! Like the person who signed last I surely know how you feel. People do look at you like you're crazy if you tell them you'll get a headache from their perfume. Meanwhile three days later you're still laying in a bed with ice on your head! Thanks for all the information.
Kimberly
Philly, USA - Thursday, January 15, 2004 at 23:53:48 (GMT)
okay site
Michelle
phoenix, AR USA - Monday, January 12, 2004 at 01:54:45 (GMT)
I was reading the many posts on this web site.What a great site.It is helping me learn new things.I also have a problem being perfumes,fabic softners,scented candles,and some other products.
The strange thing is that cigarette smoke for some reason don't bother me,not that I like it at all but it don't bother me.But let me get around perfume and the candles and scented products and it feels like my lungs are closing on me and I have a hard time breathing.I have tried to tell my family and friends this but noone seems to care or listen for it is not them having the attack, it is me.
I got upset with my daughter the other day when she wore perfume.I have told her over and over again that it gets to my breathing.The other day she rode in my car and she had perfume on and I started coughing and having a hard time breathing and even gotten a bad headache from this.3 days later I still have the bad headache which hasn't left me from the other day no matter what I take for this.
I never had a headache until my daughter got in the car with the perfume.
We ended up in an argument because she said so what!!! I like to wear the perfume.
Her words are so what.....
She can breath for now and don't understand what it is like not being able to breath.
I just don't know how to make them understand what I am going thru.
Years ago I guess I would have been the same way around people for I wouldn't have understood and had no reasons to believe something like this.
Years ago I also wore perfume and used to use fabic softners and use air freshers.
But today I just can't stand the smells because now I can't breath.
I hear people say I never heard of this before and look at me like I am crazy.
I am not crazy.
I guess I will also end up lonely like some of you on this board.
I have even tried to sent this website to my family and friends but I can tell they didn't take the time to read about the site for they would somehow understand what is going on better.
Why do some people have to wear heavy perfume? Like they take a bath in it?
Even in the past when I use to wear perfume I didn't take a bath in the stuff.
Regular mask don't work for me.
I am so glad to have found this site for I now understand I am not alone in this for there are other people out there like myself who also have the same problem as I have.
The world is full of I don't care as long as it don't bother me.I can't enjoy life because of others and their I don't cares or so whats.
I guess people don't care that the toxins are killing them and their families also but they just don't know it yet.
Teachers who teach school and most our own doctors don't know this yet.
What is schools teaching these days?
Is everything hidden?
A big secret from the public?
I am not the smartest person in the world but I do have common sence and like to learn new things and when someone tells me something I will take the time to do research on things and see if things are what people say their are.
I hope their is more knowledge of this in the near future.
God help us all.
Lossmexico
USA - Saturday, January 10, 2004 at 02:19:00 (GMT)
love your site, thanks for shareing your knowledge and educational information about this chemical invasion on our lives, and it will help to make better choices.
Randy Hall
Prescott, AZ USA - Thursday, January 08, 2004 at 02:49:51 (GMT)
We would just like to take a second to thank Jacki and Gordon for thier page, and that beautiful song "Precious little friend". It came to us last week, when we lost our own Pooh-Dog, Gibby. We had to put her down, and I never want to do that again. Anyway, Thanks for having such a great Tribute to your lost pets. We would love to be able to stream your song on Gibby's page on our site. Gibby can be seen on our monthly highlights page : http://clanofthebear.com/Highlights.html. Thanks again!
Randy & Tara
Indianapolis, IN USA - Friday, January 02, 2004 at 21:49:33 (GMT)
Hello,
I´m searching for women who are also suffering from MCS and would like to change informations and experiences.
My name is Heike, I´m 30 years old and I´m living in Germany. In the moment I´m in education for a new job.
I would be lucky, if someone would write to me.
Sorry my English isn´t very good..
Wish everbody a happy and healthy new year.
Heike
mail to:
walter.heike@freenet.de
Heike
Germany - Tuesday, December 30, 2003 at 20:38:50 (GMT)
Hi, my name is Di Buckland & my young son has mcs,we live in Australia. The South Australian Parliament is holding an enquiry into mcs & taking international submissions. Please all mcs sufferers, NOW IS THE BIG TIME TO SEND IN YOUR PERSONAL STORIES, PLEASE, LARGE NUMBERS WILL HELP THE WHOLE GLOBAL MCS RECOGNITION CAUSE, IT WILL HAVE ENORMOUS IMPACT. PLEASE EMAIL STORIES TO: robyn.schutte@parliament.sa.gov.au PLEASE LET US ALL MAKE A HUGE MARK FOR MULTIPLE CHEMICAL SENSITIVITY SUFFERERS GLOBALLY, Thanks, Di Buckland for and on behalf of those persons chemically ill/injured/sensitive, 4 Mia St. Kallangur, Queensland, Australia.
Diana Buckland
Kallangur, Queensland Australia - Monday, December 29, 2003 at 00:11:32 (GMT)
dear jackie. so good to see pictures of you and your family.Liz passed may 99. buried near your parents. was there last weekend with my kids and grandchildren. a large candy cane placed at your parents grave had blown over. Nancy picked it up & assumed a golfing posture, that marcus had been doing a little practice putting with it. i spoke with michelle last year, she told me of your health problems & web site. i had lost them until today. will correspond soon. my love to gordon,marcia & marc. your parents would be proud that you are all still looking out for one another... with love... russell cooper...i still tell when given the chance. that i will be buried near my best, all time friend. the family of aunt joan keep flowerws on her grave, that of mom & dad, and Grandmother & grandfather.
russell cooper
warner robins, ga USA - Friday, December 26, 2003 at 20:21:39 (GMT)
Because I have MCS, I made a big research in order to help myself. I want to share this valuable information with others, who are still searching for answers. Please, visit my web site www.allergyalertcook.com ! Blanka
Blanka Filipek
Oceanside, CA USA - Friday, December 26, 2003 at 01:32:01 (GMT)
Hello to all,
Ive been reading through the postings here and I know exactly what you are going through. The inks, perfumes, chemicals, disbelief etc. Ive been there and Im on the other side now. I survived the Crash of 98 when the bottom fell out. I was solid as a rock one day and then the next, I was in fear and terror. This went on for several years but Im back now. MCS can be licked.
I have to tell you, one day I as arriving to the 30,000 square foot building where I used to work and I could smell the cologne wafting from under the door. Some people think this is sexy or attractive. No folks, it is a violation of you space.
Anyway, I want to encourage all of you to keep detoxing, keep your nutritional programs going, read your product labels and hang in there. Some insight as to what it is like on the other side of MCS? Well, Im happy again, solid as a rock, I dont feel like crap and I wish this all for you. Now when I go into Home Depot, my body doesnt scream RED ALERT!!!!!! and try to make me feel terrified. I go in and get watery eyes, runny nose, and an irritated throat. Folks, this is normal. People who do not react this way are toxic to begin with. They are on the verge of becoming even sicker themselves and do not know it.
Best of luck to you all.
WhiteBirchSteve
co USA - Friday, December 19, 2003 at 20:54:01 (GMT)
I noticed that Pamela Gibson submitted an invitation
to your vistors remarks page recruiting MCS sufferers
to participate in her survey of the reported efficacy
of conventional and alternative therapies, however there
was no follow-up posting on the results of this survey.
The results have been published in _Environmental_
_Health_Perspectives_, September 2003, volume 111,
number 12, pages 1498-1504.
The results are interesting. The authors developed
an index for scoring the data, based on the degree
of help/harm reported by survey participants. Two
therapies/practices had by far the highest scores:
chemical avoidance and chemical-free living space. Duh.
If the survey population blamed their health problems
on TV sets, you could pretty much assume that getting
rid of the TV and leaving the TV set off would be at the
top of the list of effective techniques for managing
TV-related illness.
What's interesting is the rest of the list. 101 treatments
/practices were included in the survey, encompassing just
about every popular alternative technique (chiropractic,
reflexology, etc.) as well as conventional techniques
(antidepressant drugs, psychotherapy, etc.). All of
these therapies except two were clustered at the bottom
in terms of effectiveness. Some of these scored better
than others, but you'd expect that just from random chance.
Only two therapies/practices were outside the cluster
(but below the two aforementioned top-scoring therapies).
Which two? PRAYER was the third most helpful
technique/practice. MEDITATION was the fourth
most helpful, however it was barely outside the
cluster, while prayer was far outside the cluster.
I think the important lesson to be drawn from this data
is that there is no root, no pill, no vitamin, no
alternative practice (like acupressure, NAET, removal
of mercury amalgam tooth fillings, etc.) that is likely
to do you a bit of good. You shouldn't feel like
you're missing out on a potential cure just because you
haven't tried everything. The best thing you can do
(other than stay away from the chemical triggers for
your symptoms, of course) is simply pray.
That's not to say something won't be found in the future,
perhaps once the phenomenon of MCS is better understood,
but at this point neither alternative nor conventional
medicine has found an effective treatment.
Mark Thorson
USA - Tuesday, December 16, 2003 at 01:13:19 (GMT)
When I go into a department store and pass by the perfume or candles section of the store it feels like my lungs are closing in on me.
People who gets around me who wears perfume, It makes my lungs feel like they are closing up and I have a harder time breathing.
When I mention how bad the perfumes are they don't want to hear it.
They are free to wear what they want and kill me.
I know it may smell good but people please think of what harm you are causing people by wearing this stuff.
People complain about cigarettes.
I would rather be around someone who smokes anyday then to be by someone who wears perfume.
Why would anyone want to wear pee anyhow?
This is just what it is pee from an animal.
At least they have put up signs and stop smokers but the perfume is worst then any smoker I have been around.
It makes my sinus bad and my eyes water.
I would rather stay at home then to go out in the public anymore.
I have a right to breath and the people who wears perfume's is giving me my right.
I think I will put a sign on my door.
No perfume allowed!!!!!
Angel
USA - Saturday, November 29, 2003 at 23:41:58 (GMT)
Yes Ink bothers me a great deal. I had to quit reading novels. I put shields over my magazines Bible and spiritual literature. I can also detect the acid in the pages.
Right now I am confined to my two room apartment because I am having a very bad flare. I must wear my respirator to just breath without feeling I am inhaling flames. Everyday brings a new challange.
Leveda+
Leveda
USA - Thursday, November 27, 2003 at 05:59:51 (GMT)
i was visiting MCS sites today, and noticed that no-one has mentioned Magazine Inks...!
i first noticed this with WiReD Magazine, when i could Taste the metalic inks that were covering my tongue, Then when my mother got me a subscription to; Smithsonian, it would give me headaches as soon as i opened it.
it just makes me CrAzY that no-one else can even SMELL them...!!!
sigh.
p.s. thanx for the forum!
The Babynous Cult
Bremerton, WA USA - Tuesday, November 25, 2003 at 19:29:33 (GMT)
I have just recently learned that this illness existed and I am just appauled at the laws in this country that do not require manufacturers to have all ingredients on the label of a product so we can make an informed decision. I myself have been using a fantastic line of non-toxic products for about 6 years and thankful that I had the ability to convert my home before something like this happened to myself or my family. If anyone reading this would like some information on this please e-mail me. It is a private company that has been around for eighteen years and truly stands behind every ingredient it uses in all it's products. Thank you for sharing this information. Warmest regard's to all here.
Andrea Cook
Germantown, MD USA - Saturday, November 22, 2003 at 00:08:47 (GMT)
I have determined that I have a chemical sensitivity to my wife's shampoos and conditioners. Has anyone out there had this same problem and how did you handle it?
Vince
McLean, VA USA - Friday, November 21, 2003 at 23:04:14 (GMT)
suffer with this for many many years, ignored by docs and other politicians ect. glad I found your website
donna robettson
glasgow, USA - Friday, November 21, 2003 at 19:05:50 (GMT)
I may have checked in before. I am happy to say this site has been a great help to me. I have learned much about how to avoid the toxic chemicals. I purchased an air purifier, did away with most of my clothes,installed a filter on my shower, turned off my cooking gas. I intend to remain in my apartment until I feel my body and emotions have had a good rest. It has been impossible for me to care for myself. I have no one to do any thing for me and my husband who is also in ill health. I share with my sister the care of my aged mother who requires much of my energy. I absolutely have no more to give.
I travel 3 1/2hours one way to a Allergist MD i found because of this site. The local hospital is working with me on protocol for MCS. It is their goal to offer me the safest care possible for my second knee replacement. The hospital has canceled my surgery twice in order to further act on new info presented to them. I am truly happy with their attitude.
Please continue to be there as long as you are able
Sincerley Thankful
Leveda
Leveda
PA USA - Sunday, November 16, 2003 at 02:43:59 (GMT)
I am almost teary-eyed right now. I am home sick because a person at my school cannot believe that I am really sick from her scent. She teaches kindergarten and says she needs to wear perfume, which can be smelled throughout half of the school, so that the little ones can learn with all five senses. I have copied some of the information I have found here. My only hope is that she will read it and realize the truth about these chemicals. She is a very kind person, just not convinced. I want to purchase the brochure "Fragrance Free Encounters, and No Fragrance Spaces". but cannot figure out how. Please e-mail me.
Charleen Gustafson
Stratton, ON Canada - Monday, November 10, 2003 at 17:36:24 (GMT)
I never realized the amount of chemicals around us. I have had the same medical problem every fall, that no Dr. can seem to diagnose. I thought maybe it was allergies, but keep coming up with no respose after tests. The problem I get is SEVERE BURNING in my face-yet my face shows no signs of this. After my son wore a nicotine patch for a few weeks he mentioned to me a severe burning on his arms that went away after removing the patch. This got me to thinking and I'm leaning toward the fact this is the time of year that I have my furnace cleaned. The whole house smells for days afterward. Could it possibly be that after all these years I may have solved my own problem? The test will be next season when I avoid having it done when windows are closed.I also notice at this time of severe reaction I cannot tolerate perfume or any chemical smells. My tongue and throat actually starts to burn along with my face.
I'm so glad I ran into this site.
Linda Magnotta
South Windsor, Ct USA - Tuesday, November 04, 2003 at 12:52:10 (GMT)
2 years ago I nearly lost my job because a teacher I worked w/refused to not wear perfume. I had a severe reaction. I had to get the Michigan Career Development involved. After one year (paid) I was allowed to return to work but was forced to take a different job. An Environmental Physician (Dr. Gerald Natzke) was very helpful in getting me back to work, through his confirmation letters to the school, that I do indeed have MCS.
Susan Lince
Linden, MI USA - Sunday, November 02, 2003 at 19:55:32 (GMT)
Many people are now suffering illnesses from exposure/exposures to toxic and neurotoxic chemicals which are now everywhere in our daily lives, my son suffers multiple chemical sensitivity as do increasing numbers of people worldwide. In Australia a person is attempting to establish a National Data Base for chemical sensitivity or multiple chemical sensitivity - so if you feel your health has been affected by chemical exposures please email a brief version of your situation to mystic@wn.com.au as there is still a lot of problems with recognition and respect of these chemically induced illnesses. There are many wonderful support groups you can become involved with. In Australia I am associated with the Allergy and Environmental Sensitivity Support and Research Association Inc., and the Australian Chemical Trauma Alliance - so please if you feel your illnesses are as a result of exposure/exposures to toxic and neurotoxic chemicals please become involved. Thank you so much, Regards, Diana Buckland, Brisbane, Queensland, Australia.
Diana Buckland
Brisbane, Queensland Australia - Saturday, November 01, 2003 at 03:50:09 (GMT)
I also have fragrant induced migranes. I have tried many options to prevent them. The only one that works is avoidance. In the real world as you know this is not an option (at least not today). It has become impossible for me to even do my job because the scents give me such debilitating migranes and the employer refuses to establish a policy of no fragrances in the office. What is so sad is that I work in the medical field. Anyway I was wondering if anyone has ever thought of having their olfactory nerve cut. If the signal could not go from the nose to the brain then, I would not have these migranes. Has anyone tried this option? I know it would be radical, but as many of you know living like this is impossible. I would rather never spell again and be able to live life than to live like this. If anyone knows of a doctor who performs this procedure please let me know or if you have had this procedure done. I don't even know if it is possible, I only know that if they tried giving me medicine to make the nerve desensitized so that it would not send the message to the brain, then why couldn't they just cut the nerve. I will be seeking doctors advice about this within the next month, but if anyone has any experience please let me know. Thank you
Sheila Knepfle
TN USA - Friday, October 31, 2003 at 02:42:45 (GMT)
Thank you for your touching story of your Dusty. "Precious Little Friend" helped me to express my terrible grief over the loss of our 14 1/2 year old Schnauzer's death. Duchess had to be put down 1/31/03. It was the hardest thing I ever had to do in my life, but she was suffering badly. My heart still aches for her when I remember the good times, and her wonderful companionship and fistey personality.
Suzanne Brown
Summerfield, FL USA - Thursday, October 30, 2003 at 02:59:20 (GMT)
I found your webpage yesterday, and enjoyed reading it. This past weekend I bought a Sharper Image desk-top Ionic Breeze for my office at work. Men and women around me wear perfume and cologne. No one on my team wears it because they are aware of my sensitvities. However, a new group of people have moved in the offices behind me. This poses a problem for me all of the time. Management refuses to address the situation. I am allowed to approach individuals my self, but that is so awkward. To put it in a different light I once told my best-friend (who wears a lot of perfume)about my problems with people and perfume at work and she told in no uncertain terms that if someone she worked with had a problem with her perfume that they could go work someplace else! I wonder why I still consider her a good friend. I have been diagnosed with CFS, and have had the problems since 1989. I have my medical records dating back to April 1989, when I first started complaining of not being able to sleep. At the time, I lived alone and thought I had insomnia. What other explanation could there be for waking up feeling so exhausted, feeling like every muscle and joint was bruised, having headaches, and being so weak that I could barely talk or lift my arms, or walk? Doctors told me to take benadryl, and I did that until benadryl stopped working. I knew that something was causing me to feel so horrible. It wasn't until 1992, that I had a disucssion with another woman who told me she was diagnosed with Fibromyalgia and CFS, that I realized those were the same symptoms I have. I have tried to think back to the time when I started feeling these symptoms. I have always kept a journal, and I have my medical records to show when I began complaining about my symptoms. Around the time that I started having these symptoms I lived in an apartment and had a kitten. The kitten had fleas, and I decided to set off a flea-bomb in the apartment. I grabbed the kitten and got in my car to leave for the day. It was in the summer, and I thought I had to get the cat's food and water. So, I walked back in to the apartment while the flea-bomb was going off. I walked right through the mist and in to the kitchen. I immediately began choking, my lungs closed up, and I was trying to vomit at the same time. I got outside in the open air, where this continued for several minutes. I think this is when my problems began because I never before was sensitive to perfume, cigarette smoke, or any other chemicals (that I am aware of). I have mentioned this to many doctors who dismiss any connection. When I walk down the detergent isle of the grocery store I have to put a hand over my nose, and I stopped attending church so I don't have to breathe the perfume/cologne of those sitting around me. Dancing is one of my passsions, but I have not been out in years due to the cigarrete smoke. My eyes burn and I can smell things long after I have left a room (my husband calls me bionic nose). I also cannot be in my office when those around me spray their desks with cleaner, so I go for a walk outside. I have found no relief for my CFS symptoms. After reading your site, I am definetley switching to borax and bon-ami, and white-vinegar for household cleaning. I also have a problem with the hotel industry that insist on using powerful room deodorizers. I would like to know if there is a contact for the hotel industry that we can write to and request that they begin using fragrance free carpet deodorizer and room deodorizers. Doesn anyone know?
Paula Marx
Tulsa, OK USA - Wednesday, October 29, 2003 at 15:43:15 (GMT)
Hello everyone! After reading various posts here and rereading Jacki's message, I felt compelled to share some of my own thoughts. Wow. It's always so heart-warming to know that there are many others out there suffering like me. I have been suffering from a triple whammy since childhood. I grew up in a household of smokers and was exposed to their smoke in the womb. Then, as I got older I was exposed to nearly every household and cosmetic and fragrance perfume product known to man until recently, almost age 34! I could go on and on for pages, but I don't want to write a book, which I'm very good at doing, mainly because I'me expressive and very passionate about my beliefs! I wanted to comment about the Citrus household stuff. No one should ever use ANYthing without having 100% knowledge and information about the product and if the company is evasive, pardon my language, but screw them!:( Mia Rose is a wonderful company that truly cares about the people, the environment, and the animals and isn't like that. I've been using their Air Therapy for years and it's a great defense weapon against pollutants that suffocate me! There's nothing better. That and the pure 100% therapeutic grade essential oils I use have saved my life. I commiserate with of you and I share your pain and frustration! Keep the faith and peace and harmony and keep up the good work and fight!:) Please contact me if you wish.
Many Blessings,
Yours,
D.A.:)
D.A. Colvin
Miami, FL USA - Wednesday, October 22, 2003 at 21:32:51 (GMT)
Am delighted to find your website - being an expat Brit living in Australia and having farmed for some 30years and being constantly sick but as a farmer never having stopped work - left the husband when migrating to Australia worked then in an Environmental Clinic and was diagnosed with an MCS that also rendered me allergic to adrenaline our very life force.
My handicap has unleashed in me a fierce need to ensure that other people are aware of the very real dangers of the cummulative effect of seemingly harmless everyday materials/substances - like the constant wiping down of tables in restuarants/cafes using 'windex' or whatever whilst patrons are eating - butchers / fishmongers and the like pouring high levels of 'bleach' to wash down counters all over the next persons fish/meat purchase -
Thank you for the site and if I can help anyone then don't hesitate to make contact - Josephine
Josephine Wadlow-Evans
Sydney, NSW Australia - Friday, October 10, 2003 at 04:41:46 (GMT)
I am more than interested in your site. My daughter, son-in-law and I are experiencing multiple chemical sensitivities after exposure to a drug lab which moved into an apartment under ours some time ago. We are aware, in ways that not everyone can possibly be, of the dangers of intoxicants in the environment. I am looking for individuals who might be interested in looking for ways to hold people accountable in their for the many ways they expose others to toxins. I am particularly interested in holding recreational drug users legally accountable for the effects of their drugs on unwitting "second hand" recipients.
Any thoughts?
Sidney
Sidney O'Keefe
Austin, TX USA - Tuesday, October 07, 2003 at 01:46:43 (GMT)
hi i loved dustys story,, made me just cry at the end, i have just lost me little baby shit szu charlie, he was 14 years old,im so very hurt right now,,so i came here to join the support group. i sure do need to get some stregth to get me through this, i miss him so very much
Rose
Rose
stoney creek, ont canada - Sunday, October 05, 2003 at 01:44:32 (GMT)
This is a great site! I work for Medical Discounts we provide free and low cost medication for those in need.If you or anyone you know pays too much for medication feel free to visit our website www.380meds.com to find out how we can help save lives.
Vanessa Johnson
Walnut, CA USA - Friday, October 03, 2003 at 20:04:16 (GMT)
Hi, Jacki! What a fantastic web page! I had no idea there was such a wonderful movement out there to inform people of the toxins in our environment! Your supersensitivy has served a wonderful purpose -- making others aware of what's going on in our too-chemically world! Carry on with this wonderful work you are doing!
Clarissa Summers
Houston, Tx USA - Friday, October 03, 2003 at 01:40:22 (GMT)
Hi, Jacki! What a fantastic web page! I had no idea there was such a wonderful movement out there to inform people of the toxins in our environment! Your supersensitivy has served a wonderful purpose -- making others aware of what's going on in our too-chemically world! Carry on with this wonderful work you are doing!
Clarissa Summers
Houston, Tx USA - Friday, October 03, 2003 at 01:39:56 (GMT)
Hi, I am very touched by your dusty page, and couldn't help crying near the end. This reminds me to take alot of photos of my puppy and treasure the time he spends with me.
HeiWuCang
SG - Monday, September 29, 2003 at 10:19:13 (GMT)
The cologne "AXE" makes me so sick. A friend wears this stuff & it doesn't have the "AXE EFFECT" like on the commercials. (not that I would believe it would) The effect it gives me is "planting the seeds for a migraine & then watering it". I can't think straight & the migraine grows throughout the day. I recently got really sick last week from this. I was exposed to it early in the day & by time I was having dinner my head was hurting so bad & dinner didn't go down so well. Falling asleep was quite the chore. Anyways I dislike this stuff very much & wish Men/Boys wouldn't wear it. It doesn't have the effect on this woman that a man would like. (I'd lose my lunch on them, not whatever the commercial implies)
Theresa
Aurora, Oregon USA - Friday, September 26, 2003 at 20:07:08 (GMT)
i have had problems in the workplace from exposure to perfumes and have had asthma attacks when exposed to chemicals in fragrances-----i sent this site over to the
CEO of american airlines to try to have them understand how they need to enforce a fragrance free policy in the workplace------i have had such a hard time getting people to understand what happens ------i hope this site will open up their eyes-----thanks for all the information you provide
val
granby, ct USA - Friday, September 19, 2003 at 20:23:42 (GMT)
So happy to see Canadian Lung Assoc's No Scents Makes Sense campaign. www.lung.ca
liz
USA - Friday, September 19, 2003 at 05:51:16 (GMT)
I sorry so glum in the last message.
A long time ago I mentioned that I used citrus magic hand soap and soap works laundry and dish soaps. I no longer use these.
I contacted citrus magic and although they say their product is all natural, they do not list the ingredients on the label. I asked what they are. Trade secret was the answer. That is my clue to stay clear of that stuff! That is that same thing perfume companies say, and that stuff is completely harmless, right? NOT!!!! Trade secret is another way of saying - toxic beware! If I told ya what was in here, you would not buy it, so I ain't tellin ya.
Soapworks used to be a wonderful product. It was developed by a lady whose son almost died from allergies to everything. But she sold the company some months ago and the new company has abandonded US. The no longer carry unscented laundry detergent, and although the automatic dishwashing soap says unscented, it now has little blue things in it. Hmm... I believe this to be some nasty chemical. They changed their packaging and do not realy wish to sell to indivuduals anymore as they do not sell their products one at a time. YOU have to buy Soap packages on-line. I think this is just big business again, buying out the little ones to save themselves from the competition.
I use cal ben soap now. This stuff is natural. They do not have the ingredients on the label for some strange reason, but cheerfully sent them to me by mail. I don't like some of their products because of the essences that they use. BUt with the list of ingredients I can avoid the lones thay have smell I can't deal with, such as coconut and almond. I like te citrus.
This is the "best" MCS site there is. Thanks for all your hard work in putting it together and maintaining it. I am sure it takes a lot of effort to do so. We are all in your debt!
Mary
TX USA - Thursday, September 11, 2003 at 15:10:20 (GMT)
HI,
I am Mary. I am not so good lately. I feel so horrible. I have MCS as most of you do. I just visited the health food store for the last time. It was my last safe haven. The cashier (a guy) was wearing colone and I started to get very confused. I asked him if he was wearing colone and he said no. I believed him cause I did not smell any, I just felt like I do when I am exposed. Then he said, Oh, I had it on earlier today. Could be why I could not figure out how to write a check. I stepped back ten feet and said I was allergic. He then said it was curve. Oh, that stuff is the worst. Does anyone know why curve is so horrible?
I am also trying to recover from Carbon monoxide that has been coming into the house for over 1 month. I lost 10 pounds in less than 2 weeks. It took me 1 whole year to gain back 20 of the 30 I lost a year back. I am so unhappy. I hate starting this all over. It hurts to sit on my boney bottom. I am cold at night for lack of fat to keep me warm.
Now I can't even go to the healthfood store anymore. I stopped going to the chiropractor in Jan. The patients and staff wore purfume! My teeth need cleaning and The last time I went to the dentist. I had to be carried out. I am not sure what I reacted to, but I could not move my legs.
I have only been home bound due to MCS for about 1 1/2 years and I do not make a very good hermit. Hubby stays out late and my daughter is 17 and is never home. I can't see how I can go on like this. I am so lonely. I have pretty much stopped saying, when I get better....
No body knows I am here. I am invisiable to the world. I never go anywhere.
I bought a bunch of sewing patterns for $1 from a store going out of business, and posted them to an on-line photo album. And I sell them for what I paid, just to keep from going batty. I don't know if that was the right thing to do. I do not get many e-mails about this and I have too many. Maybe I screwed up. There does not seem to be much of a point in any of it. I was a little happier when folks would e-mail me that that saw this or that pattern and could I send it to them. I have actually met some nice on-line friends this way. I originally bought them to trade with others on sewing message boards, for patterns that I might really like. I never see any I like. But not many were interested in trading. They wanted to buy them. I did not feel comfortable with that, so I just let them reimbuse me.
I started to look into buying patterns, cause I can not go into stores, otherwise in less than 5 minutes I fall to the ground and can't move. The organic cloths in the on-line catalogs are so expensive. Most of my clothes have holes, as I had to give away all the polyster blends. Makes me go num. The very few clothes I had left, have now worn out. I am trying to sew my own clothes from orgainc fabric and 100% cotton thread that, I buy on-line, but the clothes are wearing out faster than I can make ones to replace them.
I am also not brave enough to make more than underwear and undershirts. I guess I hate to waste fabric on mess ups. I don't know what to do anymore. How can you be happy all alone in the house and alone all the time? I guess I am down now cause, I am 107 and weak and tired from the CO. I tryed stabilized oxygen to help, but it made me sick. If I could only get off my toxic prescription drugs faster.
There has to be light at the end of this dark tunnel.
Mary
Mary
Lake Dallas, TX USA - Monday, September 08, 2003 at 06:41:52 (GMT)
I recommend Pamela Reed Gibson's book Multiple Chemical Sensitivity:A Survival Guide. It has info for whatever stag of sensitivity. Also, Realgoods.com has something callled "air quality monitor" that alarms when voc's etc exceed certain threshold but the it might not be sensitive enough in my opinion(for ? about measuring air) John Bower is healthy home expert(www.hhinst.com) and writes of home inspectors.
liz
cleveland, oh USA - Sunday, September 07, 2003 at 18:55:03 (GMT)
I am interested In what you might know about being over sensitive to foods as well as perfumes and lotions.
I break out with heavy sweet if I were to eat catsup,musterd, relish,apple are cherry candy.And perfumes and lotions ect will burn my nose to the point of bleeding some times.
If anyone knows anything about this I would verry much like to here from them,At whiskyjer2@aol.com.
jerry w
normandypark, wa USA - Saturday, September 06, 2003 at 15:35:31 (GMT)
Thanks alot for the tips of non-toxic stuff. The family has most of the stuff, although the shampoo is still a LARGE problem! I knew about the pool with chlorine, but no about the showers! No wonder I get sick sometimes after one, I'll have to see what my parents say. School is also hard for me, seeing as all the anti-persperants there, 3 more yrs to go though. Anyway great site!
Ben
Sydney, NSW Australia - Saturday, September 06, 2003 at 00:53:54 (GMT)
I was wondering if there is any way to make a sticker (bumper or small) of the Tweety bird with a gas mask. Thanks, Theresa
Theresa
Aurora, or USA - Friday, September 05, 2003 at 06:51:06 (GMT)
The person who wrote in about standards on organics is misinformed. That information is not correct. Please go check out this page to get the facts on organic laws.
http://www.ams.usda.gov/nop/Consumers/Consumerhome.html
ME
USA - Friday, August 22, 2003 at 21:39:08 (GMT)
What a great blessing to find your sight. You have given me hope, information and contacts that by sharing their experiences many people can benefit. God Bless.
For many years I have been suffering from sever sinus congestion and I am sure it is from sensitivity to toxic chemicals. I have tried my best to remove all toxic chemicals from my home but I dont get full co-operation from my family. Because they dont believe in this and sometime they bring things like detergents and perfumes etc. with toxic chemicals without my knowledge.
IS THERE ANYONE OUT THERE-WHO BY EXPERIENCE KNOWS THE BEST CHEMICAL AND CHEMICAL GASES MONITOR.!!!
IS THERE SUCH A MONITOR THAT WILL DETECT EACH ROOM AND WILL SPOT WHERE THE CHEMICAL GASES ARE ORIGINATED? Please respond quickly!!!!!
Thank You, Jacki and Gorden for having this site so that anyone can benefit from the information available on the site and also can try to contact other people and get help by receiving their knowledge and experience.
Waiting to hear from you.
Thank you,
God bless you
Caro Adinians
Glendale, California USA - Thursday, August 21, 2003 at 20:11:25 (GMT)
THANK YOU, THANK YOU, THANK YOU! I finally feel like I know what is wrong with me. Everything about MCS clicks with me. I found out that when I was a toddler, I was exposed to asbestos. So I went on a search & found your web-site. I was sick most of my childhood & into my adulthood. I'm now 30 & finally feel like I'm getting somewhere after years of trying to find out what was making me sick all those years.
I had Tonsilitis 3-4 times a year, every year until I finally had them removed in my early teens. The Tonsilitis went away, but being sick didn't.
In the last 4-5 years I've really noticed being really irritated by smoke & perfumes etc. I would get migrane headaches really bad. I had a really bad one recently after being exposed to smoke, perfume & colone. I probably should have gone to a doctor. (but I'm a little frustrated with doctors after getting no-where with them.)
Last year I was "diagnosed" with depression & was put on Paxil CR. I told her I didn't want to go on it, but I thought I would give it a chance. I did, I HATED IT!!! She then tryed a different anti-depressant on me & I HATED IT also. I didn't like the way they made me feel. Brain zaps & brain jolts etc. I need to find a doctor in Oregon that understands my concerns. (I'll go on another search)
I have been slowly going towards more natural products in my everyday life. (It gets frustraing to go shopping because I'm reading labels to see if its crap or not) After reading parts of your guide to non-toxic living, I'm going to take a few steps further & try out some of the laundry & cleaning ideas. I do alright with the food aspect already. I just have to get into the habit of using more natural products for cleaning. I need some ideas for pet (cat) care. Things like litter, food & shampoo's. Can you use Dr. Bronners baby castile soap on cat's?
I sometimes feel like I'm all alone in this. I get bugged alot because I use Soy milk instead of cow or make vegy burgers instead of a huge steak. I have made desserts with soy milk or tofu & someone asked if something I made was "real". I was a little confused with what they were asking. They were wondering if there was bleached white flour, white sugar, cow milk & margarine. I should be the one asking them if their food is real. They bug me when I make my husband a fruit smoothie or when I make something odd to them. (not meat & potatoes) She wonders why she has acid reflux, all that soda/pop that she drinks. She said "but I grew up on it" & I told her "so did I". I don't touch the stuff any more.
I am looked upon as crazy when I'm dodging smoke while at an outdoor resturant. I have an incredible sense of smell, I can smell someone smoking in a car in front of me going down a highway at 65 miles/per hour. (they can be two cars ahead or even beside with the window partly rolled up & on the other side of the car as I am ) Sometimes I think I'm crazy & it's in my head, but EVERYTIME I smell it I see there is someone smoking when I pass. (I smell it, then I see it)
I've had close friends thinking I'm being silly when I said loudly that someone has alot of perfume on. Another friend (that smokes) was very rude to me by blowing smoke on my bouquet of flowers which was outside with her after a friends wedding. So, I feel really alone in my struggle. Thank you for your web-site & God Bless. P.S. Sorry for rambling on & on, I just had to get it out.
Theresa Schlitt
Aurora, OR USA - Tuesday, August 19, 2003 at 08:09:24 (GMT)
What a relief and blessing to find your sight. I've been more and more sensitive the last few years but now the past month has been a nightmare. You have given me hope and knowledge. God Bless.
maryanne podorsky
glassboro, nj USA - Monday, August 18, 2003 at 22:38:28 (GMT)
I was working on a futon cover ( rubberized backed upholstry fabric) and developed sinus congestion, headache and some upper respiratory chest congestion. So I decided to look at fabric finishes and sensitivites and found your site which blew me away; as I have been working with fabrics as a professional dressmaker for over 20 years and recently was diagnosed with fibromyalgia. Reading jackie's story was an eye opener. I wonder how many people who work with fabrics like myself have the same problems or misdiagnosed illnesses. I'm also a nurse and always looking for a drug free approach to manage my symptoms. I will look at discussing this further with my doctor and am glad to have found your site. Thanks!
Anne
Winnipeg, MB Canada - Thursday, August 14, 2003 at 02:55:14 (GMT)
I have been learning as much as I can about MCS and your site has been very helpful. I have had CFS and FMS for nearly 14 years now. But a year ago I started reacting to so many chemical products. My family has been good to accept and deal with the CFS and FMS. I pray now that they can accept and try to understand the MCS. God bless your work here.
Renee
USA - Wednesday, August 13, 2003 at 22:49:26 (GMT)
Thanks and God richly bless you.But all you guys here i have something to share with you and you will never be the same again.
delali
accra, greater accra GHANA,WEST AFRICA - Wednesday, August 06, 2003 at 10:56:51 (GMT)
Thank you for having your site registered in a search engine. I was looking for detox baths and found your site. What a blessing. I just got out of a bath where I threw in all of the above. Apple cider vinegar, epsom salts, sodium bicorbonite, and Masada Dead Sea Salts and I am amazed at how ugly the tub looked after I got out. I work as a building engineer and I have been working with petroleum based products alot the past week and I have felt drained and very tired and almost sick. I soaked for about and hour and my skin is very clean now. I used a loofah and scrubed my skin and just let the bath do the rest. I am gonna do this for a week straight and see how I feel. I do feel more relaxed. I was having a hard time sleeping the past couple of weeks and this is the most relaxed I have felt in quite some time. Thank you. Thank you. Thank you. God Bless.
Sean
San Francisco, CA USA - Wednesday, July 30, 2003 at 09:39:04 (GMT)
Like many American people, I have been injured by toxic chemicals in perfume, solvents, cigarette too. People in China seldom used perfume in the past. But as China is developing fast, people begin to use all kinds of new things including various kind of perfume, scented shapoo,lotion, cleanser, paints, etc. The price is that more and more people got allergic to those things. I became evironmentally ill after I moved into my new apartment full of toxic gas. And it's hard to find products I can use and avoid being allergic at the same time. I have been treated with Chinese herbal medicines and my situation is much better now. My asthma is alleviated, and my sinus does'nt got bloated like before. But I still want to leave fragrance away in order to protect my health. But where can I find those fragrance-free product?
Jacqueline Mao
Wuhan, China - Tuesday, July 29, 2003 at 01:38:36 (GMT)
Thank you for your website. I am a fellow suffer although I have found a nutritionist who is helping me thru prayer and natural supplements to heal. This is a very much needed webpage as I thought until I met my Holistic Doctor that I was alone and 'CRAZY'. God is so good. I thank Him for your efforts and timely information. I have a meeting with my co-workers on tomorrow. I pray that the information you have provided will them understand that I am just trying to live and have the same quality of life they enjoy. Please add me to your list if you have a mailing as this subject is near and dear to my heart.
thank you,
KC
Karen Fields
Angleton, TX USA - Wednesday, July 23, 2003 at 15:11:24 (GMT)
I have MCS& have eatten "Organic Foods" sucessfully for 20 yrs.The last 3 week, I have gotten horrific chemical reactions due to the new USDA regulation of "organic foods" *They use/permitting the use of:sewage sludge(human waste for fertilizer rather than cow manuer), heavy metals(some ex: Lead, Cadium,& my favorite: Arsnic), petroleum-base products( in the form of additives, fertilizers/ pest-icides,plastic containers or wraps which leach out Phenol,Formaldehyde and other chemicals into the foods or lig.which they are stored in them.)---All of these new standards... Are Killing Me!!!!! The gov't has taken away my food spource ( even the farmers in my area have given -up in frustration.) Within these past 3 weeks, <>>>I am scared & frighten .I would like to know 1). IF THERE ARE OTHER MCS INDIVIDULS WHO ARE IN THE SAME SITUATION I AM IN ? 2). HOW THEY ARE HANDLING THIS HORRIBLE SITUATION IN ORDER TO SURVIVE??? Please!!!!!-IS THERE ANYONE OUT THERE-WHO IS INTERESTED IN HELPING ME OUT BOTH IN FINDING FOODS A SOLUTION TO THIS PROBLEM ,OR EVEN TRYING TO CHANGE THIS PROBLEM BEFORE OTHER PEOPLE BECOME DEADLY ILL!!!!!!!! Please respond quickly!!!!!!!!!!!!!!!!
Thank You, Jacki, for having this site so I can try to contact other people who may have MCS or who are not aware of what is happening to our food source.Thanks!!!!!!!!!!!!
Gerry Lindow
N. Royalton, Oh USA - Wednesday, July 09, 2003 at 21:35:27 (GMT)
I just found your site, my sister just lost her dog, she died of cancer,and i was wondering if it was possible to get the words to the song " my precious friend "
margaret
mississauga, on canada - Tuesday, July 08, 2003 at 22:26:25 (GMT)
I love this site : http://www.myhlth.com
Has pet tips, too...
VICTORIA
USA - Thursday, July 03, 2003 at 18:13:44 (GMT)
I was hoping to get some information about resources within Canada, specifically in SouthWestern Ontario....any help would be great!
Thank you!
Matthew
Vancouver, BC Canada - Tuesday, July 01, 2003 at 17:19:09 (GMT)
I was sitting at my computer today and somehow ran across your sight. God has been dealing with me on "letting go and trusting HIM" and how funny that this sight is where HE led me. I was one minute crying like a baby and the next laughing from joy of knowing I am on track in what HE wants of me. I have failed so much in life, yet somehow, HE never walked away. I may have walked away from HIM but HE never was far from me. HE showed me as I was reading on the sight, that the past 6 years of my life I was on a treadmill feeling like I was really going somewhere and sometimes felt he was a million miles away. HE showed me that he caused the treadmill which I thought I was going somewhere on, to stop and when I turned around to get off, there HE stood. HE was standing there with open arms and told me it is all okay, HE has my problems and my pain now.
Thank you for sharing your sight, it is an awesome one.
Stacy
Springfield, va USA - Monday, June 16, 2003 at 01:21:41 (GMT)
Thanks for this wounderful site!! Three days ago we had to put our beloved Poodle 'Noel' to sleep. She was 16 3/4 years old. I know our decision was the right one. I always said if I knew she was in pain, it was time. So why is it SO hard now? Your site has been a big help for me. I have to remind myself that 'God is in control.' After reading things on your site, I feel a weight has been lifted. I felt as though I was slipping into depression. I have a wonderful husband and 4 wonderful children. I need to concentrate on them and the gifts from God they are to me. At times I think of getting another dog but wonder if I want to go through all this again. I also feel I would be betraying 'Noel.' That seems crazy, but I feel that way at times. I'm sure in time we will get another dog and we will have great times with that one.
We got 'Noel' after we were married 1 1/2 years, after I had a miscarriage. So she was our first baby. She was so dependent on me and would yelp when I was gone even though someone else was home. It is really hard to lose such a faithful companion. She would go with us on vacations too. She enjoyed camping and while we were traveling she would sit on my lap on a pillow. She will be missed this summer. Thanks again for your site. God Bless!!
Linda Roesch
Quinter, KS USA - Friday, June 13, 2003 at 18:37:00 (GMT)
Has anybody looked Into starting up a petition to ban perfume from the market? I want to learn how to start doing this In my own Country. There's power In numbers, my friends, dont let anyone tell you that you will be defeated and that there Is nothing that you can do about It. That's the government's game Is to brainwash you Into believing that you're Inferior! Government Is supposed to be for the people not the other way around! There's so much more that needs to be done In this world aside from ridding the world of toxins and It starts with YOU and ME! The more you have a voice the more these greedy government officials who are all about money and power will crack! I'm not saying this Is going to be easy, anything worth fighting for Isn't easy, It's true, but It's definetly worth It. Remember: with God on your side you cant go wrong...put your total and complete trust In him and he will take care of you! We all have to fight for our rights and freedoms(which are disapearing!)It's not just going to come to us! Good luck and God bless you!
Carly
Toronto, ON CANADA - Friday, June 13, 2003 at 06:20:25 (GMT)
Hi Im glad to see web site like this. I have been suffring from thi illness since childhood..Nearly died at 21 from using colorent shampoo. Im a child bornof the mother of breast implants(though dow chemical will deny this that children are ill from them), she too is ill with this never ending nightmare. But i have maintained some of my health with herbs and others means..Im doing ok. There is hope . keep the web page up its a great one
Dana
santa monica, ca USA - Tuesday, May 27, 2003 at 01:24:59 (GMT)
Hi Im glad to see web site like this. I have been suffring from thi illness since childhood..Nearly died at 21 from using colorent shampoo. Im a child bornof the mother of breast implants(though dow chemical will deny this that children are ill from them), she too is ill with this never ending nightmare. But i have maintained some of my health with herbs and others means..Im doing ok. There is hope . keep the web page up its a great one
Dana
santa monica, ca USA - Tuesday, May 27, 2003 at 01:24:54 (GMT)
I dont have many allergies: one to dogs(which i never had before, then eventually it disapeared, now on a rare occasion I'll experience itching in the corners of my eyes from being around a dog); and the other specifically to COMET CLEANSER It caused me to break out In hives everywhere except for my nose...odd. I had seen a movie on television once about a woman who had MCS, I'm not sure If It was a true story and I dont know what It's called because I missed the very beginning. That's when I first learned that MCS existed. Whether someone has MCS or not we should all strive for better living. I have just begun using natural products, and I've been using a toothpaste by Toms of Maine, even checked out their website and was doubtful about some of the Ingredients they use In their products(I noticed you recommend Toms of Maine toothpaste). They use an Ingredient In the toothpaste I'm using called sodium lauryl sulfate(from coconut oil) and learned on your site that this Is bad, so I'm surprised that you recomended Toms of Maine without warning people about this Ingedient when you made clear that jasons doesnt contain sodium lauryl sulfate. GET THIS: Toms of main Is now offering a line of floride toothpastes! They say that the FDA claims that floride in toothpaste is safe In certain doses and that its the only known Ingredient to prevent cavities. They obviously dont care that much, as they say they do, about using all natural Ingedients and non toxics, or the process they use to obtain an Ingedient. You're right when you say that being a good consumer Is hard work! How do we know who really has good Intentions? It's difficult to tell sometimes! I e-mailed them about my concern and recommended they take a look at your site, and to take a closer look at the Ingedients and practices they use.
Also, speaking of better living, I checked out a website for this product called seasilver: http://www.seasilver.com/ I haven't tried this product yet but I want to order It soon. It's a liquid nutritional supplement that contains every vitamin, amino acids, trace minerals, etc. It sounded good to me when I heard about It check It out and tell me what you think!
Here's another aspect of better living for us all: learning about and resisting THE NEW WORLD ORDER(In a nut shell this Is a one world government and religion that Is not God's which the government and elite rich allready have In the works to control the world). Here are some sources that deal with this subject buy Christians who are just In search of the truth: thepowerhour.com; infowars.com; prisonplanet.com; americanfreedomnews.com; and radioliberty.com, my friend(who's been researching The New World Order for a year)and I believe these sites are good you can also listen to the radio shows at the sites or on short wave, their ads also promote all natural products which you can buy through them. Hopefully you will do your own research but I caution you that there are bogus sites purposely set up by the government and other satanists to lead you off the true path, so be carefull what you read. Pray to God In Heaven, In Jesus name, that he quide you toward the truth, and of course read the holy bible everything Is In the bible! Thank you for taking the time to read my letter. I hope that I've been helpful. God bless you!
Carly
Carly
Toronto, ON CANADA - Saturday, May 24, 2003 at 00:21:59 (GMT)
Thank you for such a wonderful site, a tribute from your
heart to your loss. We too have had a recent loss. Our
Lhasa, Princess passed away at home 6 weeks ago at the age
of 12 due to diabeties and possible cancer. She suffered
only briefly, maybe a day and passed into heaven with me
at her side on her favorite blanket . I feel her loss very
strongly and I really like the support of sites like this
to help me try to get thru it. God bless you....
jim bohl
south plainfield, nj USA - Thursday, May 22, 2003 at 16:10:27 (GMT)
THANK YOU SOOOOO MUCH !!!!!
Nora
Detroit, MI USA - Tuesday, May 20, 2003 at 16:20:33 (GMT)
Thank you very much for this site. I had mononucleosis infectiosa 31 years old. Until then I was normal. After this Eppstein-Barr virus infection I was weak for almost a year, and I never recovered. Some years after I got worse. Now I have the following diagnosis: CFS, MCS and I have no IgA immuneglobulin. My thyroid glad was removed because of metabolic disorder. A danish specialist told me to avoid gluten (weat bread, cakes, rye bread), milk protein,solanum/night shade (potatoes, tomatoes and similar). This made my heavy migraine almost disapear. I had to stop being a doctors secretary in a cancer department because of my illness. Now I am better, and I am studying history at the University of Copenhagen. So if you have some illness of this kind, try to understand and get better by eating the food, wich is the best for your body, don't drink alcohol and enjoy to do everything you can. Don't give upp hope and working for better times. I use a mask in places with pollution (diesel, perfume, smoking). Also craniosacral therapy (for neck problems) and biopathic help has been good to me.
Some day I will read more of your homepage. I get very tired, when I read about our disease, so I read only sometimes. In Denmark you often get the diagnoses CFS in 15-20 years, and MCS in 5 years, because the doctors don't know much about these illnesses. Some even still think that they does not exist. But some doctors and patients know better.
Hanne Thorup Koudal, Denmark
Hanne Thorup Koudal
Kokkedal, Denmark - Monday, May 19, 2003 at 19:34:43 (GMT)
I, too, am allergic to fragrances and tobacco smoke! The first whiff causes me to lose my voice. More whiffs cause sinus problems, migraine, and/or other problems. Large whiffs,or continued exposure causes an asthma attack, which finishes me off, as far as any activity is concerned! Asthma attacks leave me so weak and shaky, I can barely walk, and it's not safe to drive! I get away from scents and smoke asap and hold me breath while leaving! Losing my voice instantly tells me to get out! It also means I can't talk to people. I can't make phone calls or answer the phone, or teach my cub scout lessons without help! The lagyngitis lasts anywhere from a few minutes to 36 hours or more! I, too, have a mask to wear, but it can easily be overloaded by strong scents or a lot of scents. My mask is a hard cap attached to a baseball-style cap, with a charcoal filter and a small motor to blow the filtered air down over my face, under a clear faceplate, and costs over $150, plus buying the charcoal filters called ppod filters. I say scents, because it includes perfume, cologne, after shave, & perfumed air fresheners, cleaners, fabric softeners, hair sprays, deodorants, hand lotions, etc.! My kids have had to change to unscented deodorants, because the sports stuff would still be active when I picked them up after school, and I would be sick before getting out of the parking lot. I would have to drive home with all the windows open, and the a/c blowing on my face!
I had my first perfume reaction 10 years ago, while working at our local Wal Mart store. I had to quit in 1997, when I was constantly sick. I went on disability, until the insurance company said, you're cured, go back to work. I said, I'm not cured, and finally had to quit. I even have to sit in a separate room at church during services, and leave immediately after sacrament, without staying for sunday school and Relief Society. I am glad to find a list of environmental doctors, who might be able to help. I gave up on specialists several years ago, and simply try to avoid people wearing scents, and do not bring the "new generation" of scented chemicals into my home! I did by accident once bring home one of the new Downey scents! Big mistake! And my kids ask their friends if they are wearing a scent before letting them in our house!
I also really hate being around people when they've been smoking. No. 1, because their clothes and bodies reek of smoke, and No. 2, because they are still breathing out smoke for at least a half hour after smoking, and that smoke makes me ill! I can no longer even get into a smoked-in vehicle without getting sick, even if I hang my head out the window immediately for a short trip across town!
Keep the information coming.
Linda P.S. I don't want contacted by anybody trying to sell anything! Or by anyone saying they have the cure if I will do such and such for them! I simply notify my internet provider that it is spam, and delete it unopened, if it even has the appearance of such junk-mail. Thanks.
Linda
Henderson, TX USA - Friday, May 16, 2003 at 22:56:04 (GMT)
Each time I visit I benefit more. I have a Doctor's appointment June 17, due to the information from this site. Thank you so much. Jackie sounds a lot lkie my daughter. However Life is very difficult due to the
complet exhaustion and circle of toxins she is exposed to.
My stair well next to my apartment was painted. Strong outdoor long lasting etc. I must wear my mask even in my apt. Our doors are large steel with a gap around the entire door, and a larger one on the bottom. Would any one have a suggestion as to how I could close these gaps that let in so much toxins.
Sincerely
Leveda
Leveda
Scottdale , PA USA - Thursday, May 15, 2003 at 03:33:07 (GMT)
I lost my best friend my mini poodle Kelly-Boy 2 years ago to kidney disease. He was the best dog ever. I miss him so very much every day and reading your story could relate so well to how you felt after putting Dusty to sleep. I also had to have my 22 year old cat Kitty put to sleep this past Mothers Day. I am grieving for her so very much, I miss her meowing and just her presence. It is such an honor to have loved and been loved by a pet.
Heidi
Dartmouth, MA USA - Tuesday, May 13, 2003 at 22:14:40 (GMT)
REQUEST FOR RESEARCH PARTICIPANTS
Dr. Pam Gibson of James Madison University is seeking persons with MCS who have worked outside of the home to contribute to a study of work accommodation and community integration. The results will be delivered at the 2003 Chemical Injury Conference. It is hoped that the research will contribute to an understanding of access problems for people with MCS. Participants will be asked to complete a survey that can be accessed via e-mail or hard copy. If you are willing to participate, you can request an e-mail copy of the survey (that can be returned via e-mail or printed and mailed) by e-mailing gibsonpr@jmu.edu. Hard copies can be requested via e-mail (but specify that you want it mailed in hard copy), via phone (540-568-6195), or by sending a note to Dr. Pam Gibson, James Madison University, Psychology, MSC 7401, Harrisonburg, VA 22807. Hard copies will contain postage paid return envelopes. Please specify if your hard copy needs to be stored in baking soda prior to mailing. The closing date for returning surveys is June 14th.
Pam Gibson
Harrisonburg, VA USA - Monday, May 12, 2003 at 14:52:01 (GMT)
HELP! I have chemical sensitivities and need to find a tent I can actually sleep in. Please email me any ideas!
Lisa
VT USA - Friday, May 09, 2003 at 20:07:50 (GMT)
Interesting site! Has anyone out there heard of a possible connection between chemicals and seizure disorders? I have a 3 year old boy who has had 6 seizures this year, each where he was exposed to either paint, colgne, bug spray or cleaning supply.
Please email me if you have any info.
thanks.
carmen gorman
Weston, FL USA - Friday, May 09, 2003 at 18:57:01 (GMT)
Not happy that you all are ill from chemicals but, happy to find others who would understand my symptoms! I'd like to add FABRIC to the list of allergens. Polyester smells terrible, makes me itch like crazy, and makes my finger tips NUMB. I cannot wear plastic lens glasses,must have metal frames, and keep as little plastic in my house as possible. Most everything already mentioned affects my sinuses, eyes, and lungs. Often edema will arrive along with the respiratory problems...and I work in an elementary school! Stay healthy and have a great day!
Joline A.
Osborne, KS USA - Sunday, April 27, 2003 at 05:00:08 (GMT)
Your site is an oasis of spiritual blessing and a wealth
of knowledge. God Bless.
John L. Allen
K.L.U. - J.I.C.
John L. Allen
Carlsbad, NM USA - Thursday, April 24, 2003 at 19:23:44 (GMT)
I enjoyed your site.
If you offer a newsletter please put me on it.
Thanks!
tawanah@eudoramail.com
Tawanah Petrig
Gonzales, La USA - Monday, April 21, 2003 at 23:29:56 (GMT)
I too believe in toxic free living. My uncle us diagnosed with terminal cancer 2 years ago. We all dug in and did alot of research. What we found was a toxin free living company. They produce everyday household items in toxin/carcinogen free form at wholesale prices because you order factory direct. After testing it in all of our homes for 4 months we tried what was left of our old products. We all became ill. Stomach aches, headaches, vomiting...we never knew the change would be so profound. I am trying to spread the word and have come home to do so. If anyone is interested in more info. please contact me.
God Bless,
Jess
Jessica Means
Remsen, Ia USA - Thursday, April 17, 2003 at 22:39:08 (GMT)
Found this site while searching info for an on line class - Health and Safety - I work with children and am looking for ways to make the environment more healthy for the kids and staff. Thank you for your insights.
Mep
Bremerton, WA USA - Wednesday, April 16, 2003 at 02:25:29 (GMT)
I lived in North Wilkesboro till I was 20 Then i moved to Oklahoma. I am tring to start a writing career and my first book is about stories from Wilkes County North Carolina. So if u have any e-mail me at m_brown7803@yahoo.com would appricate it very much. Doesn't matter what kind of stories could be funny or scary either one thanks a bunch.
Linda Michelle Brown
Oklahoma City, OK USA - Friday, April 11, 2003 at 17:41:59 (GMT)
I have known for years that I am sensitive to chemicals. A few years ago, I was able to associate a sensitivity to petroleum products. I do not know if you are aware of it, but synthetic drugs are also made from petroleum. This is something I learned in a Microbiology class I was taking as a student. The carbon chains in petroleum are rearranged to create drugs. I also was diagnosed with Chronic Fatigue Syndrome. While I force myself to function, there is not a day that goes by that I am not sick. I appreciate the information you have shared.
Suzanne Pascua
Falls Church, VA USA - Wednesday, April 09, 2003 at 13:49:34 (GMT)
I have know for years that I am sensitive to chemicals. A few years ago, I was able to associate a sensitivity to petroleum products. I do not know if you are aware of it, but synthetic drugs are also made from petroleum. This is something I learned in a Microbiology class I was taking as a student. The carbon chains in petroleum are rearranged to create drugs. I also was diagnosed with Chronic Fatigue Syndrome. While I force myself to function, there is not a day that goes by that I am not sick. I appreciate the information you have shared.
Suzanne Pascua
Falls Church, VA USA - Wednesday, April 09, 2003 at 13:48:48 (GMT)
I lost my beloved welsh terrier 2 years ago. I was 10 years old. She had died of blatter cancer. For months i felt awful about it (did she know I loved her? Did she love me? Did she feel like I abandond her?) I had been away the weekend she died. My parents never showed me her body, so I kept on worring she had been buried alive. I'd suggest to any parent who had a child very sad about loseing a pet show the child the body. Bristol was my best friend, but I know she loved me and will always look down on me, with her rope toy.
Julia Norson
USA - Saturday, April 05, 2003 at 05:00:41 (GMT)
I lost my beloved baby 2 years ago. I was 10 years old. She had died of blatter cancer. For months i felt awful about it (did she know I loved her? Did she love me? Did she feel like I abandond her?) I had been away the weekend she died. My parents never showed me her body, so I kept on worring she had been buried alive. I'd suggest to any parent who had a child very sad about loseing a pet show the child the body. Bristol was my best friend, but I know she loved me and will always look down on me, with her rope toy.
Julia Norson
USA - Saturday, April 05, 2003 at 04:59:55 (GMT)
Thank God and thank you for reminding me in my time of trouble that I need to let God do his work. Your advice rings true and it has helped me today not to worry even though I feel like I need to. Thank you and God bless.
Matthew Dezan
USA - Wednesday, April 02, 2003 at 13:59:22 (GMT)
HI, I make my own laundry detergent using soap, washing and borax and I'm thrilled. I use it for all my cleaning; walls, floors, cupboards, bathroom and toilet and I don't have any cockroaches. That's right, not only does it clean beautifully but it keeps cockroaches away too. I'm very happy and I just wanted everyone to know chemicals are not necessary to keep the littles monsters away. So we can all be happy and have a happy environment too.
Thanks, C. Herson
Christine Herson
brisbane, QLD (Queensland) Australia - Wednesday, April 02, 2003 at 03:33:02 (GMT)
Great site. Thanks for taking the time and effort to make this little known problem more well known.
Kay
Sydney, NSW Australia - Monday, March 31, 2003 at 01:56:54 (GMT)
Hi,
I work with the Vermont Public Interest Research Group. We are collecting stories from Vermonters who have been unintentionally exposed to pesticides, with a goal influencing legislative change. If you, or anyone you know might be willing to share their story, please contact me at vpr@ktc.com or VPIRG's office 802-223-5221. We can provide confidentiality upon request. Thank you.
Sincerely,
Lene Muller
Lene Muller
Montpelier, VT USA - Tuesday, March 18, 2003 at 14:18:59 (GMT)
I stumbled upon your webpage while searching for information on pet loss. I lost my dog (Gráinne) in the summer of 2001 and am still grieving. She passed away in quite a similar way to your own "little man" and your description of his final days really reminded me of my own "mouse-biscuit". She died early in the the morning of my final examinations and I almost didn't sit my exams as I was crippled with grief... she MUST have been with me in spirit that morning as I went on to do quite well (despite breaking down a couple of times during the exams that morning) and managed to secure a place in the Veterinary school in Dublin. To be able to share her life was a joy, a gift and a privilege. She was a tiny ball of fluff, so loving and "full of business" and despite the grief....I don't regret a moment I shared with her. The only time I ever saw my dad cry was the morning our family buried her in our back garden (wrapped up in her blanet so that she wouldn't get "cold").... your dedication to Dusty was lovely and very touching.
Rónad Stanley
Galway, Ireland - Sunday, March 09, 2003 at 22:08:48 (GMT)
This is in response to Andrew Lageman's quest for answers to his "questions and challenges" in an earlier posting, as well as to his skepticism regarding a link between headaches and chemicals in people with MCS. The best source for answers is a list of ingredients contained in fragrance and cleaning products, followed by looking up the known effects of exposures as listed in Material Safety Data Sheet (MSDS). Here is a web page from Cornell University with MSDS's on many chemicals.
From that same page, here is a small bit of information from the MSDS on the chemical TOLUENE, a toxic volotile organic solvent (VOC) commonly found in fragrance products, which, as we know, are commonly applied to the skin and inhaled by bystanders. (VOC's are used to broadcast the scents.)
SECTION 11. - - - - - - - - - TOXICOLOGICAL INFORMATION [on toluene} - - - - - - - -
ACUTE EFFECTS: CAUSES SKIN IRRITATION.
MAY BE HARMFUL IF ABSORBED THROUGH THE SKIN.
CAUSES EYE IRRITATION. TOXIC IF INHALED.
MATERIAL MAY BE IRRITATING TO MUCOUS MEMBRANES AND UPPER
RESPIRATORY TRACT. TOXIC IF SWALLOWED.
EXPOSURE CAN CAUSE: GASTROINTESTINAL DISTURBANCES; MAY CAUSE CONVULSIONS.
CHRONIC EFFECTS
TARGET ORGAN(S):
EYES, KIDNEYS, LIVER, HEART
In workplaces where workers are exposed to hazardous chemicals, MSDS's must be posted under Right-to-Know laws. Because of Trade Secret laws, equivalent information and warnings are not required on products, like cologne, hand lotions, aftershave, etc., containing the same hazardous chemicals.
Trade Secret laws exist to protect the profits of manufacturers by foiling other manufacturers from stealing formulas and creating competing products. However, all manufacturers of fragrance products have the equipment and scientific expertise to take a sample of others' products, analyze, and duplicate them. None are foiled by the existence of Trade Secret laws.
The only people for whom Trade Secret laws are an obstacle are consumers who don't have the equipment and expertise to determine what the ingredients are of the thing simply called "fragrance" on the label. Fortunately, web sites like the many pages on this one, and others, such as those offered by the Environmental Health Network of California, have taken the trouble to find out what's in these products and to warn people, since manufactureres won't take responsibility and the FDA won't require them to.
Regarding the fact that many chemical irritants (as distinct from normally harmles allergens that are misininterpreted as threats by some people's immune systems), exist in nature, does not automatically render them harmless in small doses. Poison ivy exists in nature. I would not think of adding just a few tiny leaves to my salad.
As for whether the chemicals are problems for people who have not yet shown severe symptoms of MCS, it is not safe to assume nothing harmful is happening. I suggest you watch the upcoming program on Bill Moyers NOW, airing on PBS. For the record, he had his own blood tested for toxins. The results are amazing. I won't try to convince you. See for yourself.
Check out: http://www.pbs.org/now
On a more personal note, people with MCS are "challenged" every day, everywhere they go to prove they are not just imagining things, that their headaches and other reactions to chemicals are not merely a symptom of some underlying mental or personality problem.
If a landlord installed fifteen rotton steps on a fifteen-step staircase and I witnessed someone forced to wear a blindfold and tricked into walking to the stairs, and I saw that blindfolded person fall and break his legs after stepping on one that gave way, I would not stand above the injured person with my arms folded and grill him on which step it was, the fourth, the seventh, or the twelfth, that caused the fall, or ask him to prove that the step was rotten in the first place, or that his leg is really broken, or that there was really some connection between the injuries and the staircase. I would not add insult to injury by offering a variety of psychological labels for the person with the broken legs.
Let the FDA and the manufacturers answer for blindfolding consumers while sending them headlong down a rotten, poisonous staircase. Let medical schools and associations answer for their tendency to instuct physicians and medical students to look for personality problems, rather than take a hard look at the toxic ingredients and their known effects.
Let the witness of people with MCS be a help to others in forstalling the same fate for themselves and their children.
Respectfully,
Gerry Glodek
Decatur, IL USA - Saturday, March 08, 2003 at 17:27:36 (GMT)
I have found a fragrance-free bar of soap available in many supermarkets. It can be used as a hand or bath soap as well as a shampoo, and in fact, gets my hair cleaner than any shampoo I've tried in years. It is CLEARLY NATURAL GLYCERINE SOAP UNSCENTED. It does have an odd glycerine smell, which rinses off, but no toxic solvents that would irritate me. It is also very slippery. As a shampoo, it works in hard or soft water. As with regular liquid shampoo, I lather it twice. The cost per bar is about 85 cents. When I travel, I put a bar in a small plastic drinking cup and keep it in my pocket so I don't have to rely on perfumed soaps in at rest stops or restaurants.
Gerry Glodek
Decatur, IL USA - Saturday, March 08, 2003 at 03:32:17 (GMT)
Thank God for Mother's Instint that God gave us Mothers!! Let me explain. My little girl has had severe eczema for the last 3 years. It was only getting worst. Even her hair was beginning to fall out, her skin flaking off, and even stomach problems was arising. We went to 3 Allergists, which only wanted to medicate her little body or put cortisone creams or the new "ezcema" ointements out there on the market on her. I would question them and their side effects on her and I felt like I was doing more harm than good trying their ways. They would not listen to me and in trying to find the real problem with her skin. I finally found (Thank you Jesus!)a Environmental Doctor who really listened to me and told me I was on the right tract in helping her. We did blood and stool testing and found out she has a terrible internal yeast infection, food allergies and much more. With the supplements he is giving her and medicaiton to slowly kill the yeast and our avoidance of the bad foods and other allergens, we are seeing a wonderful improvement in her skin. So all of the Mothers out there, never ever give up. Keep going on until someone listens to you about your sick child. This is the reason for our INSTINT to tell us something is wrong. I feel now that the Allergist poisioned my daughters body along with the required immunization shots she got as a baby. She is not getting any more of them. Her Mercury level is very high now just from that alone! If anyone has ezcema out there, remember its your body crying out from a problem inside of you, not always on the outside!!!
Thank you for the website!
T. Wayman
USA - Saturday, March 01, 2003 at 05:01:39 (GMT)
First off let me say that it is apparent that you and many others suffer from an unusually powerful sensitivity to many common chemicals and I am very sympathetic. This must be a very difficult condition to live with and I hope progress is made in developing treatments. Also I want to add that I apparently do not, as I have none of the symptoms or reactions that you list.
That said, I have a few observations and questions about the root cause of this disorder, and I am hoping that a reader on the message board can direct me to the best source for obtaining answers. I would be very grateful for any information that anyone would be willing to provide by email.
First I note that many of the chemicals listed as synthetics are in fact naturally occuring. For example, if you buy the most organically grown natural orange that you can find, and eat it, you are injesting more formaldehyde than you will encounter in most synthetic consumables. Furthermore oranges, like most fruits, contain small amounts of ethyl alcohol and a smaller amount of methyl alcohol. The ethyl alcohol you are familiar with as the intoxicant in beer, wine and liquor. When metabolized by the liver it breaks down to, among other things, ethylaldehyde. Methyl alcohol, when metabolized by the liver produces methylaldehyde, which is another name for formaldehyde.
These substances are not cumulative. The body disposes of them, and if they are not encountered in large quantity, there is no harm done. That makes sense when you consider that people have been injesting them unknowingly for as long as humans have been on this planet. There are, of course, cumulative toxins - substances that the body can not dispose of, and will carry for life. Most of these are of the heavy metal class. Arsenic, a semi-metalic element, will accumulate in some compound forms but can be disposed of in other forms. People have suffered from arsenic poisoning, usually from a natural water source, for millenia. Ironically, arsenic poisoning is far less common now than in centuries past, since we can now identify it.
The most allergenic and poisonous substances I know of are purely organic in origin. There are persons so allergic to peanuts that they will die in minutes if they eat one tablespoon. Ricin, now enjoying a moment of fame in the press, will kill anyone in as little as a one milligram dose. It is found in the castor bean plant. The batrachotoxins found in some frogs of the dendrobatidae family take only micrograms to kill, and work much quicker.
There are several important points I want to make here. The first is that many or most allergens are not at all toxic, and most are allergenic only to a range of people. Many people are allergic to ragweed, only a few are allergic to peanuts. Neither are toxic in and of themselves, the symptoms they cause in people, which can range from minor irritation to death, are caused by the bodies reaction to the substance. To oversimplify for the sake of brevity; the body misidentifies the foreign substance as potentially dangerous, provoking an immune response which, if excessive, can cause death. Little is known about why some people are more susceptible or more pronounced in their reaction, but progress is being made in research.
Another point I want to make is that dose does matter. The notion that if something is toxic in large quantities, it will be damaging in any quantity, is unfounded. And thank goodness, because many foods you eat, no matter how purely organic, contain substances that, in sufficient quantity, could harm or kill you. Apple seeds and parts of other fruits contain cyanide in very small quantities in a compound form. Some of the cyanide is released on digestion. No problem. It is not harmful at all in the quantities you will encounter. Potato skins contain the toxin solanine, and you can actually injest enough in one sitting to become ill and have headaches, especially if the potato skin is a telltale greenish color. To further illustrate how quantity matters, you have, right now in your body, traces of Uranium 238, Uranium 235, and lead, and so did your great-great-great-grandmother. Anything found in the crust of the Earth will be found, in some quantity, in your body. I will cite sources on request.
Systematic and properly controlled tests of consumable items actually started *after* WWII. A great many items were sold as consumable for up to thousands of years before proper testing showed them to be toxic. And due to advances in medical science, we actually, on the average, enjoy much longer and healthier lifes than anyone who lived before the 20th century.
A question I have is, what is the foundation for the statement that everyone is susceptible to MCS? If it is a matter of exposure, than no matter how strong or weak my immune system is, I, or a member of my family, should suffer by now. I live in Florida, and I do not hire an exterminator because they must follow federal limits. Supposedly I have to too, but I don't. I buy the pure concentrates, then I carefully read the label to determine the maximum concentration allowed by federal law, then I mix at 10 to 25 times that limit. Next, I spray all over the house, outside and inside. I don't like cockroaches.
I am also very skeptical of generalizations, and the lack of a credible link between very common symptoms like headaches (I only get one or two mild sinus headaches per year) and MCS.
Anyone who can answer these questions or challenges (I have many others), or can direct me to someone who can, please write me at the listed address. Thank you very much for your help.
Andrew Lagemann
Tampa, FL USA - Friday, February 28, 2003 at 23:20:38 (GMT)
I suggest for anyone suffering to please look into NAET treatment. I swear by it. www.naet.com
Kim
Boise, ID USA - Friday, February 28, 2003 at 20:40:44 (GMT)
Ihave had fibromyagia since 1990 and MCS since 1994. I had to give up my nursing career that I loved so much, move from our town of 20 years, and my husband had to change jobs , all for my well being. I had testing done for years in southern Ont. at our own expense since insurences don't recogonize MCS. Our whole life has changed.This is not in our heads but oh so real.I have improved greatly because of my new way of surviving. I give myself three injections a week to help desensitive myself, eat organic meats, drink water threw osmosis system (we put in),use baking soda and vinegar for cleaning, make my own furniture polish,use econ-discs for laundry, natures clean products,do all my own baking and most of all avoidence.I have had the hardess time getting friends ,family believe this is real. WE look well which is our biggest problem. If I looked the way i felt,problem solved. I've been fighting for three years in my quilting guild and one year in my church to make it scent free.Well, they have both won. I swell internaly and can't breathe when I'm exposed to scents and chemicals. Before moving to my present home ,I was hospitalized 10 times(give or take ) each year wondering if this was the big one. I've left the guild for a year and now leaving and looking for another church who are more understanding. Unfortunately for us (MCS) we suffer the loss of getting out, companionship, visiting, being a part, and the list goes on.I wouldn't wish these diseases on my worst enemy .Althoght I have wished some people, doctors, nurses live this life for aweek.I have one very supportive husband, thank God for him. I have a few thigs that might help others. I carry the charcoal 3m masks with me at all times. I find them very helpful and the more thepublic sees us wearing them it puts awareness out there. Depending on what you are breathing at the time is the factor for the longevity of that mask. I also use oxygen for chemical reactions which works very well. I have a ceramic mask(can't use plastics) and use it at 6 litres.I have it when I fly,in my car and at home(2hours daily).My environmental doctor took my case to Nova Scotia and this is what they recommended.It is truly my life line.I'm a great label reader and you should be too. Avoid dyes,if your medication is covered in yellow,red,etc dye wash it off.Try to buy pills that are white. Ask for no substitutions on your meds.You don't know what is added.Epson salt baths are very helpful after exposure. 3-4 cups in a hot bath.Wash your sheets in hot water once a week.Vit C is also good, but buffered with calcium and with bioflavonoids is best for absorbion. Large doses helps to get rid of chemical overload.And as I said before , our biggest helper is avoidence. I hope this helps a few of you. This is becoming a bigger and bigger health issue every day. I only hope our population sees this before we destroy our earth or a loved one.And that person thinks we have this to cash in. Think again
Diane
Little Current, Ontario Cananda - Thursday, February 27, 2003 at 18:24:43 (GMT)
Is there any way your information can be emailed to friends and family we know. There are thousands of people who have no idea of what you're trying to do. More people should be able to find out what you've found.
I have birds, dogs, and cats, as well as a husband, not necessarily in that order of importance. I cannot believe what I've learned today. More people need to find out.
Word of mouth, or in this case, email, can inform thousands.
Thank You,
Linda Raymond
Linda Raymond
Portage, IN USA - Thursday, February 27, 2003 at 17:58:29 (GMT)
I have had MCS for over 20 years. In 1995 I had a severe case of shingles (Herpes Zoster) around my eye, my forehead and over my scalp leaving me with permanent nerve damage. The chronic pain I deal with is bad, but managable, until it is triggered by some toxic substance, which lately is just about everything. I have not worked in 8 years, and have become a hermit because my home is the only place I can control my environment to some degree. There is not much worth doing that is worth the pain that ensues when I am "bombed" by a toxic substance. People do not understand and frankly, I am just tired of trying to explain and justify my problem, even the doctors. There is no money to be made in the field of MCS for the doctors, so why should they pursue it.The best they can tell me is to stay away from the things that bother me, which I am doing !! I can say I do have a very severe case of depression though!
Forget disabillity, don't waste your time filling out the paper work. It is heartening to read that I am not the only one with these problems ( not that I ever thought I was ) and to feel that others understand what hell it is to live like this. I wear a mask when I go out to walk my dogs, for dryers will get me from blocks away. I do not shop, go to church, visit my family or friends ( or they me ) and doctors visits have become my social life.
When people ask me about flowers and why they don't bother me,I only have problems with things that man made, I don't have any problem with things that God made.
Chris Overturf
Columbia, SC USA - Tuesday, February 25, 2003 at 22:06:23 (GMT)
I am a 50 year old woman who has suffered from MCS for the past 20 years. In 1995, 8 years ago, I had a severe case of shingles (herpes zoster) around my eye, forehead and scalp area leaving me with nerve damage. Since then, I have totally lost my battle with MCS and most of the people in the world around me that continue to "odorize". I have chronic pain that can be managed until I am exposed to any type of trigger agent, which can be most anything. I have become a hermit, for my home is the only place I can control my environment to some extent. Some times friends give me clothes (since I don't shop) and I have run into the problem of perfume and makeup odors on shirts. I use a baking soda detergent, but on some of these odors, even that will not work. Any suggestions? Also, I can't say enough wonderful things about Dr. Bronners soaps/shampoos, (I love the Teatree and the Almond). I thought I was doomed forever to use olive soap which dulled my hair. I can't shop, so my friends are always on the lookout for "unscented" items, of which most are not !!
I have not worked in 7 years and the fight with SocialSecurity Disabillity has been futile. The depression and the anxeity that trying to justify myself has brought has not been worth it. Soon, more and more people will realize that this is REAL... that we, mankind, have destroyed our planet. I hope fellow supporters will feel free to e-mail me, for that is my contact to the outside world. Good luck to all of us !!!
Chris Overturf
Columbia, SC USA - Tuesday, February 25, 2003 at 16:57:21 (GMT)
This is a delightful site to find and encouraging for a fellow MCS sufferer! There are many of us and PTL that more and more of the people around us are finding out how real and disheartening it is to experience. I read a few of the comments from those who know nothing about environmental illness, how sad that they are so discouraging to those of us who live this nightmare daily - and there is no benefit to it!
Cheryl Schroeder
Calgary, AB Canada - Monday, February 24, 2003 at 05:01:11 (GMT)
This is a very good site and I pray it make a change in my life
Dave Chukwuka
Lasgid, USA - Saturday, February 22, 2003 at 00:27:02 (GMT)
Lovely website. I am Gorden's cousin.
Charlotte Flowers-Fiore
Tallahassee, FL USA - Friday, February 21, 2003 at 22:52:16 (GMT)
please send me info on treatments
sherrie
archbald, ps USA - Tuesday, February 18, 2003 at 03:54:55 (GMT)
I love your webpage. Thank you for providing this much needed space for venting one's scent-related complaints. I too work in a small office environment where a handful of people wear way-to-much perfume. It's so bad sometimes that I have to turn on the air conditioner in the middle of winter just to attempt to filter the air. It gets to the point that if I sit in the same chair as a person that bathes in perfume that I take the scent home to my wife, and you can imagine what she may think. I've talked to other people at work and a few think that it's a violation of their rights. I say "no", it's not a violation of their rights but a violation of "my" right to be healty and breathe clean air. How sadistic are people when they would prefer to wear a scent knowing that it negatively effects people?? I'm not kidding when I say that it gets so bad I actually go home smelling like perfume simply from being in the same room with them. Something has to be done. Thanks for listening. Healthy, and intend to stay that way. Chris.
Chris B.
Elkhart, in USA - Monday, February 10, 2003 at 13:41:44 (GMT)
I LOVE THIS SITE AND WANTED YOU TO KNOW HOW MUCH IT MEANT TO ME TO FIND OUT FROM MY SISTER ABOUT IT. MY LITTLE "TATORTOT" WAS SOON TO BE 12 WHEN HE WAS RUN OVER BY A CAR. HE HAD NEVER GONE TO THE ROAD BEFORE,EVER! BUT, HE HAD BEEN SICK FOR AWHILE AND WAS DIAGNOSED WITH CONGESTIVE HEART FAILURE ABOUT 4 MONTHS AND THE VET PUT HIM ON LASIX, POTASSIUM AND PREDNISONE. I LOVED HIM SO VERRRRY MUCH AND MISS HIM TERRIBLY! I HAVE CRIED TONIGHT READING THE DIFFERENT STORIES AND ESPECIALLY ABOUT YOUR DOG. IT BROUGHT BACK SO MANY MEMORIES. MY HUSBAND CALLED HIM "LITTLE MAN", TOO! I CAN ONLY THINK THAT GOD KNEW THE SUFFERING THAT WAS GOING ON AND IT WAS ONLY GOING TO GET WORSE AND HE DIDN'T THINK I WOULD BE ABLE TO HANDLE ALL THAT SO HE TOOK HIM OUT OF HIS SUFFERING IN A QUICK WAY. I STILL FEEL THE PAIN SOOO BAD AND KNOW THERE WILL NEVER BE ANOTHER TATORTOT. BUT, I ALSO KNOW GOD IS THERE TO COMFORT AND HEAL. THANK YOU FOR THE LOVE AND COMPASSION YOU HAVE FOR OTHERS THAT HAVE SUFFERED AS YOU HAVE. MAY GOD BLESS.
PATRICIA RIDDLE
BENNETSVILLE, SC USA - Tuesday, February 04, 2003 at 05:12:44 (GMT)
Hi folks! Nice to find you. I've always suffered from sensitivity, but it has become really acute as of late. Perfumes are pretty bad. Some are worse than others. I see this being very similar to the second hand smoke issue. I think we deserve the right to work in safe workplaces. Here's an article in a mainstream news source that's been helpful for me in explaining my condition: http://www.msnbc.com/news/702445.asp
Of course, there are those people who don't care. One thing worse that perfume is dry erase markers. I thought I was going to die after being exposed! And how do you explain what the reaction is to medical professionals? I feel like my body is being altered at a biochemical level, but I can't describe the feeling more precisely than that. This is probably going to kill me but if I can raise a few people's awareness, I will be happy. Oh yeah, the FDA will return your call if you want to report you condition. Their jurisdiction includes "cosmetics/perfumes." It took a couple of months for them to call back, but we CAN do something about this.
Withheld
USA - Saturday, January 25, 2003 at 18:38:52 (GMT)
Thanks for sharing scent free information.
Most people don't release the effects it has on others. Keep on educateding the puplic!
thanks
Scent free home
Sheri
Sheri
Kingston, NS Canada - Friday, January 24, 2003 at 22:21:48 (GMT)
To Kristi about refridgerators,
I read somewhere (think it was in Nexus Magazine but can't find it again) that fridges really do emit chemicals and that freon-free fridges has another kind of chemical that is even worse for your health. Haven't had any problem with mine though, but I just wanted to let you know that if you feel something from it you are probably right.
Inger
Sweden - Thursday, January 23, 2003 at 07:35:29 (GMT)
This is the one time I am thankful for the internet. I became environmentally sick in a time when there was no unscented anything. It happened after receiving a dose pak of steroids for mono. I am thankful for the awareness that is being poured out to everyone. I am much better but I still have to avoid perfumes, mold, mildew, msg,aspertame, anything smoked and a multitude of other things. It changed my life forever. I was secluded and misunderstood even by some of my own family for years. God intervened (not my doing) and I ended up in Birmingham with Dr. C. Orian Truss. He started me on nystatin powder 4 times a day and my symptoms improved so much that I started living again. Sometimes I still have to sit in the church foyer on bad days when I am overloaded with everyone's perfume and hairspray chemicals. It still makes me feel like an outsider. I feel like people think I am an anti-social. For 5 years I had a job that understood all of these things but they sold the company and I have been jobless and searching for quite some time. Unemployment benefits have run out but I have been blessed with some supportive family and friends. I have had to quit one job because of renovations and have turned down 3 other jobs because of mold and mildew covered up with potpourri problems. I was qualified. Boy have I cried. Someone has told me to get on disability. I really want to work. I have excellent data entry skills and love to bookkeep, however I feel that my options are running out in the work place. If you ask for a job accomodation, others treat you like you have the plague. Does anyone know any true home-networking jobs? Has anyone ever applied for disability with this sickness that is so (not a sickness) to anyone else, and been approved? Please email me if you have any information. Believe it or not, in the 12 years that I have been chemically sick, I have never met anyone else that has this problem, face to face. That would be a comfort.
shan
USA - Thursday, January 23, 2003 at 04:36:27 (GMT)
I am a 47 year old woman who recently purchased a new Kenmore refrigerator. As soon as it was installed I started getting short of breath and feeling a burning sensation in my larynx/lungs, and will probably have to return the refrigerator to Sears. Has anyone else had this this type of trouble, or knows what would cause this type of problem? I thought that all refrigerators were sealed, but something is being emitted in the air, but what?
Kristi
Cedar Rapids, IA USA - Saturday, January 18, 2003 at 00:30:00 (GMT)
Great site! I have MCS + CFIDS + Fibromyalgia due to severe spinal injury. Getting rid of the toxins in my living space have helped the most. Luckily, I have always eaten healthy and stayed away from synthetic materials. But there are so many toxins around us, especially in the USA.
"Perfume," when it is artificial fragrance, and artificial flavorings, are some of the worst offenders.
A word about perfume: there is nothing yet that we can do about it in public. It is as dangerous as second-hand cigarette smoke. I believe that artificial fragrances should be banned! That's where the war on drugs should begin, with artificial fragrances and artificial flavors, which are both highly poisonous to us and our environments.
I am not allergic to any flowers or weeds or essential oils from natural substances. I am, however, deathly allergic to "perfumes" made from artificial fragrances. Some so-called natural fragrances are ruined by the addition of artificial musk to "stabilize" them -- so be careful when it says "natural" that it may not be true. Aritifical musk, found in fabric softeners, most detergents, scented soaps, and practically every commercial perfume, is one of the most dangerous chemicals of all.
Some perfumes and soaps have no artificial ingredients whatsoever and are thus safe. If you do like a pleasant fragrance that is not dangerous, check and double-check the ingredient list, looking for "essential oils" and avoiding any that list the words "fragrance" or "perfume." And you can do the test I mention here below near the end.
I make my own "perfumes" by highly diluting essential oils in cold-pressed vegetable oils all from the health food store. The difference is that any natural fragrance which has been distilled into an essential oil -- and these MUST be diluted before using!! Put only one tiny drop to 1 cup of oil, as they also are very toxic when made into this concentrated!!-- this "perfume" will be much lighter than anything commercial, and it will not overpower anyone standing near you. Natural will also not last long at all, so if you splash on some natural rose water on your face, for example, or use natural honey & lavender soap, the smell will only last from a few minutes to a little while on your skin, giving you a pleasant relaxing feeling, and it will not disturb anyone else.
The best soap to use for washing the body, the dishes, and the laundry, is that plain castille soap, a liquid soap made from all-natural ingredients. It is the mildest soap and yet cleans the best! I believe the brand is Dr Bonner's?? It comes plain, and also it comes with peppermint, eucalyptus, and very lighly-scented other natural essences. I like the peppermint and the eucalyptus ones.
EASY TEST to tell is a fragrance is artificial: if you can still strongly smell it after applying a small amount to the skin and then you wash it off with a little plain soap and water, it is TOXIC. If the smell disappears when you wash it off easily, it is probably safe and natural.
Another offender causing much disease is MSG (monosodium glutamate), which goes legally by 100's of names, such as "hydrolized vegetable protein, hydrolized soy," etc., all allowed by the US-FDA. It is found in almost all packaged, processed foods, canned, dry, and frozen. It is used as a "flavor-enhancer" in many restaurant foods, most cafeteria foods, and all the fast foods places use it, from main dishes to ice creams and pastries. (MSG and its many forms are NOT just something you have to worry about in "Chinese" restaurants, which by the way, rarely ever use it anymore.)
Thanks again for a wonderful site! Bright blessings, good health, joy, and happiness to all.
~Amante
Anne Amante
New Orleans, LA USA - Monday, January 06, 2003 at 02:56:24 (GMT)
I loved PRECIOUS LITTLE FRIEND. Where can I buy a copy? Please advise. Thanks.
Have you read WILL I SEE FIDEO IN HEAVEN and DOGSTAR? Those are two wonderful books.
God bless.
Marc V. Ridenour
USA - Thursday, January 02, 2003 at 23:22:12 (GMT)
Thank you for your inspiration to people like myself who have MCS. Other people in my family have it too! God is really using people like yourself to help me and others like yourself.. Keep the faith and keep up the good work.
Judi Hines
Chicago, Il. USA - Thursday, January 02, 2003 at 20:55:00 (GMT)
Asbestos and Fiberglass: Bad,Bad words but everyone has been brain washed as to thinking these products are safe, Asbestos is still being used in over 3000 products, and fiberglass is used everywhere. How many homes in America are insulated with fiberglass, it's a toxic product but it has more warning labels than asbestos does. Fiberglass manufactures have changed their products to make it safer, is it really safer? NO tests have been done. Just go to any search engine and type in VICTIMS OF FIBERGLASS OR FIBERGLASS HAZARDS, you'll be busy for hours. The new 108th Congress will have to take up the battle of the lawsuits concerning Asbestos workers which involve BILLIONS of dollars. It's like opening a can of worms on the tip of the iceberg, something will stink and fall! Fighting powerful chemical copmanies that produce these products and health hazards is like fighting a 500 lb gorilla that has PMS and has bankers to feed it. There are safer products out there, but when it comes to getting sick in their homes they NEVER look into the walls, attic, etc. I seen how buildings get sick, I seen how people get sick from fiberglass, I seen how the EPA fluffs off fiberglass as hazardous, because it's all over money! But these smart allics can't see past their noses and see the big picture. America will always be sick unless we change and demand the ways we build our homes today. A safer home is clean, built well, with some planning and research before buying or building a home, ask someone who knows for sure. I think the wave of the future is steel framed homes with reflective insulation is the way to build today. Contractors must change, people must think different and demand safe products, otherwise the situations and health hazards will NEVER go away, they will just get worse. Be safe out there!
Norman Grimsby
Redwood City, CA USA - Tuesday, December 31, 2002 at 14:40:00 (GMT)
Hello, I am a 41-year old lady from Sweden. For more than 20 years I have suffered from migraine and could not understand what caused it. After a while I started making a connection to the large amounts of sugar I was eating and struggled to stop. This helped a bit but still I would often get very ill right "out of the blue" - especially after I had been to a party or other social event, even though I don't drink. After several more years of suffering I finally figured out that what caused it was chemicals like solvents, formaldehyde, cigarette smoke and especially perfume!
So then I started wondering if perhaps migraine might not be a "disease" at all, but more of an allergic reaction. But no one had ever heard of such a thing, and when I had to spend several months in a hospital and tried to explain to the staff that their perfume was making me ill, they just ignored this and wrote it off as some kind of neurosis! Some even denied wearing any perfume just because they hadn't sprayed some on them that particular day, and did not seem to be aware of the fact that they still reeked of scent that probably came from their shampoo, detergent, skin lotion or whatever, and that such cheap fragrance often is even worse and almost impossible to get off once it's gotten stuck in hair, fabric, wood, paper or other fibrous material.
As long as I stay away from chemicals, I feel fine, but unfortunately that is turning out to be a full-time job, and it seems that sensitivity is only increasing and reactions becoming more severe, with vomiting, tremors, total disorientation and finally just blacking out from even the tiniest amount of perfume. I also fall promptly asleep from any hint of mold, even if it is no more that a musty smell in clothes or linen. However, I have started a treatment and have some hope that it may eventually help.
So finding confirmation here on this website that perfume really does contain some nasty chemicals feels empowering. Thanks for providing information about this. (If I may give a suggestion however, I think the text would be easier to read if the canaries were given a separate space, at least for those of us who have trouble concentrating on more than one thing at a time.)
Thanks again and best wishes for the new year!
Inger
Sweden - Sunday, December 29, 2002 at 16:51:43 (GMT)
Hi! I am starting a website on MCS. http://pageproducer.mylifeline.net/dmaki/. I want to start an MCS support group in Yuma Arizona and surrounding ares. If you write something on MCS I will put it on the website. The more info there is on this the better! Wether you are from Yuma, or any other part of the world, I would love to here from you so go ahead and e-mail me! :-) God Bless everyone! Alanna
Alanna Maki
Yuma, AZ USA - Friday, December 27, 2002 at 03:29:05 (GMT)
Intersting web site. I've been diagnosed with MCS by a specialist at Johns Hopkins Hospital in
Baltimore and have seen 9 pulmonary specialists over the past 9 years but none
have been able to treat me succesfully. Like many of you, I have a reaction to perfume,
cologne, cleaning products, gas fumes, etc. My lungs become
inflamed and congested - lasts for days. I've tried just about
every inhaler on the market, with no luck. Has anyone had any
success treating this problem and if so do you have any info you can share.
I'm running out of options. Please eamil me. Thanks...
Bob Taylor lampden@comcast.net
Bob Taylor
Clarksville , MD USA - Monday, December 16, 2002 at 01:43:38 (GMT)
work site accommendations for frag sensitivity @ www.jan.wvu.edu or call 800 526-7234 for free booklet. Doctors @ www.roec.org or www.aaem.com. Great hospital guide @ www.chebucto.ca/~cares/csemguide. Has everyone printed and posted some of the acticle around where they live(library, schools, offices) like the 1991 epa report ? If people are uneducated about the health effects and we just complain but don't work to get the info out there well...
liv
USA - Sunday, December 15, 2002 at 07:37:14 (GMT)
Wow this website rocks is so cool! What a Christain Godly site this is! Finally a place where there are people that understand my medical conditions caused by multiple chemical sensitivity!This site is a Godly blessing for sure and I agree wholeheartletly with the fact that since about 1900 there have been a large increase in unatural chemicals particularily since 1940 the rate at which untested and unsafe chemicals have been produced is amazing!! Yes some chemicals are good but about half of all unatural chemicals can easily be replaced by safer more natural chemicals. All my life I have been affected by poisons such as PERFUME-PESTICIDES and LAUNDRY DETERGENTS and Mercury Fillings-all of which greatly affect my abilty to breath--I did ask my mom to switch to SUN CLASSIC Detergent even tho it does cause some tiredness, slightly asthma and gives me occassional slight headaches. GAIN and certain other Laundry Detergents give me extreme headaches.--I have personally given up on soap-I use a 1 to 2 tablespoons of plain salt to wash my clothes (as this was a common to use salt as a cleaner in past).SO called hi tech modern soaps usually contain some salt anyway!God Bless you all! God made the world natural-it is man that has made unatural chemicals!-People lived for thousand of years with mostly successful crops that had NO Pesticides and people lived happier and healthier and NATURAL in past--but since the invention of chemicals we live longer but the quality of health in the average person is worst overall than the health of people in past.MAy we all serve Father Jesus and Holy Spirit our good God! You may use these comments in your website:)
A Freind of God
Athens, TN USA - Saturday, December 14, 2002 at 13:49:25 (GMT)
A lot of the cause of the symptoms described in a lot of the messages can be treated wtih detox. Read info on Gerson, coffee enemas, juices etc. There are also good homoepathy treatments available that encourage the body to remove the offending toxins without causing harm as they leave. Using other forms of treatment just add to the rubbish that is already in the system. I have been ill for 9 years and the greatest help has been through prayer. Keep looking for people who are strong in the Lord who will pray with you and if you are very lucky soak you in prayer daily. If you are reacting to the environment you probably have flukes such as liver, pancreas, blood flukes and these nasties eat the nurishment before you do, leaving you very tired and very unwell. I believe that non toxic products should be the norm and not the most expensive in the shop. All agricultural sprays should be organic and no harm to people, or the environment. This is the greatest issue facing the planet at this time. no matter where you live.I wish you all the very best and a speedy return to health.
Margaret
New Zealand - Saturday, December 14, 2002 at 09:38:39 (GMT)
Thanks for sharing Dusty's life with everyone. I found it to be a wonderful experience. I found myself feeling sad, and tearful and other times I laughed out loud. I tried to listen to your song, "Precious Little Friend", before and it made me cry like crazy. Today marks six months since my best friend, "Boomer" has gone to the Bridge. Christmas was his favorite time of year and he opened his own as well as any other presents he could get his paws and mouth on. I loved him totally and he could be a pain in the butt at times, but I would give up anything to have him here again. He was in bad health and we had to make sure he wasn't suffering anymore so we chose euthanasia. It was a very humane thing to do, but I still feel guilty about it. Maybe in time I will get over it. I'll never stop loving my precious boy for as long as I live, and I look forward to meeting him at the bridge when my time on earth is thru. May God Bless You and keep You and may you have a wonderful Holiday Season.~~Kind regards, Cindy:)
Cindy Bailey
Greencastle, PA USA - Thursday, December 12, 2002 at 20:14:45 (GMT)
I just found your site. Thank G--. Im not alone anymore. Its been a lonesome road to this point in my life. For 65 Years , just the smell of cheese makes me vomit and sick. For half my life I have sneezed to any draft or sudden change in temperature and became known as the walking thermometer. It stopped being funny when I developed a head cold after each change in the temperature. runny nose etc. These last ten years have become a living hell with the onslot of mcs . First it was cheese , now I can not tolerate the odor of corn chips,perfume,most cleaning fluids,I have been tested and proved positive for all these and many more odors.I have now been diagnosed with Non Alergic Vasso motor Rhinitis which in a few words means any change in atmospheric conditions make me sick if exposed to drafts, cold air (such as airconditioning) . The worst is of course Perfume. I have to give up my retail business because it seem every person on earth wears it.To enter any hospital is a nightmare, if the cold air doesn"t get me then It"s the perfume that does. I complained to deaf ears at the Cleveland Clinic about the perfume that the women employes and the men were wearing. The good part about all this is that I have found a chemically treated small face mask (fits around the nose and mouth area) that 100 % keeps the odors out of my system .It also helps me breathe warmer air which helps me a lot.. IT seems that warmer air including humidity is very soothing to my lungs. I often open the dishwasher and take a deep breath ato help me .well enough said today . once again thanks for your site, I"ll keep in touch .
Gary Swerdlow
Mayfield Hts, OHIO USA - Sunday, December 08, 2002 at 17:55:07 (GMT)
Thank you so much for all the work you have put into this website. It is so informative and life altering.
Linda Shadley
Greenwood, CA USA - Thursday, November 28, 2002 at 21:42:14 (GMT)
Great site. Some interesting discussion on MCS/fragrance issues can be found at:
http://forums.delphiforums.com/livingwithmcs
Wishing you the best.
Cobo
USA - Tuesday, November 26, 2002 at 19:34:03 (GMT)
BARREN Women NEED this!!!!!!!!!!!!!!!!!
My wife, at age 29, was told that it looked like she was going through "early menopause", because she had not ovulated for 9 months, and had undergone 3 tests at Kaiser Hospital in the L.A. area, which all showed her womb was DEAD!
When we got home, she was very discouraged, since we had been waiting to start a family until an opportune time! Upon arriving home, I remembered what our pastor had always said: "Jesus Christ, the same Yesterday, today, and forever" and "He Healed them ALL". And then something else someone said came to my mind: "If you have a need and don't know where to look, see what the Bible says!"
So as soon as we got in our apartment, I grabbed the Concordance to our Bible and looked up the word "barren", which turned up 3 references.
I gotta run, but IF anyone wants to know how GOD healed my wife's WOMB and gave us a Beautiful MIRACLE Daughter, Felicia Elise, ("Happy and Prosperous"/"Gift of the LORD"), who will be 17 in February, please contact us!!!!!!!!!!!! (My beautiful wife is Clarice!)
"He is able to SAVE forever Those Who COME TO GOD THROUGH HIM." (Hebrews 7:25)
Mark D. Griswold
Oneonta, NY USA - Sunday, November 24, 2002 at 09:08:50 (GMT)
"The Priest's Confessions"
Anyone ever wondered why Roman Catholicism is so very different than True Christianity? Two brothers in Christ and I made some Scripture signs and then went around to different ROMAN "catholic" "churches". About the 5th "church" we went to was rather uneventful for the first hour or so, until an energetic and angry young priest came outside, forcefully confronting my 2 brothers, argueing and shouting right in their faces! As my Christian brothers stood their ground and argued back I found myself feeling much less than confident, as I anticipated his yelling at me! So, when the boisterous priest finished with his second victim, he quickly turned, saw my meager reticence, and then Shouted towards me as he quickly strode back inside his "church" : "I see there's HOPE for YOU!"
Well, I took that as an opening and took my brothers sound advice, stopping at the priest's "church" after work the next day, armed with my Bible , Scriptural questions from a Former priest, and a desire to find out as much as I could about ROME's roots from this priest of ROME!
We met 13 times, usually for an Hour or More, and the first sticking point came when I asked the so-called "FATHER" why ROME's "Mary" is called the "queen of heaven" when the ONLY time the Bible uses that name is in reference to BAAL's MOTHER, in Jeremiah 7:18 and 44:17-25!!!
He Confidently and Happily explained how, since Jesus was the LORD and KING of Heaven, that His mother SHOULD LOGICALLY and REASONABLY be entitled to the crowning "QUEEN of HEAVEN"
title!!
As I politely ignored his logic, REPEATEDLY pointing him back to the Scriptures, repeatedly showing him that the ONLY queen of heaven in the BIBLE Was and Is the mother of BAAL, the Sun God of Jeremiah, he finally FELL SILENT!!!
Then, after an extended and pregnant pause, he looked up, smiled a bit uncomfortably, and then started telling me about "An Ancient PAGAN MYTH about an ANGRY YOUNG GOD who Never Refused a Request of HIS MOTHER." As I just kept asking questions, it unfolded that these PAGANs were taught that there were 2 LADDERS Up To HEAVEN. One led up to the ANGRY YOUNG SUN/SON GOD, and the other ladder led up to the Much MORE: LOVING, COMPASSIONATE, MERCIFUL, FORGIVING AND UNDERSTANDING "Mother of God"!!!
The first ladder they believed went STRAIGNT UP, and was therefore VERY DIFFICULT to climb, since they had to be STRONG enough to Pull themselves ALL the way UP to HEAVEN!!!
Mark D. Griswold
Oneonta, NY USA - Sunday, November 24, 2002 at 04:45:52 (GMT)
"The Priest's Confessions"
Anyone ever wondered why Roman Catholicism is so very different than True Christianity? Two brothers in Christ and I made some Scripture signs and then went around to different ROMAN "catholic" "churches". About the 5th "church" we went to was rather uneventful for the first hour or so, until an energetic and angry young priest came outside, forcefully confronting my 2 brothers, argueing and shouting right in their faces! As my Christian brothers stood their ground and argued back I found myself feeling much less than confident, as I anticipated his yelling at me! So, when the boisterous priest finished with his second victim, he quickly turned, saw my meager reticence, and then Shouted towards me as he quickly strode back inside his "church" : "I see there's HOPE for YOU!"
Well, I took that as an opening and took my brothers sound advice, stopping at the priest's "church" after work the next day, armed with my Bible , Scriptural questions from a Former priest, and a desire to find out as much as I could about ROME's roots from this priest of ROME!
We met 13 times, usually for an Hour or More, and the first sticking point came when I asked the so-called "FATHER" why ROME's "Mary" is called the "queen of heaven" when the ONLY time the Bible uses that name is in reference to BAAL's MOTHER, in Jeremiah 7:18 and 44:17-25!!! (to be continued....)
Mark D. Griswold
Oneonta, NY USA - Sunday, November 24, 2002 at 04:18:51 (GMT)
I'm glad to know that I'm not a Freek. My system can't handle certain perfumes. They make me dizzy and sick. When this started two 1/2 years ago my boss and coworkers were not very understanding. I'm taking Nortriptyline which helps some, but I need the people in the workplace to be more considerate and not wear the perfumes. These scents take a toll on my body wearing me down.This Web site has informed me but I need a local person that can help me.
Cindy Witt Jordan
Forest, va USA - Wednesday, November 20, 2002 at 00:57:42 (GMT)
Thank you! Both of my children suffer from Severe Atopic Dermatitis. Haven't found a "cure" for it YET. Have tried so many things....We love the Weston Price Foundation for their nutritional advice, as well as Dr. Mercola's website. Anyone have any info to help kids with high IgG levels, allergies to so many foods and inhaled substances etc? Don't know where to turn next. Exhausted, yet hopeful and full of faith.
Laura Skarset
bellingham, wa USA - Monday, November 18, 2002 at 19:32:20 (GMT)
There are many non-toxic cleaning products out there but I found one that replaces all. Try http://nontoxicsoap.com . It's Great!!!
Allen
Ft Lauderdale, FL USA - Friday, November 15, 2002 at 18:57:59 (GMT)
Thanks for such a great and informative site!
Marie
IL USA - Tuesday, November 12, 2002 at 21:50:26 (GMT)
Thought you would find the following article interesting, particularly the last paragraph. http://www.wsws.org/articles/2002/oct2002/canc-o31.shtml
Diane
Beech Bluff, TN USA - Tuesday, November 12, 2002 at 16:18:09 (GMT)
"The Real Reason that Rome's 'Mary' is called the 'Queen of Heaven', according to a ROMANist Priest"
When I repeatedly asked a young priest why they call Jesus' mother the "Queen of Heaven" when that name ONLY appears in the Bible in the OLD Testament, in Jeremiah 7:18 and 44:17-25, he finally admitted that "There was an Ancient Pagan Myth about an Angry Young God, who Never refused a request of His MOTHER."
As I just kept asking questions, he said that: "According to this Myth, there were 2 ladders up to heaven. The first one went Straight Up to the Angry, Young Son GOD! And (he emphasized!) very few were Strong enough to Pull themselves ALL the Way UP to heaven!! "BUT", he continued, even IF they were STRONG enough to make it All the Way to the Top, they were taught that their knock on heaven's door might Wake UP or Disturb the ANGRY, Young GOD, who then, they were warned, would THROW OPEN heaven's door, ROAR, and Blow Back DOWN whoever was Presumptuous enough to Disturb HIM!!!
Then the priest relaxed and smiled, as he related how, according to this Ancient Pagan Myth, the Son God's Mother, referred to as the "queen of heaven" (aka 'mother of god') was believed to be Much More Loving, Compassionate, Merciful, Understanding and Forgiving! And, according to this MYTH, Her ladder was much more Gradual, and therefore Much Easier to climb! BUT," he emphasized, "even IF one was Not Strong enough to make it up this Much Easier ladder, as long as you had made enough Prayers and Sacrifices to the Merciful and Understanding 'MOTHER of GOD', she would even Climb Down Her ladder, pick you up in Her arms, Carry you Back UP to Heaven, AND would even Carry you over to Her ANGRY Young SON -- AND He could NOT Refuse a Request of His MOTHER!"
To make sure I had understood the priest, I said, in summary: "So these PAGANS believed that they were virtually guaranteed NOT to get to heaven IF they went through the Angry Young SON God, and felt that they were virtually guaranteed To Get In, IF they went through the LOVING, COMPASSIONATE, MERCIFUL MOTHER OF GOD, the Queen of Heaven?!"
And he smiled to see that I understood! (to be continued!!!)
Mark David Griswold
Oneonta, NY USA - Tuesday, November 12, 2002 at 02:04:02 (GMT)
First of all, let me say if any of you have any disease, the first thing is to keep serving the Lord with all your heart. He will give you the strength to get through it. If you don't know the Lord Jesus Christ as your Saviour, please email me and I would be glad to give you God's word to know Him as your personel Saviour. The second thing is I do have MCS and I was like the boy in the bubble once. But have come a long way in the last 5 years. We have a great big wondeful God!!! Please email me if you need help. God Bless, Faith
Faith
Va. USA - Monday, November 11, 2002 at 00:46:29 (GMT)
Hopefully helpful-many visitors mention touette syndrome so I recommend www.latitudes.org. God bless.
liv
USA - Sunday, November 10, 2002 at 06:11:14 (GMT)
Could you please provide with information regarding diseases transmitted by guinea pigs to childrens?
I have a 6 year old daughter, who develop a rash on both her knees, elbows, thighs and upper part of her feet.
I took her to her pedriatician yesterday and he gave me an ointment containing cortizone, however, no tests were run to determine why she had develop this rash.
Last week a few days before the rash she developed a fever that last it one full day, and her appetite has decreased. We bought her guinea pigs approximately three weeks ago, and I am afraid this is what is causing the itching and rash that she has developed. A week and 1/2 ago she was seen by the pedriatician and noticed she had a small ring worm behind her thigh.
I need more information, I fear the guinea pigs may be causing her rashes.
Thanks
Lety Carlucci
Lety Carlucci
Miami, Fl USA - Wednesday, November 06, 2002 at 17:35:33 (GMT)
Boycott Seventeen magazine
They have a purfume sample in every issue.
I notified them this was a problem for me and to stop
sending out subscription. They are continuing to send
it. This is just not right.
I asked the post office to stop putting it in my mail box
and they said they could not hold back just one piece of mail, but that he understood cause that maagazine makes
everyone at the post office ill as well.
May be they will understand a boycott, if not a kind
request to stop polluting my mailbox with toxins.
Tell all your friends.
mc
VT USA - Tuesday, November 05, 2002 at 22:10:58 (GMT)
Does anyone have information on Dental Aluminum Poisoning? Any personal testimonies on the Aluminum contained in "porcelain" crowns causing problems?
Debbie
Warren, TX USA - Monday, November 04, 2002 at 23:25:22 (GMT)
Perfume is killing me! Is there a support group in the Seattle area? Please put "perfume" in the subject line if you respond. Thanks
Candi
Federal Way, WA USA - Monday, October 28, 2002 at 19:04:33 (GMT)
My story is familiar to many of you--over the past six or seven years I have experienced various health problems due to fragrances and chemicals all about me--at work, primarily.
I am searching for those in Nevada who might be interested in supporting one another through listening, e-mailing, and offering information/suggestions (and understanding!) about this way of life.
Thank you.
Jeanette
Jeanette Nakada
Reno, NV USA - Monday, October 28, 2002 at 06:13:19 (GMT)
Looking for info on hazards of aluminum in "porcelain" crowns. According to Dr. Clark only safe dental material is "Targis" for fillings & Flexite for dentures.Allergic to perfume so cannot work. Debbie in Texas
Debbie Thompson
Warren, Tx USA - Thursday, October 24, 2002 at 21:43:58 (GMT)
I'm so glad I found your web site. Its very informative & I thank you so much for it. Its going to be really really difficult to stop using many of the toxic junk I use to clean with, etc. but I need to make an effort. I already knew these things were toxic, but its good to have the extra info. My daughter & I both have tourettes syndrome. I hope that by removing some of the poisons from our home will minimize symptoms. Thanks! Gayle
gayle J
riverside, ca USA - Wednesday, October 23, 2002 at 00:14:43 (GMT)
Just wanted to say that PERFUME is VERY bad - I always get sick when I smell it. Headachy and I feel like vomiting. Stay away from it for your health!!!
Melanie Ashraf
Orlando, Fl USA - Sunday, October 20, 2002 at 00:16:42 (GMT)
Thought you might like to see this;http://www.msnbc.com/news/702445.asp#BODY
D. Brown
USA - Thursday, October 17, 2002 at 16:05:19 (GMT)
Vermont has the right idea: examples: